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Research Article

Mothers’ experiences of toilet training children with intellectual disabilities: a qualitative study

ORCID Icon, ORCID Icon & ORCID Icon
Received 18 Mar 2024, Accepted 05 Jun 2024, Published online: 20 Jun 2024

References

  • American Academy of Pediatrics (AAP). 2024. Accessed February 25, 2024. https://www.healthychildren.org/English/ages-stages/toddler/toilet- training/Pages/default.aspx
  • Arslan, A., A., H. Ulaş, and M. K. Coşkun. 2020. “A Compilation Study on Family Education in Special Education.” EKEV Akademi Dergisi 84: 21–38.
  • Azrin, N. H., and R. M. Foxx. 1971. “A Rapid Method of Toilet Training the İnstitutionalized Retarded 1.” Journal of Applied Behavior Analysis 4 (2): 89–99. https://doi.org/10.1901/jaba.1971.4-89.
  • Boyraz, G., D. Yıldız, and B. E. Fidancı. 2018. “Current Approaches and Nursing Practice Related to Toilet Training.” The Journal of Current Pediatrics 16 (2): 247–260.
  • Cagliani, R. R., S. K. Snyder, and E. N. White. 2021. “Classroom Based İntensive Toilet Training for Children with Autism Spectrum Disorder.” Journal of Autism and Developmental Disorders 51 (12): 4436–4446. https://doi.org/10.1007/s10803-021-04883-3.
  • Çulhacik, G. D., G. Durat, and N. Eren. 2021. “Effects of Activity Groups, in Which Art Activities Are Used, on Resilience and Related Factors in Families with Disabled Children.” Perspectives in Psychiatric Care 57 (1): 343–350. https://doi.org/10.1111/ppc.12569.
  • Dayı, E., and P. Şafak. 2018. “Toilet Training to a Child with Multiple Disabilities Using a Toilet Training Package Including ‘Token Economy’ System: A Case Study.” Education and Science 43 (196): 301–316.
  • Deniz, Ç., and G. Görak. 2016. “Toilet Training in Children and Used Methods.” Journal of Academic Research in Nursing 4 (1): 59–64.
  • Donnelly, M. G., and A. M. Karsten. 2023. “Resolving Barriers to Continence for Children with Disabilities: Steps Toward Evidence-Based Practice.” Behavior Analysis in Practice 17 (1): 157–175. https://doi.org/10.1007/s40617-023-00891-0.
  • Greer, B. D., P. M. Neidert, and C. L. Dozier. 2016. “A Component Analysis of Toilet-Training Procedures Recommended for Young Children.” Journal of Applied Behavior Analysis 49 (1): 69–84. https://doi.org/10.1002/jaba.275.
  • Hamedanchi, A., H. R. Khankeh, R. Fadayevatan, R. Teymouri, and R. Sahaf. 2016. “Bitter Experiences of Elderly Parents of Children with İntellectual Disabilities: A Phenomenological Study.” Iranian Journal of Nursing and Midwifery Research 21 (3): 278–283. https://doi.org/10.4103/1735-9066.180385.
  • Inan Budak, M., L. Küçük, and H. Yaprak Civelek. 2018. “Life Experiences of Mothers of Children with an Intellectual Disability: A Qualitative Study.” Journal of Mental Health Research in Intellectual Disabilities 11 (4): 301–321. https://doi.org/10.1080/19315864.2018.1518502.
  • Johnson, J. V., J. C. Travers, H. J. Forbes, and K. Zimmerman. 2021. “A Systematic Review of Rapid Toilet Training İntervention İntensity for İndividuals with İntellectual and Developmental Disabilities.” Education and Training in Autism and Developmental Disabilities 56 (2): 140–157.
  • Kaçan, H., V. Bayram Değer, and H. Sakız. 2022. “Outcomes of Genital Hygiene and Anxiety Training for Mothers of Girls with Profound İntellectual Disabilities: A Randomized Controlled Experiment.” International Journal of Developmental Disabilities: 1–14. https://doi.org/10.1080/20473869.2022.2129126.
