References
- Amzat, J., and O. Razum. 2018. Towards a Sociology of Health Discourse in Africa. Cham: Springer.
- Baldacchino, D. 2015. “Spiritual Care Education of Health Care Professionals.” Religions 6 (2): 594–613. doi:https://doi.org/10.3390/rel6020594.
- Baldwin-Ragaven, L. 2020. “Social Dimensions of COVID-19 in South Africa: A Neglected Element of the Treatment Plan.” Wits Journal of Clinical Medicine 2 (SI): 33–38. doi:https://doi.org/10.18772/26180197.2020.v2nSIa6.
- Best, M., C. Leget, A. Goodhead, and P. Paal. 2020. “An EAPC White Paper on Multi-Disciplinary Education for Spiritual Care in Palliative Care.” BMC Palliative Care 19: 9. doi:https://doi.org/10.1186/s12904-019-0508-4.
- Bogopa, D. 2010. “Health and Ancestors: The Case of South Africa and Beyond.” Indo-Pacific Journal of Phenomenology 10 (1): 1–7. doi:https://doi.org/10.2989/IPJP.2010.10.1.8.1080.
- Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:https://doi.org/10.1191/1478088706qp063oa.
- Chandramohan, S., and R. Bhagwan. 2016. “Utilization of Spirituality and Spiritual Care in Nursing Practice in Public Hospitals in KwaZulu-Natal, South Africa.” Religions 7 (3): 23. doi:https://doi.org/10.3390/rel7030023.
- Coetzee, B., A. Kagee, and R. Bland. 2016. “Shortcomings of Adherence Counselling Provided to Caregivers of Children Receiving Antiretroviral Therapy in Rural South Africa.” AIDS Care 28 (sup2): 60–65. doi:https://doi.org/10.1080/09540121.2016.1176675.
- Connor, S. R. 2018. Hospice and Palliative Care. New York: Routledge.
- Coovadia, H., R. Jewkes, P. Barron, D. Sanders, and D. McIntyre. 2009. “The Health and Health System of South Africa: Historical Roots of Current Public Health Challenges.” The Lancet 374 (9692): 817–834. doi:https://doi.org/10.1016/S0140-6736(09)60951-X.
- Crisp, B. R. 2018. “Religion, Spirituality and Social Work: An International Perspective.” International Journal of Human Rights in Healthcare 11 (2): 91–99.
- Dalal, S., J. J. Beunza, J. Volmink, C. Adebamowo, F. Bajunirwe, M. Njelekela, D. Mozaffarian, et al. 2011. “Non-Communicable Diseases in Sub-Saharan Africa: What We Know Now.” International Journal of Epidemiology 40 (4): 885–901. doi:https://doi.org/10.1093/ije/dyr050.
- Daute, H., M. d’Archangelo, and D. Duquette. 2019. “Spiritual Care Training in Health Care: Does it Really Have an Impact?” Palliative & Supportive Care 17: 129–137.
- De la Porte, A. 2016. “Spirituality and Healthcare: Towards Holistic People-Centred Healthcare in South Africa.” HTS Teologiese Studies/Theological Studies 72 (4): 1–9. doi:https://doi.org/10.4102/hts.v72i4.3127.
- Drenth, C., Z. Sithole, E. Pudule, S. Wust, N. GunnClark, and L. Gwyther. 2018. “Palliative Care in South Africa.” Journal of Pain and Symptom Management 55: S170–S177.
- Emmer, R., and P. Browne. 1984. “Program Helps Nurses Develop Spiritual Care Skills.” Hospital Progress 65 (2): 64–66.
- Farahani, A. S., M. Rassouli, N. Salmani, L. K. Mojen, M. Sajjadi, M. Heidarzadeh, Z. Masoudifar, and F. Khademi. 2019. “Evaluation of Health-Care Providers’ Perception of Spiritual Care and the Obstacles to its Implementation.” Asia-Pacific Journal of Oncology Nursing 6 (2): 122–129.
- Fusheini, A., and J. Eyles. 2016. “Achieving Universal Health Coverage in South Africa Through a District Health System Approach: Conflicting Ideologies of Health Care Provision.” BMC Health Services Research 16: 558. doi:https://doi.org/10.1186/s12913-016-1797-4.
