#PreeclampsiaSurvivor on Instagram: The Hero’s Journey

References

• Allen, M. (2015). Narrative diversity and sympathetic abortion: What online storytelling reveals about the prescribed norms of the mainstream movements. Symbolic Interaction, 38(1), 42–63. https://doi.org/10.1002/symb.135
   Web of Science ®Google Scholar
• Basso, O., Rasmussen, S., Weinberg, C. R., Wilcox, A. J., Irgens, L. M., & Skjaerven, R. (2006). Trends in fetal and infant survival following preeclampsia. JAMA, 296(11), 1357–1362. https://doi.org/10.1001/jama.296.11.1357
   PubMed Web of Science ®Google Scholar
• Beck, C. T. (2020). Pentadic cartography: Mapping postpartum psychosis narratives. Qualitative Health Research, 30(12), 1851–1860.
   PubMed Web of Science ®Google Scholar
• Berard, A. A., & Smith, A. P. (2019). Post your journey: Instagram as a support Community for people with Fibromyalgia. Qualitative Health Research, 29(2), 237–247. https://doi.org/10.1177/1049732318789102
   Google Scholar
• Bond, S. E., & Christensen, J. (2021). The man behind the myth: Should we question the hero’s journey? Los Angeles Review of Books. https://lareviewofbooks.org/article/the-man-behind-the-myth-should-we-question-the-heros-journey/
   Google Scholar
• Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. SAGE.
   Google Scholar
• Campbell, J. (2008). The hero with a thousand faces (Vol. 17). New World Library.
   Google Scholar
• Caplan, S. E., Haslett, B. J., & Burleson, B. R. (2005). Telling it like it is: The adaptive function of narratives in coping with loss in later life. Health Communication, 17(3), 233–251. https://doi.org/10.1207/s15327027hc1703_2
   PubMed Web of Science ®Google Scholar
• Carmack, H. J., & Degroot, J. M. (2014). Exploiting loss?: Ethical considerations, boundaries, and opportunities for the study of death and grief online. Omega, 68(4), 315–335. https://doi.org/10.2190/om.68.4.b
   Google Scholar
• Chan, E.-Y., Phang, K. N., Glass, G. F., Jr., & Lim, W.-S. (2019). Crossing, Trudging and settling: A phenomenological inquiry into lived experience of Asian family caregivers of older persons with dementia. Geriatric Nursing (New York, N.Y.), 40(5), 502–509. https://doi.org/10.1016/j.gerinurse.2019.03.015
   PubMed Web of Science ®Google Scholar
• Cherian, R., Le, G., Whall, J., Gomez, S., & Sarkar, U. (2020). Content shared on social media for national cancer survivors day 2018. PloS One, 15(1), e0226194. https://doi.org/10.1371/journal.pone.0226194
   PubMed Web of Science ®Google Scholar
• Coleman, L., Ramm, J., & Cooke, R. (2010). The effectiveness of an innovative intervention aimed at reducing binge drinking among young people: Results from a pilot study. Drugs: Education, Prevention and Policy, 17(4), 413–430. https://doi.org/10.3109/09687630802572599
   Web of Science ®Google Scholar
• Crooks, D. L. (2001). The importance of symbolic interaction in grounded theory research on women’s health. Health Care for Women International, 22(1-2), 11–27. https://doi.org/10.1080/073993301300003054
   PubMedGoogle Scholar
• DataReportal. (2020). Digital 2020: July Global Statshot Report. https://datareportal.com/reports/digital-2020-july-global-statshot
   Google Scholar
• Davies, E. L., Bell, J. S., & Bhattacharya, S. (2016). Preeclampsia and preterm delivery: A population-based case-control study. Hypertension in Pregnancy, 35(4), 510–519. https://doi.org/10.1080/10641955.2016.1190846
   Google Scholar
• Dennis, M. R., Kunkel, A., & Keyton, J. (2008). Problematic integration theory, appraisal theory, and the bosom buddies breast cancer support group. Journal of Applied Communication Research, 36(4), 415–436. https://doi.org/10.1080/00909880802094315
   Web of Science ®Google Scholar
• East, L., Jackson, D., O'Brien, L., & Peters, K. (2010). Storytelling: An approach that can help to develop resilience. Nurse Researcher, 17(3), 17–25. https://doi.org/10.7748/nr2010.04.17.3.17.c7742
   PubMedGoogle Scholar
• Eisenberg, L. (1977). Disease and illness distinctions between professional and popular ideas of sickness. Culture, Medicine and Psychiatry, 1(1), 9–23. https://doi.org/10.1007/BF00114808
   PubMedGoogle Scholar
• Fisher, W. R. (1984). Narration as a human communication paradigm: The case of public moral argument. Communication Monographs, 51(1), 1–22. https://doi.org/10.1080/03637758409390180
   Web of Science ®Google Scholar
• Frank, A. W. (2013). The wounded storyteller: Body, illness, and ethics, second edition. University of Chicago Press.
