Empirically Derived Knowledge on Adolescent Assent to Pediatric Biomedical Research

REFERENCES

• Abramovitch , R. , Freedman , J. L. , Henry , K. and Van Brunschot , M. 1995 . Children's capacity to agree to psychological research: Knowledge of risks and benefits and voluntariness . Ethics & Behavior , 5 : 25 – 48 .
   PubMed Web of Science ®Google Scholar
• Abramovitch , R. , Freedman , J. L. , Thoden , K. and Nikolich , C. 1991 . Children's capacity to consent to participation in psychological research: Empirical findings . Child Development , 62 : 1100 – 1109 .
   Web of Science ®Google Scholar
• Acevedo , M. C. , Reyes , C. J. , Annett , R. D. and Lopez , E. M. 2003 . Assessing language competence: Guidelines for assisting persons with limited English proficiency in research and clinical settings . Journal of Multicultural Counseling and Development , 31 : 192 – 204 .
   Web of Science ®Google Scholar
• Annett , R. D. , Brody , J. L. , Scherer , D. G. and Perkett , E. A. 2004 . Perception of risk associated with asthma research procedures among adolescents, parents, and pediatricians . Journal of Allergy and Clinical Immunology , 114 : 1138 – 1145 .
   PubMed Web of Science ®Google Scholar
• Arnold , L. E. , Stoff , D. M. Cook , E. 1995 . Ethical issues in biological psychiatric research with children and adolescents . Journal of the American Academy of Child and Adolescent Psychiatry , 34 : 929 – 939 .
   PubMed Web of Science ®Google Scholar
• Bagley , S. J. , Reynolds , W. W. and Nelson , R. M. 2007 . Is a “wage-payment” model for research participation appropriate for children? . Pediatrics , 119 : 46 – 51 .
   PubMed Web of Science ®Google Scholar
• Baines , P. 2011 . Assent for children's participation in research is incoherent and wrong . Archives of Disease in Childhood , 96 : 960 – 962 .
   PubMed Web of Science ®Google Scholar
• Baumrind , D. 2005 . Patterns of parental authority and adolescent autonomy . New Directions for Child and Adolescent Development , 108 : 61 – 69 .
   PubMedGoogle Scholar
• Blake , D. R. , Lemay , C. A. , Kearney , M. H. and Mazor , K. M. 2011 . Adolescents understanding of research concepts: A focus group study . Archives of Pediatric and Adolescent Medicine , 165 ( 6 ) : 533 – 539 .
   PubMed Web of Science ®Google Scholar
• Brody , J. L. , Annett , R. D. , Scherer , D. G. , Perryman , M. L. and Cofrin , K. M. 2005 . Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols . Journal of Adolescent Health , 37 : 229 – 235 .
   PubMed Web of Science ®Google Scholar
• Brody , J. L. , Annett , R. D. , Scherer , D. G. , Turner , C. and Dalen , J. 2009 . Enrolling adolescents in asthma research: Adolescent, parent, and physician influence in the decision-making process . Journal of Asthma , 46 : 492 – 497 .
   PubMed Web of Science ®Google Scholar
• Brody , J. L. , Scherer , D. G. , Annett , R. D. and Turner , C. W. 2012 . The presumption of benefit in clinical research with children and adolescents . Clinical Investigation , 2 : 551 – 553 .
   Google Scholar
• Brody , J. L. , Scherer , D. G. , Annett , R. D. and Pearson-Bish , M. 2003 . Voluntary assent in biomedical research with adolescents: A comparison of parent and adolescent views . Ethics & Behavior , 13 : 79 – 95 .
   PubMed Web of Science ®Google Scholar
• Brody , J. L. , Scherer , D. G. , Annett , R. D. , Turner , C. and Dalen , J. 2006 . Family and physician influence on asthma research-participation decisions for adolescents: The effects of adolescent gender and research risk . Pediatrics , 118 : 356 – 362 .
   PubMed Web of Science ®Google Scholar
• Brody , J. L. , Turner , C. , Annett , R. D. , Scherer , D. G. and Dalen , J. 2012 . Predicting adolescent asthma research participation decisions from a structural equations model of protocol factors . Journal of Adolescent Health , 51 : 252 – 258 .
   PubMed Web of Science ®Google Scholar
• Broome , M. E. , Kodish , E. , Geller , G. and Siminoff , L. A. 2003 . Children in research: New perspectives and practices for informed consent . IRB: Ethics & Human Research Supplement , 25 : S20 – S25 .
