Patients’ experiences of involvement, motivation and coping with physiotherapists during subacute stroke rehabilitation – a qualitative study

References

• The Norwegian Directorate of Health. Norwegian guideline on management and rehabilitation of stroke. Oslo: Helsedirektoratet; 2017.
   Google Scholar
• Lov om pasient- og brukerrettigheter [Patient and User Rights Act], 2001, LOV-1999-07-02-63. Availabe from: https://lovdata.no/dokument/NL/lov/1999-07-02-63.
   Google Scholar
• WHO. The Ottawa Charter for Health Promotion Ottawa: WHO; 1986 [First International Conference on Health Promotion, Ottawa, 21 November 1986]. Available from: https://www.who.int/healthpromotion/conferences/previous/ottawa/en/.
   Google Scholar
• NHS. Involving people in their own care: NHS; 2021. Available from: https://www.england.nhs.uk/ourwork/patient-participation/.
   Google Scholar
• Pindus DM, Mullis R, Lim LC, et al. Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services – a systematic review and meta-ethnography. PLOS One. 2018;13(2):e0192533.
   PubMed Web of Science ®Google Scholar
• Lou S, Carstensen K, Jørgensen CR, et al. Stroke patients' and informal carers' experiences with life after stroke: an overview of qualitative systematic reviews. Disabil Rehabil. 2017;39(3):301–313.
   PubMed Web of Science ®Google Scholar
• Norwegian Stroke Registry. Årsrapport 2018 – Med plan for forbedringstiltak [Not available in English. Our translation: Report for 2018.]. Trondheim – Norsk hjerneslagregister; 2019. Available from: https://stolav.no/Documents/Revidert_Årsrapport%202018_NHR.pdf.
   Google Scholar
• Winstein CJ, Stein J, Arena R, American Heart Association Stroke Council, Council on Cardiovascular and Stroke Nursing, Council on Clinical Cardiology, and Council on Quality of Care and Outcomes Research, et al. Guidelines for adult stroke rehabilitation and recovery: a guideline for healthcare professionals from the American Heart Association/American Stroke Association. Stroke. 2016;47(6):e98–e169.
   PubMed Web of Science ®Google Scholar
• Hebert D, Lindsay MP, McIntyre A, et al. Canadian stroke best practice recommendations: stroke rehabilitation practice guidelines, update 2015. Int J Stroke. 2016;11(4):459–484.
   PubMed Web of Science ®Google Scholar
• Langhorne P, Bernhardt J, Kwakkel G. Stroke rehabilitation. Lancet. 2011;377(9778):1693–1702.
   PubMed Web of Science ®Google Scholar
• Report No. 21 (1998–99) to the Storting. Ansvar og meistring [Responsibility and coping. Towards a holistic rehabilitation policy. Not available in English]. 1998. In: Helse- og omsorgsdepartementet, editor. regjeringen.no1999.
   Google Scholar
• Anderson RM, Funnell MM. Patient empowerment: myths and misconceptions. Patient Educ Couns. 2010;79(3):277–282.
   PubMed Web of Science ®Google Scholar
• Gibson CH. A concept analysis of empowerment. J Adv Nurs. 1991;16(3):354–361.
   PubMed Web of Science ®Google Scholar
• Rappaport J. Studies in empowerment introduction to the issue. J Prenv Interv Community. 1984;3:2–3.
   Google Scholar
• Spreitzer GM. Psychological empowerment in the workplace: dimensions, measurements, and validation. Acad Manag J. 1995;38(5):1442–1465.
   Web of Science ®Google Scholar
• Rappaport J. Terms of empowerment/exemplars of prevention: toward a theory for community psychology. Am J Community Psychol. 1987;15(2):121–148.
   PubMed Web of Science ®Google Scholar
• Luker J, Lynch E, Bernhardsson S, et al. Stroke survivors' experiences of physical rehabilitation: a systematic review of qualitative studies. Arch Phys Med Rehabil. 2015;96(9):1698–1708.
