172
Views
1
CrossRef citations to date
0
Altmetric
Research Articles

Familiarity of evidence based practices in Chinese caregivers of autistic children

ORCID Icon, , , , ORCID Icon &
Pages 738-748 | Received 08 Jun 2022, Accepted 27 Oct 2022, Published online: 11 Nov 2022

References

  • American Psychiatric Association 2013. Diagnostic and statistical manual of mental disorders. (5th ed.). American Psychiatric Association.
  • An, Z. G., Hu, X. and Horn, E. 2018. Chinese inclusive education: The past, present, and future. Intervention in School and Clinic, 54, 118–122.
  • Auert, E.-J., Trembath, D., Arciuli, J. and Thomas, D. 2012. Parents’ expectations, awareness, and experiences of accessing evidence-based speech-language pathology services for their children with autism. International Journal of Speech-Language Pathology, 14, 109–118.
  • Bailey, D. B., Skinner, D., Rodriguez, P., Gut, D. and Correa, V. 1999. Awareness, use, and satisfaction with services for Latino parents of young children with disabilities. Exceptional Children, 65, 367–381.
  • Baxter, A. J., Brugha, T. S., Erskine, H. E., Scheurer, R. W., Vos, T. and Scott, J. G. 2015. The epidemiology and global burden of autism spectrum disorder. Psychological Medicine, 45, 601–613.
  • Chinese Autism Society 2003. Ten Years’ Quest of Autism in China. Beijing, China: Rehabilitation Association of Autistic Children in Beijing.
  • Chou, W. S., Oh, A. and Klein, W. M. P. 2018. Addressing health-related misinformation on social media. JAMA, 320, 2417–2418.
  • Clark, E. and Zhou, Z. 2005. Autism in China: From acupuncture to applied behavior analysis. Psychology in the Schools, 42, 285–295.
  • Clark, E., Zhou, Z. and Du, L. 2019. Autism in China: Progress and challenges in addressing the needs of children and families. International Journal of School & Educational Psychology, 7, 135–146.
  • Colina, S. and Sykes, J. 2004. Educating parents in the Spanish-speaking community: A look at translated educational materials. Bilingual Research Journal, 28, 299–318.
  • Dawson-Squibb, J.-J. and de Vries, P. J. 2019. Developing an evaluation framework for parent education and training in autism spectrum disorder: Results of a multi-stakeholder process. Journal of Autism and Developmental Disorders, 49, 4468–4481.
  • Dawson-Squibb, J.-J., Davids, E. L., Harrison, A. L., Molony, A. L. and de Vries, P. J. 2020. Parent education and training for autism spectrum disorders: Scoping the evidence. Autism: The International Journal of Research and Practice, 24, 7–25.
  • Desai, T., Chow, K., Mumford, L., Hotze, F. and Chau, T. 2014. Implementing an iPad-based alternative communication device for a student with cerebral palsy and autism in the classroom via an access technology delivery protocol. Computers & Education, 79, 148–158.
  • Deth, R., Muratore, C., Benzecry, J., Power-Charnitsky, V. A. and Waly, M. 2008. How environmental and genetic factors combine to cause autism: A redox/methylation hypothesis. Neurotoxicology, 29, 190–201.
  • Dubay, M., Watson, L. R. and Zhang, W. 2018. In search of culturally appropriate autism interventions: Perspectives of Latino caregivers. Journal of Autism and Developmental Disorders, 48, 1623–1639.
  • Flores, G., Laws, M. B., Mayo, S. J., Zuckerman, B., Abreu, M., Medina, L. and Hardt, E. J. 2003. Errors in medical interpretation and their potential clinical consequences in pediatric encounters. Pediatrics, 111, 6–14.
  • Fu, W., Xiao, Y., Yin, C. and Xu, R. 2022. Parents’ perceptions of autism and their challenges in China. Advances in Developmental and Educational Psychology, 4, 130–142.
  • Grant, N., Rodger, S. and Hoffmann, T. 2015. Evaluation of autism-related health information on the web. Journal of Applied Research in Intellectual Disabilities : JARID, 28, 276–282.
  • Hall, C. M., Culler, E. D. and Frank-Webb, A. 2016. Online dissemination of resources and services for parents of children with autism spectrum disorders (ASDs): A systematic review of evidence. Review Journal of Autism and Developmental Disorders, 3, 273–285.
  • Harrison, A. J., Slane, M. M., Hoang, L. and Campbell, J. M. 2017. An international review of autism knowledge assessment measures. Autism : The International Journal of Research and Practice, 21, 262–275.