   PubMedGoogle Scholar
• Burke , T. M. , Abramovitch , R. and Zlotkin , S. 2005 . Children's understanding of the risks and benefits associated with research . Journal of Medical Ethics , 31 : 715 – 720 .
   PubMed Web of Science ®Google Scholar
• Byrnes , J. P. 2002 . The development of decision-making . Journal of Adolescent Health , 31 : 208 – 215 .
   PubMed Web of Science ®Google Scholar
• Cialdini , R. B. 2001 . Influence: Science and practice , Boston , MA : Allyn & Bacon .
   Google Scholar
• Code of Federal Regulations . 1994 . Protection of human subjects , Washington , DC : U.S. Government Printing Office . Title 45, Part 46. OPRR Reports
   Google Scholar
• Cohn , L. D. , Macfarlane , S. , Yanez , C. and Imai , W. K. 1995 . Risk-perception: Differences between adolescents and adults . Health Psychology , 14 ( 3 ) : 217 – 222 .
   PubMed Web of Science ®Google Scholar
• Cox , E. D. , Smith , M. A. and Brown , R. L. 2007 . Evaluating deliberation in pediatric primary care . Pediatrics , 120 : e68 – e77 .
   PubMed Web of Science ®Google Scholar
• de Vries , M. , Houtlosser , Wit , J. M. , Engberts , D. P. , Bresters , D. , Kaspers , G. J. L. and van Leeuwen , E. 2011 . Ethical issues at the interface of clinical care and research practice in pediatric oncology: A narrative review of parents’ and physicians’ experiences . BMC Medical Ethics , 12 : 18
   PubMed Web of Science ®Google Scholar
• de Vries , M. C. , Wit , J. M. , Engberts , D. P. , Kaspers , G. J. L. and van Leeuwen , E. 2010 . Pediatric oncologists’ attitudes toward involving adolescents in decision-making concerning research participation . Pediatric Blood and Cancer , 55 : 123 – 128 .
   PubMed Web of Science ®Google Scholar
• Diekema , D. 2005 . “ Payments for participation of children in research ” . In Ethics and research with children , Edited by: Kodish , E. 143 – 160 . Cary , NC : Oxford University Press .
   Google Scholar
• Downs , J. S. and Fishoff , B. 2009 . “ Theories and models of adolescent decision-making ” . In Adolescent health: Understanding and preventing risk behaviors , Edited by: Clementi , D. , Santelli , J. S. and Crosby , R. A. 77 – 94 . San Francisco , CA : Jossey-Bass .
   Google Scholar
• Drotar , D. 2008 . Ethics of treatment and intervention research with children and adolescents with behavioral and mental disorders: Recommendations for a future research agenda . Ethics & Behavior , 18 : 307 – 313 .
   Web of Science ®Google Scholar
• English , A. and Kenney , K. E. 2003 . State minor consent laws: A summary, 2nd ed , Chapel Hill , NC : Center for Adolescent Health & the Law .
   Google Scholar
• Field , M. J. and Behrman , R. E. 2004 . Ethical conduct of clinical research involving children , Washington , DC : National Academies Press .
   Google Scholar
• Fisher , C. B. 2005 . “ Participant consultation: Ethical insights into parental permissions and confidentiality procedures for policy-relevant research with youth ” . In Applied developmental science: An advanced textbook , Edited by: Lerner , R. M. , Jacobs , F. and Wertlieb , D. 113 – 138 . Thousand Oaks , CA : Sage .
   Google Scholar
• Fradet , C. , McGrath , P. J. , Kay , J. , Adams , S. and Luke , B. 1990 . A prospective survey of reactions to blood tests by children and adolescents . Pain , 40 : 53 – 60 .
   PubMed Web of Science ®Google Scholar
• Geller , G. , Tambor , E. S. , Bernhardt , B. A. , Fraser , G. and Wissow , L. S. 2003 . Informed consent for enrolling minors in Genetic susceptibility research: A qualitative study of at-risk children's and parents’ views about children's role in decision-making . Journal of Adolescent Health , 32 : 260 – 271 .
   PubMed Web of Science ®Google Scholar
• Gibson , B. E. , Stasiulis , E. , Gutfreund , S. , McDonald , M. and Dade , L. 2011 . Assessment of children's capacity to consent for research: A descriptive qualitative study of researchers’ practices . Journal of Medical Ethics , 37 : 504 – 509 .
