“Our Unified Voice to Implement Change and Advance the View of Young Carers and Young Adult Carers.” An Appreciative Evaluation of the Impact of a National Young Carer Health Champions Programme

References

• Acharyia, A. S., Prakash, A., Saxena, P., & Nigam, A. (2013). Sampling: Why and how of it? Indian Journal of Medical Specialities, 4(2), 330–333.
   Google Scholar
• Aldridge, J. (2017). Where are we now? Twenty-five years of research, policy and practice on young carers. Critical Social Policy, 38(1), 155–165. Retrieved October 29, 2019, from https://journals.sagepub.com/doi/full/10.1177/0261018317724525.
   Web of Science ®Google Scholar
• Bernard, H. R. (2002). Research Methods in Anthropology: Qualitative and quantitative methods (3rd ed.). Walnut Creek, California: Altamira Press.
   Google Scholar
• Better Evaluation. (2021) Realist evaluation at Retrieved October 04, 2021, from https://www.betterevaluation.org/en/approach/realist_evaluation
   Google Scholar
• Blake-Holmes, K. (2019). Young adult carers: Making choices and managing relationships with a parent with a mental illness. Advances in Mental Health. doi:10.1080/18387357.2019.1636691
   Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• The Carer’s Trust. (2019). About young carers. The Carer’s trust. Retrieved October 29, 2019, from https://carers.org/about-us/about-young-carers
   Google Scholar
• Chikhradze, N., Knecht, C., & Metzing, S. (2017). Young Carers: Growing up with chronic illness in the family – A systematic review 2007-2017. Journal of Compassionate Health Care, 4(1), 12. doi:10.1186/s40639-017-0041-3
   Google Scholar
• The Children’s Society. (2013). Hidden from View: The experiences of young carers in England. Retrieved June 28, 2018, from https://www.childrenssociety.org.uk/what-we-do/resources-and-publications/publications-library/hidden-view
   Google Scholar
• The Children’s Society. (2018). Young carers. Retrieved June 28, 2018, from https://www.childrenssociety.org.uk/what-we-do/helping-children/young-carers
   Google Scholar
• Clay, D., Connors, C., Day, N., Gkiza, M., & Aldridge, J.(2016) The lives of young carers in England. Qualitative report to the Department for Education, Department for Education. DFE-RR499. Retrieved October 29, 2019, from
   Google Scholar
• Cooperinder, D.L. and Whitney, D. (2001). A positive revolution in change. In Cooperinder, D.L., Sorensen, P. , Whitney, D. and Yeager, T. (Eds.), Appreciative Enquiry:An emerging direction for organisation development. Champaign. IL: Stipes.
   Google Scholar
• Cooperrider, D. L., & Srivastva, S. (1987). Appreciative inquiry in organizational life. Research in Organizational Change and Development, 1, 129–169.
   Google Scholar
• Coram. (2018). A better relationship with learning: An evaluation of the Young carers in Schools Programme. Retrieved February 27, 2020, from https://www.coram.org.uk/sites/default/files/resource_files/Carers%20Trust%20evaluation%20report.pdf
   Google Scholar
• Flyvberg, B. (2006). Five misunderstandings about case study research. Qualitative Inquiry, 12(2), 219–245. doi:10.1177/1077800405284363
   Web of Science ®Google Scholar
• Guba, E. and Lincoln, Y. (1989). Fourth Generation Evaluation. Sage: Newbury Park, California, Sage.
   Google Scholar
• Hoyt, M. A., Mazza, M. C., Ahmad, Z. Darabos, , K. (2020). Sleep quality in young adult informal caregivers: Understanding psychological and biological processes. International Journal of Behavioral Medicine. Retrieved February 27, 2020, from doi: 10.1007/s12529-019-09842-y.
