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An Ethics of Welfare for Patients Diagnosed as Vegetative With Covert Awareness

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REFERENCES

  • Albrecht, G.L., and P.J. Devlieger. 1999. The disability paradox: High quality of life against all odds. Social Science & Medicine 48(8): 977–988. http://dx.doi.org/10.1016/S0277-9536(98)00411-0
  • Andrews, K., L. Murphy, R. Munday, et al. 1996. Misdiagnosis of the vegetative state: retrospective study in a rehabilitation unit. British Medical Journal 313: 13–16. http://dx.doi.org/10.1136/bmj.313.7048.13
  • Bardin, J.C., J.J. Fins, D.I. Katz, et al. 2011. Dissociations between behavioural and functional magnetic resonance imaging-based evaluations of cognitive function after brain injury. Brain 134: 769–782. http://dx.doi.org/10.1093/brain/awr005
  • Bentham, J. 1982. Introduction to the principles of morals and legislation, 1789. London, UK: Routledge.
  • Boly, M., M.E. Faymonville, C. Schnakers, et al. 2008. Perception of pain in the minimally conscious state with PET activation: An observational study. Lancet Neurology 7: 1013–1020. http://dx.doi.org/10.1016/S1474-4422(08)70219-9
  • Bruno, M.A., J.L. Bernheim, D. Ledoux, et al. 2011. A survey on self-assessed well-being in a cohort of chronic locked-in syndrome patients: Happy majority, miserable minority. BMJ Open 1(1): 1–9. http://dx.doi.org/10.1136/bmjopen-2010-000039
  • Bullinger, M., and the TBI Consensus Group. 2002. Quality of life in patients with traumatic brain injury-basic issues, assessment and recommendations. Restorative Neurology & Neuroscience 20: 111–124.
  • Carlson, L., and F. Kittay. 2009. Introduction: Rethinking philosophical presumptions in light of cognitive disability. Metaphilosophy 40(3–4): 307–330. http://dx.doi.org/10.1111/j.1467-9973.2009.01609.x
  • Chatelle, C., S. Majerus, J. Whyte, et al. 2012. A sensitive scale to assess nociceptive pain in patients with disorders of consciousness. Journal of Neurology, Neurosurgery, and Psychiatry 83: 1233–1237. http://dx.doi.org/10.1136/jnnp-2012-302987
  • Childs, N.L., W.N. Mercer, and H.W. Childs. 1993. Accuracy of diagnosis of persistent vegetative state. Neurology 43(8): 1465–1465. http://dx.doi.org/10.1212/WNL.43.8.1465
  • Dijkers, M. 2004. Quality of life after traumatic brain injury: a review of research approaches and findings. Archives of Physical Medicine and Rehabilitation 85(S2): S21–S35. http://dx.doi.org/10.1016/j.apmr.2003.08.119
  • Dworkin, R. 1993. Life's dominion: An Argument about abortion, euthanasia, and individual freedom. New York, NY: Routledge.
  • Fernandez-Espejo, D., and A. M. Owen. 2013. Detecting awareness after severe brain injury. Nature Reviews Neuroscience 14: 1–9. http://dx.doi.org/10.1038/nrn3608
  • Finnis, J. 1985. A philosophical case against euthanasia: A reply to John Harris. In Euthanasia Examined, Keown J. ed., 46–55. Cambridge, Cambridge University Press.
  • Fins, J.J., and N.D. Schiff. 2010. In the blink of the mind's eye. Hastings Center Report 40(3): 21–23. http://dx.doi.org/10.1353/hcr.0.0257
  • Franulic, A., C.G. Carbonell, P. Pinto, et al. 2004. Psychosocial adjustment and employment outcome 2, 5 and 10 years after TBI. Brain Injured 18: 119–129. http://dx.doi.org/10.1080/0269905031000149515
  • Giacino, J.T., S. Ashwal, N. Childs, et al. 2002. The minimally conscious state: definition and diagnostic criteria. Neurology 58: 349–353. http://dx.doi.org/10.1212/WNL.58.3.349
  • Hardcastle, V. G. 1997. When a pain is not. Journal of Philosophy 94: 381–409. http://dx.doi.org/10.2307/2564606
  • Iannetti, G.D., and A. Mouraux. 2010. From the neuromatrix to the pain matrix (and back). Experimental Brain Research 205(1): 1–12. http://dx.doi.org/10.1007/s00221-010-2340-1
  • IASP Taxonomy Working Group. 2011. Classification of chronic pain: Part III: Pain terms: A current list with definitions and notes on usage, 3rd ed. Available at http://www.iasp-pain.org/AM/Template.cfm?Section=Classification_of_Chronic_Pain&Template=/CM/ContentDisplay.cfm&ContentID=16283 ( accessed August 22, 2014).
