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Research Article

‘I’m glad I can walk, but sometimes it’s so challenging that it’s an inconvenience to myself and others’: physical activity experiences among individuals with spinal cord injury who ambulate

ORCID Icon, ORCID Icon, & ORCID Icon
Pages 987-1004 | Received 27 Apr 2021, Accepted 22 Feb 2022, Published online: 02 Mar 2022

References

  • Braun, V., and V. Clarke. 2013. Successful Qualitative Research: A Practical Guide for Beginners. London, UK: Sage Publications.
  • Braun, V., and V. Clarke. 2019. “Reflecting on Reflexive Thematic Analysis.” Qualitative Research in Sport, Exercise and Health 11 (4): 589–597. doi:10.1080/2159676X.2019.1628806.
  • Braun, V., V. Clarke, and P. Weate. 2016. “Using Thematic Analysis in Sport and Exercise Research.” In Routledge Handbook of Qualitative Research in Sport and Exercise, edited by B. Smith and A. C. Sparkes, 191–205. London: Routledge.
  • Canadian Disability Participation Project. 2020. A Blueprint for Building Quality Participation in Sport for Children, Youth, and Adults with A Disability. “ 1–27.https://cdpp.ca/sites/default/files/CDPP%20Quality%20of%20Participation%20Blueprint%20Jan%202020.pdf
  • Caron, J. G., K. A. Martin Ginis, M. Rocchi, and S. N. Sweet. 2019. “Development of the Measure of Experiential Aspects of Participation for People with Physical Disabilities.” Archives of Physical Medicine and Rehabilitation 100 (1): 67–77. doi:10.1016/j.apmr.2018.08.183.
  • Davis, R., R. Campbell, Z. Hildon, L. Hobbs, and S. Michie. 2015. “Theories of Behaviour and Behaviour Change across the Social and Behavioural Sciences: A Scoping Review.” Health Psychology Review 9 (3): 323–344. doi:10.1080/17437199.2014.941722.
  • DeVivo, M., and Y. Chen. 2011. “Trends in New Injuries, Prevalent Cases, and Aging with Spinal Cord Injury.” Archives of Physical Medicine and Rehabilitation 92 (3): 32–38. doi:10.1016/j.apmr.2010.08.031.
  • DiPiro, N. D., A. E. Embry, S. L. Fritz, A. Middleton, J. S. Krause, and C. M. Gregory. 2016. “Effects of Aerobic Exercise Training on Fitness and Walking-Related Outcomes in Ambulatory Individuals with Chronic Incomplete Spinal Cord Injury.” Spinal Cord 54 (9): 675–681. doi:10.1038/sc.2015.212.
  • Evans, M. B., C. H. Shirazipour, M. Zanhour, S. N. Sweet, K. A. Martin Ginis, and A E. Latimer-Cheung. 2018. “Integrating Insights from the Parasport Community to Understand Optimal Experiences: The Quality Parasport Participation Framework.” Psychology of Sport and Exercise 37: 79–90. doi:10.1016/j.psychsport.2018.04.009.
  • Felizer, M. Y. 2010. “Doing Mixed Methods Research Pragmatically: Implications for the Rediscovery of Pragmatism as a Research Paradigm.” Journal of Mixed Methods Research 4 (1): 6–16. doi:10.1177/1558689809349691.
  • Fong, A. J., H. R. Saxton, K. D. Kauffeldt, C. M. Sabiston, and J. R. Tomasone. 2020. “’We’re All in the Same Boat Together’: Exploring Quality Participation Strategies in Dragon Boat Teams for Breast Cancer Survivors.” Disability and Rehabilitation. Advance online publication. doi:10.1080/09638288.2020.1733676.
  • Gainforth, H. L., F. Hoekstra, R. McKay, C. B. McBride, S. N. Sweet, K. A. Martin Ginis, K. Anderson, et al. 2021. “Integrated Knowledge Translation Guiding Principles for Conducting and Disseminating Spinal Cord Injury Research in Partnership.” Archives of Physical Medicine and Rehabilitation 102 (4): 656–663. doi:10.1016/j.apmr.2020.09.393.
