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Research Article

A scoping review of research trends and future directions for research on the experiences of autistic students and staff in post-secondary education

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Received 24 Nov 2022, Accepted 20 Jun 2023, Published online: 10 Jul 2023

References

  • AASPIRE (Academic Autism Spectrum Partnership in Research and Education). 2020. What ASSPIRE Can and Cannot Do. May 19. https://aaspire.org/about/faqs/#can-aaspire-help-me-with-my-research.
  • American Psychiatric Association. 2013. Diagnostic and Statistical Manual of Mental Disorders, 5th Edition: DSM-5. Washington, DC: American Psychiatric Association.
  • Anderson, A. M. 2021. “Exploring the Workforce Experiences of Autistic Librarians through Accessible and Participatory Approaches.” Library & Information Science Research 43 (2): 101088. https://doi.org/10.1016/j.lisr.2021.101088.
  • Anderson, A. H., M. Carter, and J. Stephenson. 2020. “An On-Line Survey of University Students with Autism Spectrum Disorder in Australia and New Zealand: Characteristics, Support Satisfaction, and Advocacy.” Journal of Autism and Developmental Disorders 50 (2): 440–454. https://doi.org/10.1007/s10803-019-04259-8.
  • Anderson, A. H., J. Stephenson, and M. Carter. 2017. “A Systematic Literature Review of the Experiences and Supports of Students with Autism Spectrum Disorder in Post-Secondary Education.” Research in Autism Spectrum Disorders 39:33–53. https://doi.org/10.1016/j.rasd.2017.04.002.
  • Anderson, A. H., J. Stephenson, and M. Carter. 2020. “Perspectives of Former Students with ASD from Australia and New Zealand on Their University Experience.” Journal of Autism and Developmental Disorders 50 (8): 2886–2901. https://doi.org/10.1007/s10803-020-04386-7.
  • Anderson, A. H., J. Stephenson, M. Carter, and S. Carlon. 2019. “A Systematic Literature Review of Empirical Research on Postsecondary Students with Autism Spectrum Disorder.” Journal of Autism and Developmental Disorders 49 (4): 1531–1558. https://doi.org/10.1007/s10803-018-3840-2.
  • Ashbaugh, K., R. L. Koegel, and L. K. Koegel. 2017. “Increasing Social Integration for College Students with Autism Spectrum Disorder.” Behavioral Development Bulletin 22 (1): 183–196. https://doi.org/10.1037/bdb0000057.
  • Bailey, Kathryn M., Kyle M. Frost, Karís Casagrande, and Brooke Ingersoll. 2020. “The Relationship Between Social Experience and Subjective Well-being in Autistic College Students: A Mixed Methods Study.” Autism 24 (5): 1081–1092. http://doi.org/10.1177/1362361319892457.
  • Bakker, T., L. Krabbendam, S. Bhulai, and S. Begeer. 2019. “Background and Enrollment Characteristics of Students with Autism in Higher Education.” Research in Autism Spectrum Disorders 67:101424. https://doi.org/10.1016/j.rasd.2019.101424.
  • Bakker, T., L. Krabbendam, S. Bhulai, M. Meeter, and S. Begeer. 2023. “Study Progression and Degree Completion of Autistic Students in Higher Education: A Longitudinal Study.” Higher Education 85 (1): 1–26. https://doi.org/10.1007/s10734-021-00809-1.
  • Baldwin, S., D. Costley, and A. Warren. 2014. “Employment Activities and Experiences of Adults with High-Functioning Autism and Asperger’s Disorder.” Journal of Autism and Developmental Disorders 44 (10): 2440–2449. https://doi.org/10.1007/s10803-014-2112-z.
  • Bell, S., C. Devecchi, M. Shevlin, and C. Mc Guckin. 2017. “Making the Transition to Post-Secondary Education: Opportunities and Challenges Experienced by Students with ASD in the Republic of Ireland.” European Journal of Special Needs Education 32 (1): 54–70. https://doi.org/10.1080/08856257.2016.1254972.
  • Bottema-Beutel, K., S. K. Kapp, J. N. Lester, N. J. Sasson, and B. N. Hand. 2021. “Avoiding Ableist Language: Suggestions for Autism Researchers.” Autism in Adulthood 3 (1): 18–29. https://doi.org/10.1089/aut.2020.0014.
  • Cage, E., M. De Andres, and P. Mahoney. 2020. “Understanding the Factors That Affect University Completion for Autistic People.” Research in Autism Spectrum Disorders 72:101519. https://doi.org/10.1016/j.rasd.2020.101519.
  • Cage, E., and J. Howes. 2020. “Dropping out and Moving on: A Qualitative Study of Autistic People’s Experiences of University.” Autism 24 (7): 1664–1675. https://doi.org/10.1177/1362361320918750.