  • Henrich, J., Heine, S. J. and Norenzayan, A. 2010. The weirdest people in the world? The Behavioral and Brain Sciences, 33, 61–83.
  • Hobart, H. M. 2008. Autism and Family in the People’s Republic of China: Learning from Parents’ Perspectives. Research and Practice for Persons with Severe Disabilities, 33, 37–47.
  • Howlin, P. 2005. The effectiveness of interventions for children with autism. In W. W. Fleischhacker & D. J. Brooks (Eds.), Neurodevelopmental Disorders. (pp. 101–119.). Verlag/Wien, Austria: Springer.
  • Hu, X., Zheng, Q. and Lee, G. T. 2018. Using peer-mediated LEGO® play intervention to improve social interactions for Chinese children with autism in an inclusive setting. Journal of Autism and Developmental Disorders, 48, 2444–2457.
  • Huang, A. X., Jia, M. and Wheeler, J. J. 2013. Children with autism in the people’s Republic of China: Diagnosis, legal issues, and educational services. Journal of Autism and Developmental Disorders, 43, 1991–2001.
  • Huang, H. and Liang, Q. 2020. Implications of American evidence-based practice to rehabilitation training for children with autism in China. [美国循证实践对我国自闭症学生康复训练的启发]. Journal of Suihua University, 07, 122–125.
  • Huang, Z. and Liu, C. 2019. Local governments’ practice of the second special education promotion plan (2017 - 2020): Policy Comparison and Strategies. [地方贯彻《第二期特殊教育提升计划(2017-2020年)的政策比较及实施建议》]. Chinese Journal of Special Education, 5, 3–9.
  • Hume, K., Steinbrenner, J. R., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., Szendrey, S., McIntyre, N. S., Yücesoy-Özkan, S. and Savage, M. N. 2021. Evidence-based practices for children, youth, and young adults with autism: Third generation review. Journal of Autism and Developmental Disorders, 51, 4013–4032.
  • Idring, S., Lundberg, M., Sturm, H., Dalman, C., Gumpert, C., Rai, D., Lee, B. K. and Magnusson, C. 2015. Changes in prevalence of autism spectrum disorders in 2001-2011: Findings from the Stockholm youth cohort. Journal of Autism and Developmental Disorders, 45, 1766–1773.
  • Jordan, C. J. 2010. Evolution of autism support and understanding via the World Wide Web. Intellectual and Developmental Disabilities, 48, 220–227.
  • Koegel, R.L. and Koegel,   L.K. 2012. The PRT Pocket Guide: Pivotal Response Treatment for Autism Spectrum Disorders. Baltimore, MD, USA: Paul H. Brookes Publishing Co.
  • Kumm, A. J., Viljoen, M. and de Vries, P. T. 2022. The digital divide in technologies for autism: Feasibility considerations for low- and middle-income countries. Journal of Autism and Developmental Disorders, 52, 2300–2313.
  • Lee, G. T., Hu, X., Liu, Y. and Ren, Y. 2021. Effects of video modeling on the acquisition, maintenance, and generalization of playing with imaginary objects in children with autism spectrum disorder. Behavior Modification, 45, 1041–1069.
  • Li, Z., Yang, L., Chen, H., Fang, Y., Zhang, T., Yin, X., Man, J., Yang, X. and Lu, M. 2022. Global, regional and national burden of autism spectrum disorder from 1990 to 2019: Results from the Global Burden of Disease Study 2019. Epidemiology and Psychiatric Sciences, 31, e33.
  • Liao, Y., Dillenburger, K. and Buchanan, I. 2018. Does culture matter in ABA-based autism interventions? Parent and professional experiences in the UK and China. European Journal of Behavior Analysis, 19, 11–29.
  • Liao, Y., Dillenburger, K., He, W., Xu, Y. and Cai, H. 2020. A systematic review of applied behavior analytic interventions for children with autism in Mainland China. Review Journal of Autism and Developmental Disorders, 7, 333–351.
  • Lilienfeld, S. O., Marshall, J., Todd, J. T. and Shane, H. C. 2014. The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example. Evidence-Based Communication Assessment and Intervention, 8, 62–101.
  • Liu, Y., & Huo, W. and Hu, X. 2017. The interpretation of evidence-based practices reports for children with autism in the United States. [美国孤独症干预循证实践研究报告的解读]. Chinese Journal of Special Education, 2, 31–36.