   Google Scholar
• Franzke, A. S., Bechmann, A., Zimmer, M., & Ess, C. M, Association of Internet Researchers. (2020). Internet research: Ethical guidelines 3.0. https://aoir.org/reports/ethics3.pdf
   Google Scholar
• Friedman, M., Rice, C., & Lind, E. R. (2020). A high-risk body for whom? On fat, risk, recognition and reclamation in restorying reproductive care through digital storytelling. Feminist Encounters: A Journal of Critical Studies in Culture and Politics, 4(2), 36.
   Google Scholar
• Glaser, B., & Strauss, A. (1967). Discovery of grounded theory: Strategies for qualitative research. Aldine.
   Google Scholar
• Golovchenko, O. V., Abramova, M. Y., Orlova, V. S., Batlutskaya, I. V., & Sorokina, I. N. (2022). Clinical and genetic characteristics of preeclampsia. Archives of Razi Institute. 77(1), 293–299.
   PubMedGoogle Scholar
• Groenevelt, I. (2022). “It’s not all nice and fun”: Narrating contested illness on YouTube and Instagram. Health, 26(5), 589–604. https://doi.org/10.1177/13634593211017187
   Google Scholar
• Gubrium, A. C., Fiddian-Green, A., Lowe, S., DiFulvio, G., & Del Toro-Mejías, L. (2016). Measuring down: Evaluating digital storytelling as a process for narrative health promotion. Qualitative Health Research, 26(13), 1787–1801. https://doi.org/10.1177/1049732316649353
   PubMed Web of Science ®Google Scholar
• Gucciardi, E., Jean-Pierre, N., Karam, G., & Sidani, S. (2016). Designing and delivering facilitated storytelling interventions for chronic disease self-management: A scoping review. BMC Health Services Research, 16(1), 249. https://doi.org/10.1186/s12913-016-1474-7
   PubMedGoogle Scholar
• Gurrieri, L., & Drenten, J. (2019). Visual storytelling and vulnerable health care consumers: Normalising practices and social support through Instagram. Journal of Services Marketing, 33(6), 702–720. https://doi.org/10.1108/JSM-09-2018-0262
   Web of Science ®Google Scholar
• Halverson, C. M. E., Clayton, E. W., Garcia Sierra, A., & Francomano, C. (2021). Patients with Ehlers–Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero’s journey. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 187(4), 416–424. https://doi.org/10.1002/ajmg.c.31935
   PubMed Web of Science ®Google Scholar
• Hanley, A. W., Garland, E. L., & Tedeschi, R. G. (2017). Relating dispositional mindfulness, contemplative practice, and positive reappraisal with posttraumatic cognitive coping, stress, and growth. Psychological Trauma: theory, Research, Practice and Policy, 9(5), 526–536. https://doi.org/10.1037/tra0000208
   PubMed Web of Science ®Google Scholar
• Hejlek, J. (2021). Intagram Scaper. Retrieved at https://apify.com/apify/instagram-scraper
   Google Scholar
• Hoedjes, M., Berks, D., Vogel, I., Franx, A., Visser, W., Duvekot, J. J., Habbema, J., Dik, F., Steegers, E. A. P., & Raat, H. (2011). Symptoms of post-traumatic stress after preeclampsia. Journal of Psychosomatic Obstetrics and Gynaecology, 32(3), 126–134. https://doi.org/10.3109/0167482X.2011.599460