  • Camarena, P. M., and P. A. Sarigiani. 2009. “Postsecondary Educational Aspirations of High-Functioning Adolescents with Autism Spectrum Disorders and Their Parents.” Focus on Autism and Other Developmental Disabilities 24 (2): 115–128. https://doi.org/10.1177/1088357609332675.
  • Câmpeanu, E., D. Dumitrescu, I. Costică, and I. Boitan. 2017. “The Impact of Higher Education Funding on Socio-Economic Variables: Evidence from EU Countries.” Journal of Economic Issues 51 (3): 748–781. https://doi.org/10.1080/00213624.2017.1359048.
  • Casement, S., C. Carpio de los Pinos, and R. Forrester-Jones. 2017. “Experiences of University Life for Students with Asperger’s Syndrome: A Comparative Study between Spain and England.” International Journal of Inclusive Education 21 (1): 73–89. https://doi.org/10.1080/13603116.2016.1184328.
  • Chown, N., J. Baker-Rogers, L. Hughes, K. Cossburn, and P. Byrne. 2018. “The ‘High Achievers’ Project: An Assessment of the Support for Students with Autism Attending UK Universities.” Journal of Further and Higher Education 42 (6): 837–854. https://doi.org/10.1080/0309877X.2017.1323191.
  • Chown, N., J. Robinson, L. Beardon, J. Downing, L. Hughes, J. Leatherland, K. Fox, L. Hickman, and D. MacGregor. 2017. “Improving Research about Us, with Us: A Draft Framework for Inclusive Autism Research.” Disability & Society 32 (5): 720–734. https://doi.org/10.1080/09687599.2017.1320273.
  • Dovigo, F. 2017. Special Educational Needs and Inclusive Practices: An International Perspective. Edited by F. Dovigo. Rotterdam: Sense Publishers.
  • Fabri, M., G. Fenton, P. Andrews, and M. Beaton. 2022. “Experiences of Higher Education Students on the Autism Spectrum: Stories of Low Mood and High Resilience.” International Journal of Disability, Development and Education 69 (4): 1411–1429. https://doi.org/10.1080/1034912X.2020.1767764.
  • Flegenheimer, C., and K. S. Scherf. 2022. “College as a Developmental Context for Emerging Adulthood in Autism: A Systematic Review of What We Know and Where We Go from Here.” Journal of Autism and Developmental Disorders 52 (5): 2075–2097. https://doi.org/10.1007/s10803-021-05088-4.
  • Fleischer, A. S. 2012. “Alienation and Struggle: Everyday Student-Life of Three Male Students with Asperger Syndrome.” Scandinavian Journal of Disability Research 14 (2): 177–194. https://doi.org/10.1080/15017419.2011.558236.
  • Fletcher-Watson, S., J. Adams, K. Brook, T. Charman, L. Crane, J. Cusack, S. Leekam, D. Milton, J. R. Parr, and E. Pellicano. 2019. “Making the Future Together: Shaping Autism Research Through Meaningful Participation.” Autism 23 (4): 943–953. http://doi.org/10.1177/1362361318786721.
  • Gelbar, N., I. Smith, and B. Reichow. 2014. “Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs.” Journal of Autism and Developmental Disorders 44 (10): 2593–2601. https://doi.org/10.1007/s10803-014-2135-5.
  • Hamilton, J., G. Stevens, and S. Girdler. 2016. “Becoming a Mentor: The Impact of Training and the Experience of Mentoring University Students on the Autism Spectrum.” PLoS ONE 11 (4): e0153204. https://doi.org/10.1371/journal.pone.0153204.
  • Hugo, M., and J. Hedegaard. 2017. “Education as Habilitation: Empirical Examples from Adjusted Education in Sweden for Students Associated with High-Functioning Autism. Andragoška Spoznanja.” Andragoška Spoznanja 23 (3): 71–87. https://doi.org/10.4312/as.23.3.71-87.
  • Hummerstone, H., and S. Parsons. 2021. “What Makes a Good Teacher? Comparing the Perspectives of Students on the Autism Spectrum and Staff.” European Journal of Special Needs Education 36 (4): 610–624. https://doi.org/10.1080/08856257.2020.1783800.
  • Jackson, S. L. J., L. Hart, J. T. Brown, and F. R. Volkmar. 2018. “Brief Report: Self-Reported Academic, Social, and Mental Health Experiences of Post-Secondary Students with Autism Spectrum Disorder.” Journal of Autism and Developmental Disorders 48 (3): 643–650. https://doi.org/10.1007/s10803-017-3315-x.
  • Jorgensen, C. M., K. Bates, A. H. Frechette, R. M. Sonnenmeier, and J. Curtin. 2011. ““Nothing about Us without Us:” Including People with Disabilities as Teaching Partners in University Courses.” International Journal of Whole Schooling 7 (2): 109–126.
