5,163
Views
11
CrossRef citations to date
0
Altmetric
Articles

Being physically active through chronic illness: life experiences of people with arthritis

&
Pages 242-255 | Received 27 Jul 2018, Accepted 26 Mar 2019, Published online: 09 Apr 2019

References

  • Adamson, B. C., M. D. Adamson, M. M. Littlefield, and R. W. Motl. 2018. “‘Move It or Lose It’: Perceptions of the Impact of Physical Activity on Multiple Sclerosis Symptoms, Relapse and Disability Identity.” Qualitative Research in Sport, Exercise and Health 10 (4): 457–475. doi:10.1080/2159676X.2017.1415221.
  • Athritis Research UK. 2017. “Providing Physical Activity Interventions for People with Musculoskeletal Conditions.” Arthritis Research UK; Department of Health; Public Health England; NHS England. http://www.arthritisresearchuk.org/~/media/Files/Policyfiles/Reports/physical-activity-and-MSK-health-report.ashx?la=en
  • Bajwa, H. A., and L. Q. Rogers. 2007. “Physical Activity Barriers and Program Preferences among Indigent Internal Medicine Patients with Arthritis.” Rehabilitation Nursing 32 (1): 31–34. doi:10.1002/j.2048-7940.2007.tb00146.x.
  • Beckwée, D., I. Bautmans, T. Scheerlinck, and P. Vaes. 2015. “Exercise in Knee Osteoarthritis - Preliminary Findings: Exercise-Induced Pain and Health Status Differs between Drop-Outs and Retainers.” Experimental Gerontology 72: 29–37. doi:10.1016/j.exger.2015.09.009.
  • Bennell, K. L., M. Hall, and R. S. Hinman. 2016. “Osteoarthritis Year in Review 2015: Rehabilitation and Outcomes.” Osteoarthritis and Cartilage 24 (1): 58–70. doi:10.1016/j.joca.2015.07.028.
  • Berryman, J. W. 2010. “Exercise Is Medicine: A Historical Perspective.” Current Sports Medicine Reports 9 (4): 195–201. doi:10.1249/JSR.0b013e3181e7d86d.
  • Bingham, C. O., C. Pohl, T. G. Woodworth, S. E. Hewlett, J. E. May, M. U. Rahman, J. P. Witter, et al. 2009. “Developing a Standardized Definition for Disease ‘Flare’; in Rheumatoid Arthritis (OMERACT 9 Special Interest Group).” The Journal of Rheumatology 36 (10): 2335–2341. doi:10.3899/jrheum.090369.
  • Bolen, J., L. Schieb, J. M. Hootman, C. G. Helmick, K. Theis, L. B. Murphy, and G. Langmaid. 2010. “Differences in the Prevalence and Impact of Arthritis among Racial/Ethnic Groups in the United States, National Health Interview Survey, 2002, 2003, and 2006.” Preventing Chronic Disease 7 (3): 1–5. http://www.cdc.gov/pcd/issues/2010/may/10_0035.htm
  • Bookwala, J., T. L. Harralson, and P. A. Parmelee. 2003. “Effects of Pain on Functioning and Well-Being in Older Adults with Osteoarthritis of the Knee.” Psychology and Aging 18 (4): 844–850. doi:10.1037/0882-7974.18.4.844.
  • Brittain, D. R., N. C. Gyurcsik, M. McElroy, and S. A. Hillard. 2011. “General and Arthritis-Specific Barriers to Moderate Physical Activity in Women with Arthritis.” Women’s Health Issues 21 (1): 57–63. doi:10.1016/j.whi.2010.07.010.
  • Bury, M. 1982. “Chronic Illness as Biographical Disruption.” Sociology of Health & Illness 4 (2): 167–182. doi:10.1111/1467-9566.ep11339939.
  • Carmona, L., M. Cross, B. Williams, M. Lassere, and L. March. 2010. “Rheumatoid Arthritis.” Best Practice and Research: Clinical Rheumatology 24 (6): 733–745. doi:10.1016/j.berh.2010.10.001.
