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Original Articles

Chinese fathers of children with intellectual disabilities: their perceptions of the child, family functioning, and their own needs for emotional support

Pages 147-155 | Received 15 Oct 2019, Accepted 12 Jan 2020, Published online: 03 Feb 2020

References

  • Al‐Krenawi, A., Graham, J. R. and Al Gharaibeh, F. 2011. The impact of intellectual disability, caregiver burden, family functioning, marital quality, and sense of coherence. Disability & Society, 26, 139–150.
  • American Psychiatric Association. 2013. Diagnostic and statistical manual of mental disorders (DSM, 5®). Washington DC: American Psychiatric Pub.
  • Boström, P. K. and Broberg, M. 2014. Openness and avoidance–a longitudinal study of fathers of children with intellectual disability. Journal of Intellectual Disability Research, 58, 810–821.
  • Boyd, M. J., Iacono, T. and McDonald, R. 2019. The perceptions of fathers about parenting a child with developmental disability: A scoping review. Journal of Policy and Practice in Intellectual Disabilities, 16, 312–324.
  • Brotherson, M. J., Summers, J. A., Naig, L. A., Kyzar, K., Friend, A., Epley, P., Gotto, G. S. and Turnbull, A. P. 2010. Partnership patterns: Addressing emotional needs in early intervention. Topics in Early Childhood Special Education, 30, 32–45.
  • Carpenter, B. and Towers, C. 2008. Recognizing fathers: The needs of fathers of children with disabilities. Support for Learning, 23, 118–125.
  • Chinese Disabled Persons’ Federation. 2012. Current prevalence of persons with disabilities by categories in China by 2010. Available at: http://www.cdpf.org.cn/sjzx/cjrgk/201206/t20120626_387581.shtml [Accessed on Dec 2nd, 2020]
  • China Association of Persons with Psychiatric Disability and their Relatives. 2014. Family needs of families with children with autism. Beijing, China: Huaxia Publishing.
  • China Bureau of Statistics. 2018. Report of 2018 National Economics and Social Development. Available at: China Bureau of Statistics Website: http://www.stats.gov.cn/tjsj/zxfb/O
  • Cohen, S. R., Zeedyk, S., Tipton, L. A., Rodas, N. V. and Blacher, J. 2016. Fathers of children with or without ID: Understanding long-term psychological symptoms. Journal of Intellectual Disability Research, 60, 295–307.
  • Cox, D. R. and Snell, E. J. 1981. Applied statistics - principles and examples. Florida, USA: CRC Press.
  • Dabrowska, A. and Pisula, E. 2010. Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54, 266–280.
  • Davys, D., Mitchell, D. and Martin, R. 2017. Fathers of people with intellectual disability: A literature review. Journal of Intellectual Disabilities, 21, 175–196.
  • Emerson, E. 2003. Mothers of children and adolescents with intellectual disability: Social and economic situation, mental health status, and the self-assessed social and psychological impact of the child’s difficulties. Journal of Intellectual Disability Research, 47, 385–399.
  • Flippin, M. and Crais, E. R. 2011. The need for more effective father involvement in early autism intervention. Journal of Early Intervention, 33, 24–50.
  • Hauser-Cram, P., Tillinger, C. M. and Woodman, A. C. 2013. Disabilities and development. In: R. M. Learner, A. Easterbrooks, & J. Mistry, eds. Developmental psychology. Handbook of psychology. Hoboken, NJ: Wiley, pp. 547–569.
  • Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D. and Einfeld, S. 2006. Behavior and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882.
  • Hornby, G. 1992. A review of fathers’ accounts of their experiences of parenting children with disabilities. Disability, Handicap & Society, 7, 363–374.
  • Hu, X. Y. 2016. Family quality of life and family support for children with disabilities in China. Inclusion, 22, 1227–1231.
  • Huang, Y. P., Chang, M., Chi, Y. L. and Lai, F. C. 2014. Health-related quality of life in fathers of children with or without developmental disability: The mediating effect of parental stress. Quality of Life Research, 23, 175–183.