  • Kenny, L., C. Hattersley, B. Molins, C. Buckley, C. Povey, and E. Pellicano. 2016. “Which Terms Should Be Used to Describe Autism? Perspectives from the UK Autism Community.” Autism 20 (4): 442–462. https://doi.org/10.1177/1362361315588200.
  • MacLeod, A., J. Allan, A. Lewis, and C. Robertson. 2017. “‘Here I Come Again’: the Cost of Success for Higher Education Students Diagnosed with Autism.” International Journal of Inclusive Education 22 (6): 683–697. http://doi.org/10.1080/13603116.2017.1396502.
  • Martin, N. 2021. “Perspectives on UK University Employment from Autistic Researchers and Lecturers.” Disability & Society 36 (9): 1510–1531. https://doi.org/10.1080/09687599.2020.1802579.
  • McDonald, T. A. M. 2020. “Autism Identity and the “Lost Generation”: Structural Validation of the Autism Spectrum Identity Scale and Comparison of Diagnosed and Self-Diagnosed Adults on the Autism Spectrum.” Autism in Adulthood 2 (1): 13–23. https://doi.org/10.1089/aut.2019.0069.
  • The National Autistic Society. 2023. Sensory Differences: A Guide for all Audiences. April 6. National Autistic Society. https://www.autism.org.uk/advice-and-guidance/topics/sensory-differences/sensory-differences/all-audiences.
  • Newman, L., M. Wagner, A. M. Knokey, C. Marder, K. Nagle, D. Shaver, and X. Wei. 2011. The Post-High School Outcomes of Young Adults with Disabilities Up to 8 Years after High School: A Report from the National Longitudinal Transition Study-2 (NLTS2). NCSER 2011-3005. National Center for Special Education Research. https://ies.ed.gov/ncser/pubs/20113005/pdf/20113005.pdf.
  • Nicolaidis, C., D. Raymaker, S. K. Kapp, A. Baggs, E. Ashkenazy, K. McDonald, M. Weiner, J. Maslak, M. Hunter, and A. Joyce. 2019. “The AASPIRE Practice-Based Guidelines for the Inclusion of Autistic Adults in Research as Co-Researchers and Study Participants.” Autism 23 (8): 2007–2019. https://doi.org/10.1177/1362361319830523.
  • Nicolaidis, C., D. Raymaker, K. McDonald, S. Dern, E. Ashkenazy, C. Boisclair, S. Robertson, and A. Baggs. 2011. “Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons from an Academic–Community Partnership with Autistic Self-Advocates.” Progress in Community Health Partnerships: Research, Education, and Action 5 (2): 143–150. https://doi.org/10.1353/cpr.2011.0022.
  • Nicolaidis, C., D. M. Raymaker, K. E. McDonald, E. M. Lund, S. Leotti, S. K. Kapp, M. Katz, et al. 2020. “Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.” Autism in Adulthood 2 (1): 61–76. https://doi.org/10.1089/aut.2019.0074.
  • Packer, R., and A. Thomas. 2021. “Transitions to Further Education: Listening to Voices of Experience.” Research in Post-Compulsory Education 26 (2): 212–230. https://doi.org/10.1080/13596748.2021.1909925.
  • Pellicano, E., A. Dinsmore, and T. Charman. 2014a. “Views on Researcher-Community Engagement in Autism Research in the United Kingdom: A Mixed-Methods Study.” PLoS ONE 9 (10): e109946. https://doi.org/10.1371/journal.pone.0109946.
  • Pellicano, E., A. Dinsmore, and T. Charman. 2014b. “What Should Autism Research Focus upon? Community Views and Priorities from the United Kingdom.” Autism 18 (7): 756–770. https://doi.org/10.1177/1362361314529627.
  • Pesonen, H. V., J. H. Nieminen, J. Vincent, M. Waltz, M. Lahdelma, E. V. Syurina, and M. Fabri. 2023. “A Socio-Political Approach on Autistic Students’ Sense of Belonging in Higher Education.” Teaching in Higher Education 28 (4): 739–757. https://doi.org/10.1080/13562517.2020.1852205.
  • Pesonen, H. V., M. Waltz, M. Fabri, M. Lahdelma, and E. V. Syurina. 2021. “Students and Graduates with Autism: Perceptions of Support When Preparing for Transition from University to Work.” European Journal of Special Needs Education 36 (4): 531–546. https://doi.org/10.1080/08856257.2020.1769982.
  • Shattuck, P. T., S. C. Narendorf, B. Cooper, P. R. Sterzing, M. Wagner, and J. L. Taylor. 2012. “Postsecondary Education and Employment Among Youth With an Autism Spectrum Disorder.” Pediatrics 129 (6): 1042–1049. http://doi.org/10.1542/peds.2011-2864.
