Building Social Support: Disclosure and Communication Processes Between IVF Patients and Peers in Canada

References

• Allan, H. (2007). Experiences of infertility: Liminality and the role of the fertility clinic. Nursing Inquiry, 14(2), 132–139. https://doi.org/10.1111/j.1440-1800.2007.00362.x
   PubMed Web of Science ®Google Scholar
• Awtani, M., Kapoor, G., Kaur, P., Saha, J., Crasta, D., & Banker, M. (2019). Anxiety and stress at different stages of treatment in women undergoing in vitro fertilization–intracytoplasmic sperm injection. Journal of Human Reproductive Sciences, 12(1), 47–52. https://doi.org/10.4103/jhrs.JHRS_23_18
   PubMedGoogle Scholar
• Bartholomew, L. K., Parcel, G. S., Kok, G., Gottlieb, N. H., & Fernandez, M. E. (2011). Planning health promotion programs. An intervention mapping approach (3rd ed.). Jossey-Bass.
   Google Scholar
• Becker, G. (2000). The elusive embryo: How women and men approach new reproductive technologies. University of California Press. Retrieved May 25, 2020, from www.jstor.org/stable/ https://doi.org/10.1525/j.ctt1pps6b
   Google Scholar
• Bell, K. (2012). An exploration of women’s psychosocial support needs in the context of assisted reproduction. Social Work in Health Care, 51(8), 695–709. https://doi.org/10.1080/00981389.2012.696086
   PubMed Web of Science ®Google Scholar
• Ben-Kimhy, R., Youngster, M., Medina-Artom, T. R., Avraham, S., Gat, I., Marom Haham, L., Hourvitz, A., & Kedem, A. (2020). Fertility patients under COVID-19: Attitudes, perceptions and psychological reactions. Human Reproduction, 35(12), 2774–2783. https://doi.org/10.1093/humrep/deaa248
   PubMed Web of Science ®Google Scholar
• Bute, J. J. (2009). “Nobody thinks twice about asking”: Women with a fertility problem and requests for information. Health Communication, 24(8), 752–763. https://doi.org/10.1080/10410230903265920
   PubMed Web of Science ®Google Scholar
• Casu, G., Zaia, V., Fernandes Martins, M., Parente Barbosa, C., & Gremigni, P. (2019). A dyadic mediation study on social support, coping, and stress among couples starting fertility treatment. Journal of Family Psychology, 33(3), 315–326. https://doi.org/10.1037/fam0000502
   PubMed Web of Science ®Google Scholar
• Choi, S. Y., Venetis, M. K., Greene, K., Magsamen-Conrad, K., Checton, M. G., & Banerjee, S. C. (2016). Planning a stigmatized nonvisible illness disclosure: Applying the disclosure decision-making model. The Journal of Psychology, 150(8), 1004–1025. https://doi.org/10.1080/00223980.2016.1226742
   PubMed Web of Science ®Google Scholar
• Cohen, S. (2004). Social relationships and health. The American Psychologist, 59(8), 676–684. https://doi.org/10.1037/0003-066X.59.8.676
   PubMed Web of Science ®Google Scholar
• Cousineau, T. M., & Domar, A. D. (2007). Psychological impact of infertility. Best Practice & Research. Clinical Obstetrics & Gynaecology, 21(2), 293–308. https://doi.org/10.1016/j.bpobgyn.2006.12.003
   PubMed Web of Science ®Google Scholar
• Cousineau, T., Green, T., Corsini, E., Barnard, T., Seibring, A., & Domar, A. (2006). Development and validation of the infertility self-efficacy scale. Fertility and Sterility, 85(6), 1684–1696. https://doi.org/10.1016/j.fertnstert.2005.10.077
   PubMed Web of Science ®Google Scholar
• Creswell, J. W. (2013). Qualitative inquiry & research design: Choosing among five approaches (3rd ed.). Sage.