  • Giacobbi, P. R., A. Poczwardowski, and P. Hager. 2005. “A Pragmatic Research Philosophy for Sport and Exercise Psychology.” The Sport Psychologist 19 (1): 18–31. doi:10.1123/tsp.19.1.18.
  • Goodley, D. 2017. Disability Studies: An Interdisciplinary Introduction. 2nd ed. London, UK: Sage Publications.
  • Hammel, J., S. Magasi, A. Heinemann, G. Whiteneck, J. Bogner, and E. Rodriguez. 2008. “What Does Participation Mean? An Insider Perspective from People with Disabilities.” Disability and Rehabilitation 30 (19): 1445–1460. doi:10.1080/09638280701625534.
  • Imms, C., and M. Granlund. 2014. “Participation: Are We There Yet ….” Australian Occupational Therapy Journal 61 (5): 291–292. doi:10.1111/1440-1630.12166.
  • Jackson, J., T. L. Williams, B. M. McEachern, A. E. Latimer-Cheung, and J. R. Tomasone. 2019. “Fostering Quality Experiences: Qualitative Perspectives from Program Members and Providers in a Community-Based Exercise Program for Adults with Physical Disabilities.” Disability and Health Journal 12 (2): 296–301. doi:10.1016/j.dhjo.2018.11.008.
  • James, W. 1907. “Lecture II: What Pragmatism Means.” In Pragmatism: A New Name for Some Old Ways of Thinking, edited by W. James, 43–81. London: Longmans, Green and Co.
  • Kapilashrami, A., and O. Hanvisky. 2018. “Intersectionality and Why It Matters to Global Health.” The Lancet 39 (10140): 2589–2591. doi:10.1016/s0140-6736(18)31431-4.
  • Labbé, D., W. C. Miller, and R. Ng. 2019. “Participating More, Participating Better: Health Benefits of Adaptive Leisure for People with Disabilities.” Disability and Health Journal 12 (2): 287–295. doi:10.1016/j.dhjo.2018.11.007.
  • Lawrason, S., and K. A. Martin Ginis. 2021. “Factors Associated with Leisure-Time Physical Activity Participation among Individuals with Spinal Cord Injury Who Ambulate.” Disability and Rehabilitation 1–8. doi:10.1080/09638288.2021.1904011.
  • Lawrason, S. L., K. R. Todd, R. B. Shaw, and K. A. Martin Ginis. 2020. “Physical Activity among Individuals with Spinal Cord Injury Who Ambulate: A Systematic Scoping Review.” Spinal Cord 58 (7): 735–745. doi:10.1038/s41393-020-0460-4.
  • Ma, J. K., O. Cheifetz, K. R. Todd, C. Chebaro, S. H. Phang, R. B. Shaw, K. J. Whaley, and K. A. Martin Ginis. 2020. “Co-Development of a Physiotherapist-Delivered Physical Activity Intervention for Adults with Spinal Cord Injury.” Spinal Cord 58 (7): 778–786. doi:10.1038/s41393-020-0422-x.
  • Martin Ginis, K. A., M. B. Evans, W. B. Mortenson, and L. Noreau. 2017a. “Broadening the Conceptualization of Participation of Persons with Physical Disabilities: A Configurative Review and Recommendations.” Archives of Physical Medicine and Rehabilitation 98 (2): 395–402. doi:10.1016/j.apmr.2016.04.017.
  • Martin Ginis, K. A., A. E. Latimer, K. P. Arbour-Nicitopoulos, A. C. Buchholz, S. R. Bray, B. C. Craven, K. C. Hayes, et al. 2010. “Leisure Time Physical Activity in a Population- Based Sample of People with Spinal Cord Injury Part I: Demographic and Injury-Related Correlates”. Archives of Physical Medicine and Rehabilitation 91 (5): 722–728. doi:10.1016/j.apmr.2009.12.027.
  • Martin Ginis, K. A., A. Papathomas, M. J. Perrier, and B. Smith; SHAPE-SCI Research Group. 2017b. “Psychosocial Factors Associated with Physical Activity in Ambulatory and Manual Wheelchair Users with Spinal Cord Injury: A Mixed-Methods Study.” Disability and Rehabilitation 39 (2): 187–192. doi:10.3109/09638288.2015.1045991.
