The Briggsian Heresy? Should Previously Expressed Wishes Determine Best Interests in Decisions Relating to Withdrawal of Clinically-Assisted Nutrition and Hydration?

References

• Baker, J. 2016. A matter of life and death: Oxford shrieval lecture 2016. HM courts and tribunals judiciary, 16 Oct. [Online]. Available from: https://www.judiciary.uk/wp-content/uploads/2016/10/mr-justice-baker-shrieval-lecture-11102016.pdf [Accessed 7 March 2020].
   Google Scholar
• Beauchamp, T.L., and Childress, J.F., 1994. Principles of biomedical ethics. 4th ed. Oxford: Oxford University Press.
   Google Scholar
• Brace, M. 1997. Hillsborough survivor ‘awakes’. The independent, 26 Mar. [Online]. Available from: https://www.independent.co.uk/news/hillsborough-survivor-awakes-1275031.html. [Accessed 7 March 2020].
   Google Scholar
• Donnelly, M., 2011. Determining best interests under the mental capacity act 2005. Medical law review, 19 (2), 304–313. doi: 10.1093/medlaw/fwr012
   PubMed Web of Science ®Google Scholar
• Donnelly, M., 2016. Best interests in the mental capacity act: time to say goodbye? Medical law review, 24 (3), 318–332. doi: 10.1093/medlaw/fww030
   PubMed Web of Science ®Google Scholar
• Dworkin, R., 1993. Life’s dominion: an argument about abortion, euthanasia and individual freedom. New York, NY: Vintage.
   Google Scholar
• Finnis, J., 2011. Natural law and natural rights. 2nd ed. Oxford: Oxford University Press.
   Google Scholar
• Foster, C., 2009. Choosing life, choosing death: the tyranny of autonomy in medical ethics and law. Portland, OR: Hart.
   Google Scholar
• Foster, C., 2010. Autonomy should chair, not rule. The lancet, 375, 368–369. doi: 10.1016/S0140-6736(10)60156-0
   PubMed Web of Science ®Google Scholar
• Fritz, Z., 2017. Can ‘best interests’ derail the trolley? Examining withdrawal of clinically assisted nutrition and hydration in patients in the permanent vegetative state. Journal of medical ethics, 43, 450–454. doi: 10.1136/medethics-2015-103045
   PubMed Web of Science ®Google Scholar
• Giovannetti, A.M., et al., 2013. Burden of caregivers of patients in vegetative state and minimally conscious state. Acta neurologica scandinavica, 127, 10–18. doi: 10.1111/j.1600-0404.2012.01666.x
   PubMed Web of Science ®Google Scholar
• Haidt, J., 2013. The righteous mind: why good people are divided by politics and religion. London: Penguin.
   Google Scholar
• Hammami, M.M., et al., 2014. Patient’s perceived purpose of clinical informed consent: mill’s individual autonomy model is preferred. Biomed central medical ethics, 15, 2–12. doi: 10.1186/1472-6939-15-2
   Google Scholar
• Kitzinger, C., Kitzinger, J., and Cowley, J., 2017. When ‘sanctity of life’ and ‘self-determination’ clash: Briggs versus Briggs [2016] EWCOP 53 – implications for policy and practice. Journal of medical ethics, 43, 446–449. doi: 10.1136/medethics-2016-104118
   PubMed Web of Science ®Google Scholar
• Lammi, M.H., et al., 2005. The minimally conscious state and recovery potential: a follow-up study 2 to 5 years after traumatic brain injury. Archive of physical medicine and rehabilitation, 86 (4), 746–754. doi: 10.1016/j.apmr.2004.11.004
   PubMed Web of Science ®Google Scholar
• Levy, N., 2014. Forced to be free? Increasing patient autonomy by constraining it. Journal of medical ethics, 40, 293–300. doi: 10.1136/medethics-2011-100207
   PubMed Web of Science ®Google Scholar
• Mill, J.S., 1991. On liberty. In: J. Gray, ed. On liberty and other essays. Oxford: Oxford University Press, 5–128. (Originally published 1859).
   Google Scholar
• Samanta, J., 2018. Awake and (only just) aware? A typology, taxonomy, and holistic framework for withdrawing clinically assisted nutrition and hydration in the minimally conscious state. Medical law review, 26 (4), 633–664. doi: 10.1093/medlaw/fwx058
   PubMed Web of Science ®Google Scholar
• Steppacher, I., Kaps, M., and Kissler, J., 2014. Will time heal? A long-term follow-up of severe disorders of consciousness. Annals of clinical and translational neurology, 1 (6), 401–408. doi: 10.1002/acn3.63
   PubMed Web of Science ®Google Scholar
• Sulmasy, D.P., 2002. Informed consent without autonomy. Fordham urban law journal, 30 (1), 207–220.