   PubMed Web of Science ®Google Scholar
• Joseph, S. (2013). Young carers. Are there benefits in caring? Psychology Today. https://www.psychologytoday.com/gb/blog/what-doesnt-kill-us/201307/young-carers
   Google Scholar
• Joseph, S., Becker, S., Becker, F., & Regel, S. (2009). Assessment of caring and it’s effects in young people: Development of the Multidimensional Assessment of Caring Activities Checklist (MACA-YC18) and the Positive and Negative Outcomes of Caring Questionnaire (PANOC-YC20) for young carers. Child: Care, Health and Development, 35(4): 510–520. Retrieved February 27, 2020, from doi: 10.1111/j.1365-2214.2009.00959.x.
   PubMed Web of Science ®Google Scholar
• Joseph, S., Sempick, J., Leu, A., & Becker, S. 2019. Young carers research, practice and policy: An overview and critical perspective on possible future directions. Adolescent Research Review, Retrieved October 29, 2019, from doi: 10.1007/s40894-019-00119-9.
   Web of Science ®Google Scholar
• Leu, A., & Becker, S. (2019). Young carers. In H. Montgomery (Ed.), Oxford bibliographies in childhood studies. New York: Oxford University Press.
   Google Scholar
• McCormack, L., White, S.and Cuenca, J. (2017). A fractured journey of growth:making meaning of a ”Broken” childhood and parental mental ill-health. Community Work and Family, 20(3), 1–19.
   Web of Science ®Google Scholar
• NatCen. (2020). Review of best practice in the identification of young carers. (unpublished). Retrieved February 27, 2020, from http://natcen.ac.uk/taking-part/studies-in-field/review-of-best-practice-in-the-identification-of-young-carers/about/
   Google Scholar
• Pawson, R., & Tilley, N. (1997). Realistic Evaluation. London, UK: Sage Publications.
   Google Scholar
• Phelps, D. (2019). Supporting young carers: Evaluation of the Young Carers Alliance (HYCA) – Impact on Young Carers. University of Winchester. Retrieved March 06, 2020, from https://cris.winchester.ac.uk/ws/portalfiles/portal/2971422/20200115_MASTER_REPORT_IMPACT.pdf
   Google Scholar
• Preskill, H., & Catsambas, T. T. (2006). Reframing evaluation through appreciative inquiry. Thousand Oaks, California: Sage Publications.
   Google Scholar
• Robinson, O. C. (2014). Sampling in interview-based qualitative research: A theoretical and practical guide. Qualitative Research in Psychology, 11(1), 25–41. doi:10.1080/14780887.2013.801543
   Web of Science ®Google Scholar
• Robison, O.(2017). No future: Young carers are sacrificing ambitions to look after loved ones. The Conversation. Retrieved February 27, 2020, from https://theconversation.com/no-future-young-carers-are-sacrificing-ambitions-to-look-after-loved-ones-83947?gclid=EAIaIQobChMI5Lvjtsjx5wI
   Google Scholar
• Robson, E., Ansell, N., Huber, U. S., Gould, W. T., & van Blerk, L. (2006). Young caregivers in the context of the HIV/AIDS pandemic in sub-Saharan Africa. Population, Space and Place, 12(2), 93–111. Cited in Aldridge, J. (2017) Where are we now? Twenty-five years of research, policy and practice on young carers. Critical Social Policy. Volume: 38 issue: 1, page(s): 155-165. Retrieved October 29, 2019, from https://journals.sagepub.com/doi/full/10.1177/0261018317724525
   Web of Science ®Google Scholar
• Royal College of General Practitioners. (2014). Involving and supporting carers and families: An educational framework and learning resource for GPs and primary care teams. London, UK: RCGP. Retrieved February 27, 2020, from http://www.rcgp.org.uk/clinical-and-research/clinical-resources/carers-support.aspx
   Google Scholar
• Social Value U.K. (2019). What is social value? Retrieved April 23, 2019, from http://www.socialvalueuk.org/what-is-social-value/
   Google Scholar
• Wong, S. (2017). Young carers in the NHS. British Journal of General Practice, 67(664): 527–528. Retrieved October 29, 2019, from doi: 10.3399/bjgp17X693425.
   PubMed Web of Science ®Google Scholar