  • Martin Ginis, K. A., H. P. van der Ploeg, C. Foster, B. Lai, C. B. McBride, K. Ng, M. Pratt, et al. 2021. “Participation of People Living with Disabilities in Physical Activity: A Global Perspective.” The Lancet 398 (10298): 4 43–455. doi:10.1016/S0140-6736(21)01164-8.
  • Martin Ginis, K. A., J. W. van der Scheer, A. E. Latimer-Cheung, A. Barrow, C. Bourne, P. Carruthers, M. Bernardi, et al. 2018. “Evidence-Based Scientific Exercise Guidelines for Adults with Spinal Cord Injury: An Update and a New Guideline.” Spinal Cord 56 (4): 308–21. doi:10.1038/s41393-017-0017-3.
  • McLean, A. M., T. Jarus, A. M. Hubley, and L. Jongbloed. 2014. “Associations between Social Participation and Subjective Quality of Life for Adults with Moderate to Severe Traumatic Brain Injury.” Disability and Rehabilitation 36 (17): 1409–1418. doi:10.3109/09638288.2013.834986.
  • Michie, S., M. M. van Stralen, and R. West. 2011. “The Behaviour Change Wheel: A New Method for Characterizing and Designing Behaviour Change Interventions.” Implementation Science 6 (1): 42. doi:10.1186/1748-5908-6-42.
  • Morgan, D. L. 2007. “Paradigms Lost and Pragmatism Regained: Methodological Implications of Combining Qualitative and Quantitative Methods.” Journal of Mixed Methods Research 1 (1): 48–76. doi:10.1177/2345678906292462.
  • Nijendijk, J. H. B., M. W. M. Post, and F. W. A. Van Asbeck. 2014. “Epidemiology of Traumatic Spinal Cord Injuries in the Netherlands in 2010.” Spinal Cord 52 (4): 258–263. doi:10.1038/sc.2013.180.
  • Nowell, L. 2015. “Pragmatism and Integrated Knowledge Translation: Exploring the Compatibilities and Tensions.” Nursing Open 2 (3): 141–148. doi:10.1002/nop2.30.
  • Patton, M. Q. 2015. Qualitative Research and Evaluation Methods. London, UK: Sage Publications.
  • Poucher, Z. A., K. A. Tamminen, J. G. Caron, and S. N. Sweet. 2020. “Thinking through and Designing Qualitative Research Studies: A Focused Mapping Review of 30 Years of Qualitative Research in Sport Psychology.” International Review of Sport and Exercise Psychology 13 (1): 163–186. doi:10.1080/1750984X.2019.1656276.
  • Richardson E V, Smith B, and Papathomas A. (2017). Disability and the gym: experiences, barriers and facilitators of gym use for individuals with physical disabilities. Disability and Rehabilitation, 39(19), 1950–1957. 10.1080/09638288.2016.1213893
  • Robbins, B. D. 2008. “What Is the Good Life? Positive Psychology and the Renaissance of Humanistic Psychology.” The Humanistic Psychologist 36 (2): 96–112. doi:10.1080/08873260802110988.
  • Roberton, T., R. S. Bucks, T. C. Skinner, G. T. Allison, and S. A. Dunlop. 2011. “Barriers to Physical Activity in Individuals with Spinal Cord Injury: A Western Australian Study.” The Australian Journal of Counselling 17 (2): 74–88.
  • Rocchi, M., F. Routhier, A. E. Latimer-Cheung, K. A. Martin Ginis, L. Noreau, and S. N. Sweet. 2017. “Are Adults with Spinal Cord Injury Meeting the Spinal Cord Injury-Specific Physical Activity Guidelines? A Look at A Sample from A Canadian Province.” Spinal Cord 55 (5): 454–459. doi:10.1038/sc.2016.181.
  • Rorty, R. 1990. “Pragmatism as Anti-Representationalism.” In Pragmatism: From Peirce to Davidson, edited by J. P. Murphy, 1–6. Boulder, CO: Westview Press.