  • Kaerts, N., A. Vermandel, G. Van Hal, and J. J. Wyndaele. 2014. “Toilet Training in Healthy Children: Results of a Questionnaire Study İnvolving Parents Who Make Use of Day-Care at Least Once a Week.” Neurourology and Urodynamics 33 (3): 316–323. https://doi.org/10.1002/nau.22392.
  • Kang, Y. S., and Y. J. Chang. 2019. “Using a Motion-Controlled Game to Teach Four Elementary School Children with İntellectual Disabilities to İmprove Hand Hygiene.” Journal of Applied Research in İntellectual Disabilities: JARID 32 (4): 942–951. https://doi.org/10.1111/jar.12587.
  • Kırbaş, Z. Ö., İ. Kahriman, and Y. Kaşko Arıcı. 2022. “Training Female Adolescent Students with İntellectual Disabilities About Genital Hygiene Skills Using Peer Training.” International Journal of Developmental Disabilities 68 (3): 332–341. https://doi.org/10.1080/20473869.2020.1774224.
  • Kimura, M., and Y. Yamazaki. 2013. “The Lived Experience of Mothers of Multiple Children with İntellectual Disabilities.” Qualitative Health Research 23 (10): 1307–1319. https://doi.org/10.1177/1049732313504828.
  • Konuk Sener, D., M. Aydin, and S. Cangur. 2019. “Evaluating the Effects of a Personal Hygiene Program on the Knowledge, Skills, and Attitudes of İntellectual Disabilities Teenagers and Their Parents.” Journal of Policy and Practice in Intellectual Disabilities 16 (3): 160–170. https://doi.org/10.1111/jppi.12277.
  • Kurtoğlu, S., and A. Cavkaytar. 2022. “The Effectiveness of a Famıly Educatıon ın Teaching Self-Care Skills to Individuals With Intellectual Disability.” Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi 23 (1): 53–83. https://doi.org/10.21565/ozelegitimdergisi.756223.
  • Lee, C. Y. Q., A. Anderson, and D. W. Moore. 2014. “Using Video Modeling to Toilet Train a Child with Autism.” Journal of Developmental and Physical Disabilities 26 (2): 123–134. https://doi.org/10.1007/s10882-013-9348-y.
  • Levato, Lynne E., Courtney A. Aponte, Jonathan Wilkins, Rebekah Travis, Rachel Aiello, Katherine Zanibbi, Whitney A. Loring, Eric Butter, Tristram Smith, and Daniel W. Mruzek. 2016. “Use of Urine Alarms in Toilet Training Children with İntellectual and Developmental Disabilities: A Review.” Research in Developmental Disabilities 53–54: 232–241. https://doi.org/10.1016/j.ridd.2016.02.007.
  • Lietz, C. A., C. L. Langer, and R. Furman. 2006. “Establishing Trustworthiness in Qualitative Research in Social Work: Implications from a Study regarding Spirituality.” Qualitative Social Work 5 (4): 441–458. https://doi.org/10.1177/1473325006070288.
  • Lomas Mevers, J., C. Muething, N. A. Call, M. Scheithauer, and S. Hewett. 2018. “A Consecutive Case Series Analysis of a Behavioral İntervention for Enuresis in Children with Developmental Disabilities.” Developmental Neurorehabilitation 21 (5): 336–344. https://doi.org/10.1080/17518423.2018.1462269.
  • Machalicek, W., R. Lang, and T. J. Raulston. 2015. “Training Parents of Children with Intellectual Disabilities: Trends, Issues, and Future Directions.” Current Developmental Disorders Reports 2 (2): 110–118. https://doi.org/10.1007/s40474-015-0048-4.
  • Masulani-Mwale, C., D. Mathanga, D. Silungwe, F. Kauye, and M. Gladstone. 2016. “Parenting Children with İntellectual Disabilities in Malawi: The İmpact That Reaches Beyond Coping?” Child: Care, Health and Development 42 (6): 871–880. https://doi.org/10.1111/cch.12368.
  • Miles, M., and A. Huberman. 1994. Qualitative Data Analysis: An Expanded Sourcebook, (2nd ed.). Thousand Oaks, CA: SAGE Publication Inc.