   PubMedGoogle Scholar
• Taylor, H.J., 2016. What are ‘best interests’? A critical evaluation of ‘best interests’ decision making in clinical practice. Medical Law Review, 24 (2), 176–205. doi: 10.1093/medlaw/fww007
   PubMed Web of Science ®Google Scholar
• Tversky, A., and Kahneman, D., 1974. Judgment under uncertainty: heuristics and biases. Science, 185 (4157), 1124–1131. doi: 10.1126/science.185.4157.1124
   PubMed Web of Science ®Google Scholar
• Willmott, L., and White, B., 2017. Persistent vegetative state and minimally conscious state: ethical, legal and practical dilemmas. Journal of medical Ethics, 43, 425–426. doi: 10.1136/medethics-2017-104378
   PubMed Web of Science ®Google Scholar
• Notes on contributor
   Google Scholar
• James Hurford is a practising solicitor, with a background in public law, human rights and mental capacity. He has also taught Medical Law on the MA in Bioethics and Medical Law St Mary's University Twickenham.
   Google Scholar
• Governmental Documents
   Google Scholar
• Department of Constitutional Affairs, 2007. Mental capacity act code of practice. London: TSO.
   Google Scholar
• Law Commission, 2017. Mental capacity and deprivation of liberty. ( Law Com No 372). London: The Stationery Office.
   Google Scholar
• Law Commission, 1995. Mental incapacity. ( Law Com No 231). London: The Stationery Office.
   Google Scholar
• Mental Capacity Act 2005 Explanatory Notes, 2005. www.legislation.gov.uk. Available from: https://www.legislation.gov.uk/ukpga/2005/9/notes/division/6/1/2/3?view=plain [Accessed 7 March 2020].
   Google Scholar
• Legal Sources
   Google Scholar
• International Instruments
   Google Scholar
• Convention on the Rights of People with Disabilities
   Google Scholar
• (United Nations, 2008)          Article 3
   Google Scholar
• European Convention on Human Rights
   Google Scholar
• (Council of Europe, 1950)         Article 2
   Google Scholar
•                     Article 8
   Google Scholar
• Statutes
   Google Scholar
• Mental Capacity Act 2005, c. 9      s.4(2)
   Google Scholar
•                     s.4(6)
   Google Scholar
•                     s.4(6)(a)
   Google Scholar
•                     s.26
   Google Scholar
• Suicide Act 1961, c. 60           s 2(1)
   Google Scholar
• Case law
   Google Scholar
• England and Wales
   Google Scholar
• Abertawe Bro Morgannwg University Local Health Board v RY [2017] EWCOP 2
   Google Scholar
• Briggs v Briggs [2016] EWCOP 53
   Google Scholar
• Hales v Pettit (1562) 75 ER 387
   Google Scholar
• M v N [2015] EWCOP 76
   Google Scholar
• R (Burke) v General Medical Council [2005] EWCA Civ 1003
   Google Scholar
• Re M (Statutory Will) [2009] EWCOP 2525
   Google Scholar
• Re T (adult: refusal of medical treatment) [1992] 4 All ER 649
   Google Scholar
• Royal Bournemouth and Christchurch Hospitals NHS Foundation Trust v TG [2019] EWCOP 21
   Google Scholar
• W v M [2011] EWHC 2443 (Fam)
   Google Scholar
• W Healthcare NHS Trust v H [2004] EWCA Civ 1324
   Google Scholar
• United Kingdom
   Google Scholar
• Aintree Hospital NHS Trust v James [2013] UKSC 67
   Google Scholar
• Airedale NHS Trust v Bland [1993] AC 789
   Google Scholar
• An NHS Trust v Y [2018] UKSC 46
   Google Scholar
• In re H (Minors) (Sexual Abuse: Standard of Proof) [1996] AC 563
   Google Scholar
• P & Q v Surrey County Council [2014] UKSC 19
   Google Scholar
• R (Nicklinson) v Ministry of Justice [2014] UKSC 38
   Google Scholar
• Re B (Children) (Care Proceedings: Standard of Proof) [2008] UKHL 35
   Google Scholar
• European Court of Human Rights
   Google Scholar
• Lambert v France [2015] ECHR 545
   Google Scholar
• Haas v Switzerland [2011] ECHR 2422
   Google Scholar
• Pretty v UK [2002] ECHR 427
   Google Scholar