References
- Algood, C. L., & Gourdine, R. M. (2015). African American caregivers raising children with disabilities: Doing more with less. In S. E. Crewe & C. Gadding- Cole (Eds.), Seasons of care: Practice and policy perspectives for social workers and human service professionals (pp. 127–141). Hauppauge, NY: Nova Science Publishers.
- Algood, C. L., Harris, C., & Hong, J. S. (2013). Parenting success and challenges for families of children with disabilities: An ecological systems analysis. Journal of Human Behavior in the Social Environment, 23(2), 126–136. doi:10.1080/10911359.2012.747408
- Annamma, S. A., Connor, D., & Ferri, B. (2013). Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability. Race Ethnicity and Education, 16(1), 1–31. doi:10.1080/13613324.2012.730511
- Asch, A. (2001). Critical race theory, feminism, and disability: Reflections on social justice and personal identity. Ohio St. LJ, 62, 391.
- Bell, D. (2009). Who’s afraid of Critical Race Theory? In E. Taylor, D. Gillborn, & G. Ladson-Billings (Eds.), Foundations of Critical Race Theory in Education (pp. 37–50). New York, NY: Routledge.
- Campbell, A., Converse, P. E., & Rodgers, W. (1975). The quality of American life-perceptions, evaluations, satisfactions. New York, NY: Russell Sage Foundation.
- Connor, D. J. (2008). Not so strange bedfellows: The promise of disability studies and critical race theory. In Disability and the politics of education: The international reader (pp. 451–476). New York, NY: Peter Lang.
- Crewe, S., & Wilson, R. (2007). Kinship care: From family tradition to social policy in the African American community. Journal of Health & Social Policy, 22(3/4), 1–7. doi:10.1300/J045v22n03_01
- Crewe, S. E., & Gadling- Cole, C. (Eds). (2015). Seasons of care: Practice and policy perspectives for social workers and human service professionals. Hauppauge, NY: Nova Science Publisher.
- Daly, A., Jennings, J., Beckett, J. O., & Leashore, B. R. (1995). Effective coping strategies of African Americans. Social Work, 40(2), 240–248.
- Dodd, C. H., Zabriskie, R. B., Midner, M. A., & Eggett, D. (2009). Contributions of family leisure to family among families that include children with developmental disabilities. Journal of Leisure Research, 41(2), 261–286. doi:10.1080/00222216.2009.11950169
- Duncan, G. A. (2002). Critical race theory and method: Rendering race in urban ethnographic research. Qualitative Inquiry, 8(1), 85–104. doi:10.1177/107780040200800106
- Dunst, C. J., Trivette, C. M., & Deal, A. G. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline Books.
- Emerson, E. (2007). Poverty and people with intellectual disabilities. Mental Retardation & Developmental Disabilities Research Reviews, 13(2), 107–113. doi:10.1002/mrdd.20144
- Erevelles, N., & Minear, A. (2010). Unspeakable offenses: Untangling race and disability in discourses of intersectionality. Journal of Literary & Cultural Disability Studies, 4(2), 127–145. doi:10.3828/jlcds.2010.11
- Ferguson, P. M. (2002). A place in the family: An historical interpretation of research on parental reactions to having a child with a disability. The Journal of Special Education, 36(3), 124–130. doi:10.1177/00224669020360030201
- Ghosh, S., & Parish, S. (2013). Prevalence and economic well-being of families raising multiple children with disabilities. Children and Youth Services Review, 35(9), 1431–1439. doi:10.1016/j.childyouth.2013.05.018
- Gourdine, R. M. (2007). Child only kinship care cases: The unintended consequences of TANF policies for families who have health problems and disabilities. Journal of Health & Social Policy, 22(3/4), 44–64.
- Gourdine, R. M., & Algood, C. L. (2014). Autism in the African American population. A comprehensive guide to autism. New York, NY: Springer Publishing.
- Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19(4), 417–425. doi:10.1007/s10882-007-9060-x
- Heward, W. L. (2006). Exceptional Children: An Introduction to Special Education (8th ed.). Upper Saddle River, NJ: Pearson.
- Ihara, E. S., Wolf-Branigin, M., & White, P. (2012). Quality of life and life skill baseline measures of urban adolescents with disabilities. Social work in public health, 27(7), 658–670. doi:10.1080/19371910903269596
- Kelley-Moore, J. A., & Ferraro, K. F. (2004). The black/white disability gap: Persistent inequality in later life? Journal of Gerontology: Social Sciences, 59(1), 34–43. doi:10.1093/geronb/59.1.S34
- King, S., Teplicky, R., King, G., & Rosenbaum, P. (2004). Family-centered services for children with cerebral palsy and their families: A review of the literature. Seminars in Pediatric Neurology, 11(1), 78–86.
- King, S. V. (1998). The beam in thine eye: Disability and the Black church. Western Journal of Black Studies, 22(1), 37–48.
- Krahn, G. L., Walker, D. K., & Correa-De-Araujo, R. (2015). Persons with disabilities as an unrecognized health disparity population. American journal of public health, 105(S2), S198–S206. doi:10.2105/AJPH.2014.302182
- Mackelprang, R. W., & Salsgiver, R. O. (2016). Disability: A diversity model approach in human service practice (2nd ed.). Pacific Grove, CA: Brooks/Cole.
- Magaña, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012). Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities. Journal of Intellectual & Developmental Disabilities, 50(4), 287–299. doi:10.1352/1934-9556-50.4.287
- Marini, I., Glover-Graf, N. M., & Millington, M. (2012). Psychosocial aspects of disability. New York, NY: Springer.
- McCubbin, H. I., & Thompson, A. I. (1991). Coping h and Practice. Madison: University of Wisconsin Madison.
- McCubbin, M. A., & Huang, S. T. T. (1989). Family strengths in the care of handicapped children: Targets for intervention. Family Relations, 38, 436–443. doi:10.2307/585750
- Neeley-Barnes, S., & Marcenko, M. (2004). Predicting impact of childhood disability on families: Results from the 1995 national health interview survey disability supplement. Mental Retardation, 42(4), 284–293. doi:10.1352/0047-6765(2004)42<284:PIOCDO>2.0.CO;2
- Newacheck, P. W., Stein, R. E. K., & Bauman, L. (2003). Disparities in the prevalence of disability between Black and White children. Archives of Pediatric Adolescent Medicine, 157, 244–248. doi:10.1001/archpedi.157.3.244
- Okumura, M. J., Saunders, M., & Rehm, R. S. (2015). The role of health advocacy in transitions from pediatric to adult care for children with special health care needs: bridging families, provider and community services. Journal of pediatric nursing, 30(5), 714–723. doi:10.1016/j.pedn.2015.05.015
- Parish, S., & Cloud, J. (2006). Financial well-being of young children with disabilities and their families. Social Work, 51(3), 223–232.
- Parish, S., & Lutwick, Z. (2005). A Critical analysis of the emerging crisis in long-term care for people with developmental disabilities. Social Work, 50(4), 345–354. Retrieved from Academic Search Premier database
- Parish, S., Rose, R., Grinatein-Weiss, M., Richman, E., & Andrews, M. (2008). Material hardship in US families raising children with disabilities. Exceptional Children, 75(1), 71–92. Retrieved from Academic Search Premier database. doi:10.1177/001440290807500104
- Park, J., Turnbull, A. P., & Turnbull, III. (2002). Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children, 68(2), 151–172.
- Pinn-Wiggins, V. W. (1990). Recognition of the plight of minorities in the educational process and health care system. Journal of the National Medical Association, 82(5), 333.
- Popple, P. R., & Leighninger, L. (2005). Social work, social welfare, and American society (6th ed.). New York, NY: Allan Bacon.