  • Lo, L. and Wu, J. 2009. Chinese translated IEPs: Do they do more harm than good? AAPI Nexus Journal: Policy, Practice, and Community, 7, 131–144.
  • Ma, S., Luo, M., He, H., Qiao, Y. and Li, M. 2021. The effect of two versions of Picture Exchange Communication System on the request behavior of children with autism spectrum disorder. [两种版本PECS对自闭症儿童请求行为的干预研究]. Chinese Journal of Special Education, 11, 43–51.
  • Mandell, D. S. and Novak, M. 2005. The role of culture in families’ treatment decisions for children with autism spectrum disorders. Mental Retardation and Developmental Disabilities Research Reviews, 11, 110–115.
  • McCabe, H. 2007. Parent Advocacy in the Face of Adversity: Autism and Families in the People’s Republic of China. Focus on Autism and Other Developmental Disabilities, 22, 39–50.
  • Mesibov, G. B., Shea, V. and Schopler, E. 2005. The TEACCH Approach to Autism Spectrum Disorders. New York, NY, USA: Kluwer.
  • Metz, B., Mulick, J. A. and Butter, E. M. 2016. Autism: A twenty-first century fad magnet. In J. A. Mulick, & R. M. Foxx (Eds.), Controversial Therapies for Autism and Intellectual Disabilities: Fad, Fashion, and Science in Professional Practice. (pp. 169–195. ). New York, NY, USA: Routledge
  • Miles, J. H. 2011. Autism spectrum disorders—A genetics review. Genetics in Medicine : official Journal of the American College of Medical Genetics, 13, 278–294.
  • Moodie-Dyer, A., Joyce, H. D., Anderson-Butcher, D. and Hoffman, J. 2014. Parent-caregiver experiences with the autism spectrum disorder service delivery system. Journal of Family Social Work, 17, 344–362.
  • National Research Council 2001. Educating Children with Autism. Committee on educational interventions for children with autism, division of behavioral and social sciences and education. Washington D.C., USA: National Academy Press. http://www.nap.edu/catalogue/10017.html
  • No Child Left Behind Act of 2001 2002., P.L. 107-110, 20 U.S.C. § 6319
  • Pang, Y., Lee, C. M., Wright, M., Shen, J., Shen, B. and Bo, J. 2018. Challenges of case identification and diagnosis of autism spectrum disorders in China: A critical review of procedures, assessment, and diagnostic criteria. Research in Autism Spectrum Disorders, 53, 53–66.
  • Paynter, J. M. and Keen, D. 2015. Knowledge and use of intervention practices by community-based early intervention service providers. Journal of Autism and Developmental Disorders, 45, 1614–1623.
  • Sansoti, F. K. and Sansoti, J. M. 2013. Effective school-based service delivery for students with autism spectrum disorders: Where we are and where we need to go. Psychology in the Schools, 50, 229–244.
  • Seventh National Population Census of Guangdong Province 2021. http://stats.gd.gov.cn/attachment/0/421/421374/3284452.pdf.
  • Shalev, R. A., Lavine, C. and Di Martino, A. 2020. A systematic review of the role of parent characteristics in parent-mediated interventions for children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 32, 1–21.
  • Shaw, K. A., Maenner, M. J., Bakian, A. V., Bilder, D. A., Durkin, M. S., Furnier, S. M., Hughes, M. M., Patrick, M., Pierce, K., Salinas, A., Shenouda, J., Vehorn, A., Warren, Z., Zahorodny, W., Constantino, J. N., DiRienzo, M., Esler, A., Fitzgerald, R. T., Grzybowski, A., Hudson, A., Spivey, M. H., Ali, A., Andrews, J. G., Baroud, T., Gutierrez, J., Hallas, L., Hall-Lande, J., Hewitt, A., Lee, L., Lopez, M., Mancilla, K. C., McArthur, D., Pettygrove, S., Poynter, J., Schwenk, Y. D., Washington, A., Williams, S. and Cogswell, M. E. 2021. Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C. : 2002), 70, 1–14.
  • Siller, M., Swanson, M., Gerber, A., Hutman, T. and Sigman, M. 2014. A parent-mediated intervention that targets responsive parental behaviors increases attachment behaviors in children with ASD: Results from a randomized clinical trial. Journal of Autism and Developmental Disorders, 44, 1720–1732.
  • Stahmer, A., Brookman-Frazee, L., Rieth, S., Stoner, J., Feder, J., Searcy, K. and Wang, T. 2017. Parent perceptions of an adapted evidence-based practice for toddlers with autism in a community setting. Autism : The International Journal of Research and Practice, 21, 217–230.