   PubMed Web of Science ®Google Scholar
• Johnson, B., Quinlan, M. M., & Pope, N. (2019). # ttc on Instagram: A multimodal discourse analysis of the treatment experience of patients pursuing in vitro fertilization. Qualitative Research in Medicine and Healthcare, 3(1), 1–14. https://doi.org/10.4081/qrmh.2019.7875
   Google Scholar
• Johnson, J. D., & Louis, J. M. (2022). Does race or ethnicity play a role in the origin, pathophysiology, and outcomes of preeclampsia? An expert review of the literature. American Journal of Obstetrics and Gynecology, 226(2S), S876–S885. https://doi.org/10.1016/j.ajog.2020.07.038
   PubMedGoogle Scholar
• Jung, E., Romero, R., Yeo, L., Gomez-Lopez, N., Chaemsaithong, P., Jaovisidha, A., Gotsch, F., & Erez, O. (2022). The etiology of preeclampsia. American Journal of Obstetrics and Gynecology, 226(2S), S844–S866. https://doi.org/10.1016/j.ajog.2021.11.1356
   PubMedGoogle Scholar
• Karrar, S. A., & Hong, P. L. (2022). Preeclampsia. StatPearls Publishing. http://www.ncbi.nlm.nih.gov/books/NBK570611/
   Google Scholar
• Kerr, D. J., Deane, F. P., & Crowe, T. P. (2019). Narrative identity reconstruction as adaptive growth during mental health recovery: A narrative coaching boardgame approach. Frontiers in Psychology, 10, 994. https://doi.org/10.3389/fpsyg.2019.00994
   PubMed Web of Science ®Google Scholar
• Kleinman, A. (2020). The personal and social meanings of illness. In The Illness Narratives: Suffering, Healing, And The Human Condition. Basic Books.
   Google Scholar
• Kochanek, K. D., Murphy, S. L., Xu, J., & Arias, E. (2019). Deaths: Final data for 2017 (National Vital Statistics Reports). https://www.cdc.gov/nchs/data/nvsr/nvsr68/nvsr68_09-508.pdf
   Google Scholar
• Kyozuka, H., Jin, T., Fujimori, M., Nomura, S., Suzuki, D., Fukuda, T., Murata, T., Yasuda, S., Yamaguchi, A., Nomura, Y., & Fujimori, K. (2022). Effect of gestational weight gain on preeclampsia among underweight women: A single tertiary referral center study in Japanese women. The Journal of Obstetrics and Gynaecology Research, 48(5), 1141–1148. https://doi.org/10.1111/jog.15200
   PubMed Web of Science ®Google Scholar
• Lamprell, K., & Braithwaite, J. (2016). Patients as story-tellers of healthcare journeys. Medical Humanities, 42(3), 207–209. https://doi.org/10.1136/medhum-2016-010885
   PubMed Web of Science ®Google Scholar
• Lamprell, K., & Braithwaite, J. (2019). Reading between the lines: A five-point narrative approach to online accounts of illness. The Journal of Medical Humanities, 40(4), 569–590. https://doi.org/10.1007/s10912-019-09553-1
   PubMed Web of Science ®Google Scholar
• Lazarus, R. S., & Lazarus, B. N. (1994). Passion and reason: Making sense of our emotions. Oxford University Press.