  • Cartwright, T., E. Fraser, S. Edmunds, N. Wilkinson, and K. Jacobs. 2015. “Journeys of Adjustment: The Experiences of Adolescents Living with Juvenile Idiopathic Arthritis.” Child: Care, Health and Development 41 (5): 734–743. doi:10.1111/cch.12206.
  • Coles, A., and G. Knowles. 2001. Lives in Context: The Art of Life History Research. Oxford: Alta Mira Press.
  • Creswell, J. W. 2013. Qualitative Inquiry & Research Design: Choosing among Five Approaches. Thousand Oaks, CA: SAGE Publications.
  • Der Ananian, C., S. Wilcox, R. Saunders, K. Watkins, and A. E. Evans. 2006. “Factors that Influence Exercise among Adults with Arthritis in Three Activity Levels.” Preventing Chronic Disease 3 (3): 1–16. www.cdc.gov/pcd/issues/2006/jul/05_0220.htm
  • Der Ananian, C., S. Wilcox, K. Watkins, R. Saunders, and A. E. Evans. 2008. “Factors Associated with Exercise Participation in Adults with Arthritis.” Journal of Aging and Physical Activity 16 (2): 125–143. http://www.ncbi.nlm.nih.gov/pubmed/18483438
  • Dishman, R. K., J. F. Sallis, and D. R. Orenstein. 1985. “The Determinants of Physical Activity and Exercise.” Public Health Reports 100 (2): 158–171. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1424729/
  • Ekkekakis, P., G. Parfitt, and S. J. Petruzzello. 2011. “The Pleasure and Displeasure People Feel When They Exercise at Different Intensities.” Sports Medicine 41 (8): 641–671. doi:10.2165/11590680-000000000-00000.
  • Fongen, C., S. H. Sveaas, and H. Dagfinrud. 2015. “Barriers and Facilitators for Being Physically Active in Patients with Ankylosing Spondylitis: A Cross-Sectional Comparative Study.” Musculoskeletal Care 13 (2): 76–83. doi:10.1002/msc.1088.
  • Gay, C., A. Chabaud, E. Guilley, and E. Coudeyre. 2016. “Educating Patients about the Benefits of Physical Activity and Exercise for Their Hip and Knee Osteoarthritis. Systematic Literature Review.” Annals of Physical and Rehabilitation Medicine 59 (3): 174–183. doi:10.1016/j.rehab.2016.02.005.
  • Gettings, L. 2010. “Psychological Well-Being in Rheumatoid Arthritis: A Review of the Literature.” Musculoskeletal Care 8 (2): 99–106. doi:10.1002/msc.171.
  • Grønning, K., B. Lomundal, H. S. Koksvik, and A. Steinsbekk. 2011. “Coping with Arthritis Is Experienced as A Dynamic Balancing Process. A Qualitative Study.” Clinical Rheumatology 30 (11): 1425–1432. doi:10.1007/s10067-011-1836-9.
  • Guttman, N., and W. H. Ressler. 2001. “On Being Responsible: Ethical Issues in Appeals to Personal Responsibility in Health Campaigns.” Journal of Health Communication 6 (2): 117–136. doi:10.1080/10810730116864.
  • Gyurcsik, N. C., L. R. Brawley, K. S. Spink, D. R. Brittain, D. L. Fuller, and K. Chad. 2009. “Physical Activity in Women with Arthritis: Examining Perceived Barriers and Self-Regulatory Efficacy to Cope.” Arthritis Care and Research 61 (8): 1087–1094. doi:10.1002/art.24697.
  • Henchoz, Y., P. Zufferey, and A. So. 2013. “Stages of Change, Barriers, Benefits, and Preferences for Exercise in RA Patients: A Cross-Sectional Study.” Scandinavian Journal of Rheumatology 42 (2): 136–145. doi:10.3109/03009742.2012.724707.