- Poston, D. J., Turnbull, A. P., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life outcomes: A qualitative inquiry launching a long-term research program. Mental Retardation, 41, 313–328. doi:10.1352/0047-6765(2003)41<313:FQOLAQ>2.0.CO;2
- Renzaglia, A., Karvonen, M., Drasgow., E., & Stoxen, C. C. (2003). Promoting a lifetime of inclusion. Focus on Autism and other developmental disabilities, 18(3), 140–149. doi:10.1177/10883576030180030201
- Resch, J. A., Mireles, G., Benz, M. R., Grenwelge, C., Peterson, R., & Zhang, D. (2010). Giving parents a voice: A qualitative study of the challenges experienced by parents of children with disabilities. Rehabilitation Psychology, 55(2), 139–150. doi:10.1037/a0019473
- Samuel, P. S., Rillotta, F., & Brown, I. (2012). Review: The development of family quality of life concepts and measures. Journal of Intellectual Disability Research, 56(1), 1–16. doi:10.1111/j.1365-2788.2011.01486.x
- Seligman, M., & Darling, R. B. (2017). Ordinary families, special children: A systems approach to childhood disability. New York: Guilford Publications.
- Skiba, R., Poloni-Staudinger, L., Gallini, S., Simmons, A., & Feggins-Azziz, R. (2008). Disparate access: The disproportionally of African American students with disabilities across educational environments. Exceptional Children, 72(4), 411–424. doi:10.1177/001440290607200402
- Smith, D. L., & Alston, R. J. (2009). The relationship of race and disability to life satisfaction in the United States. Journal of Rehabilitation, 75(12), 3–9.
- Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, M., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49(1), 777–780. doi:10.1111/j.1365-2788.2005.00751.x
- Taylor, E. (1998). A primer on critical race theory: Who are the critical race theorists and what are they saying? The journal of blacks in higher education, 122. doi:10.2307/2998940
- Taylor, R., Seaton, E., & Dominguez, A. (2008). Kinship support, family relations, and psychological adjustment among low-income African American mothers and adolescents. Journal of Research on Adolescence, 18(1), 1–22. doi:10.1111/jora.2008.18.issue-1
- Terhune, P. S. (2005). African-American developmental disability discourses: Implications for social policy. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 18–28. doi:10.1111/j.1741-1130.2005.00004.x
- Trachtenberg, S. W., Batshaw, K., & Batshaw, M. (2007). Caring and coping: Helping the family of a child with a disability. In M. L. Batshaw, L. Pellegrino, & N. J. Roizen (Eds.), Children with Disabilities (6th ed.), (pp. 601–612). Baltimore, MD: Paul H. Brookes.
- Wang, M., & Brown, R. (2009). Family quality of life: A framework for policy and social service provisions to support families of children with disabilities. Journal of Family Social Work, 12(2), 144–167. doi:10.1080/10522150902874842
- Werner, S., Edwards, M., Baum, N., Brown, I., Brown, R. I., & Isaacs, B. J. (2009). Family quality of life among families with a member who has an intellectual disability: an exploratory examination of key domains and dimensions of the revised FQOL Survey. Journal of Intellectual Disability Research, 53(6), 501–511. doi:10.1111/j.1365-2788.2009.01164.x
- Wituk, S., Pearson, R., Bomhoff, K., Hinde, M., & Meissen, G. (2007). A Participatory process involving people with development disabilities in community development. Journal of Developmental & Physical Disabilities, 19(4), 323–335. doi:10.1007/s10882-007-9052
- Wolfensenberger. (1972). Normilization: The Principles of Normilization in human services. Toronto, Canada: National Institute on Mental Retardation.
- Yell, M. L., Rogers, D., & Rogers, E. L. (1998). The Legal History of Special Education What a Long, Strange Trip It’s Been! Remedial and Special Education, 19(4), 219–228. doi:10.1177/074193259801900405