“I Feel Different”: Ovarian Cancer and Sexual Self-Concept

References

• Abbott-Anderson, K., & Kwekkeboom, K. L. (2012). A systematic review of sexual concerns reported by gynecological cancer survivors. Gynecologic Oncology, 124, 477–489.
   Google Scholar
• American Cancer Society. (2014). Cancer facts and figures 2014. Retrieved from http://www.cancer.org/acs/groups/content/@research/documents/webcontent/acspc-042151.pdf
   Google Scholar
• Andersen, B. L. (2009). In sickness and in health: Maintaining intimacy after breast cancer recurrence. Cancer Journal, 15, 70–73.
   Google Scholar
• Anderson, M. S., & Johnson, J. (1994). Restoration of body image and self-esteem for women after cancer treatment: A rehabilitation strategy. Cancer Practice, 2, 345–349.
   Google Scholar
• Anzaldúa, G. (1992). The new Mestiza nation: A multicultural movement. In C. R. McCann & S. Kim (Eds.), Feminist theory reader: Local and global perspectives (pp. 277–284). New York, NY: Routledge.
   Google Scholar
• Avis, N. E., Crawford, S., & Manuel, J. (2004). Psychosocial problems among younger women with breast cancer. Psycho-Oncology, 13, 295–308.
   Google Scholar
• Bodurka, D. C., & Sun, C. C. (2006). Sexual function after gynecologic cancer. Obstetrics and Gynecology Clinics of North America, 33, 621–630.
   Google Scholar
• Bradway, K. E., & Beard, R. L. (2015). “Don't be trying to box folks in”: Older women's sexuality. Affilia, 30, 504–518. doi:10.1177/0886109914560741
   Google Scholar
• Brain, K. E., Smits, S., Simon, A. E., Forbes, L. J., Roberts, C., Robbé, I. J., Steward, J., White, C., Neal, R. D., & Hanson, J. (2014). Ovarian cancer symptom awareness and anticipated delayed presentation in a population sample. BioMed Central Cancer, 14(171), 1–10.
   Google Scholar
• Butler, L., Banfield, V., Sveinson, T., & Allen, K. (1998). Conceptualizing sexual health in cancer care. Western Journal of Nursing Research, 20, 683–705.
   Google Scholar
• Butler, S., & Rosenblum, B. (2001). Cancer in two voices. Duluth, MN: Spinsters Ink.
   Google Scholar
• Carey, M. A., & Smith, M. W. (1994). Capturing the group effect in focus groups: A special concern in analysis. Qualitative Health Research, 4, 123–127. doi:10.1177/104973239400400108
   Google Scholar
• Charmaz, K. (2014). Constructing grounded theory (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Cleary, V., & Hegarty, J. (2011). Understanding sexuality in women with gynecological cancer. European Journal of Oncology Nursing, 15, 38–45.
   Google Scholar
• Carlson, J. A. (2010). Avoiding traps in member checking. Qualitative Report, 15, 1102–1113.
   Google Scholar
• Collins, P. H. (1990). Defining Black feminist thought. In C. R. McCann & S. Kim (Eds.), Feminist theory reader: Local and global perspectives (pp. 379–394). New York, NY: Routledge.
   Google Scholar
• Collins, P. H. (2014). Learning from the outsider within: The sociological significance of Black feminist thought. In A. M. Jaggar (Ed.), Just methods: An interdisciplinary feminist reader (pp. 308–320). Boulder, CO: Paradigm.
   Google Scholar
• Crossen, H. S. (1942). The menace of “silent” ovarian carcinoma. Journal of American Medical Association, 119, 1485–1489.
   Google Scholar
• Edwards, W. M., & Coleman, E. (2004). Defining sexual health: A descriptive overview. Archives of Sexual Behavior, 33, 189–195.
   Google Scholar
• Gilbert, E., Ussher, J. M., & Perz, J. (2010a). Sexuality after breast cancer: A review. Maturitas, 66, 397–407.
   Google Scholar
• Gilbert, E., Ussher, J. M., & Perz, J. (2010b). Renegotiating sexuality and intimacy in the context of cancer: The experiences of carers. Archives of Sexual Behavior, 39, 998–1009. doi:10.1007=s10508-008-9416-z
   Google Scholar
• Gilbert, E., Ussher, J. M., & Perz, J. (2011). Sexuality after gynecological cancer: A review of the material, intrapsychic, and discursive aspects of treatment on women's sexual wellbeing. Maturitas, 70 42–57.