  • Jennett, B., and F. Plum. 1972. Persistent vegetative state after brain damage. Lancet 299(7753): 734–737. http://dx.doi.org/10.1016/S0140-6736(72)90242-5
  • Johnson, L.S.M. 2013. Can they suffer? The ethical priority of quality of life research in disorders of consciousness. Bioethica Forum 6(4): 129–136.
  • Kahane, G., and J. Savulescu. 2009. Brain damage and the moral significance of consciousness. Journal of Medicine and Philosophy 34: 6–26.
  • Kassubek, J, F.D. Jeungling, T. Els, et al. 2003. Activation of a residual cortical network during painful stimulation in long-term postanoxic vegetative state: A 15-O-H2O PET study. Journal of the Neurological Sciences 212: 85–91. http://dx.doi.org/10.1016/S0022-510X(03)00106-0
  • Klein, D.A., and M. Russell. 2013. Include objective quality-of-life assessments when making treatment decisions with patients possessing covert awareness. AJOB Neuroscience 4(4): 19–20. http://dx.doi.org/10.1080/21507740.2013.827277
  • Kong, J., N.S. White, K.K. Kwong, et al. 2006. Using fMRI to dissociate sensory encoding from cognitive evaluation of heat pain intensity. Human Brain Mapping 27: 715–721. http://dx.doi.org/10.1002/hbm.20213
  • Laureys, S., M.E. Faymonville, P. Peigneux, et al. 2002. Cortical processing of noxious somatosensory stimuli in the persistent vegetative state. NeuroImage 17: 732–741.
  • Laureys, S., and M. Boly. 2007. What is it like to be vegetative or minimally conscious? Current Opinion in Neurology 20: 609–613. http://dx.doi.org/10.1097/WCO.0b013e3282f1d6dd
  • Lulé, D, C. Zickler, S. Hacker, et al. 2009. Life can be worth living in locked-in syndrome. Progress in Brain Research 177: 339–351. http://dx.doi.org/10.1016/S0079-6123(09)17723-3
  • Markl, A., Y. Tao, D. Vogel, et al. 2013. Brain processing of pain in patients with unresponsive wakefulness syndrome. Brain and Behavior 3(2): 95–103. http://dx.doi.org/10.1002/brb3.110
  • McCullagh, P. 2004. Consciousness in a vegetative state? A critique of the PVS concept. Dordrecht, The Netherlands: Kluwer Academic Publishers.
  • McMahan, J. 2009. Radical cognitive limitation. disability and disadvantage, ed. K. Brownlee, and A.S. Cureton, 240–259. New York, NY: Routledge.
  • Monti, M.M., A. Vanhaudenhuyse, M.R. Coleman, et al. 2010. Wilful modulation of brain activity in disorders of consciousness. New England Journal of Medicine 362(7): 579–589. http://dx.doi.org/10.1056/NEJMoa0905370
  • Moyle, W., J. Murfield, S.G. Griffiths, et al. 2012. Assessing quality of life of older people with dementia: A comparison of self-report and proxy accounts. Journal of Advanced Nursing 68(10): 2237–2246. http://dx.doi.org/10.1111/j.1365-2648.2011.05912.x
  • Multi Society Task Force on PVS. 1994. Medical aspects of the persistent vegetative state. New England Journal of Medicine 330: 1572–1579. http://dx.doi.org/10.1056/NEJM199406023302206
  • Mutschler, I., J. Wankerl, E. Seifritz, et al. 2011. The role of the human insular cortex in pain processing. European Psychiatry 26(S1): 1001. http://dx.doi.org/10.1016/S0924-9338(11)72706-7
  • Naci, L., and A.M. Owen. 2013. Making every word count for nonresponsive patients. JAMA Neurology 70(10): 1235–1241.