  • Hughes, D. 2009. “Osteoarthritis and Inflammatory Arthritis.” Surgery 27 (2): 75–79. doi:10.1016/j.mpsur.2008.12.013.
  • Hunt, E. R., and M. C. Day. 2019. “Narratives of Chronic Pain in Sport.” Journal of Clinical Sport Psychology 13 (1): 1–16. doi:10.1123/jcsp.2017-0003.
  • Hunter, D. J., and E. A. Riordan. 2014. “The Impact of Arthritis on Pain and Quality of Life: An Australian Survey.” International Journal of Rheumatic Diseases 17 (2): 149–155. doi:10.1111/1756-185X.12232.
  • Hutton, I., G. Gamble, G. Mclean, H. Butcher, P. Gow, and N. Dalbeth. 2009. “Obstacles to Action in Arthritis: A Community Case-Control Study.” International Journal of Rheumatic Diseases 12 (2): 107–117. doi:10.1111/j.1756-185X.2009.01392.x.
  • Iversen, M. D., H. M. Eaton, and L. H. Daltroy. 2004. “How Rheumatologists and Patients with Rheumatoid Arthritis Discuss Exercise and the Influence of Discussions on Exercise Prescriptions.” Arthritis Care & Research 51 (1): 63–72. doi:10.1002/art.20168.
  • Josefsson, T., M. Lindwall, and T. Archer. 2013. “Physical Exercise Intervention in Depressive Disorders: Meta-Analysis and Systematic Review.” Scandinavian Journal of Medicine & Science in Sports 1–14. doi:10.1111/sms.12050.
  • Kamwendo, K., M. Askenbom, and C. Wahlgren. 1999. “Physical Activity in the Life of the Patient with Rheumatoid Arthritis.” Physiotherapy Research International 4 (4): 278–292. doi:10.1002/pri.174.
  • Kang, H. S., C. E. Ferrans, M. J. Kim, J. I. Kim, and E.-O. Lee. 2007. “Aquatic Exercise in Older Korean Women with Arthritis: Identifying Barriers to and Facilitators of Long-Term Adherence.” Journal of Gerontological Nursing 33 (7): 48–56. http://www.ncbi.nlm.nih.gov/pubmed/17672168
  • Kaptein, S. A., C. L. Backman, E. M. Badley, D. E. Diane Lacaille, C. H. Beaton, and M. A. M. Gignac. 2013. “Choosing Where to Put Your Energy: A Qualitative Analysis of the Role of Physical Activity in the Lives of Working Adults with Arthritis.” Arthritis Care and Research 65 (7): 1070–1076. doi:10.1002/acr.21957.
  • Larkin, L., S. Gallagher, A. Fraser, and N. Kennedy. 2017. “If a Joint Is Hot It’s Not the Time: Health Professionals’ Views on Developing an Intervention to Promote Physical Activity in Rheumatoid Arthritis.” Disability and Rehabilitation 39 (11): 1106–1113. doi:10.1080/09638288.2016.1180548.
  • Larkin, L., N. Kennedy, A. Fraser, and S. Gallagher. 2017. “’It Might Hurt, but Still Its Good: People with Rheumatoid Arthritis Beliefs and Expectations about Physical Activity Interventions.” Journal of Health Psychology 22 (13): 1678–1690. doi:10.1177/1359105316633286.
  • Lobelo, F., M. Stoutenberg, and A. Hutber. 2014. “The Exercise Is Medicine Global Health Initiative: A 2014 Update.” British Journal of Sports Medicine 48: 1627–1633. doi:10.1136/bjsports-2013-093080.
  • Loeppenthin, K., B. A. Esbensen, M. Ostergaard, P. Jennum, T. Thomsen, and J. Midtgaard. 2014. “Physical Activity Maintenance in Patients with Rheumatoid Arthritis: A Qualitative Study.” Clinical Rehabilitation 28 (283): 289–299. doi:10.1177/0269215513501526.
