Understanding culturally safe cancer survivorship care with inuit in an urban community

References

• Inuit Tapiriit Kanatami. Inuit Statistical Profile 2018. Ottawa, ON: Inuit Tapiriit Kanatami; 2018.
   Google Scholar
• Office of the Auditor General of Canada. Report of the Auditor General of Canada to the Legislative Assembly of Nunavut - 2017: health care services — Nunavut. Ottawa, ON: Office of the Auditor General of Canada; 2017March. Available from: http://publications.gc.ca/collections/collection_2017/bvg-oag/FA3-123-2017-eng.pdf
   Google Scholar
• Pauktuutit Inuit Women of Canada. Pauktuutit Inuit Women of Canada Inuit Cancer Project Year One Final Report. Ottawa: ON; 2013.
   Google Scholar
• Tungasuvvingat Inuit, Cancer Care Ontario. Cancer Risk Factors and Screening Among Inuit in Ontario and Other Canadian Regions. Toronto, ON; 2017.
   Google Scholar
• Kewayosh A, Marrett L, Aslam U, et al. Improving health equity for first nations, inuit and metis people: ontario’s aboriginal cancer strategy II. Healthcare Quarterly. 2015;17(SP):33–13.
   Google Scholar
• Greenwood M, Lindsay N, King J, et al. Ethical spaces and places: indigenous cultural safety in British Columbia health care. AlterNative. 2017;13(3):179–189.
   Google Scholar
• Health Council of Canada. Empathy, dignity and respect. Creating cultural safety for Aboriginal people in urban health care. Toronto, ON: Health Council of Canada; 2012.
   Google Scholar
• Cavanagh BM, Wakefield CE, McLoone JK, et al. Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review. J Cancer Surviv. 2016;10(2):330–341.
   Web of Science ®Google Scholar
• American Society of Clinical Oncology. What is Survivorship? 2019. Available from: https://www.cancer.net/survivorship/what-survivorship.
   Google Scholar
• McCabe MS, Bhatia S, Oeffinger KC, et al. American society of clinical oncology statement: achieving high-quality cancer survivorship care. J clin oncol. 2013;31(5):631–640.
   PubMed Web of Science ®Google Scholar
• McCabe MS, Jacobs LA. Clinical update: Survivorship care- models and programs. Semin Oncol Nurs. 2012; 28(3):e1–e8. doi:https://doi.org/10.1016/j.soncn.2012.05.001
   Google Scholar
• Shahid S, Durey A, Bessarab D, et al. Identifying barriers and improving communication between cancer service providers and Aboriginal patients and their families: the perspective of service providers. BMC Health Serv Res. 2013;13(1):460.
   PubMedGoogle Scholar
• Shahid S, Finn L, Bessarab D, et al. ‘Nowhere to room … nobody told them’: logistical and cultural impediments to Aboriginal peoples’ participation in cancer treatment. Aust Health Rev. 2011;35(2):235–241.
   PubMed Web of Science ®Google Scholar
• Canadian Partnership Against Cancer. First nations cancer control in canada baseline report. Toronto, Ontario, Canada: Canadian Partnership Against Cancer; 2013.
   Google Scholar
• Braun KL, Kagawa-Singer M, Holden AE, et al. Cancer patient navigator tasks across the cancer care continuum. J Health Care Poor Underserved. 2012;23(1):398–413.
   PubMed Web of Science ®Google Scholar
• Carter N, Valaitis RK, Lam A, et al. Navigation delivery models and roles of navigators in primary care: a scoping literature review. BMC Health Serv Res. 2018;18(1):96.
   Google Scholar
• Gunn C, Battaglia TA, Parker VA, et al. What makes patient navigation most effective: defining useful tasks and networks. J Health Care Poor Underserved. 2017;28(2):663–676.