   Google Scholar
• Dennis, C.-L. (2003). Peer support within a health care context: A concept analysis. International Journal of Nursing Studies, 40(3), 321–332. https://doi.org/10.1016/S0020-7489(02)00092-5
   PubMed Web of Science ®Google Scholar
• Dennis, C.-L. (2010). Postpartum depression peer support: Maternal perceptions from a randomized controlled trial. International Journal of Nursing Studies, 47(5), 560–568. https://doi.org/10.1016/j.ijnurstu.2009.10.015
   PubMed Web of Science ®Google Scholar
• Dennis, C.-L. (2014). The process of developing and implementing a telephone-based peer support program for postpartum depression: Results from a randomized controlled trial. Trials, 15, 131. https://doi.org/10.1186/1745-6215-15-131
   PubMed Web of Science ®Google Scholar
• Dhont, N., Luchters, S., Muvunyi, C., Vyankandondera, J., De Naeyer, L., Temmerman, M., & van de Wijgert, J. (2011). The risk factor profile of women with secondary infertility: an unmatched case-control study in Kigali, Rwanda. BMC Women’s Health, 11(1), 1–7. https://doi.org/10.1186/1472-6874-11-32
   PubMedGoogle Scholar
• Domar, A. D., Clapp, D., Slawsby, E., Kessel, B., Orav, J., & Freizinger, M. (2000). The impact of group psychological interventions on distress in infertile women. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 19(6), 568–575. https://doi.org/10.1037//0278-6133.19.6.568
   PubMed Web of Science ®Google Scholar
• Forgie, M., Vandyk, A., Peterson, W., & Dubois, D. (2023). Exploring cisgender women’s experiences of reproductive loss after in vitro fertilization. Women’s Reproductive Health, 10(2), 185–200. https://doi.org/10.1080/23293691.2022.2074811
   Google Scholar
• Forster, D. A., McLardie-Hore, F. E., McLachlan, H. L., Davey, M.-A., Grimes, H. A., Dennis, C.-L., Mortensen, K., Moorhead, A. M., Tawia, S., Gold, L., Shafiei, T., Small, R., East, C. E., & Amir, L. H. (2019). Proactive peer (mother-to-mother) breastfeeding support by telephone (ringing up about breastfeeding early [RUBY]): A multicentre, unblinded, randomised controlled trial. EClinicalMedicine, 8, 20–28. https://doi.org/10.1016/j.eclinm.2019.02.003
   PubMedGoogle Scholar
• Gibson, D. M., & Myers, J. E. (2002). The effect of social coping resources and growth-fostering relationships on infertility stress in women. Journal of Mental Health Counseling, 1, 68–80.
   Google Scholar
• Gilles, E. E., & Qian, Y. (2017). Online social support among women with post-cancer infertility and reproductive difficulty. Women’s Reproductive Health, 4(1), 14–28. https://doi.org/10.1080/23293691.2017.1276364
   Google Scholar
• Gordon, J. L., & Balsom, A. A. (2020). The psychological impact of fertility treatment suspensions during the COVID-19 pandemic. Plos One, 15(9), e0239253. https://doi.org/10.1371/journal.pone.0239253
   PubMed Web of Science ®Google Scholar
• Greene, K. (2009). An integrated model of health disclosure decision-making. In T. D. Afifi & W. A. Afifi (Eds.), Uncertainty, information management, and disclosure decisions: Theories and applications (pp. 226–253). Routledge/Taylor & Francis Group.
   Google Scholar
• Greene, K., Derlega, V. J., & Matthews, A. (2006). Self-disclosure in personal relationships. In A. L. Vangelisti & D. Perlman (Eds.), Cambridge handbook of personal relationships (pp. 409–427). Cambridge University Press.
   Google Scholar
• Greene, K., Derlega, V. J., Yep, G. A., & Petronio, S. (2003). Privacy and disclosure of HIV in interpersonal relationships: A sourcebook for researchers and practitioners. Lawrence Erlbaum Associates Publishers.
   Google Scholar
• Greene, K., Magsamen-Conrad, K., Venetis, M. K., Checton, M. G., Bagdasarov, Z., & Banerjee, S. C. (2012). Assessing health diagnosis disclosure decisions in relationships: Testing the disclosure decision-making model. Health Communication, 27(4), 356–368. https://doi.org/10.1080/10410236.2011.586988
   PubMed Web of Science ®Google Scholar
• Grunberg, P. H., Dennis, C.-L., Da Costa, D., & Zelkowitz, P. (2018). Infertility patients’ needs and preferences for online peer support. Reproductive Biomedicine & Society Online, 6, 80–89. https://doi.org/10.1016/j.rbms.2018.10.016
   PubMedGoogle Scholar
• Hendricks, V. M., & Blanken, P. (1992). Snowball sampling: Theoretical and practical considerations. In V. M. Hendricks, P. Blanken, & N. Adriaans (Eds.), Snowball sampling: A pilot study on cocaine use (pp. 17–35). IVO.
   Google Scholar
• High, A. C., & Steuber, K. R. (2014). An examination of support (in)adequacy: Types, sources, and consequences of social support among infertile women. Communication Monographs, 81(2), 157–178. https://doi.org/10.1080/03637751.2013.878868
   Web of Science ®Google Scholar
• House, J. S. (1981). Work stress and social support. Addison-Wesley.
