Incidence of amyotrophic lateral sclerosis in the United States, 2014–2016

References

• Mitsumoto H. Amyotrophic Lateral Sclerosis. Philadelphia, PA: FA Davis Company; 1998: 480.
   Google Scholar
• Mehta P, Kaye W, Raymond J, Punjani R, Larson T, Cohen J, et al. Prevalence of Amyotrophic Lateral Sclerosis - United States, 2015. MMWR Morb Mortal Wkly Rep. 2018;67:1285–9.
   PubMed Web of Science ®Google Scholar
• Mehta P, Raymond J, Punjani R, Larson T, Bove F, Kaye W, et al. Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016. Amyotroph Lateral Scler Frontotemporal Degener. 2021;0:1–6.
   PubMedGoogle Scholar
• Massachusetts Department of Public Health. Massachusetts ALS Registry. Available at: https://www.mass.gov/als-registry.
   Google Scholar
• Wagner L, Rechtman L, Jordan H, Ritsick M, Sanchez M, Sorenson E, et al. State and metropolitan area-based amyotrophic lateral sclerosis (ALS) surveillance. Amyotroph Lateral Scler Frontotemporal Degener. 2015;17:128–34.
   PubMed Web of Science ®Google Scholar
• Mehta P, Antao V, Kaye W, Sanchez M, Williamson D, Bryan L, Centers for Disease Control and Prevention (CDC), et al. Prevalence of amyotrophic lateral sclerosis - United States, 2010-2011. MMWR Suppl. 2014;63:1–14.
   PubMedGoogle Scholar
• Mehta P, Kaye W, Bryan L, Larson T, Copeland T, Wu J, et al. Prevalence of Amyotrophic Lateral Sclerosis - United States, 2012-2013. MMWR Surveill Summ. 2016;65:1–12.
   PubMed Web of Science ®Google Scholar
• Mehta P, Kaye W, Raymond J, Wu R, Larson T, Punjani R, et al. Prevalence of Amyotrophic Lateral Sclerosis - United States, 2014. MMWR Morb Mortal Wkly Rep. 2018;67:216–8.
   PubMed Web of Science ®Google Scholar
• Kaye WE, Sanchez M, Wu J. Feasibility of creating a National ALS Registry using administrative data in the United States. Amyotroph Lateral Scler Frontotemporal Degener. 2014;15:433–9.
   PubMed Web of Science ®Google Scholar
• Allen KD, Kasarskis EJ, Bedlack RS, Rozear MP, Morgenlander JC, Sabet A, et al. The National Registry of Veterans with amyotrophic lateral sclerosis. Neuroepidemiology 2008;30:180–90.
   PubMed Web of Science ®Google Scholar
• U.S. Census Bureau Population Division. Annual Estimates of the Resident Population for Selected Age Groups by Sex for the United States: April 1, 2010 to July 1, 2019 (NC-EST2019-AGESEX), Release date: June 2020.
   Google Scholar
• U.S. Census Bureau Population Division. Annual Estimates of the Resident Population by Sex, Age, Race Alone or in Combination, and Hispanic Origin for the United States: April 1, 2010 to July 1, 2019 (NC-EST2019-ASR5H), Release Date: June 2020.
   Google Scholar
• Punjani R, Wagner L, Horton K, Kaye W. Atlanta metropolitan area amyotrophic lateral sclerosis (ALS) surveillance: incidence and prevalence 2009-2011 and survival characteristics through 2015. Amyotroph Lateral Scler Frontotemporal Degener. 2020;21:123–30.
   PubMed Web of Science ®Google Scholar
• Freer C, Hylton T, Jordan HM, Kaye WE, Singh S, Huang Y. Results of Florida's Amyotrophic Lateral Sclerosis Surveillance Project, 2009-2011. BMJ Open. 2015;5:e007359.
   PubMed Web of Science ®Google Scholar
• Henry KA, Fagliano J, Jordan HM, Rechtman L, Kaye WE. Geographic Variation of Amyotrophic Lateral Sclerosis Incidence in New Jersey, 2009-2011. Am J Epidemiol. 2015;182:512–9.