   PubMed Web of Science ®Google Scholar
• Valaitis RK, Carter N, Lam A, et al. Implementation and maintenance of patient navigation programs linking primary care with community-based health and social services: a scoping literature review. BMC Health Serv Res. 2017;17(1):116.
   Google Scholar
• Hirschman KB, Hodgson NA. Evidence-based interventions for transitions in care for individuals living with dementia. Gerontologist. 2018;58 (suppl_1):S129–S40.
   PubMed Web of Science ®Google Scholar
• Jumah NA, Bishop L, Franklyn M, et al. Opioid use in pregnancy and parenting: an Indigenous-based, collaborative framework for Northwestern Ontario. Canadian Journal of Public Health Revue Canadienne de Sante Publique. 2018;108(5–6):e616–e20.
   Web of Science ®Google Scholar
• Healy G, Tagak Sr. A. PILIRIQATIGIINNIQ ‘Working in a collaborative way for the common good’: a perspective on the space where health research methodology and Inuit epistemology come together. Int J Crit Indigenous Stud. 2014;7(1):1–14.
   Google Scholar
• Kovach M. Indigenous methodologies: characteristics, conversations and contexts. Toronto, Canada: University of Toronto Press; 2009.
   Google Scholar
• Tungasuvvingat Inuit. Taking Steps Together: regional Cancer Program Gathering. Ottawa: ON; 2019.
   Google Scholar
• Inuit Tapiriit Kanatami. National Inuit Strategy on Research. 2018. Report No: ISBN: 978–0–9699774–2–1.
   Google Scholar
• Doyle L, McCabe C, Keogh B, et al. An overview of the qualitative descriptive design within nursing research. J Res Nurs. 2020;25(5):443–455.
   PubMed Web of Science ®Google Scholar
• Sandelowski M. What’s in a Name? Qualitative Description Revisited. Res Nurs Health. 2010;33(1):77–84.
   PubMed Web of Science ®Google Scholar
• Government of Canada. Chapter 9- Research Involving the First Nations, Inuit and Métis Peoples of Canada. TCPS 2. Ottawa, Ontario: Panel on Research Ethics;2015
   Google Scholar
• Inuit Tapiriit Kanatami. National Inuit Strategy on Research. Ottawa, ON: Inuit Tapiriit Kanatami; 2018.
   Google Scholar
• Tagalik S. Inuit Qaujimajatuqangit: the role of Indigenous knowledge in supporting wellness in Inuit communities in Nunavut. Prince George, BC: University of Northern British Columbia; 2010.
   Google Scholar
• Canadian Institutes of Health Research. CIHR Institute of Aboriginal Peoples’ Health Strategic Plan 2014–18. Wellness, Strength and Resilience of First Nations, Inuit and Métis Peoples: moving Beyond Health Equity. Burnaby, BC: CIHR Institute of Aboriginal Peoples’ Health; 2015.
   Google Scholar
• Kothari A, Wathen CN. Integrated knowledge translation: digging deeper, moving forward. J Epidemiol Community Health. 2017;71(6):619–623.
   PubMed Web of Science ®Google Scholar
• Smylie J, Kaplan-Myrth N, Tait C, et al. Health Sciences Research and Aboriginal Communities: pathway or Pitfall? J Obstet Gynaecology Canada. 2004;26(3):211–216.
   Google Scholar
• Robinson A, Filice M Country Food (Inuit Food) in Canada Toronto, Ontario: The Canadian Encyclopedia; updated July 19, 2018. Available from: https://www.thecanadianencyclopedia.ca/en/article/country-food-inuit-food-in-canada
   Google Scholar
• Q. S. R. International Pty Ltd. NVivo (version 12). 2020.
   Google Scholar
• Eakin JM, Gladstone B. “Value-adding” Analysis: doing More With Qualitative Data. Int J Qual Methods. 2020;19:1–13.
   Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.
   PubMed Web of Science ®Google Scholar
• Saunders B, Sim J, Kingstone T, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quantity. 2018;52(4):1893–1907.