  • Simmeborn Fleischer, A., M. Adolfsson, and M. Granlund. 2013. “Students with Disabilities in Higher Education – Perceptions of Support Needs and Received Support.” International Journal of Rehabilitation Research 36 (4): 330–338. https://doi.org/10.1097/MRR.0b013e328362491c.
  • Smagorinsky, P. 2011. “Confessions of a Mad Professor: An Autoethnographic Consideration of Neuroatypicality, Extranormativity, and Education.” Teachers College Record: The Voice of Scholarship in Education 113 (8): 1701–1732. https://doi.org/10.1177/016146811111300802.
  • Stagg, S. D., and H. Belcher. 2019. “Living with Autism without Knowing: Receiving a Diagnosis in Later Life.” Health Psychology and Behavioral Medicine 7 (1): 348–361. https://doi.org/10.1080/21642850.2019.1684920.
  • Strnadová, I., V. Hájková, and L. Květoňová. 2015. “Voices of University Students with Disabilities: Inclusive Education on the Tertiary Level – A Reality or a Distant Dream?” International Journal of Inclusive Education 19 (10): 1080–1095. https://doi.org/10.1080/13603116.2015.1037868.
  • Thompson-Hodgetts, S., C. Labonte, R. Mazumder, and S. Phelan. 2020. “Helpful or Harmful? A Scoping Review of Perceptions and Outcomes of Autism Diagnostic Disclosure to Others.” Research in Autism Spectrum Disorders 77:101598. https://doi.org/10.1016/j.rasd.2020.101598.
  • Thompson, C., S. Bölte, T. Falkmer, and S. Girdler. 2019. “Viewpoints on How Students with Autism Can Best Navigate University.” Scandinavian Journal of Occupational Therapy 26 (4): 294–305. https://doi.org/10.1080/11038128.2018.1495761.
  • Tricco, A. C., E. Lillie, W. Zarin, K. K. O’Brien, H. Colquhoun, D. Levac, D. Moher, et al. 2018. “PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation.” Annals of Internal Medicine 169 (7): 467–473. https://doi.org/10.7326/M18-0850.
  • UN Committee on the Rights of Persons with Disabilities (CRPD). 2016. General comment no. 4 (2016), article 24: Right to inclusive education, CRPD/C/GC/4. https://digitallibrary.un.org/record/1313836?ln=en.
  • UNESCO (United Nations Educational, Scientific and Cultural Organization). 2012. International Standard Classification of Education (ISCED 2011). https://uis.unesco.org/sites/default/files/documents/international-standard-classification-of-education-isced-2011-en.pdf.
  • UN General Assembly. 2006. Convention on the Rights of Persons with Disabilities. https://www.refworld.org/docid/4680cd212.html.
  • United Nations. 2006. United Nations Convention on the Rights of Persons with Disabilities. New York: United Nations.
  • Van Hees, V., T. Moyson, and H. Roeyers. 2015. “Higher Education Experiences of Students with Autism Spectrum Disorder: Challenges, Benefits and Support Needs.” Journal of Autism and Developmental Disorders 45 (6): 1673–1688. https://doi.org/10.1007/s10803-014-2324-2.
  • Van Hees, V., H. Roeyers, and J. De Mol. 2018. “Students with Autism Spectrum Disorder and Their Parents in the Transition into Higher Education: Impact on Dynamics in the Parent-Child Relationship.” Journal of Autism and Developmental Disorders 48 (10): 3296–3310. https://doi.org/10.1007/s10803-018-3593-y.
  • Vincent, J. 2019. “It’s the Fear of the Unknown: Transition from Higher Education for Young Autistic Adults.” Autism 23 (6): 1575–1585. https://doi.org/10.1177/1362361318822498.
  • Volkmar, F. R., S. L. Jackson, and L. Hart. 2017. “Transition Issues and Challenges for Youth with Autism Spectrum Disorders.” Pediatric Annals 46 (6): e219–e223. https://doi.org/10.3928/19382359-20170519-03.
  • White, S. W., T. H. Ollendick, and B. C. Bray. 2011. “College Students on the Autism Spectrum: Prevalence and Associated Problems.” Autism 15 (6): 683–701. https://doi.org/10.1177/1362361310393363.
  • Wright, S., and G. Kaupins. 2018. “What about Us?” Exploring What It Means to Be a Management Educator with Asperger’s Syndrome. Journal of Management Education 42 (2): 199–210. https://doi.org/10.1177/1052562917747013.
  • Zeidan, J., E. Fombonne, J. Scorah, A. Ibrahim, M. S. Durkin, S. Saxena, A. Yusuf, A. Shih, and M. Elsabbagh. 2022. “Global Prevalence of Autism: A Systematic Review Update.” Autism Research 15 (5): 778–790. http://doi.org/10.1002/aur.v15.5.