  • Huang, Y. P., Tsai, S. W. and Kellett, U. 2012. Fathers of children with disabilities: Encounters with health professionals in a Chinese context. Journal of Clinical Nursing, 21, 198–206.
  • IBM. 2018. IBM SPSS statistics for windows. Armonk, NY: IBM Corp.
  • Kerr, M. E. (2000). One family's story: A primer on Bowen theory. The Bowen Center for Study of the Family. Available at http://www.thebowencenter.org
  • Kumar, R. and Joshi, H. L. 2015. Parenting stress in relation to children’s problem behaviors among fathers of children with intellectual disability. Indian Journal of Health & Wellbeing, 6, 1095–1099.
  • Kyzar, K. B., Turnbull, A. P., Summers, J. A. and Gómez, V. A. 2012. The relationship of family support to family outcomes: A synthesis of key findings from research on severe disability. Research and Practice for Persons with Severe Disabilities, 37, 31–44.
  • Laxman, D. J., McBride, B. A., Jeans, L. M., Dyer, W. J., Santos, R. M., Kern, J. L., Sugimura, N., Curtiss, S. L. and Weglarz-Ward, J. M. 2015. Father involvement and maternal depressive symptoms in families of children with disabilities or delays. Maternal and Child Health Journal, 19, 1078–1086.
  • Marsh, L., Warren, P. -L. and Savage, E. 2018. Something was wrong: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland. British Journal of Learning Disabilities, 46, 216–224.
  • Mas, J. M., Dunst, C. J., Balcells-Balcells, A., Garcia-Ventura, S., Giné, C. and Cañadas, M. 2019. Family-centered practices and the parental well-being of young children with disabilities and developmental delay. Research in Developmental Disabilities, 94, 103495.
  • McWilliam, R. A. and Scott, S. 2001. A support approach to early intervention. Infants & Young Children, 13, 55–62.
  • Ministry of Civil Affairs. 2019. Report on protecting welfare of children in China. Available at: http://www.gov.cn/xinwen/2019-07/10/content_5407970.htm [Accessed on Dec 5th.2020]
  • Olsson, M. B. and Hwang, C. P. 2001. Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45, 535–543.
  • Pleck, J. 2010. Paternal involvement: Revised conceptualization and theoretical linkages with child outcomes. In: M. Lamb, ed. The role of the father in child development. Hoboken, NJ: Wiley.
  • Povee, K., Roberts, L., Bourke, J. and Leonard, H. 2012. Family functioning in families with a child with Down syndrome: A mixed methods approach. Journal of Intellectual Disability Research, 56, 961–973.
  • Ridding, A. and Williams, J. 2019. Being a dad to a child with Down’s syndrome: Overcoming the challenges to adjustment. Journal of Applied Research in Intellectual Disabilities, 32, 678–690.
  • Roach, M. A., Orsmond, G. I. and Barratt, M. S. 1999. Mothers and fathers of children with Down syndrome: Parental stress and involvement in childcare. American Journal on Mental Retardation, 104, 422–436.
  • Saloviita, T., Itälinna, M. and Leinonen, E. 2003. Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: A Double ABCX Model. Journal of Intellectual Disability Research, 47, 300–312.
  • Shannon, P. 2004. Barriers to family-centered services for infants and toddlers with developmental disabilities. Social Work, 49, 301–308.
  • Simmerman, S., Blacher, J. and Baker, B. L. 2001. Fathers’ and mothers’ perceptions of father involvement in families with young children with a disability. Journal of Intellectual & Developmental Disability, 26, 325–338.
  • Turnbull, A. P., Turnbull, H. R., Erwin, E. J., Soodak, L. C. and Shogren, K. A. 2018. Families, professionals, and exceptionality: Positive outcomes through partnership and trust. Pearson: New York.
  • Wang, M. and Hu, X. Y. 2014. Supporting Chinese families of children with disabilities: Policy, service provisions, and family quality of life in China. Inclusion, 2, 227–236.
  • Yıldırım, A., Aşılar, R. H. and Karakurt, P. 2013. Effects of a nursing intervention program on the depression and perception of family functioning of mothers with intellectually disabled children. Journal of Clinical Nursing, 22, 251–261.

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