Perspective of relatives on restrictions applied to their family members with moderate intellectual disability

References

• American Psychiatric Association (APA). 1994. Diagnostic and statistical manual of mental disorders. 4th ed. Washington, D.C.: American Psychiatric Association.
   Google Scholar
• American Psychiatric Association (APA). 2013. Diagnostic and statistical manual of mental disorders. 5th ed. Washington, D.C.: American Psychiatric Association.
   Google Scholar
• Berghmans, R. 1992. Om bestwil: Paternalisme in de psychiatrie: een gezondheidsethische studie [In own interest: Paternalism in psychiatry]. Amsterdam, Netherlands: Thesis Publishers.
   Google Scholar
• Braun, V. and Clarke, V. 2006. Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.
   Google Scholar
• Care and Coercion Act. 2018. Wet zorg en dwang psychogeriatrische en verstandelijk gehandicapte cliënten [Care and Coercion Act for people with psycho-geriatric disorders and intellectual disabilities] [Viewed 15 January 2018]. Available at: http://www.eerstekamer.nl.
   Google Scholar
• Dörenberg, V., Embregts, P., VAN Nieuwenhuijzen, M. and Frederiks, B. 2013. Oog voor vrijheid. Kwaliteitscriteria voor vrijheidsbeperking in de zorg voor jongeren en jongvolwassenen met een lichte verstandelijke beperking [Eye for freedom]. Leiden, Netherlands: Hogeschool Leiden.
   Google Scholar
• Elford, H., Beail, N. and Clarke, Z. 2010. A very fine line: Parents’ experiences of using restraint with their adult son/daughter with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 23, 75–84.
   Web of Science ®Google Scholar
• Herps, M., Buntinx, W., Schalock, R., Breukelen, G., and Curfs, L. 2016. Individual support plans of people with intellectual disabilities in residential services: Content analysis of goals and resources in relation to client characteristics. Journal of Intellectual Disability Research, 60, 254–262.
   PubMedGoogle Scholar
• Hertogh, C., The, A., Miesen, B. and Eefsting, J. 2004. Truth telling and truthfulness in the care for patients with advanced dementia: An ethnographic study in Dutch nursing homes. Social Science & Medicine, 59, 685–1693.
   Web of Science ®Google Scholar
• Heyvaert, M., Saenen, L., Maes, B. and Onghena, P. 2015. Systematic review of restraint interventions for challenging behavior among persons with intellectual disabilities: Focus on experiences. Journal of Applied Research in Intellectual Disabilities, 28, 61–80.
   PubMed Web of Science ®Google Scholar
• Lippold, T. and Burns, J. 2009. Social support and intellectual disabilities: A comparison between social networks of adults with intellectual disability and those with physical disability. Journal of Intellectual Disability Research, 53, 463–473.
   PubMed Web of Science ®Google Scholar
• Miles, M., Huberman, A. and Saldana, J. 2014. Qualitative data analysis: a methods sourcebook. 3rd ed. Los Angeles: Sage.
   Google Scholar
• Muhr, T. 2005. Atlas.ti: the knowledge workbench (version 5.0.66). 3rd ed. London: Scolari/Sage.
   Google Scholar
• National Institute for Health and Care Excellence (NICE). 2019. NICE guidance, overarching principles [Vewed 20 September 2019]. Available at: <http://www.nice.org.uk>.
   Google Scholar
• Palys, T. 2008. Purposive sampling. In: L. Given, ed. The Sage encyclopedia of qualitative research methods. Los Angeles: Sage Publications, pp. 697–698.
   Google Scholar
• Taylor, W., Cobigo, V. and Ouellette-Kuntz, H. 2019. A family systems perspective on supporting self‐determination in young adults with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 32, 1116–1128.
   PubMed Web of Science ®Google Scholar
• Tonkens, E. and Weijers, I. 1999. Autonomy, solidarity, and self-realization: Policy views of Dutch service providers. Mental Retardation, 37, 468–476.
   PubMedGoogle Scholar
• United Nations (UN). 2006. Disability convention: Convention on the rights of persons with disability [Viewed 15 January 2017]. Available at: <http://www.un.org/disabilities/convention>.
   Google Scholar
• United Nations Convention on the Rights of Persons with Disabilities (UNCORPD) 2012. [Viewed October 2018]. Available at: <//www.un.org/development/>.
   Google Scholar
• van der Meulen, A., Hermsen, M. and Embregts, P. 2018a. Restraints in daily care for people with moderate intellectual disabilities. Nursing Ethics, 25, 54–68.
   PubMed Web of Science ®Google Scholar
• van der Meulen, A., Taminiau, E., Hertogh, C. and Embregts, P. 2018b. How do people with moderate intellectual disability evaluate restrictions in daily care? International Journal of Developmental Disabilities, 64, 158–165.
   PubMed Web of Science ®Google Scholar
• Verdugo, M., Navas, P., Gomez, L. and Schalock, R. 2012. The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 11, 1036–1045.
   Google Scholar
• Verkerk, M. 2001a. The care perspective and autonomy. Medicine, Health Care, and Philosophy, 4, 289–294.
   PubMedGoogle Scholar
• Verkerk, M. 2001b. Over drang als goed zorgen. Een zorgethische beschouwing [Urge as a measure for good care]. Tijdschrift Voor Geneeskunde en Ethiek [Journal of Medicine and Ethics], 11, 101–106.
   Google Scholar
• Verschuren, P. and Doorewaard, H. 2010. Designing a research project. 2nd ed. Den Haag: Eleven International Publishing.
   Google Scholar
• Vereniging Gehandicaptenzorg Nederland (VGN). 2017. Algemene voorwaarden zorg en dienstverlening WLZ [General conditions care and provision of service WLZ]. Available at: <//legacy.vgn.nl//> [Viewed June 2018].
   Google Scholar
• Williams, V. and Porter, S. 2017. The meaning of ‘choice and control’ for people with intellectual disabilities who are planning their social care and support. Journal of Applied Research in Intellectual Disabilities, 30, 97–108.
   PubMed Web of Science ®Google Scholar