   Google Scholar
• Lim, H., & Childs, M. (2020). Visual storytelling on Instagram: Branded photo narrative and the role of telepresence. Journal of Research in Interactive Marketing, 14(1), 33–50. https://doi.org/10.1108/JRIM-09-2018-0115
   Web of Science ®Google Scholar
• Livingston, G. (2019). Is U.S. fertility at an all-time low? Two of three measures point to yes. Pew Research Center Fact Tank. https://www.pewresearch.org/fact-tank/2019/05/22/u-s-fertility-rate-explained/
   Google Scholar
• Lopes Perdigao, J., Chinthala, S., Mueller, A., Minhas, R., Ramadan, H., Nasim, R., Naseem, H., Young, D., Shahul, S., Chan, S. L., Yeo, K.-T J., & Rana, S. (2019). Angiogenic factor estimation as a warning sign of preeclampsia-related peripartum morbidity among hospitalized patients. Hypertension (Dallas, Tex.: 1979), 73(4), 868–877. https://doi.org/10.1161/HYPERTENSIONAHA.118.12205
   PubMed Web of Science ®Google Scholar
• Maternal Mortality Review Information Application (MMRIA). (2018). Report from nine maternal mortality review committees. https://www.cdcfoundation.org/sites/default/files/files/ReportfromNineMMRCs.pdf
   Google Scholar
• Murdock, M. (1990). The Heroine’s Journey: Women’s. Quest for Wholeness. Shambhala Publications Inc.
   Google Scholar
• Nilsson, C., Bondas, T., & Lundgren, I. (2010). Previous Birth Experience in Women With Intense Fear of Childbirth. Journal of Obstetric, Gynecologic, and Neonatal Nursing: JOGNN, 39(3), 298–309. https://doi.org/10.1111/j.1552-6909.2010.01139.x
   PubMed Web of Science ®Google Scholar
• Paterno, M. T., Fiddian-Green, A., & Gubrium, A. (2018). Moms supporting moms: Digital storytelling with peer mentors in recovery from substance use. Health Promotion Practice, 19(6), 823–832. https://doi.org/10.1177/1524839917750816
   PubMed Web of Science ®Google Scholar
• Pauli, J. M., & Repke, J. T. (2015). Preeclampsia: Short-term and Long-term Implications. Obstetrics and Gynecology Clinics of North America, 42(2), 299–313. https://doi.org/10.1016/j.ogc.2015.01.007
   Google Scholar
• Prati, G., & Pietrantoni, L. (2009). Optimism, Social Support, and Coping Strategies As Factors Contributing to Posttraumatic Growth: A Meta-Analysis. Journal of Loss and Trauma, 14(5), 364–388. https://doi.org/10.1080/15325020902724271
   Web of Science ®Google Scholar
• Premru-Srsen, T., Kocic, Z., Fabjan Vodusek, V., Geršak, K., & Verdenik, I. (2019). Total gestational weight gain and the risk of preeclampsia by pre-pregnancy body mass index categories: A population-based cohort study from 2013 to 2017. Journal of Perinatal Medicine, 47(6), 585–591. https://doi.org/10.1515/jpm-2019-0008
   PubMed Web of Science ®Google Scholar
• Rahat, B., Hamid, A., Bagga, R., & Kaur, J. (2022). Folic acid levels during pregnancy regulate trophoblast invasive behavior and the possible development of preeclampsia. Frontiers in Nutrition, 9, 847136. https://doi.org/10.3389/fnut.2022.847136
   PubMed Web of Science ®Google Scholar
• Roberts, J. M., & Hubel, C. A. (2009). The two stage model of preeclampsia: Variations on the theme. Placenta, 30 Suppl A(Suppl A), S32–S37. https://doi.org/10.1016/j.placenta.2008.11.009
   PubMedGoogle Scholar
• Rouhe, H., Salmela-Aro, K., Halmesmäki, E., & Saisto, T. (2009). Fear of childbirth according to parity, gestational age, and obstetric history. BJOG: An International Journal of Obstetrics and Gynaecology, 116(1), 67–73. https://doi.org/10.1111/j.1471-0528.2008.02002.x
   PubMed Web of Science ®Google Scholar
• Sanders, J. (2019). Sharing special birth stories. An explorative study of online childbirth narratives. Women and Birth: journal of the Australian College of Midwives, 32(6), e560–e566. https://doi.org/10.1016/j.wombi.2018.12.009
   PubMed Web of Science ®Google Scholar
• Sawicka, M. (2017). Searching for a narrative of loss: Interactional ordering of ambiguous grief. Symbolic Interaction, 40(2), 229–246. https://doi.org/10.1002/symb.270
   Web of Science ®Google Scholar
• Sendra, A., & Farré, J. (2020). Communicating the experience of chronic pain through social media: patients’ narrative practices on Instagram. Journal of Communication in Healthcare, 13(1), 46–54. https://doi.org/10.1080/17538068.2020.1752982
   Google Scholar
• Sharf, B. F., & Vanderford, M. L. (2003). Illness narratives and the social construction of health. In Handbook of health communication (pp. 9–34). Routledge.
