1,461
Views
0
CrossRef citations to date
0
Altmetric
Articles

Language accessibility in allied healthcare for culturally and linguistically diverse (CALD) families of young children with chronic health conditions: a qualitative systematic review

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 50-66 | Received 23 Jun 2020, Accepted 25 Oct 2020, Published online: 01 Feb 2021

References

  • Audiology Australia. (2013). Audiology Australia Professional Practice Standards - Part A Clinical Operations.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
  • Butler, A., Hall, H., & Copnell, B. (2016). A guide to writing a qualitative systematic review protocol to enhance evidence-based practice in nursing and health care. Worldviews on Evidence-Based Nursing, 13(3), 241–249.
  • CASP. (2018). CASP qualitative checklist. Retrieved from https://casp-uk.net/wp-content/uploads/2018/01/CASP-Qualitative-Checklist.pdf.
  • Cockcroft, S. (2012). How can family centred care be improved to meet the needs of parents with a premature baby in neonatal intensive care? Journal of Neonatal Nursing, 18(3), 105–110. doi:10.1016/j.jnn.2011.07.008
  • Croot, E. J. (2012). The care needs of Pakistani families caring for disabled children: How relevant is cultural competence? Physiotherapy, 98(4), 351–356.
  • Delaney, A., & Meyers, A. (2015). Newborn hearing screening. Online Early.
  • Ekberg, K., Scarinci, N., Hickson, L., & Meyer, C. (2018). Parent-directed commentaries during children's hearing habilitation appointments: A practice in family-centred care. International Journal of Language Communication Disorders Quarterly, 53(5), 929–946.
  • Epley, P., Summers, J. A., & Turnbull, A. (2010). Characteristics and trends in family-Centered Conceptualizations. Journal of Family Social Work, 13(3), 269–285.
  • Gadon, M., Balch, G. I., & Jacobs, E. A. (2007). Caring for patients with limited English proficiency: The perspectives of Small group Practitioners. Journal of General Internal Medicine, 22(2), 341–346. doi:10.1007/s11606-007-0311-4
  • Goenka, P. K. (2016). Lost in translation: Impact of language barriers on children's healthcare. Current Opinion in Pediatrics, 28(5), 659–666.
  • Graham, L., & Byrne, N. (2017). Aboriginal families’ experiences of attending speech-language pathology services.
  • Hall, W. J., Chapman, M. V., Lee, K. M., Merino, Y. M., Thomas, T. W., Payne, B. K., … Coyne-Beasley, T. (2015). Implicit racial/ethnic bias among health care professionals and its influence on health care outcomes: A systematic review. American Journal of Public Health, 105(12), e60–e76.
  • Jolley, J., & Shields, L. (2009). The evolution of family-centered care. Journal of Pediatric Nursing, 24(2), 164–170.
  • King, G., Desmarais, C., Lindsay, S., Piérart, G., & Tétreault, S. (2015). The roles of effective communication and client engagement in delivering culturally sensitive care to immigrant parents of children with disabilities. Disability and Rehabilitation, 37(15), 1372–1381.
  • Knai, C., Nolte, E., Brunn, M., Elissen, A., Conklin, A., Pedersen, J. P., … Flamm, M. (2013). Reported barriers to evaluation in chronic care: Experiences in six European countries. Health Policy, 110(2–3), 220–228.
  • Koegel, L. K., Koegel, R. L., Ashbaugh, K., & Bradshaw, J. (2014). The importance of early identification and intervention for children with or at risk for autism spectrum disorders. International Journal of Speech-Language Pathology, 16(1), 50–56.
  • Kuhlthau, K. A., Bloom, S., Van Cleave, J., Knapp, A. A., Romm, D., Klatka, K., … Perrin, J. M. (2011). Evidence for family-centered care for children with special health care needs: A systematic review. Academic Pediatrics, 11(2), 136–143. e138.
  • Kuo, D. Z., Houtrow, A. J., Arango, P., Kuhlthau, K. A., Simmons, J. M., & Neff, J. M. (2012). Family-centered care: Current applications and future directions in pediatric health care. Maternal Child Health Journal, 16(2), 297–305.
  • Maul, C. A. (2015). Working with culturally and linguistically diverse students and their families: Perceptions and practices of school speech-language therapists in the United States. International Journal of Language & Communication Disorders, 50(6), 750–762. doi:10.1111/1460-6984.12176
  • Melvin, K., Meyer, C., & Scarinci, N. (2020). What does “engagement” mean in early speech pathology intervention? A qualitative systematised review. Disability and Rehabilitation, 42(18), 2665–2678.
  • Methley, A. M., Campbell, S., Chew-Graham, C., McNally, R., & Cheraghi-Sohi, S. J. B. h. s. r. (2014). PICO, PICOS and SPIDER: A comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews. BMC Health Services Research, 14(1), 579.
  • Moeller, M. P., Carr, G., Seaver, L., Stredler-Brown, A., & Holzinger, D. (2013). Best practices in family-centered early intervention for children who are deaf or hard of hearing: An international consensus statement. The Journal of Deaf Studies and Deaf Education, 18(4), 429–445.
  • Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The Prisma Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097.
  • NDIS. (2018). Support for your child: what is the early childhood early intervention (ECEI) approach?
  • Newbold, K. B. (2010). Immigrant and refugee health needs and service provision in Hamilton. 24.
  • Nutbeam, D. (2000). Health literacy as a public health goal: A challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International, 15(3), 259–267.