- Gardner, F. 2020. “Adding Critical Reflection to Spiritual Care: Complementing Current Pastoral Care Training.” Journal for the Study of Spirituality 10 (2): 127–139. doi:https://doi.org/10.1080/20440243.2020.1812885.
- Gratz, M., P. Paal, M. Emmelmann, and T. Roser. 2016. “Spiritual Care in the Training of Hospice Volunteers in Germany.” Palliative and Supportive Care 14: 532–540.
- Gwyther, L., R. Krause, C. Cupido, J. Stanford, H. Grey, T. Credé, A. De vos, J. Arendse, and P. Raubenheimer. 2018. “The Development of Hospital-Based Palliative Care Services in Public Hospitals in the Western Cape, South Africa.” South African Medical Journal 108: 86–89.
- Hollway, W., and T. Jefferson. 1997. “Eliciting Narrative Through the In-depth Interview.” Qualitative Inquiry 3 (1): 53–70. doi:https://doi.org/10.1177/107780049700300103.
- James, P. B., J. Wardle, A. Steel, and J. Adams. 2018. “Traditional, Complementary and Alternative Medicine Use in Sub-Saharan Africa: A Systematic Review.” BMJ Global Health 3 (5), e000895. doi:https://doi.org/10.1136/bmjgh-2018-000895.
- Jones, K. F., J. Pryor, C. Care-Unger, and G. Simpson. 2020. “‘Spirituality is Everybody’s Business’: An Exploration of the Impact of Spiritual Care Training upon the Perceptions and Practice of Rehabilitation Professionals.” Disability and Rehabilitation, 1–10. doi:https://doi.org/10.1080/09638288.2020.1820586.
- Kagee, A., J. Nothling, and B. Coetzee. 2012. “The Perspectives of Users of Antiretroviral Therapy on Structural Barriers to Adherence in South Africa.” South African Family Practice 54 (6): 540–544. doi:https://doi.org/10.1080/20786204.2012.10874289.
- Kaunda, C. J. 2017. “Hijacking Subaltern’s History (Broken Bodies, Broken Voices): Decolonial Critique of ‘Subaltern Whiteness’ in South Africa.” HTS Teologiese Studies/Theological Studies 73 (3): a4619. doi:https://doi.org/10.4102/hts.v73i3.4619.
- Kimera, E., S. Vindevogel, J. De Maeyer, D. Reynaert, A.-M. Engelen, F. Nuwaha, J. Rubaihayo, and J. Bilsen. 2019. “Challenges and Support for Quality of Life of Youths Living with HIV/AIDS in Schools and Larger Community in East Africa: A Systematic Review.” Systematic Reviews 8 (1): 64. doi:https://doi.org/10.1186/s13643-019-0980-1.
- Koenig, H. G. 2014. “The Spiritual Care Team: Enabling the Practice of Whole Person Medicine.” Religions 5 (4): 1161–1174.
- Kruizinga, R., M. Scherer-Rath, H. J. B. A. M. Schilderman, C. M. Puchalski, and H. H. W. M. van Laarhoven. 2018. “Toward a Fully Fledged Integration of Spiritual Care and Medical Care.” Journal of Pain and Symptom Management 55 (3): 1035–1040. doi:https://doi.org/10.1016/j.jpainsymman.2017.11.015.
- Mahilall, R., and L. Swartz. Under review. “‘I am Dying a Slow Death of White Guilt’: Spiritual Carers in a South African Hospice Navigate Issues of Cultural Diversity”.
- Mahilall, R., and L. Swartz. 2021. “Challenges and Opportunities for Spiritual Care Practice in Hospices in a Middle-Income Country.” BMC Palliative Care, 20, 62. https://doi.org/https://doi.org/10.1186/s12904-021-00756-9
- Mason, S., P. Paal, F. Elsner, C. Payne, J. Ling, A. Noguera, and D. Mosoiu. 2020. “Palliative Care for all: An International Health Education Challenge.” Palliative & Supportive Care, 1–3. doi:https://doi.org/10.1017/S1478951520000188.