   PubMed Web of Science ®Google Scholar
• Wohlin Wottrich A, Stenstrom C, Engardt M, et al. Characteristics of physiotherapy sessions from the patient's and therapist's perspective. Disabil Rehabil. 2004;26(20):1198–1205.
   PubMed Web of Science ®Google Scholar
• McGlinchey MP, Davenport S. Exploring the decision-making process in the delivery of physiotherapy in a stroke unit. Disabil Rehabil. 2015;37(14):1277–1284.
   PubMed Web of Science ®Google Scholar
• Lloyd A, Roberts AR, Freeman JA. 'Finding a balance' in involving patients in goal setting early after stroke: a physiotherapy perspective. Physiother Res Int. 2014;19(3):147–157.
   PubMedGoogle Scholar
• Schoeb V, Bürge E. Perceptions of patients and physiotherapists on patient participation: a narrative synthesis of qualitative studies: perceptions on patient participation. Physiother Res Int. 2012;17(2):80–91.
   PubMedGoogle Scholar
• Leach E, Cornwell P, Fleming J, et al. Patient centered goal-setting in a subacute rehabilitation setting. Disabil Rehabil. 2010;32(2):159–172.
   PubMed Web of Science ®Google Scholar
• Kvale S. Epistemological issues of interviewing. In: Kvale S, editor. Doing interviews [Internet]. Los Angeles, CA, London: SAGE. Qualitative Research Kit; 2007. p. 11–22.
   Google Scholar
• Malterud K. Systematic text condensation: a strategy for qualitative analysis. Scand J Public Health. 2012;40(8):795–805.
   PubMed Web of Science ®Google Scholar
• Norwegian Centre for Research Data. Data protection services Norwegian centre for research data; 2021. Available from: https://www.nsd.no/en/data-protection-services.
   Google Scholar
• World Medical Association. World medical association declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA. 2013;27(20):2091–2094.
   Google Scholar
• Sundseth A, Faiz N Orwegian stroke population. J Stroke Cerebrovasc Dis. 2014;23(7):1849–1855.
   PubMedGoogle Scholar
• Laver K, Halbert J, Stewart M, et al. Patient readiness and ability to set recovery goals during the first 6 months after stroke. J Allied Health. 2010;39(4):E149–E154.
   PubMedGoogle Scholar
• Auerbach SM. Do patients want control over their own health care? A review of measures, findings, and research issues. J Health Psychol. 2001;6(2):191–203.
   PubMed Web of Science ®Google Scholar
• Holliday RC, Ballinger C, Playford ED. Goal setting in neurological rehabilitation: patients' perspectives. Disabil Rehabil. 2007;29(5):389–394.
   PubMed Web of Science ®Google Scholar
• Rappaport J. Studies in empowerment introduction to the issue. J Prenv Interv Community. 1984;3(2–3):1–7.
   Google Scholar
• Antonovsky A. Unraveling the mystery of health: how people manage stress and stay well. San Francisco, CA: Jossey-Bass; 1987.
   Google Scholar
• Laver K, Halbert J, Stewart M, et al. Patient readiness and ability to set recovery goals during the first 6 months after stroke. J Allied Health. 2010;39(4):149E–154E.
   PubMedGoogle Scholar
• Melander Wikman A, Fältholm Y. Patient empowerment in rehabilitation: somebody told me to get rehabilitated. Adv Physiother. 2006;8(1):23–32.
   Google Scholar
• Siegert RJ, McPherson KM, Taylor WJ. Toward a cognitive-affective model of goal-setting in rehabilitation: is self-regulation theory a key step? Disabil Rehabil. 2004;26(20):1175–1183.
   PubMed Web of Science ®Google Scholar
• Locke EA, Latham GP. Goal setting theory. new development in goalsetting and task performance. New York, NY: Taylor and Francis Group; 2013. p. 3–15.
   Google Scholar