   PubMed Web of Science ®Google Scholar
• Horrill TC, Martin DE, Lavoie JG, SchultzASH. Nurses as agents of disruption: operationalizing a framework to redress inequities in healthcare access among Indigenous Peoples. Nursing inquiry. 2020; e12394.doi:https://doi.org/10.1111/nin.12394
   Google Scholar
• Inuit Tapiriit Kanatami. Unification of the inuit language writing system. Ottawa, ON: Inuit Tapiriit Kanatami; 2019. Available from: https://www.itk.ca/amaujaq/unification-writing-system/.
   Google Scholar
• Pauktuutit Inuit Women of Canada. Inuusinni Aqqusaaqtara – my Journey. Ottawa, ON: Pauktuutit Inuit Women of Canada; 2017.
   Google Scholar
• Truth and Reconciliation Commission of Canada. Truth and Reconciliation Commission of Canada: calls to Action. Winnipeg, Manitoba; 2015.
   Google Scholar
• Murray SJ. Aporia: towards an Ethic of Critique. Aporia: the Nursing Journal. 2009;1(1):8–14.
   Google Scholar
• Hyett S, Marjerrison S, Gabel C. Improving health research among Indigenous Peoples in Canada. CMAJ. 2018;190(20):E616–E21.
   Web of Science ®Google Scholar
• Doering P, DeGrasse C. Enhancing access to cancer care for the Inuit. Curr Oncol. 2015;22(4):244–245.
   Web of Science ®Google Scholar
• Galloway T, Horlick S, Cherba M, et al. Perspectives of Nunavut patients and families on their cancer and end of life care experiences. Int J Circumpolar Health. 2020;79(1):1766319.
   PubMed Web of Science ®Google Scholar
• Hayward A, Cidro J, Dutton R, et al. A review of health and wellness studies involving inuit of manitoba and nunavut. Int J Circumpolar Health. 2020;79(1):1779524.
   PubMed Web of Science ®Google Scholar
• Champlain Local Health Integration Network. Champlain LHIN 2013–14 Annual Business Plan. Ottawa, ON; 2014.
   Google Scholar
• Young TK, Kelly JJ, Friborg J, et al. Cancer among circumpolar populations: an emerging public health concern. Int J Circumpolar Health. 2016;75(1):29787.
   PubMed Web of Science ®Google Scholar
• Asmis TR, Febbraro M, Alvarez GG, et al. A retrospective review of cancer treatments and outcomes among Inuit referred from Nunavut, Canada. Curr Oncol. 2015;22(4):246–251.
   Web of Science ®Google Scholar
• Sheppard AJ, Chiarelli AM, Marrett LD, et al. Stage at diagnosis and comorbidity influence breast cancer survival in First Nations women in Ontario, Canada. Cancer Epidemiol Biomarkers Prev. 2011;20(10):2160–2167.
   Web of Science ®Google Scholar
• Friborg JT, Melbye M. Cancer patterns in Inuit populations. Lancet Oncol. 2008;9(9):892–900.
   Web of Science ®Google Scholar
• Cerigo H, Coutlee F, Franco EL, et al. Factors associated with cervical cancer screening uptake among Inuit women in Nunavik, Quebec, Canada. BMC Public Health. 2013;13(1):438.
   Google Scholar
• Foth T, Holmes D. Governing through lifestyle-Lalonde and the biopolitical management of public health in Canada. Nursing Philosophy. 2018;19(4):e12222.
   Web of Science ®Google Scholar
• Inuit Tapiriit Kanatami. Social Determinants of Inuit Health in Canada. Ottawa, ON: Inuit Tapiriit Kanatami; 2014. Available from: https://www.itk.ca/wp-content/uploads/2016/07/ITK_Social_Determinants_Report.pdf
   Google Scholar
• Inuit Tapiriit Kanatami. Inuit Tapiriit Kanatami. Ottawa, ON; 2020. Available from: https://www.itk.ca/
   Google Scholar
• Pauktuutit Inuit Women of Canada. Kaggutiq Inuit Cancer Glossary. Ottawa, Ontario: Pauktuutit Inuit Women of Canada; 2015.