   PubMed Web of Science ®Google Scholar
• Glass , K. C. and Binik , A. 2008 . Rethinking risk in pediatric research . Journal of Law, Medicine and Ethics , 36 : 567 – 576 .
   PubMed Web of Science ®Google Scholar
• Gowda , C. , Schaffer , S. E. , Dombkowski , K. J. and Dempsey , A. F. 2012 . Understanding attitudes toward adolescent vaccination and the decision-making dynamic among adolescents, parents, and providers . BMC Public Health , 12 : 509
   PubMed Web of Science ®Google Scholar
• Grisso , T. 1992 . “ Minors’ assent to behavioral research without parental consent ” . In Social research on children and adolescents , Edited by: Stanley , B. and Seiber , J. E. 109 – 127 . Newbury Park , CA : Sage .
   Google Scholar
• Halpern , S. D. , Karlawish , J. H. T. , Casarett , D. , Berlin , J. A. and Asch , D. A. 2004 . Empirical assessment of whether moderate payments are undue or unjust inducements for participation in clinical trials . Archives of Internal Medicine , 164 : 801 – 803 .
   PubMed Web of Science ®Google Scholar
• Halpern-Felsher , B. L. and Caufmann , E. 2001 . Costs and benefits of a decision: Decision-making competence in adolescents and adults . Applied Developmental Psychology , 22 : 257 – 273 .
   Web of Science ®Google Scholar
• Helgesson , G. 2005 . Children, longitudinal studies, and informed consent . Medicine, Health Care and Philosophy , 8 : 307 – 313 .
   PubMedGoogle Scholar
• Henderson , G. E. , Churchill , L. R. Davis , A. M. 2007 . Clinical trials and medical care: Defining the therapeutic misconception . PLoS Medicine , 4 : e324
   PubMed Web of Science ®Google Scholar
• Joffe , S. , Fernandez , C. V. Pentz , R. D. 2006 . Involving children with cancer in decision-making about research participation . Journal of Pediatrics , 149 : 862 – 868 .
   PubMed Web of Science ®Google Scholar
• Kaser-Boyd , N. , Adelman , H. S. and Taylor , L. 1985 . Minors’ ability to identify risks and benefits of therapy . Professional Psychology: Research and Practice , 16 : 411 – 417 .
   PubMed Web of Science ®Google Scholar
• Kimberly , M. B. , Hoehn , K. S. , Feudtner , C. , Nelson , R. M. and Schreiner , M. 2006 . Variation in standards of research compensation and child assent practices: A comparison of 69 institutional review board-approved informed permission and assent forms for 3 multicenter pediatric trials . Pediatrics , 117 : 1706 – 1711 .
   PubMed Web of Science ®Google Scholar
• Knopf , J. M. , Hornung , R. W. , Slap , G. B. , DeVellis , R. F. and Britto , M. T. 2008 . Views of treatment decision making from adolescents with chronic illnesses and their parents: A pilot study . Health Expectations , 11 : 343 – 354 .
   PubMed Web of Science ®Google Scholar
• Kodish , E. 2003 . Informed consent for pediatric research: Is it really possible? . Journal of Pediatrics , 142 : 89 – 90 .
   PubMed Web of Science ®Google Scholar
• Kodish , E. , Pentz , R. D. , Noll , R. B. , Ruccione , K. , Buckley , J. and Lange , B. L. 1998 . Informed consent in the Children's Cancer Group: Results of preliminary research . Cancer , 82 : 2467 – 2481 .
   PubMed Web of Science ®Google Scholar
• Kon , A. A. 2006 . Assent in pediatric research . Pediatrics , 117 : 1806 – 1810 .
   PubMed Web of Science ®Google Scholar
• Kumpunen , S. , Shipway , S. , Taylor , R. M. , Aldiss , S. and Gibson , F. 2011 . Practical approaches to seeking assent from children . Nurse Researcher , 19 ( 2 ) : 23 – 27 .
   Google Scholar
• Kupst , M. J. Clinical trials in pediatric cancer: Parental perspectives on informed consent . Paper presented at the Annual Convention of the American Psychological Association , San Francisco , CA August
   Google Scholar
• Kupst , M. J. , Patenaude , A. F. , Waldo , G. A. and Sterling , C. 2003 . Clinical trials in pediatric cancer: Parental perspectives on informed consent . Journal of Pediatric Hematology and Oncology , 25 : 787 – 790 .