- McCaffrey, N., S. Bradley, J. Ratcliffe, and D. C. Currow. 2016. “What Aspects of Quality of Life are Important from Palliative Care Patients’ Perspectives? A Systematic Review of Qualitative Research.” Journal of Pain and Symptom Management 52 (2): 318–328.e5. doi:https://doi.org/10.1016/j.jpainsymman.2016.02.012.
- Mpanga Sebuyira, L. 2006. “Overview of HIV and Palliative Care.” In A Clinical Guide to Supportive and Palliative Care for HIV/AIDS in Sub-Saharan Africa, edited by L. Gwyther, A. Merriman, L. Mpanga Sebuyira, and H. Schietinger, 9e25. Kampala: African Palliative Care Association.
- Mpanga Sebuyira, L., F. Mwangi-Powell, J. Pereira, and C. Spence. 2003. “The Cape Town Palliative Care Declaration: Home-Grown Solutions for Sub-Saharan Africa.” Journal of Palliative Medicine 6 (3): 341–343. doi:https://doi.org/10.1089/109662103322144646.
- Mthembu, T. G., L. Wegner, and N. V. Roman. 2016. “Teaching Spirituality and Spiritual Care in Health Sciences Education: A Systemic Review.” African Journal of Physical Activity and Health Sciences 22 (4:1): 1036–1057.
- Munthali, A. C. 2006. “Health Problems That Require no “Medication”: The Case of Ancestor-Related Illnesses among the Tumbuka of Northern Malawi.” Nordic Journal of African Studies 15 (3): 367–379.
- Ojagbemi, A., and O. Gureje. 2020. “The Importance of Faith-Based Mental Healthcare in African Urbanized Sites.” Current Opinion in Psychiatry 33 (3): 271–277. doi:https://doi.org/10.1097/YCO.0000000000000590.
- Oman, D., ed. 2018. Why Religion and Spirituality Matter for Public Health: Evidence, Implications, and Resources. New York: Springer.
- Omenka, O. I., D. P. Watson, and H. C. Hendrie. 2020. “Understanding the Healthcare Experiences and Needs of African Immigrants in the United States: A Scoping Review.” BMC Public Health 20 (1): 1–13. doi:https://doi.org/10.1186/s12889-019-8127-9.
- Omotoso, K. O., and S. F. Koch. 2018. “Assessing Changes in Social Determinants of Health Inequalities in South Africa: A Decomposition Analysis.” International Journal for Equity in Health 17 (1): 181. doi:https://doi.org/10.1186/s12939-018-0885-y.
- Paal, P., C. Brandstötter, S. Lorenzl, P. Larkin, and F. Elsner. 2019. “Postgraduate Palliative Care Education for all Healthcare Providers in Europe: Results from an EAPC Survey.” Palliative & Supportive Care, 1–12. doi:https://doi.org/10.1017/S1478951518000986.
- Powell, R. A., J. Downing, L. Radbruch, F. N. Mwangi-Powell, and R. Harding. 2008. “Advancing Palliative Care Research in Sub-Saharan Africa: From the Venice Declaration, to Nairobi and Beyond.” Palliative Medicine 22: 885–887. doi:https://doi.org/10.1177/0269216308098094.
- Procewicz, A., M. Nielsen-Pincus, G. Brown, and R. Schnitzer. 2012. “An Evaluation of Internet Versus Paper-Based Methods for Public Participation Geographic Information Systems (PPGIS).” Transactions in GIS 16 (1): 39–53. doi:https://doi.org/10.1111/j.1467-9671.2011.01287.x.
- Puchalski, C., B. Ferrell, R. Virani, S. Otis-Green, P. Baird, J. Bull, H. Chochinov, et al. 2009. “Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference.” Journal of Palliative Medicine 12 (10): 885–904. doi:https://doi.org/10.1089/jpm.2009.0142.
- Puchalski, C. M., and M. Guenther. 2012. “Restoration and Re-Creation: Spirituality in the Lives of Healthcare Professionals.” Current Opinion in Supportive and Palliative Care 6 (2): 254–258.
