Current practices in the nutrition management of people with amyotrophic lateral sclerosis (ALS): a survey of U.S. ALS care teams

References

• Dobak S. Nutritional care of the patient with amyotrophic lateral sclerosis. Pract Gastroenterol 2022;46:60–7.
   Web of Science ®Google Scholar
• Kasarskis EJ, Berryman S, Vanderleest JG, Schneider AR, McClain CJ. Nutritional status of patients with amyotrophic lateral sclerosis: relation to the proximity of death. Am J Clin Nutr. 1996;63:130–7.
   PubMed Web of Science ®Google Scholar
• López-Gómez JJ, Ballesteros-Pomar MD, Torres-Torres B, De la Maza BP, Penacho-Lázaro MÁ, Palacio-Mures JM, et al. Malnutrition at diagnosis in amyotrophic lateral sclerosis (als) and its influence on survival: Using glim criteria. Clin Nutr. 2021;40:237–44.
   PubMed Web of Science ®Google Scholar
• Körner S, Hendricks M, Kollewe K, Zapf A, Dengler R, Silani V, et al. Weight loss, dysphagia and supplement intake in patients with amyotrophic lateral sclerosis (ALS): impact on quality of life and therapeutic options. BMC Neurol. 2013;13:84.
   PubMed Web of Science ®Google Scholar
• Marin B, Desport JC, Kajeu P, Jesus P, Nicolaud B, Nicol M, et al. Alteration of nutritional status at diagnosis is a prognostic factor for survival of amyotrophic lateral sclerosis patients. J Neurol Neurosurg Psychiatry. 2011;82:628–34.
   PubMed Web of Science ®Google Scholar
• Miller RG, Jackson CE, Kasarskis EJ, England J, Forshew D, Johnston W, et al. Practice Parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review) Report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009;73:1218–26.
   PubMed Web of Science ®Google Scholar
• White S, Zarotti N, Beever D, Bradburn M, Norman P, Coates E, et al. The nutritional management of people living with amyotrophic lateral sclerosis: A national survey of dietitians. J Hum Nutr Diet. 2021;34:1064–71.
   PubMed Web of Science ®Google Scholar
• Halliday V, Zarotti N, Coates E, McGeachan A, Williams I, White S, et al. Delivery of nutritional management services to people with amyotrophic lateral sclerosis (ALS). Amyotroph Lateral Scler Frontotemporal Degener. 2021;22:350–9.
   PubMed Web of Science ®Google Scholar
• Zhang M, Hubbard J, Rudnicki SA, Johansen CS, Dalton K, Heiman-Patterson T, et al. Survey of current enteral nutrition practices in treatment of amyotrophic lateral sclerosis. Espen J. 2013;8:e25–e8.
   PubMedGoogle Scholar
• Kasarskis EJ, Mendiondo MS, Matthews DE, Mitsumoto H, Tandan R, Simmons Z, et al. Estimating daily energy expenditure in individuals with amyotrophic lateral sclerosis. Am J Clin Nutr. 2014;99:792–803.
   PubMed Web of Science ®Google Scholar
• White JV, Guenter P, Jensen G, Malone A, Schofield M; A.S.P.E.N. Board of Directors. Consensus statement of the Academy of Nutrition and Dietetics/American Society for Parenteral and Enteral Nutrition: characteristics recommended for the identification and documentation of adult malnutrition (undernutrition). J Acad Nutr Diet. 2012;112:730–8.
   PubMed Web of Science ®Google Scholar
• Cooper CD, Kurland NB. Telecommuting, professional isolation, and employee development in public and private organizations. J Organ Behavior. 2002;23:511–32.
   Web of Science ®Google Scholar
• Moran AM, Coyle J, Pope R, Boxall D, Nancarrow SA, Young J. Supervision, support and mentoring interventions for health practitioners in rural and remote contexts: an integrative review and thematic synthesis of the literature to identify mechanisms for successful outcomes. Hum Resour Health. 2014;12:10.
   PubMed Web of Science ®Google Scholar
• Sims JM. Communities of practice: Telemedicine and online medical communities. Technol Forecasting Social Change. 2018;126:53–63.
   Web of Science ®Google Scholar
• McLoughlin C, Patel KD, O'Callaghan T, Reeves S. The use of virtual communities of practice to improve interprofessional collaboration and education: findings from an integrated review. J Interprof Care. 2018;32:136–42.
   PubMed Web of Science ®Google Scholar
• Alary Gauvreau C, Le Dorze G. Participant reported outcomes of a community of practice about social participation for speech-language pathologists in aphasia rehabilitation. Disabil Rehabil. 2022;44:231–42.
   PubMed Web of Science ®Google Scholar
• Alary Gauvreau C, Le Dorze G, Kairy D, Croteau C. Evaluation of a community of practice for speech-language pathologists in aphasia rehabilitation: a logic analysis. BMC Health Serv Res. 2019;19:530.
   PubMed Web of Science ®Google Scholar
• Rio A, Cawadias E. Nutritional advice and treatment by dietitians to patients with amyotrophic lateral sclerosis/motor neurone disease: a survey of current practice in England, Wales, Northern Ireland and Canada. J Hum Nutr Diet. 2007;20:3–13.
   PubMed Web of Science ®Google Scholar
• ProGas Study Group. Gastrostomy in patients with amyotrophic lateral sclerosis (ProGas): a prospective cohort study. Lancet Neurol. 2015;14:702–9.
   PubMed Web of Science ®Google Scholar
• Burgos R, Bretón I, Cereda E, Desport JC, Dziewas R, Genton L, et al. ESPEN guideline clinical nutrition in neurology. Clin Nutr. 2018;37:354–96.
   PubMed Web of Science ®Google Scholar
• Haselhorst J, Brown R, Ryan E, Brettschneider A, Carder J, Sharplin Z, Geiger K. Tolerance and adherence to home enteral nutrition therapy based on formula category: conventional versus plant-based verses blenderized. ASPEN Nutrition Science and Practice Conference. Las Vegas, Nevada: Journal of Parenteral and Enteral Nutrition, April 20–23, 2023.
   Google Scholar
• Cohen S, Ramirez A, Millovich V. Patient-reported outcomes indicate plant-based enteral formula improves nutrition and gastrointestinal symptoms. ASPEN Nutrition Science and Practice Conference. Tampa, Florida: Journal of Parenteral and Enteral Nutrition. March 28–31; 2020.
   Google Scholar
• da Silva JS, Seres DS, Sabino K, Adams SC, Berdahl GJ, Citty SW, et al. ASPEN consensus recommendations for refeeding syndrome. Nutr Clin Pract. 2020;35:178–95.
   PubMed Web of Science ®Google Scholar
• Dorst J, Dupuis L, Petri S, Kollewe K, Abdulla S, Wolf J, et al. Percutaneous endoscopic gastrostomy in amyotrophic lateral sclerosis: a prospective observational study. J Neurol. 2015;262:849–58.
   PubMed Web of Science ®Google Scholar