   PubMed Web of Science ®Google Scholar
• Lederer , S. E. and Grodin , M. A. 1994 . “ Historical overview: Pediatric experimentation ” . In Children as research subjects: Science, ethics, and law , Edited by: Grodin , M. A. and Glanz , L. H. 3 – 25 . New York, NY : Oxford University Press .
   Google Scholar
• Levi , R. , Marsick , R. , Drotar , D. and Kodish , E. 2000 . Diagnosis, disclosure, and informed consent: Learning from parents of children with cancer . Journal of Pediatric Hemotology and Oncology , 22 : 2 – 12 .
   Google Scholar
• Lidz , C. W. , Appelbaum , P. S. , Grisso , T. and Renaud , M. 2004 . Therapeutic misconception and the appreciation of risks in clinical trials . Social Science & Medicine , 58 : 1689 – 1697 .
   PubMed Web of Science ®Google Scholar
• Lidz , C. W. , Meisel , A. , Zerubavel , E. , Carter , M. , Sestak , R. M. and Roth , L. H. 1984 . Informed consent: A study of decision making in psychiatry , New York , NY : Guilford Press .
   Google Scholar
• Masty , J. and Fisher , C. 2008 . A goodness-of-fit approach to informed consent for pediatric intervention research . Ethics & Behavior , 18 : 139 – 160 .
   Web of Science ®Google Scholar
• Michaels , T. F. and Oetting , E. R. 1979 . The informed consent dilemma: An empirical approach . Journal of Social Psychology , 109 : 223 – 230 .
   PubMed Web of Science ®Google Scholar
• Miller , V. A. , Drotar , D. and Kodish , E. 2004 . Children's competence for assent and consent: A review of empirical findings . Ethics & Behavior , 14 : 255 – 295 .
   PubMed Web of Science ®Google Scholar
• Miller , V. A. and Nelson , R. M. 2006 . A developmental approach to child assent for nontherapeutic research . Journal of Pediatrics , 149 : S25 – S30 .
   PubMed Web of Science ®Google Scholar
• Miller , V. A. , Reynolds , W. W. and Nelson , R. M. 2008 . Parent-child roles in decision-making about medical research . Ethics & Behavior , 19 ( 2–3 ) : 161 – 181 .
   Google Scholar
• Miller , V. A. , Reynolds , W. W. and Nelson , R. M. 2009 . “ Children in research: Linking assent and parental permission ” . In The Penn Center guide to bioethics , Edited by: Ravitsky , V. , Fiester , A. and Caplan , A. L. 473 – 482 . New York, NY : Springer .
   Google Scholar
• Millstein , S. G. and Halpern-Felsher , B. L. 2002 . Perceptions of risk and vulnerability . Journal of Adolescent Health , 31S : 10 – 27 .
   Web of Science ®Google Scholar
• National Commission for Protection of Human Subjects of Biomedical and Behavioral Research . 1978 . The Belmont report: Ethical principles and guidelines for the protection of human subjects of research , Washington , DC : Department of Health, Education, and Welfare .
   Google Scholar
• National Institutes of Health . 1998 . NIH policy and guidelines on the inclusion of children as participants in research involving human subjects Available at: http://grants.nih.gov/grants/guide/notice-files/not98-024.html
   Google Scholar
• Nelson , R. M. 2005 . “ Justice, lead, and environmental research involving children ” . In Ethics and research with children: A case-based approach , Edited by: Kodish , E. 161 – 178 . New York, NY : Oxford University Press .
   Google Scholar
• Nucci , L. and Smetana , J. G. 1996 . Mothers’ concepts of young children's areas of personal freedom . Child Development , 67 : 1870 – 1886 .
   PubMed Web of Science ®Google Scholar
• Olechnowicz , J. Q. , Eder , M. , Simon , C. , Zyzanski , S. and Kodish , E. 2002 . Assent observed: Children's involvement in leukemia treatment and research discussions . Pediatrics , 109 : 806 – 814 .
   PubMed Web of Science ®Google Scholar
• Ondrusek , N. , Abramovitch , R. , Pencharz , P. and Koren , G. 1998 . Empirical examination of the ability of children to consent to clinical research . Journal of Medical Ethics , 24 : 158 – 165 .
   PubMed Web of Science ®Google Scholar
• Ong , L. M. , de Haes , J. C. , Hoos , A. M. and Lammes , F. B. 1995 . Doctor–patient communication: A review of the literature . Social Science and Medicine , 40 : 903 – 918 .
