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Research Articles

A qualitative study of financial concerns of mothers’ of adults with intellectual and developmental disabilities

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Pages 857-864 | Received 21 Jul 2022, Accepted 24 Nov 2022, Published online: 05 Dec 2022

References

  • Altiere, M. J. and von Kluge, S. 2009. Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual & Developmental Disability, 34, 142–152.
  • Baker, D. L. and Drapela, L. A. 2010. Mostly the mother: Concentration of adverse employment effects on mothers of children with autism. The Social Science Journal, 47, 578–592.
  • Caniglia, Y. and Michali, Y. 2018. A financial literacy course for post-secondary students with intellectual disabilities (Practice Brief). Journal of Post-Secondary Education and Disability, 31, 295–300.
  • Carter, N., Bryant-Lukosius, D., DiCenso, A., Blythe, J. and Neville, A. J. 2014. The use of triangulation in qualitative research. Oncology Nursing Forum, 41, 545–547.
  • Creswell, J. W. and Miller, D. L. 2000. Determining validity in qualitative inquiry. Theory into Practice, 39, 124–130.
  • Douma, J. C. H. Dekker, M. C. and Koot, H. M. 2006. Supporting parents of youths with intellectual disabilities and psychopathology. Journal of Intellectual Disability Research, 50, 570–581. https://doi.org/10.1111/j.1365-2788.2006.00825.x
  • Emerson, E. 2007. Poverty and people with intellectual disabilities.  Mental Retardation and Developmental Disabilities Research Reviews, 13, 107–113.
  • Freedman, R. I., Litchfield, L. C. and Warfield, M. E. 1995. Balancing work and family: Perspectives of parents of children with developmental disabilities. Families in Society: The Journal of Contemporary Social Services, 76, 507–514.
  • Graneheim, U. H. and Lundman, B. 2004. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112.
  • Griffin, M. M. and Papay, C. K. 2017. Supporting students with intellectual and developmental disabilities to attend college. Teaching Exceptional Children, 69, 411–419.
  • Kruithof, K., Olsman, E., Nieuwenhuijse, A. and Willems, D. 2022. “I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities. Journal of Intellectual & Developmental Disability, 47, 107–117.
  • Lavelle, T. A., Weinstein, M. C., Newhouse, J. P., Munir, K., Kuhlthau, K. A. and Prosser, L. A. 2014. Economic burden of childhood autism spectrum disorders. Pediatrics, 133, e520–e529.
  • Lindahl, J., Stollon, N., Wu, K., Liang, A., Changolkar, S., Steinway, C., Trachtenberg, S., Coccia, A., Devaney, M. and Jan, S. 2019. Domains of planning for future long‐term care of adults with intellectual and developmental disabilities: Parent and sibling perspectives. Journal of Applied Research in Intellectual Disabilities, 32, 1103–1115.
  • Luckasson, R., Ford, M. E., McMillan, E. D., Misilo, F. M. and Nygren, M. A. 2017. Intellectual disability policy as developed, expressed, and evaluated in AAIDD/The Arc joint statements: The role of organization position statements. Intellectual and Developmental Disabilities, 55, 269–275.
  • Lunsky, Y., Robinson, S., Blinkhorn, A. and Ouellette-Kuntz, H. 2017. Parents of adults with intellectual and developmental disabilities (IDD) and compound caregiving responsibilities. Journal of Child and Family Studies, 26, 1374–1379.
  • Marsack-Topolewski, C. N., Samuel, P. S. and Tarraf, W. 2021. Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden. PloS One, 16, e0244844–8.
  • Morgan, D. L. 1996. Focus groups.  Annual Review of Sociology,   22, 129–152.
  • Nealy, C. E., O'Hare, L., Powers, J. D. and Swick, D. C. 2012. The impact of autism spectrum disorders on the family: A qualitative study of mothers’ perspectives. Journal of Family Social Work, 15, 187–201.
  • Ou, J. J., Shi, L. J., Xun, G. L., Chen, C., Wu, R. R., Luo, X. R., Zhang, F. Y. and Zhao, J. P. 2015. Employment and financial burden of families with preschool children diagnosed with autism spectrum disorders in urban China: Results from a descriptive study. BMC Psychiatry, 15, 3–8.
  • Papadopoulos, D. 2021. Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sciences, 11, 309–316.
  • Reyes-Martín, J., Simó-Pinatella, D. and Font-Roura, J. 2022. assessment of challenging behavior exhibited by people with intellectual and developmental disabilities: A systematic review. International Journal of Environmental Research and Public Health, 19, 8701–8739.
  • Saunders, B. S., Tilford, J. M., Fussell, J. J., Schulz, E. G., Casey, P. H. and Kuo, D. Z. 2015. Financial and employment impact of intellectual disability on families of children with autism. Families, Systems & Health : The Journal of Collaborative Family Healthcare, 33, 36–45.
  • Shahtahmasebi, S. A. I. D., Emerson, E. R. I. C., Berridge, D. and Lancaster, G. 2011. Child disability and the dynamics of family poverty, hardship and financial strain: Evidence from the UK. Journal of Social Policy, 40, 653–673.
  • Sharp, D. and Baker, D. 2007. Financial issues associated with having a child with autism. Journal of Family and Economic Issues, 28, 247–264.
  • Shattnawi, K. K., Bani Saeed, W. A. M., Al-Natour, A., Al-Hammouri, M. M., Al-Azzam, M. and Joseph, R. A. 2021. Parenting a child with autism spectrum disorder: Perspective of Jordanian mothers. Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society, 32, 474–483.
  • Shivers, C. M., Sonnier‐Netto, L. and Lee, G. K. 2019. Needs and experiences of family caregivers of individuals with autism spectrum disorders across the lifespan. Journal of Policy and Practice in Intellectual Disabilities, 16, 21–29.
  • Stoner, J. B. and Stoner, C. R. 2016. Career disruption: The impact of transitioning from a full-time career professional to the primary caregiver of a child with autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 31, 104–114.
  • Young, R. A., Marshall, S. K., Stainton, T., Wall, J. M., Curle, D., Zhu, M., Munro, D., Murray, J., El Bouhali, A., Parada, F. and Zaidman-Zait, A. 2018. The transition to adulthood of young adults with IDD: Parents’ joint project. Journal of Applied Research in Intellectual Disabilities, 31, 224–233.

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