  • Naci, L., R. Cusack, M. Anello, et al. 2014. A common neural code for similar conscious experiences in different individuals. Proceedings of the National Academy of Sciences, USA 111(39): 14277–14282. http://dx.doi.org/10.1073/pnas.1407007111
  • Noirhomme, Q., A. Soddu, R. Lehembre, et al. 2010. Brain connectivity in pathological and pharmacological coma. Frontiers in Systems Neuroscience 4: 160. http://dx.doi.org/10.3389/fnsys.2010.00160
  • Panksepp, J. 2005. Affective consciousness: core emotional feelings in animals and humans. Consciousness and Cognition 14: 30–80. http://dx.doi.org/10.1016/j.concog.2004.10.004
  • Peterson, A., L. Naci, C. Weijer, et al. 2013. Assessing decision making capacity in the behaviourally non-responsive patient with residual covert awareness. AJOB Neuroscience 4(4): 2–13. http://dx.doi.org/10.1080/21507740.2013.821189
  • Price, D.D. 2002. Sensory and affective dimensions of pain. Molecular Interventions 2(6): 392–402. http://dx.doi.org/10.1124/mi.2.6.392
  • Rainville, P., B. Carrier, R.K. Hofbauer, et al. 1999. Dissociation of sensory and affective dimensions of pain using hypnotic modulation. Pain 82(2): 159–171. http://dx.doi.org/10.1016/S0304-3959(99)00048-2
  • Regan, T. 1983. The case for animal rights. Berkeley, CA: Routledge.
  • Salzen, E.A. 1998. Emotion and self-awareness. Applied Animal Behaviour Science 57: 299–313. http://dx.doi.org/10.1016/S0168-1591(98)00104-X
  • Schnakers, C., N.D. Zasler. 2007. Pain assessment and management in disorders of consciousness. Current Opinion in Neurology 20: 620–626. http://dx.doi.org/10.1097/WCO.0b013e3282f169d9
  • Schnakers, C., A. Vanhaudenhuyse, J. Giacino, et al. 2009. Diagnostic accuracy of the vegetative and minimally conscious state: Clinical consensus versus standardized neurobehavioral assessment. BMC Neurology 9(35).
  • Schnakers, C., C. Chatelle, S. Majerus, et al. 2010. Assessment and detection of pain in noncommunicative severely brain-injured patients. Expert Reviews Neurotherapeutics 10(11): 1725–1731. http://dx.doi.org/10.1586/ern.10.148
  • Sharon, H., Y. Pasternak, E. Ben Simon, et al. 2013. Emotional processing of personally familiar faces in the vegetative state. PLoS ONE 8(9): 1–8. http://dx.doi.org/10.1371/journal.pone.0074711
  • Singer, P. 2011. Practical ethics, 3rd ed. Routledge.
  • Sneeuw, K.C., N.K. Aaronson, R.J. de Haan, et al. 1997. Assessing quality of life after stroke: The value and limitation of proxy ratings. Stroke 28(8): 1541–1549. http://dx.doi.org/10.1161/01.STR.28.8.1541
  • Sumner, W. 1996. Welfare, happiness, and ethics, Oxford, UK: Routledge
  • Wager, T.D., L.T. Atlas, M.A. Lindquist, et al. 2013. An fMRI-based neurologic signature of physical pain. New England Journal of Medicine 368: 1388–1397. http://dx.doi.org/10.1056/NEJMoa1204471
  • Warren, M. 1997. Moral status: Obligations to persons and other living things. Routledge.
  • Weijer, C., A. Peterson, F. Webster, et al. 2014. Ethics of neuroimaging after serious brain injury. BMC Medical Ethics 15: 41. http://dx.doi.org/10.1186/1472-6939-15-41
  • Wiech K., H. Preissl, and N. Birbaumer. 2001. Neural networks and pain processing. New insights from imaging techniques. Der Anaesthetist 50: 2–12. http://dx.doi.org/10.1007/s001010050956
  • Wilkinson, D.J., G. Kahane, and J. Savulescu. 2008. “Neglected personhood” and neglected questions: Remarks on the moral significance of consciousness. AJOB Neuroscience 8: 31–33.
  • Wilkinson D.J., G. Kahane, M. Horne, et al. 2009. Functional neuroimaging and withdrawal of life-sustaining treatment from vegetative patients. Journal of Medical Ethics 35(8): 508–511. http://dx.doi.org/10.1136/jme.2008.029165
  • Yu T., S. Lang, D. Vogel, et al. 2013. Patients with unresponsive wakefulness syndrome respond to the pain cries of other people. Neurology 80(4):345–352. http://dx.doi.org/10.1212/WNL.0b013e31827f0846

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