   Google Scholar
• ChanJ, LindenK, McGrathC, etal. Time to diagnosis and treatment with palliative radiotherapy among Inuit patients with cancer from the arctic territory of Nunavut, Canada. Clin Oncol (R Coll Radiol). 2020;32(1):60–67.
   Web of Science ®Google Scholar
• Peterson JR, Baumgartner DA, Austin SL. Healthy ageing in the far North: perspectives and prescriptions. Int J Circumpolar Health. 2020;79(1):1735036.
   PubMed Web of Science ®Google Scholar
• Sakellariou D, Rotarou ES. The effects of neoliberal policies on access to healthcare for people with disabilities. Int J Equity Health. 2017;16(1):199.
   PubMedGoogle Scholar
• WilmotS. First Nations health care and the Canadian covenant. Med Health Care Philos. 2014;17(1):61–69.
   Web of Science ®Google Scholar
• Greenwood M, de Leeuw S, Lindsay N. Challenges in health equity for Indigenous peoples in Canada. Lancet. 2018;391(10131):1645–1648.
   PubMed Web of Science ®Google Scholar
• CoulthardGS, Red Skin, White Masks: Rejecting the Colonial Politics of Recognition. WarriorR, Editor. Minneapolis, Minnesota: University of Minnesota Press;2014.
   Google Scholar
• Smylie J, Firestone M, Spiller MW, et al. Our health counts: population-based measures of urban Inuit health determinants, health status, and health care access. Can J Public Health. 2018;109(5–6):662–670.
   Web of Science ®Google Scholar
• United Nations. United Nations Declaration on the Rights of Indigenous Peoples (A/RES/61/295). United Nations Department of Economic and Social Affairs; 2007.
   Google Scholar
• WilmotS. Cultural Rights and First Nations Health Care in Canada. Health Hum Rights. 2018;20(1):283–293.
   Web of Science ®Google Scholar
• GiffordW, RowanM, DickP, etal. Interventions to improve cancer survivorship among Indigenous Peoples and communities: a systematic review with a narrative synthesis. Supportive Care in Cancer. 2021. https://doi.org/10.1007/s00520-021-06216-7
   Google Scholar
• Warson E. Healing pathways: art therapy for American Indian cancer survivors. J Cancer Educ. 2012;27(S1):S47–56.
   Google Scholar
• Fijal D, Beagan BL. Indigenous perspectives on health: integration with a Canadian model of practice. Can J Occup Ther. 2019;86(3):220–231.
   PubMed Web of Science ®Google Scholar
• Ferrazzi P, Tagalik S, Christie P, et al. An Inuit Consensus Methodology in Qualitative Health Research. Int J Qual Methods. 2019;18:1–9.
   Web of Science ®Google Scholar
• HammondC, ThomasR, GiffordW, etal. Cycles of Silence: First Nations women overcoming social and historical barriers in supportive cancer care. Psychooncology. 2017;26(2):191–198.
   Web of Science ®Google Scholar
• GiffordW, DickP, RolfeD, etal.. Culturally safe cancer survivorship care - Experiences from Algonquins of Pikwàkanagàn First Nation. Indigenous Health Conference (Virtual). Dec 3–5 2020.Toronto, ON; University of Toronto.
   Google Scholar
• McCaslin WD, Boyer Y. First Nations communities at risk and in crisis: justice and security. Int J Indigenous Health. 2009;5(2):61–87.
   Google Scholar
• Smith KM. Facing history for the future of nursing. J Clin Nurs. 2020;29(9–10):1429–1431.
   PubMed Web of Science ®Google Scholar