   Google Scholar
• Inhorn, M. C., & Birenbaum-Carmeli, D. (2008). Assisted reproductive technologies and culture change. Annual Review of Anthropology, 37(1), 177–196. https://doi.org/10.1146/annurev.anthro.37.081407.085230
   Web of Science ®Google Scholar
• Iordachescu, D. A., Gica, C., Vladislav, E. O., Panaitescu, A. M., Peltecu, G., Furtuna, M. E., & Gica, N. (2021). Emotional disorders, marital adaptation and the moderating role of social support for couples under treatment for infertility. Ginekologia Polska, 92(2), 98–104. https://doi.org/10.5603/GP.a2020.0173
   PubMed Web of Science ®Google Scholar
• Jarvis, C. M. (2021). Supportive communication through medicalization: Semantic network analysis of supportive messaging in an online infertility support group. Women’s Reproductive Health, 8(4), 248–264. https://doi.org/10.1080/23293691.2021.1976048
   Google Scholar
• Kelly, A. E., & McKillop, K. J. (1996). Consequences of revealing personal secrets. Psychological Bulletin, 120(3), 450–465. https://doi.org/10.1037/0033-2909.120.3.450
   Web of Science ®Google Scholar
• Margan, R., Margan, M.-M., Fira-Mladinescu, C., Putnoky, S., Tuta-Sas, I., Bagiu, R., Popa, Z. L., Bernad, E., Ciuca, I. M., Bratosin, F., Miloicov-Bacean, O. C., Vlaicu, B., & Dobrescu, A. (2022). Impact of stress and financials on Romanian infertile women accessing assisted reproductive treatment. International Journal of Environmental Research and Public Health, 19(6), 3256. https://doi.org/10.3390/ijerph19063256
   PubMed Web of Science ®Google Scholar
• Martins, M. V., Peterson, B. D., Almeida, V., & Costa, M. E. (2011). Direct and indirect effects of perceived social support on women’s infertility-related stress. Human Reproduction, 26(8), 2113–2121. https://doi.org/10.1093/humrep/der157
   PubMed Web of Science ®Google Scholar
• Martins, M. V., Peterson, B. D., Almeida, V., Mesquita-Guimarães, J., & Costa, M. E. (2014). Dyadic dynamics of perceived social support in couples facing infertility. Human Reproduction (Oxford, England), 29(1), 83–89. https://doi.org/10.1093/humrep/det403
   PubMed Web of Science ®Google Scholar
• Martins, M. V., Peterson, B. D., Costa, P., Costa, M. E., Lund, R., & Schmidt, L. (2013). Interactive effects of social support and disclosure on fertility-related stress. Journal of Social and Personal Relationships, 30(4), 371–388. https://doi.org/10.1177/0265407512456672
   Web of Science ®Google Scholar
• Moustakas, C. (1994). Phenomenological research methods. Sage. https://doi.org/10.4135/9781412995658
   Google Scholar
• Percy, C. A., Gibbs, T., Potter, L., & Boardman, S. (2009). Nurse-led peer support group: Experiences of women with polycystic ovary syndrome. Journal of Advanced Nursing, 65(10), 2046–2055. https://doi.org/10.1111/j.1365-2648.2009.05061.x
   PubMed Web of Science ®Google Scholar
• Pistrang, N., Solomons, W., & Barker, C. (1999). Peer support for women with breast cancer: The role of empathy and self-disclosure. Journal of Community & Applied Social Psychology, 9(3), 217–229. https://doi.org/10.1002/(SICI)1099-1298(199905/06)9:3<217::AID-CASP509>3.0.CO;2-5
   Web of Science ®Google Scholar
• Seifer, D. B., Petok, W. D., Agrawal, A., Glenn, T. L., Bayer, A. H., Witt, B. R., Burgin, B. D., & Lieman, H. J. (2021). Psychological experience and coping strategies of patients in the Northeast US delaying care for infertility during the COVID-19 pandemic. Reproductive Biology and Endocrinology, 19(1), 28. https://doi.org/10.1186/s12958-021-00721-4
   PubMed Web of Science ®Google Scholar
• Slade, P., O'Neill, C., Simpson, A. J., & Lashen, H. (2007). The relationship between perceived stigma, disclosure patterns, support and distress in new attendees at an infertility clinic. Human Reproduction (Oxford, England), 22(8), 2309–2317. https://doi.org/10.1093/humrep/dem115
   PubMed Web of Science ®Google Scholar
• Steuber, K. R., & High, A. (2015). Disclosure strategies, social support, and quality of life in infertile women. Human Reproduction (Oxford, England), 30(7), 1635–1642. https://doi.org/10.1093/humrep/dev093
   PubMed Web of Science ®Google Scholar
• Strauss, A., & Corbin, J. (1990). Qualitative analysis for social scientists. Cambridge University Press.
   Google Scholar
• Taylor, D. A., & Altman, I. (1987). Communication in interpersonal relationships: Social penetration processes. In M. E. Roloff & G. R. Miller (Eds.), Interpersonal processes: New directions in communication research (pp. 257–277). Sage.
   Google Scholar
• van Manen, M. (2016). Researching lived experience: Human science for an action sensitive pedagogy (2nd ed.). Taylor and Francis. https://doi.org/10.4324/9781315421056
   Google Scholar
• Venetis, M. K., Greene, K., Checton, M. G., & Magsamen-Conrad, K. (2015). Decision making in cancer-related topic avoidance. Journal of Health Communication, 20(3), 306–313. https://doi.org/10.1080/10810730.2014.965364
   PubMed Web of Science ®Google Scholar
• Wilcox, L. S., & Mosher, W. D. (1993). Factors associated with obtaining health screening among women of reproductive age. Public Health Reports, 108(1), 76–86.
   PubMed Web of Science ®Google Scholar
• Yurtsal, B., & Hasdemir, O. (2022). Effects of the whatsapp midwife breastfeeding support line on early postpartum breastfeeding process of mothers. Health Care for Women International, 43(12), 1433–1448. https://doi.org/10.1080/07399332.2021.1972303
   PubMed Web of Science ®Google Scholar