  • Lööf, H., I. Demmelmaier, E. Welin Henriksson, S. Lindblad, B. Nordgren, C. H. Opava, and U.-B. Johansson. 2015. “Fear-Avoidance Beliefs about Physical Activity in Adults with Rheumatoid Arthritis.” Scandinavian Journal of Rheumatology 44 (2): 93–99. doi:10.3109/03009742.2014.932432.
  • Machado, G. P. M., M. A. M. Gignac, and E. M. Badley. 2008. “Participation Restrictions among Older Adults with Osteoarthritis: A Mediated Model of Physical Symptoms, Activity Limitations, and Depression.” Arthritis Care and Research 59 (1): 129–135. doi:10.1002/art.23259.
  • Mackichan, F., J. Adamson, and R. Gooberman-Hill. 2013. “‘Living within Your Limits’: Activity Restriction in Older People Experiencing Chronic Pain.” Age and Ageing 42 (6): 702–708. doi:10.1093/ageing/aft119.
  • Michaud, K., and F. Wolfe. 2007. “Comorbidities in Rheumatoid Arthritis.” Best Practice & Research Clinical Rheumatology 21 (5): 885–906. doi:10.1016/j.berh.2007.06.002.
  • Murphy, L. B., J. M. Hootman, M. A. Boring, S. A. Carlson, J. Qin, K. E. Barbour, T. J. Brady, and C. G. Helmick. 2017. “Leisure Time Physical Activity Among U.S. Adults With Arthritis, 2008–2015.” American Journal of Preventive Medicine 53 (3): 345–354. doi:10.1016/j.amepre.2017.03.017.
  • Neuberger, G. B., L. S. Aaronson, B. Gajewski, S. E. Embretson, P. E. Cagle, J. K. Loudon, and P. A. Miller. 2007. “Predictors of Exercise and Effects of Exercise on Symptoms, Function, Aerobic Fitness, and Disease Outcomes of Rheumatoid Arthritis.” Arthritis and Rheumatism 57 (6): 943–952. doi:10.1002/art.22903.
  • NICE (National Institute for Health and Care Excellence). 2018a. “Management of Osteoarthritis.” NICE Pathways. http://pathways.nice.org.uk/pathways/osteoarthritis
  • NICE (National Institute for Health and Care Excellence). 2018b. “Managing Rheumatoid Arthritis.” NICE Pathways. http://pathways.nice.org.uk/pathways/rheumatoid-arthritis
  • Nowell, L. S., J. M. Norris, D. E. White, and N. J. Moules. 2017. “Thematic Analysis: Striving to Meet the Trustworthiness Criteria.” International Journal of Qualitative Methods 16 (1): 1–13. doi:10.1177/1609406917733847.
  • O’Connor, P. J., and D. B. Cook. 1999. “Exercise and Pain: The Neurobiology, Measurement, and Laboratory Study of Pain in Relation to Exercise in Humans.” Exercise and Sport Sciences Reviews 27 (1): 119–166. https://journals.lww.com/acsm-essr/Citation/1999/00270/5_Exercise_and_Pain__The_Neurobiology,.7.aspx
  • Palazzo, C., C. Nguyen, M. M. Lefevre-Colau, F. Rannou, and S. Poiraudeau. 2016. “Risk Factors and Burden of Osteoarthritis.” Annals of Physical and Rehabilitation Medicine 59 (3): 134–138. doi:10.1016/j.rehab.2016.01.006.
  • Papathomas, A., T. L. Williams, and B. Smith. 2015. “Understanding Physical Activity Participation in Spinal Cord Injured Populations: Three Narrative Types for Consideration.” International Journal of Qualitative Studies on Health and Well-Being 10: 1–12. doi:10.3402/qhw.v10.27295.
  • Petursdottir, U., S. A. Arnadottir, and S. Halldorsdottir. 2010. “Facilitators and Barriers to Exercising among People with Osteoarthritis: A Phenomenological Study.” Physical Therapy 90 (7): 1014–1025. doi:10.2522/ptj.20090217.