   PubMed Web of Science ®Google Scholar
• Pletsch , P. K. and Stevens , P. E. 2001 . Children in research: Informed consent and critical factors affecting mothers . Journal of Family Nursing , 7 : 50 – 70 .
   Google Scholar
• Pomerantz , E. M. and Ruble , D. N. 1998 . The role of maternal control in the development of sex differences in child self-evaluative factors . Child Development , 69 : 458 – 478 .
   PubMed Web of Science ®Google Scholar
• Pediatric Research Equity Act of 2003 . 2003 . Public Law 108–155 . U.S. Statutes at Large , 117 ( 2003 ) : 1936
   Google Scholar
• Quadrel , M. J. , Fischhoff , B. and Davis , W. 1993 . Adolescent (in)vulnerability . American Psychologist , 48 ( 2 ) : 102 – 116 .
   PubMed Web of Science ®Google Scholar
• Reyna , V. F. and Farley , F. 2006 . Risk and rationality in adolescent decision making: Implications for theory, practice, and public policy . Psychological Science in the Public Interest , 7 : 1 – 44 .
   PubMed Web of Science ®Google Scholar
• Reynolds , W. W. and Nelson , R. M. 2007 . Risk perception and decision processes underlying informed consent to research participation . Social Science and Medicine , 65 : 2105 – 2115 .
   PubMed Web of Science ®Google Scholar
• Ross , L. F. 2006 . Children in medical research: Access versus protection , New York , NY : Oxford Press .
   Google Scholar
• Rossi , W. C. , Reynolds , W. and Nelson , R. M. 2003 . Child assent and parental permission in pediatric research . Theoretical Medicine , 24 : 131 – 148 .
   Google Scholar
• Sachs , G. A. , Hougham , G. W. Sugarman , J. 2003 . Conducting empirical research on informed consent: Challenges and questions . IRB: Ethics & Human Research Supplement , 25 : S4 – S10 .
   PubMedGoogle Scholar
• Scherer , D. G. 1991 . The capacities of minors to exercise voluntariness in medical treatment decisions . Law & Human Behavior , 15 : 431 – 449 .
   PubMed Web of Science ®Google Scholar
• Scherer , D. G. , Annett , R. D. and Brody , J. L. 2007 . Ethical issues in adolescent and parent informed consent for pediatric research participation . Journal of Asthma , 44 ( 7 ) : 489 – 496 .
   PubMed Web of Science ®Google Scholar
• Scherer , D. G. , Brody , J. L. , Annett , R. D. , Hetter , J. , Roberts , L. W. and Cofrin , K. M. 2005 . Financial compensation to adolescents for participation in biomedical research: Adolescent and parent perspectives in seven studies . Journal of Pediatrics , 146 : 552 – 558 .
   PubMed Web of Science ®Google Scholar
• Scherer , D. G. , Brody , J. , Annett , R. D. , Turner , C. and Dalen , J. Family process factors in assent to pediatric asthma research . Presented at the symposium Child Assent and Parental Permission in Pediatric Research—Methodological Advances and Contextual Influences, at the meetings of the American Psychological Association , Washington , DC August
   Google Scholar
• Scherer , D. G. and Reppucci , N. D. 1988 . Adolescents’ capacities to provide voluntary informed consent: Effects of parental influence and medical dilemmas . Law and Human Behavior , 12 : 123 – 141 .
   PubMed Web of Science ®Google Scholar
• Sibley , A. , Sheehan , M. and Pollard , A. J. 2012 . Assent is not consent . Journal of Medical Ethics , 38 : 3
   PubMed Web of Science ®Google Scholar
• Sieber , J. E. 2008 . Empirical research on ethical issues in pediatric research . Ethics and Behavior , 18 ( 2–3 ) : 127 – 138 .
   Web of Science ®Google Scholar
• Simon , C. , Eder , M. , Raiz , P. , Zyzanski , S. , Pentz , R. and Kodish , E. 2001 . Informed consent for pediatric leukemia research: Clinician perspectives . Cancer , 92 : 691 – 700 .
   PubMed Web of Science ®Google Scholar
• Skinner , L. J. , Berry , K. K. , Biro , M. and Jackson , T. 1991 . Research ethicality: The perceptions of participants and their participation willingness . Current Psychology , 10 : 79 – 91 .