   Google Scholar
• Gubar, S. (2012). Memoir of a debulked woman. New York, NY: W.W. Norton.
   Google Scholar
• Hawkins, Y., Ussher, J., Gilbert, E., Perz, J., Sandoval, M., & Sundquist, K. (2009). Changes in sexuality and intimacy after the diagnosis and treatment of cancer: The experience of partners in a sexual relationship with a person with cancer. Cancer Nursing, 32, 271–280.
   Google Scholar
• Hensley, M. L., Robson, M. E., Kauff, N. D., Korytowsky, B., Castiel, M., Ostroff, J., Hurley, K., Hann, L. E., Colon, J., & Spriggs, D. (2003). Pre- and postmenopausal high-risk women undergoing screening for ovarian cancer: Anxiety, risk perceptions, and quality of life. Gynecologic Oncology, 89, 440–446.
   Google Scholar
• Holmes, M. S. (2006). Pink ribbons and public private parts: On not imagining ovarian cancer. Literature and Medicine, 25, 475–501. doi:10.1353/lm.2007.0005
   Google Scholar
• Jasen, P. (2009). From the “silent killer” to the “whispering disease”: Ovarian cancer and the uses of metaphor. Medical History, 53, 489–512.
   Google Scholar
• Howell, D., Fitch, M. I., & Deane, K. A. (2003). Impact of ovarian cancer perceived by women. Cancer Nursing, 26, 1–9.
   Google Scholar
• Juraskova, I., Butow, P., Robertson, R., Sharpe, L., McLeod, C., & Hacker, N. (2003). Post-treatment sexual adjustment following cervical and endometrial cancer: A qualitative insight. Psycho-Oncology, 12, 267–279.
   Google Scholar
• Kitzinger, J. (1995). Introducing focus groups. British Medical Journal, 311, 299–302.
   Google Scholar
• Krychman, M., & Millheiser, L. S. (2013). Sexual health issues in women with cancer. Journal of Sexual Medicine, 10(S1), 5–15.
   Google Scholar
• Martin, E. (2001). The women in the body: A cultural analysis of reproduction. Boston, MA: Beacon Press.
   Google Scholar
• McCallum, M., Jolicoeur, L., Lefebvre, M., Babchishin, L. K., Robert-Chauret, S., Le, T., & Lebel, S. (2014). Supportive care needs after gynecologic cancer: Where does sexual health fit in? Oncology Nursing Forum, 41, 297–306.
   Google Scholar
• McCallum, M.., Lefebvre, M., Jolicoeur, L., Maheu, C., & Lebel, S. (2012). Sexual health and gynecological cancer: Conceptualizing patient needs and overcoming barriers to seeking and accessing services. Journal of Psychosomatic Obstetrics & Gynecology, 33, 135–142. doi:10.3109/0167482X.2012.709291
   Google Scholar
• Morgan, D. L. (1996). Focus groups. Annual Review of Sociology, 22, 129–152.
   Google Scholar
• Morse, J. M., Barrett, M., Mayan, M., Olson, K., & Spiers, J. (2002). Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods, 1(2), Article 2, 1–19.
   Google Scholar
• National Cancer Institute. (2012). SEER stat fact sheets: Ovary cancer. Retrieved from http://seer.cancer.gov/statfacts/html/ovary.html
   Google Scholar
• National Ovarian Cancer Coalition. (n.d.). Ovarian cancer frequently misdiagnosed. Retrieved from http://www.ovarian.org/view_pr.php?id=28
   Google Scholar
• Parton, C. M., Ussher, J. M., & Perz, P. (2015). Women's construction of embodiment and the abject sexual body after cancer. Qualitative Health Research, 1–14. doi:10.1177/1049732315570130
   Google Scholar
• Price, B. (1990). A model for body-image care. Journal of Advanced Nursing, 15, 585–593.
   Google Scholar
• Price, B. (1995). Assessing altered body image. Journal of Psychiatric and Mental Health Nursing, 2, 169–175.
   Google Scholar
• Price, B. (1998). Cancer: Altered body image. Nursing Standard, 12(21), 49–55.