  • O'Toole, C., & Hickey, T. M. (2013). Diagnosing language impairment in bilinguals: Professional experience and perception. Child Language Teaching and Therapy, 29(1), 91–109. doi:10.1177/0265659012459859
  • Pascoe, M., Maphalala, Z., Aeysha, E., Hime, D., Mdladla, B., Nerosha, M., … Skinner, M. (2010). Children with speech difficulties: A survey of clinical practice in the Western Cape. The South African Journal of Communication Disorders, 57(1), 66-75.
  • Philip, K. (2015). Allied health: Untapped potential in the Australian health system. Australian Health Review, 39(3), 244–247.
  • Queensland Health, Q. (2015). Chronic conditions manual: prevention and management of chronic conditions in Australia.
  • Rao, D. V., Warburton, J., & Bartlett, H. (2006). Health and social needs of older Australians from culturally and linguistically diverse backgrounds: Issues and implications. Australasian Journal on Ageing, 25(4), 174–179.
  • Rausa, B., & Lloyd, L. S. (2012). Immigration in the global context. In S. Loue & M. Sajatovic (Eds.), Encyclopedia of Immigrant Health (pp. 3–17). New York: Springer Science.
  • Raymond, C. W. (2014). Conveying information in the interpreter-mediated medical visit: The case of epistemic brokering. Patient Education and Counseling, 97(1), 38–46.
  • Schouten, B. C., & Schinkel, S. (2014). Turkish migrant GP patients’ expression of emotional cues and concerns in encounters with and without informal interpreters. Patient Education & Counseling, 97(1), 23–29.
  • Slocum, T. A., Spencer, T. D., & Detrich, R. (2012). Best available evidence: Three complementary approaches. Education and Treatment of Children, 35, 153–181.
  • Smith, J., Cheater, F., & Bekker, H. (2015). Parents’ experiences of living with a child with a long-term condition: A rapid structured review of the literature. Health Expectations, 18(4), 452–474.
  • Speech Pathology Australia, S. (2016). Clinical guideline: working in a culturally and linguistically diverse society.
  • Spittle, A., Orton, J., Anderson, P. J., Boyd, R., & Doyle, L. W. (2015). Early developmental intervention programmes provided post hospital discharge to prevent motor and cognitive impairment in preterm infants. Cochrane Database of Systematic Reviews, 11, 1-86.
  • Suurmond, J., Dokter, J., Van Loey, N., & Essink-Bot, M. L. (2012). Issues to address in burn care for ethnic minority children: A qualitative study of the experiences of health care staff. Burns, 38(5), 730–737. doi:10.1016/j.burns.2011.12.007
  • Suurmond, J., Seeleman, C., & Essink-Bot, M. L. (2015). Analyzing Fallacies in Argumentation to Enhance Effectiveness of educational interventions: The case of care providers’ Arguments Against using professional Interpretation. Journal of Continuing Education in the Health Professions, 35(4), 249–254. doi:10.1097/ceh.0000000000000003
  • Teevale, T., Taufa, S., & Percival, T. (2015). Acceptability and non-compliance in a family-led weight-management programme for obese Pacific children. Public Health Nutrition, 18(14), 2625–2633.
  • United Nations Special Rapporteur on minority issues. (2017). Language rights of linguistic minorities: a practical guide for implementation.
  • Van Cleave, J., Gortmaker, S. L., & Perrin, J. M. J. J. (2010). Dynamics of obesity and chronic health conditions among children and youth. Jama, 303(7), 623–630.
  • Verdon, S., McLeod, S., & McDonald, S. (2014). A geographical analysis of speech-language pathology services to support multilingual children. International Journal of Speech-Language Pathology, 16(3), 304–316. doi:10.3109/17549507.2013.868036
  • Verdon, S., McLeod, S., & Wong, S. (2015a). Reconceptualizing practice with multilingual children with speech sound disorders: People, practicalities and policy. International Journal of Language & Communication Disorders, 50(1), 48–62. doi:10.1111/1460-6984.12112
  • Verdon, S., McLeod, S., & Wong, S. (2015b). Supporting culturally and linguistically diverse children with speech, language and communication needs: Overarching principles, individual approaches. Journal of Communication Disorders, 58, 74–90. doi:10.1016/j.jcomdis.2015.10.002
  • Verdon, S., Wong, S., & McLeod, S. (2016). Shared knowledge and mutual respect: Enhancing culturally competent practice through collaboration with families and communities. Child Language Teaching and Therapy, 32(2), 205–221. doi:10.1177/0265659015620254
  • WHO. (2007). International classification of functioning, disability and health - child and youth version. Geneva, Switzerland: World Health Organization.
  • Williams, C. J., & McLeod, S. (2012). Speech-language pathologists’ assessment and intervention practices with multilingual children. International Journal of Speech-Language Pathology, 14(3), 292–305. doi:10.3109/17549507.2011.636071
  • Yoshinaga-Itano, C., Sedey, A. L., Coulter, D. K., & Mehl, A. L. (1998). Language of early-and later-identified children with hearing loss. Pediatrics, 102(5), 1161–1171.
  • Yu, B. (2013). Issues in bilingualism and heritage language maintenance: Perspectives of minority-language mothers of children with autism spectrum disorders. American Journal of Speech-Language Pathology, 22(1), 10–24.
  • Zeidler, D. (2011). Building a relationship: Perspectives from one first nations community. Canadian Journal of Speech-Language Pathology and Audiology, 35(2), 136–143.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.