  • Phoenix, C., and S. L. Bell. 2018. “Beyond “Move More”: Feeling the Rhythms of Physical Activity in Mid and Later-Life.” Social Science & Medicine. doi:10.1016/j.socscimed.2018.05.006.
  • Public Health England. 2014. “Everybody Active, Every Day. An Evidence-Based Approach to Physical Activity.” Public Health England. https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/374914/Framework_13.pdf
  • Richardson, E. V., B. Smith, and A. Papathomas. 2017. “Disability and the Gym: Experiences, Barriers and Facilitators of Gym Use for Individuals with Physical Disabilities.” Disability and Rehabilitation 39 (19): 1950–1957. doi:10.1080/09638288.2016.1213893.
  • Richardson, J. C., J. C. Grime, and B. N. Ong. 2014. “‘Keeping Going’: Chronic Joint Pain in Older People Who Describe Their Health as Good.” Ageing and Society 34 (08): 1380–1396. doi:10.1017/S0144686X13000226.
  • Riessman, C. K. 2005. “Narrative Analysis.” In Narrative, Memory & Everyday Life, edited by N. Kelly, C. Horrocks, K. Milnes, B. Roberts, and D. Robinson, 1–7. Huddersfield: University of Huddersfield.
  • Riessman, C. K. 2008. Narrative Methods for the Human Sciences. Thousand Oaks, CA: SAGE Publications.
  • Sallis, R. 2015. “Exercise Is Medicine: A Call to Action for Physicians to Assess and Prescribe Exercise.” Physician and Sportsmedicine 43 (1): 22–26. doi:10.1080/00913847.2015.1001938.
  • Sanders, C., J. Donovan, and P. Dieppe. 2002. “The Significance and Consequences of Having Painful and Disabled Joints in Older Age: Co-Existing Accounts of Normal and Disrupted Biographies.” Sociology of Health and Illness 24 (2): 227–253. doi:10.1111/1467-9566.00292.
  • Schoster, B., L. F. Callahan, A. Meier, T. Mielenz, and D. Lisa. 2005. “The People with Arthritis Can Exercise (PACE) Program: A Qualitative Evaluation of Participant Satisfaction.” Preventing Chronic Disease 2 (3): 1–11. http://www.cdc.gov/pcd/issues/2005/jul/05_0009.htm
  • Smith, B., and A. C. Sparkes. 2016. “Interviews: Qualitative Interviewing in the Sport and Exercise Sciences.” In Routledge Handbook of Qualitative Research in Sport and Exercise, edited by B. Smith and A. C. Sparkes, 191–205. London: Routledge.
  • Squire, R. 2012. “Living Well with Rheumatoid Arthritis.” Musculoskeletal Care 10 (3): 127–134. doi:10.1002/msc.1004.
  • Stamm, T., L. Lovelock, G. Stew, V. Nell, J. Smolen, K. Machold, H. Jonsson, and G. Sadlo. 2009. “I Have A Disease but I Am Not Ill: A Narrative Study of Occupational Balance in People with Rheumatoid Arthritis.” OTJR: Occupation, Participation, Health 29 (1): 32–39. doi:10.3928/15394492-20090101-05.
  • Stamm, T. A., L. Lovelock, G. Stew, V. Nell, J. Smolen, H. Jonsson, G. Sadlo, and K. Machold. 2008. “I Have Mastered the Challenge of Living with a Chronic Disease: Life Stories of People with Rheumatoid Arthritis.” Qualitative Health Research 18 (5): 658–669. doi:10.1177/1049732308316348.
  • Stamm, T. A., K. P. Machold, J. Smolen, and B. Prodinger. 2010. “Life Stories of People with Rheumatoid Arthritis Who Retired Early: How Gender and Other Contextual Factors Shaped Their Everyday Activities, Including Paid Work.” Musculoskeletal Care 8 (2): 78–86. doi:10.1002/msc.168.