  • Mohan, R., and M. Kulkarni. 2018. “Resilience in Parents of Children with İntellectual Disabilities Psychology and Developing Societies.” Psychology and Developing Societies 30 (1): 19–43. https://doi.org/10.1177/0971333617747321.
  • Mrad, F. C. D. C., A. A. D. Figueiredo, J. D. Bessa, and J. M. Bastos Netto, Jr. 2018. “Treinamento esfincteriano em crianças com síndrome de Down: estudo caso-controle.” Jornal de pediatria 94 (3): 286–292. https://doi.org/10.1016/j.jped.2017.06.011.
  • Nurullah, A. B. 2013. “‘It’s Really a Roller Coaster’: Experience of Parenting Children with Developmental Disabilities.” Marriage & Family Review 49 (5): 412–445. https://doi.org/10.1080/01494929.2013.768320.
  • Opoku, M. P., W. Nketsia, M. A. Banye, W. K. Mprah, J. A. Dogbe, and E. Badu. 2020. “Caregiving Experiences and Expectations of Parents with in School Children with İntellectual Disability in Ghana.” Research in Developmental Disabilities 96: 103524. https://doi.org/10.1016/j.ridd.2019.103524.
  • Oti-Boadi, M. 2017. “Exploring the Lived Experiences of Mothers of Children with Intellectual Disability in Ghana.” SAGE Open 7 (4): 215824401774557. https://doi.org/10.1177/2158244017745578.
  • Öncül, N., and Ş. Y. Özkan. 2021. “A Challenge: Traditional Toilet Training Versus Intensive Toilet Training.” Mersin University Journal of the Faculty of Education 17 (2): 350–374. https://doi.org/10.17860/mersinefd.920857.
  • Özkubat, U., U. Özkubat, and G. Töret. 2014. “Effectiveness of a Toilet Training Program for Children with Intellectual Disabilities Provided by Their Mothers.” Pamukkale University Journal of Education 35 (35): 61–84.
  • Palaganas, E. C., M. C. Sanchez, M. V. P. Molintas, and R. D. Caricativo. 2017. “Reflexivity in Qualitative Research: A Journey of Learning.” The Qualitative Report 22 (2): 426–438. https://doi.org/10.46743/2160-3715/2017.2552.
  • Paquet Croteau, N., C. Moore, A. Griffith, and E. Franco. 2023. “The Effects of a Caregiver İmplemented Toilet Training Package.” Journal of Autism and Developmental Disorders 53 (11): 4185–4198. https://doi.org/10.1007/s10803-022-05703-y.
  • Perez, B. C., J. K. Bacotti, K. P. Peters, and T. R. Vollmer. 2020. “An Extension of Commonly Used Toilet-Training Procedures to Children with Autism Spectrum Disorder.” Journal of Applied Behavior Analysis 53 (4): 2360–2375. https://doi.org/10.1002/jaba.727.
  • Powers, M. K., Brown, E. Hogan, T. R. M. Martin, A. D. Ortenberg, J., and C. C. Roth. 2015. “Trends in Toilet Training and Voiding Habits Among Children with down Syndrome.” The Journal of Urology 194 (3): 783–787. https://doi.org/10.1016/j.juro.2015.03.114.
  • Pradhan, N., G. Haugan, and J. Infanti. 2023. “Challenges and Forms of Coping and Support in the Daily Lives of Nepali Mothers of Children with İntellectual Disabilities: A Qualitative Study.” Disability and the Global South 10 (2): 2334–2358.
  • Rinald, K., and P. Mirenda. 2012. “Effectiveness of a Modified Rapid Toilet Training Workshop for Parents of Children with Developmental Disabilities.” Research in Developmental Disabilities 33 (3): 933–943. https://doi.org/10.1016/j.ridd.2012.01.003.
  • Sadiki, T. G., and S. Mashegoane. 2019. “Caring for Children with an İntellectual Disability: An Exploratory Qualitative Study.” Journal of Psychology in Africa 29 (2): 191–194. https://doi.org/10.1080/14330237.2019.1603020.