   PubMed Web of Science ®Google Scholar
• Smetana , J. G. and Daddis , C. 2002 . Domain-specific antecedents of parental psychological control and monitoring: The role of parenting beliefs and practices . Child Development , 73 : 563 – 580 .
   PubMed Web of Science ®Google Scholar
• Snethen , J. A. , Broome , M. E. , Knafl , K. , Deatrick , J. A. and Angst , D. 2006 . Family patterns of decision-making in pediatric clinical trials . Research in Nursing & Health , 29 : 223 – 232 .
   PubMed Web of Science ®Google Scholar
• Society for Adolescent Medicine . 2003 . Guidelines for adolescent health research . Journal of Adolescent Health , 33 : 396 – 409 .
   PubMedGoogle Scholar
• Spears , L. P. 2010 . The behavioral neuroscience of adolescence , New York , NY : W. W. Norton .
   Google Scholar
• Sterling , C. M. and Walco , G. A. 2003 . Protection of children's rights to self-determination in research . Ethics & Behavior , 13 : 237 – 247 .
   PubMed Web of Science ®Google Scholar
• Sullivan , D. S. and Deiker , T. E. 1973 . Subject-experimenter perceptions of ethical issues in human research . American Psychologist , 28 : 587 – 591 .
   PubMed Web of Science ®Google Scholar
• Susman , E. J. , Dorn , L. D. and Fletcher , J. C. 1992 . Participation in biomedical research: The consent process as viewed by children, adolescents, young adults, and physicians . Journal of Pediatrics , 121 : 547 – 552 .
   PubMed Web of Science ®Google Scholar
• Swartling , U. , Hansson , M. G. , Ludvigsson , J. and Nordgren , A. 2011 . “My parents decide if I can. I decide if I want to.” Children's views on participation in medical research . Journal of Empirical Research on Human Research Ethics , 6 : 68 – 75 .
   PubMed Web of Science ®Google Scholar
• Swartling , U. , Helgesson , G. , Hansson , M. G. and Ludvigsson , J. 2009 . Split views among parents regarding children's right to decide about participation in research: A questionnaire study . Journal of Medical Ethics , 35 : 450 – 455 .
   PubMed Web of Science ®Google Scholar
• Unguru , Y. , Coppes , M. J. and Kamani , N. 2008 . Rethinking pediatric assent: From requirement to ideal . Pediatric Clinics of North America , 55 : 211 – 222 .
   PubMed Web of Science ®Google Scholar
• Unguru , Y. , Sill , A. M. and Kamani , N. 2010 . The experiences of children enrolled in pediatric oncology research: Implications for assent . Pediatrics , 125 : e876 – e883 .
   PubMed Web of Science ®Google Scholar
• U.S. Food and Drug Administration . 2001 . Best Pharmaceuticals for Children Act . Available at: http:/www.fda.gov/opacom/laws/pharmkids/pharmkids.html (accessed March 5, 2001)
   Google Scholar
• Varma , S. , Jenkins , T. and Wendler , D. 2008 . How do children and parents make decisions about pediatric clinical research? . Journal of Pediatric Hematology and Oncology , 30 ( 11 ) : 823 – 828 .
   PubMed Web of Science ®Google Scholar
• Vitiello , B. 2008 . Effectively obtaining informed consent for child and adolescent participation in mental health research . Ethics & Behavior , 18 : 182 – 198 .
   Web of Science ®Google Scholar
• Waterman , A. H. and Blades , M. 2011 . Helping children correctly say “I don't know” to unanswerable questions . Journal of Experimental Psychology: Applied , 17 ( 4 ) : 396 – 405 .
   PubMed Web of Science ®Google Scholar
• Weithorn , L. A. and Campbell , S. B. 1982 . The competency of children and adolescents to make informed treatment decisions . Child Development , 53 : 1589 – 1598 .
   PubMed Web of Science ®Google Scholar
• Weithorn , L. A. and Scherer , D. G. 1994 . “ Children's involvement in research participation decisions: Psychological considerations ” . In Children as research subjects: Science, ethics, and law , Edited by: Grodin , M. A. and Glanz , L. H. 173 – 179 . New York , NY : Oxford University Press .
   Google Scholar
• Wray-Lake , L. , Crouter , A. C. and McHale , S. M. 2010 . Developmental patterns in decision-making autonomy across middle childhood and adolescence: European American parents’ perspectives . Child Development , 81 : 636 – 651 .
   PubMed Web of Science ®Google Scholar