   Google Scholar
• Reis, N., Beji, N. K., & Coskun, A. (2010). Quality of life and sexual functioning in gynecological cancer patients: Results from quantitative and qualitative data. European Journal of Oncology Nursing, 14, 137–146.
   Google Scholar
• Rubin, L. R., Margolies, L., & Kaschak, E. (2014). Women and cancer. Women & Therapy, 37, 198–204. doi:10.1080/02703149.2014.897545
   Google Scholar
• Rubin, L. R., & Tanenbaum, M. (2011). “Does that make me a woman?”: Breast cancer, mastectomy, and breast reconstruction decisions among sexual minority women. Psychology of Women Quarterly, 35, 401–414. doi:10.1177/0361684310395606
   Google Scholar
• Rubin, L. R., Nemeroff, C. J., & Russo, N. F. (2004). Exploring feminist women's body consciousness. Psychology of Women Quarterly, 28, 27–37.
   Google Scholar
• Schink, J. C. (1999). Current initial therapy of stage III and IV ovarian cancer: Challenges for managed care. Seminars in Oncology, 26, 2–7.
   Google Scholar
• Schultz, W. C. M., & van de Wiel, H. B. M. (2003). Sexuality, intimacy, and gynecologic cancer. Journal of Sex and Marital Therapy, 29(S), 121–128.
   Google Scholar
• Sekse, R. J. T., Gjengedal, E., & Råhem, M. (2013). Living in a changed female body after gynecological cancer. Health Care for Women International, 34, 14–33. doi:10.1080/07399332.2011.645965
   Google Scholar
• Stacey, J. (1997). Teratologies: A cultural study of cancer. New York, NY: Routledge.
   Google Scholar
• Stead, M. L., Fallowfield, L., Brown, J. M., & Selby, P. (2001). Communication about sexual problems and sexual concerns in ovarian cancer: Qualitative study. British Medical Journal, 323, 836–837.
   Google Scholar
• Stead, M. L., Fallowfield, L., Selby, P., & Brown, J. M. (2006). Psychosexual function and impact of gynecological cancer. Best Practice & Research Clinical Obstetrics and Gynaecology, 21, 309–320. doi:10.1016/j.bpobgyn.2006.11.008
   Google Scholar
• Stewart, D. E., Wong, F., Duff, A., Melancon, C. H., & Cheung, A. M. (2001). “What doesn't kill you makes you stronger”: An ovarian cancer survivor survey. Gynecologic Oncology, 83, 537–542. doi:10.1006/gyno.2001.6437.
   Google Scholar
• Strauss, A., & Corbin J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
   Google Scholar
• Taylor, C. L. C., Basen-Engquist, K., Shinn, E. H., & Bodurka, D. C. (2004). Predictors of sexual functioning in ovarian cancer patients. Journal of Clinical Oncology, 22, 881–889.
   Google Scholar
• Ussher, J. M., Perz, J., & Gilbert, E. (2014). Women's sexuality after cancer: A qualitative analysis of sexual changes and renegotiation. Women & Therapy, 37, 205–221. doi:10.1080/02703149.2014.897547
   Google Scholar
• Ussher, J. M., Perz, J., & Gilbert, E. (2012). Changes to sexual well-being and intimacy after breast cancer. Cancer Nursing, 35, 456–465.
   Google Scholar
• Ussher, J. M. (1989). The psychology of the female body. New York, NY: Routledge
   Google Scholar
• Vaz, A. F., Pinto-Neto, A. M., Conde, D. M., Costa-Paiva, L., Morais, S. S., & Esteves, S. B. (2007). Quality of life of women with gynecologic cancer: Associated factors. Archives of Gynecology and Obstetrics, 276, 583–589
   Google Scholar
• White, C. A. (2000). Body image dimensions and cancer: A heuristic cognitive behavioral model. Psycho-Oncology, 9, 183–192.
   Google Scholar
• Wilmoth, M. C., & Spinelli, A. (2000). Sexual implications of gynecologic cancer treatments. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 29, 413–421.
   Google Scholar
• Wilmoth, M. C. (2007). Sexuality: A critical component of quality of life in chronic disease. Nursing Clinics of North America, 42, 507–514.
   Google Scholar
• Woods, N. F. (1987). Toward a holistic perspective of human sexuality: Alterations in health and nursing diagnoses. Holistic Nursing Practice, 1(4), 1–11.
   Google Scholar