  • Saral, D., and B. Ulke-Kurkcuoglu. 2020. “Toilet Training İndividuals with Developmental Delays: A Comprehensive Review.” International Journal of Early Childhood Special Education 12 (1): 120–137. https://doi.org/10.20489/intjecse.728240.
  • Shannon, R. A., and C. F. Yonkaitis. 2017. “The Role of the School Nurse in the Special Education Process: Part 2: Eligibility Determination and the İndividualized Education Program.” NASN School Nurse 32 (4): 249–254. https://doi.org/10.1177/1942602X17709505.
  • Simon, M., S. Wilkes-Gillan, Y. W. R. Chen, R. Cordier, A. Cantrill, L. Parsons, and J. J. Phua. 2022. “Toilet Training İnterventions for Children with Autism Spectrum Disorder: A Systematic Review.” Research in Autism Spectrum Disorders 99: 102049. https://doi.org/10.1016/j.rasd.2022.102049.
  • Smith, J. S., and B. Chaneb. 2016. “Toilet Training.” In Handbook of Evidence-Based Practices in Intellectual and Developmental Disabilities, edited by N.N. Singh, 943–955). Cham, Switzerland: Springer International Publishing. https://doi.org/10.1007/978-3-319-26583-4.
  • Snell, M. E., and M. E. Delano. 2011. “Teaching Self Care Skills.” In Instruction of Students with Severe Disabilities, edited by M. E. Snell, 377–430. Hoboken: Prentice- Hall, Inc.
  • Studenikin, V. M., and S. M. Sharkov. 2015. “Retrospective Evaluation of International Practice of ‘Toilet Education’ ın Children.” Current Pediatrics 8 (5): 52–55.
  • Susanti, S. A. 2020. “Thaharah Implementation Through Toilet Training for Down Syndrome Kindergarten Students at Islamic School.” The First International Conference on Islamic Thoughts(ICIT), 18 January 2020. Vol. 1. Pnerbit, Al-Khairat: IAI Al-KhairatPamekasan.
  • Sutherland, J., A. Carnett, L. van der Meer, H. Waddington, A. Bravo, and L. McLay. 2018. “Intensive Toilet Training Targeting Defecation for a Child with Autism Spectrum Disorder.” Research and Practice in Intellectual and Developmental Disabilities 5 (1): 87–97. https://doi.org/10.1080/23297018.2017.1360153.
  • Syed, I. H., W. A. Awan, and U. B. Syeda. 2020. “Caregiver Burden Among Parents of Hearing İmpaired and İntellectually Disabled Children in Pakistan.” Iranian Journal of Public Health 49 (2): 249–256. https://doi.org/10.18502/ijph.v49i2.3087.
  • Toilet Training. 2024. “Powered by Pediatricians. Trusted by Parents. From the American Academy of Pediatrics.” Accessed March 1, 2024. https://www.healthychildren.org.
  • Toker, Merih, Şsenem Başgül, and Latife Özaydın. 2019. “Determination of Family Needs of Mothers of Children With Down Syndrome And Their Opinions Regarding Sense of Social Support.” Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi 20 (4): 651–676. https://doi.org/10.21565/ozelegitimdergisi.492808.
  • Tong, A., P. Sainsbury, and J. Craig. 2007. “Consolidated Criteria for Reporting Qualitative Research (COREQ): a 32-Item Checklist for Interviews and Focus Groups.” International Journal for Quality in Health Care: Journal of the International Society for Quality in Health Care 19 (6): 349–357. https://doi.org/10.1093/intqhc/mzm042.
  • Wyndaele, J. J., and A. Vermandel. 2023. “Toilet Training.” In Handbook of Clinical Child Psychology: Integrating Theory and Research into Practice, 689–715. Cham: Springer International Publishing.
  • Yonkaitis, C. F., and R. A. Shannon. 2017. “The Role of the School Nurse in the Special Education Process: Part I: Student İdentification and Evaluation.” NASN School Nurse 32 (3): 178–184. https://doi.org/10.1177/1942602X17700677.

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