  • Ryan, R. M., and E. L. Deci. 2000. “Self-Determination Theory and the Facilitation of Intrinsic Motivation, Social Development, and Well-Being.” American Psychologist 55 (1): 68–78. doi:10.1037/0003-066X.55.1.68.
  • Samuels, E. J. 2003. “My Body, My Closet: Invisible Disability and the Limits of Coming-Out Discourse.” GLQ: A Journal of Lesbian and Gay Studies 9 (1–2): 233–255. doi:10.1215/10642684-9-1-2-233.
  • Scelza, W. M., C. Z. Kalpakjian, E. D. Zemper, and D. G. Tate. 2005. “Perceived Barriers to Exercise in People with Spinal Cord Injury.” American Journal of Physical Medicine & Rehabilitation 84 (8): 576–583. doi:10.1097/01.phm.0000171172.96290.67.
  • Shirazipour, C. H., A. B. Aiken, and A. E. Latimer-Cheung. 2018. “Exploring Strategies Used to Deliver Physical Activity Experiences to Veterans with a Physical Disability.” Disability and Rehabilitation 40 (26): 3198–3205. doi:10.1080/09638288.2017.1377297.
  • Shirazipour, C. H., M. B. Evans, N. Caddick, B. Smith, A. B. Aiken, K. A. Martin Ginis, and A. E. Latimer-Cheung. 2017. “Quality Participation Experiences in the Physical Activity Domain: Perspectives of Veterans with a Physical Disability.” Psychology of Sport and Exercise 29: 40–50. doi:10.1016/j.psychsport.2016.11.007.
  • Shirazipour, C. H., M. B. Evans, J. Leo, A. Lithopoulos, K. A. Martin Ginis, and A. E. Latimer- Cheung. 2020. “Program Conditions that Foster Quality Physical Activity Participation Experiences for People with A Physical Disability: A Systematic Review.” Disability and Rehabilitation 42 (2): 147–155. doi:10.1080/09638288.2018.1494215.
  • Smith, B., and K. R. McGannon. 2018. “Developing Rigor in Qualitative Research: Problems and Opportunities within Sport and Exercise Psychology.” International Review of Sport and Exercise Psychology 11 (1): 101–121. doi:10.1080/1750984X.2017.1317357.
  • Sparkes, A. C., and B. Smith. 2014. Qualitative Research Methods in Sport, Exercise, and Health: From Process to Product. New York, NY: Routledge.
  • Straus, S. E., J. Tetroe, and I. D. Graham. 2013. Knowledge Translation in Health Care: Moving from Evidence to Practice. Chichester, UK: Wiley.
  • Sweet, S. N., M. Rocchi, K. Arbour-Nicitopoulos, D. Kairy, and B. Fillion. 2017. “A Telerehabilitation Approach to Enhance Quality of Life through Exercise among Adults with Paraplegia: Study Protocol.” Journal of Medical Internet Research Protocols 6 (10): e202. doi:10.2196/resprot.8047.
  • Tracy, S. J. 2010. “Qualitative Quality: Eight ‘Big-tent’ Criteria for Excellent Qualitative Research.” Qualitative Inquiry 16 (10): 837–851. doi:10.1177/1077800410383121.
  • United Nations. 2006. Convention of the Rights of Persons with Disabilities. New York City: United Nations General Assembly Accessed 20 February 2021 https://www.refworld.org/docid/45f973632.html.
  • van den Berg-emons, R. J., J. B. Bussmann, and H. J. Stam. 2010. “Accelerometry-Based Activity Spectrum in Persons with Chronic Physical Conditions.” Archives of Physical Medicine and Rehabilitation 91 (12): 1856–1861. doi:10.1016/j.apmr.2010.08.018.
  • Williams, T. L., B. Smith, and A. Papathomas. 2014. “The Barriers, Benefits, and Facilitators of Leisure Time Physical Activity among People with Spinal Cord Injury: A Meta- Synthesis of Qualitative Findings”. Health Psychology Review 8 (4): 404–425. doi:10.1080/17437199.2014.898406.

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