   Google Scholar
• Shennan, A. H., Green, M., & Chappell, L. C. (2017). Maternal deaths in the UK: pre-eclampsia deaths are avoidable. Lancet (London, England), 389(10069), 582–584. https://doi.org/10.1016/S0140-6736(17)30184-8
   PubMed Web of Science ®Google Scholar
• Shi, J. M., Yang, Z., Chen, L., & Wang, J. L. (2009). Early warning signs of severe preeclampsia. Zhonghua fu Chan ke za Zhi, 44(5), 337–340.
   PubMedGoogle Scholar
• Snydal, S. (2014). Major changes in diagnosis and management of preeclampsia. Journal of Midwifery & Women’s Health, 59(6), 596–605. https://doi.org/10.1111/jmwh.12260
   PubMed Web of Science ®Google Scholar
• Söderquist, J., Wijma, K., & Wijma, B. (2002). Traumatic Stress after Childbirth: The Role of Obstetric Variables. Journal of Psychosomatic Obstetrics and Gynaecology, 23(1), 31–39. https://doi.org/10.3109/01674820209093413
   PubMed Web of Science ®Google Scholar
• Staff, A. C. (2019). The two-stage placental model of preeclampsia: An update. Journal of Reproductive Immunology, 134-135, 1–10. https://doi.org/10.1016/j.jri.2019.07.004
   PubMed Web of Science ®Google Scholar
• Stramrood, C. A. I., Wessel, I., Doornbos, B., Aarnoudse, J. G., van den Berg, P. P., Schultz, W. C. M. W., & van Pampus, M. G. (2011). Posttraumatic Stress Disorder Following Preeclampsia and PPROM: A Prospective Study With 15 Months Follow-Up. Reproductive Sciences (Thousand Oaks, Calif.), 18(7), 645–653. https://doi.org/10.1177/1933719110395402
   PubMed Web of Science ®Google Scholar
• Thomson, G., & Downe, S. (2013). A hero’s tale of childbirth. Midwifery, 29(7), 765–771. https://doi.org/10.1016/j.midw.2012.07.008
   PubMed Web of Science ®Google Scholar
• Turbeville, H. R., & Sasser, J. M. (2020). Preeclampsia beyond pregnancy: Long-term consequences for mother and child. American Journal of Physiology. Renal Physiology, 318(6), F1315–F1326. https://doi.org/10.1152/ajprenal.00071.2020
   PubMed Web of Science ®Google Scholar
• Ward, K., Laivuori, H., & Taylor, R. N. (2022). Genetic factors in the etiology of preeclampsia/eclampsia. In Chesley’s hypertensive disorders in pregnancy (pp. 45–69). Elsevier.
   Google Scholar
• Yancey, L. M., Withers, E., Bakes, K., & Abbott, J. (2011). Postpartum preeclampsia: Emergency department presentation and management. The Journal of Emergency Medicine, 40(4), 380–384. https://doi.org/10.1016/j.jemermed.2008.02.056
   PubMed Web of Science ®Google Scholar