- Puchalski, C., N. Jafari, H. Buller, T. Haythorn, C. Jacobs, and B. Ferrell. 2020. “Interprofessional Spiritual Care Education Curriculum: A Milestone Toward the Provision of Spiritual Care.” Journal of Palliative Medicine 23 (6): 777–784. doi:https://doi.org/10.1089/jpm.2019.0375.
- Puchalski, C. M., R. Vitillo, S. K. Hull, and N. Reller. 2014. “Improving the Spiritual Dimension of Whole Person Care: Reaching National and International Consensus.” Journal of Palliative Medicine 17 (6): 642–656.
- Republic of South Africa. 2017a. National Department of Health. National Policy Framework and Strategy on Palliative Care, South Africa, 2017–2022. Accessed November 15, 2020. file:///C:/Users/User/Downloads/Final%20NPFSPC%20August%202017%20(2).pdf.
- Republic of South Africa. 2017b. The Constitution of the Republic of South Africa. Accessed November 1, 2020. http://www.gov.za/DOCUMENTS/CONSTITUTION/constitution-repubic-south-africa-1996-1.
- Roman, N. V., T. G. Mthembu, and M. Hoosen. 2020. “Spiritual Care – ‘A Deeper Immunity’ – A Response to Covid-19 Pandemic.” African Journal of Primary Health Care & Family Medicine 12 (1): e1–e3. doi:https://doi.org/10.4102/phcfm.v12i1.2456.
- Ross, L., T. Giske, R. van Leeuwen, D. Baldacchino, W. McSherry, A. Narayanasamy, P. Jarvis, and A. Schep-Akkerman. 2016. “Factors Contributing to Student Nurses’/Midwives’ Perceived Competency in Spiritual Care.” Nurse Education Today 36: 445–451.
- Selman, L., P. Speck, R. C. Barfield, M. Gysels, I. J. Higginson, and R. Harding. 2014. “Holistic Models for End of Life Care: Establishing the Place of Culture.” Progress in Palliative Care 22 (2): 80–87. doi:https://doi.org/10.1179/1743291X13Y.0000000063.
- Spiritual Health Association. 2020. Capability Framework for Spiritual Care Practitioners in Health. Melbourne, Australia. https://spiritualhealth.org.au/standards.
- Steinhauser, K. E., G. Fitchett, G. F. Handzo, K. S. Johnson, H. G. Koenig, K. I. Pargament, C. M. Puchalski, et al. 2017. “State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes.” Journal of Pain and Symptom Management 54 (3): 428–440. doi:https://doi.org/10.1016/j.jpainsymman.2017.07.028.
- Swartz, L. 1985. “Issues for Cross-Cultural Psychiatric Research in South Africa.” Culture, Medicine & Psychiatry 9: 59–74. doi:https://doi.org/10.1007/BF00048537.
- Swartz, L., J. Bantjes, H. Lourens, and B. Watermeyer. 2020. “Disability: The Forgotten Side of Race Science.” In Fault Lines: A Primer on Race, Science and Society, edited by J. Jansen, and C. Walters, 145–159. Stellenbosch: AFRICAN SUN MeDIA.
- Tan, H., B. Rumbold, F. Gardner, D. Glenister, A. Forrest, and L. Bowen. 2020. “How is Spiritual Care/Pastoral Care Understood and Provided in General Hospitals in Victoria, Australia? – Staff Perspectives.” Journal for the Study of Spirituality 10 (2): 114–126. doi:https://doi.org/10.1080/20440243.2020.1812886.
- Volmink, J., and L. Dare. 2005. “Addressing Inequalities in Research Capacity in Africa.” BMJ 331: 705–706. doi:https://doi.org/10.1136/bmj.331.7519.705.
- Watermeyer, B., and L. Swartz. 2016. “Disablism, Identity and Self: Discrimination as a Traumatic Assault on Subjectivity.” Journal of Community & Applied Social Psychology, 26 (3): 268–276.
- World Health Organization. 2014. “Strengthening of Palliative Care as a Component of Integrated Treatment Throughout the Life Course.” Journal of Pain & Palliative Care Pharmacotherapy 28 (2): 130–134. doi:https://doi.org/10.3109/15360288.2014.911801.