  • Stahmer, A. C., Vejnoska, S., Iadarola, S., Straiton, D., Segovia, F. R., Luelmo, P., Morgan, E. H., Lee, H. S., Javed, A., Bronstein, B., Hochheimer, S., Cho, E., Aranbarri, A., Mandell, D., Hassrick, E. M., Smith, T. and Kasari, C. 2019. Caregiver voices: Cross-cultural input on improving access to autism services. Journal of Racial and Ethnic Health Disparities, 6, 752–773.
  • Steinbrenner, J. R., Hume, K., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., Szendrey, S., McIntyre, N. S., Yücesoy-Özkan, S. and Savage, M. N. 2020. Evidence-based Practices for Children, Youth, and Young Adults with Autism. Chapel Hill, NC, USA: The University of North Carolina at Chapel Hill, Frank Porter Graham Child Development Institute, National Clearinghouse on Autism Evidence and Practice Review Team.
  • Stephenson, J., Carter, M. and Kemp, C. 2012. Quality of the information on educational and therapy interventions provided on the web sites of national autism associations. Research in Autism Spectrum Disorders, 6, 11–18.
  • Sun, X., Allison, C., Auyeung, B., Baron-Cohen, S. and Brayne, C. 2013. A review of healthcare service and education provision of autism spectrum condition in mainland China. Research in Developmental Disabilities, 34, 469–479.
  • Su, S., Paynter, J. and Gilmore, L. 2021. Chinese parents’ understanding of autism spectrum disorder. International Journal of Disability, Development and Education, 68, 414–426.
  • Sullivan, O. A. and Wang, C. 2020. Autism spectrum disorder interventions in mainland China: A systematic review. Review Journal of Autism and Developmental Disorders, 7, 263–277.
  • Test, D. W., Kemp-Inman, A., Diegelmann, K., Hitt, S. B. and Bethune, L. 2015. Are online sources for identifying evidence-based practices trustworthy? An evaluation. Exceptional Children, 82, 58–80.
  • Trembath, D., Paynter, J., Keen, D. and Ecker, U. K. H. 2015. Attention: Myth follows!” Facilitated communication, parent and professional attitudes towards evidence-based practice, and the power of misinformation. Evidence-Based Communication Assessment and Intervention, 9, 113–126.
  • Wang, P. 2008. Effects of a parent training program on the interactive skills of parents of children with autism in China. Journal of Policy and Practice in Intellectual Disabilities, 5, 96–104.
  • World Health Organization 2014. Sixty-seventh World Health Assembly, WHA67.8 agenda item 13.4, 24. http://apps.who.int/iris/bitstream/handle/10665/164399/Autism(combined).pdf;jsessionid=5F60DF83F59D1F6CE7BC7C8D5019E3D4?sequence=1
  • Wucailu Center for Children with Autism 2017. China Autism Education and Rehabilitation Industry Development Status Report (2) (Chinese Edition). [中国自闭症教育康复行业发展状况报告]. Beijing, China: Huaxia Publishing House.
  • Zeidan, J., Fombonne, E., Scorah, J., Ibrahim, A., Durkin, M. S., Saxena, S., Yusuf, A., Shih, A. and Elsabbagh, M. 2022. Global prevalence of autism: A systematic review update. Autism Research : official Journal of the International Society for Autism Research, 15, 778–790.
  • Zhou, H., LATENT-NHC Study Team, Xu, X., Yan, W., Zou, X., Wu, L., Luo, X., Li, T., Huang, Y., Guan, H., Chen, X., Mao, M., Xia, K., Zhang, L., Li, E., Ge, X., Zhang, L., Li, C., Zhang, X., Zhou, Y., Ding, D., Shih, A., Fombonne, E., Zheng, Y., Han, J., Sun, Z., Jiang, Y.-H. and Wang, Y. 2020. Prevalence of autism spectrum disorder in China: A nationwide multi-center population-based study among children aged 6 to 12 years. Neuroscience Bulletin, 36, 961–971.
  • Zou, B., Ke, X. Y., Hong, S. S., Hang, Y. Y., Chen, Y. Z., Chen, X. J. and Wang, M. J. 2008. Analysis on the efficiency of discrete trial teaching for autistic children used by parents. [家长应用回合式教学法训练孤独障碍儿童的疗效研究]. Chinese Journal of Mental Health, 22, 634–636.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.