   PubMed Web of Science ®Google Scholar
• Jordan H, Fagliano J, Rechtman L, Lefkowitz D, Kaye W. Population-based surveillance of amyotrophic lateral sclerosis in New Jersey, 2009-2011. Neuroepidemiology 2014;43:49–56.
   PubMed Web of Science ®Google Scholar
• Rechtman L, Jordan H, Wagner L, Horton DK, Kaye W. Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States. Amyotroph Lateral Scler Frontotemporal Degener. 2015;16:65–71.
   PubMed Web of Science ®Google Scholar
• Valle J, Roberts E, Paulukonis S, Collins N, English P, Kaye W. Epidemiology and surveillance of amyotrophic lateral sclerosis in two large metropolitan areas in California. Amyotroph Lateral Scler Frontotemporal Degener. 2015;16:209–15.
   PubMed Web of Science ®Google Scholar
• Chio A, Logroscino G, Traynor BJ, Collins J, Simeone JC, Goldstein LA, et al. Global epidemiology of amyotrophic lateral sclerosis: a systematic review of the published literature. Neuroepidemiology. 2013;41:118–30.
   PubMed Web of Science ®Google Scholar
• Miller C, Apple S, Paige JS, Grabowsky T, Shukla O, Agnese W, et al. Current and future projections of amyotrophic lateral sclerosis in the United States using administrative claims data. Neuroepidemiology. 2021;55:275–85.
   PubMed Web of Science ®Google Scholar
• Longinetti E, Fang F. Epidemiology of amyotrophic lateral sclerosis: an update of recent literature. Curr Opin Neurol. 2019;32:771–6.
   PubMed Web of Science ®Google Scholar
• Richards D, Morren JA, Pioro EP. Time to diagnosis and factors affecting diagnostic delay in amyotrophic lateral sclerosis. J Neurol Sci. 2020;417:117054.
   PubMed Web of Science ®Google Scholar
• Hardiman O, Al-Chalabi A, Brayne C, Beghi E, van den Berg LH, Chio A, et al. The changing picture of amyotrophic lateral sclerosis: lessons from European registers. J Neurol Neurosurg Psychiatry. 2017;88:557–63.
   PubMed Web of Science ®Google Scholar
• Kiernan MC, Vucic S, Cheah BC, Turner MR, Eisen A, Hardiman O, et al. Amyotrophic lateral sclerosis. Lancet. 2011;377:942–55.
   PubMed Web of Science ®Google Scholar
• Su FC, Goutman SA, Chernyak S, Mukherjee B, Callaghan BC, Batterman S, et al. Association of environmental toxins with amyotrophic lateral sclerosis. JAMA Neurol. 2016;73:803–11.
   PubMed Web of Science ®Google Scholar
• Bozzoni V, Pansarasa O, Diamanti L, Nosari G, Cereda C, Ceroni M. Amyotrophic lateral sclerosis and environmental factors. Funct Neurol. 2016;31:7–19.
   PubMed Web of Science ®Google Scholar
• McCombe PA, Henderson RD. Effects of gender in amyotrophic lateral sclerosis. Gend Med. 2010;7:557–70.
   PubMed Web of Science ®Google Scholar
• Census Reporter, Midwest Region, 2019. Available at: https://censusreporter.org/profiles/02000US2-midwest-region/.
   Google Scholar
• Larson TC, Kaye W, Mehta P, Horton DK. Amyotrophic lateral sclerosis mortality in the United States, 2011-2014. Neuroepidemiology 2018;51:96–103.
   PubMed Web of Science ®Google Scholar
• Brookings Institution. A pre-2020 census look at the wide dispersal of the nation’s Hispanic, Asian and black populations, Available at https://www.brookings.edu/research/americas-racial-diversity-in-six-maps/2020.
   Google Scholar
• Reichard A, McDermott S, Ruttenber M, Mann J, Smith MG, Royer J, et al. Testing the feasibility of a passive and active case ascertainment system for multiple rare conditions simultaneously: the experience in three US states. JMIR Public Health Surveill. 2016;2:e151.
   PubMedGoogle Scholar