  • Theis, K. A., L. Murphy, J. M. Hootman, C. G. Helmick, and E. Yelin. 2007. “Prevalence and Correlates of Arthritis-Attributable Work Limitation in the US Population among Persons Ages 18–64: 2002 National Health Interview Survey Data.” Arthritis Care and Research 57 (3): 355–363. doi:10.1002/art.22622.
  • van Den Berg, M. H., I. G. de Boer, S. le Cessie, F. C. Breedveld, P. M. Theodora, and V. Vlieland. 2007. “Most People with Rheumatoid Arthritis Undertake Leisure-Time Physical Activity and Exercise in the Netherlands: An Observational Study.” Australian Journal of Physiotherapy 53 (2): 113–118. doi:10.1016/S0004-9514(07)70044-2.
  • van Zanten, V., J. C. S. Jet, P. C. Rouse, E. D. Hale, N. Ntoumanis, G. S. Metsios, J. L. Duda, and G. D. Kitas. 2015. “Perceived Barriers, Facilitators and Benefits for Regular Physical Activity and Exercise in Patients with Rheumatoid Arthritis: A Review of the Literature.” Sports Medicine 45 (10): 1401–1412. doi:10.1007/s40279-015-0363-2.
  • Virginia., B., V. Clarke, and P. Weate. 2016. “Using Thematic Analysis in Sport and Exercise Research.” In Routledge Handbook of Qualitative Research in Sport and Exercise, edited by B. Smith and A. C. Sparkes, 191–205. London: Routledge.
  • Vos, T., R. M. Barber, B. Bell, A. Bertozzi-Villa, S. Biryukov, I. Bolliger, F. Charlson, et al. 2015. “Global, Regional, and National Incidence, Prevalence, and Years Lived with Disability for 301 Acute and Chronic Diseases and Injuries in 188 Countries, 1990–2013: A Systematic Analysis for the Global Burden of Disease Study 2013.” The Lancet 386 (9995): 743–800. doi:10.1016/S0140-6736(15)60692-4.
  • Warner, L. M., J. K. Benjamin Schüz, L. P. Wolff, S. Wurm, and R. Schwarzer. 2014. “Sources of Self-Efficacy for Physical Activity.” Health Psychology 33 (11): 11298–11308. doi:10.1037/hea0000085.
  • Werle, C. O. C., B. Wansink, and C. R. Payne. 2015. “Is It Fun or Exercise? the Framing of Physical Activity Biases Subsequent Snacking.” Marketing Letters 26 (4): 691–702. doi:10.1007/s11002-014-9301-6.
  • Wilcox, S., C. Der Ananian, J. Abbott, J. E. Vrazel, C. Ramsey, P. A. Sharpe, and T. Brady. 2006. “Perceived Exercise Barriers, Enablers, and Benefits among Exercising and Nonexercising Adults with Arthritis: Results from a Qualitative Study.” Arthritis Care and Research 55 (4): 616–627. doi:10.1002/art.22098.
  • Williams, T. L., E. R. Hunt, A. Papathomas, and B. Smith. 2018. “Exercise Is Medicine? Most of the Time for Most; but Not Always for All.” Qualitative Research in Sport, Exercise and Health 10 (4): 441–456. doi:10.1080/2159676X.2017.1405363.
  • Withall, J., A. M. Haase, N. E. Walsh, A. Young, and F. Cramp. 2016. “Physical Activity Engagement in Early Rheumatoid Arthritis: A Qualitative Study to Inform Intervention Development.” Physiotherapy 102 (3): 264–271. doi:10.1016/j.physio.2015.07.002.
  • Zimmer, Z., T. Hickey, and M. S. Searle. 1995. “Activity Participation and Well-Being among Older People with Arthritis.” The Gerontologist 35 (4): 463–471. doi:10.1093/geront/35.4.463.
  • Zyrianova, Y., B. D. Kelly, J. Sheehan, C. McCarthy, and T. G. Dinan. 2011. “The Psychological Impact of Arthritis: The Effects of Illness Perception and Coping.” Irish Journal of Medical Science 180 (1): 203–210. doi:10.1007/s11845-010-0522-2.