1,818
Views
0
CrossRef citations to date
0
Altmetric
Articles

A Critical Analysis of White Racial Framing and Comfort with Medical Research

ORCID Icon, ORCID Icon, &

References

  • Armstrong, K., M. Putt, C. H. Halbert, D. Grande, J. S. Schwartz, K. Liao, N. Marcus, M. B. Demeter, and J. A. Shea. 2013. Prior experiences of racial discrimination and racial differences in health care system distrust. Medical Care 51 (2):144–50. doi: 10.1097/MLR.0b013e31827310a1.
  • Bates, D. W., G. J. Kuperman, S. Wang, T. Gandhi, A. Kittler, L. Volk, C. Spurr, R. Khorasani, M. Tanasijevic, and B. Middleton. 2003. Ten commandments for effective clinical decision support: Making the practice of evidence-based medicine a reality. Journal of the American Medical Informatics Association 10 (6):523–30. doi: 10.1197/jamia.M1370.
  • Benjamin, R. 2011. Organized ambivalence: When sickle cell disease and stem cell research converge. Ethnicity & Health 16 (4–5):447–63. doi: 10.1080/13557858.2011.552710.
  • Borrell, L. N., J. R. Elhawary, E. Fuentes-Afflick, J. Witonsky, N. Bhakta, A. H. Wu, K. Bibbins-Domingo, J. R. Rodríguez-Santana, M. A. Lenoir, J. R. Gavin, et al. 2021. Race and genetic ancestry in medicine—A time for reckoning with racism. New England Journal of Medicine 384 (5):474–80. doi: 10.1056/NEJMms2029562.
  • Boulware, L. E., L. A. Cooper, L. E. Ratner, T. A. LaVeist, and N. R. Powe. 2003. Race and trust in the health care system. Public Health Reports 118 (4):358–65. doi: 10.1016/S0033-3549(04)50262-5.
  • Boyd, R., E. Lindo, L. Weeks, and M. McLemore. 2020. On racism: A new standard for publishing on racial health inequities | Health Affairs. Health Affairs Blog, July. 10.1377/hblog20200630.939347/full/.
  • Brandon, D. T., L. A. Isaac, and T. A. LaVeist. 2005. The legacy of Tuskegee and trust in medical care: Is Tuskegee responsible for race differences in mistrust of medical care? Journal of the National Medical Association 97 (7):951–6.
  • Clark, L. T., L. Watkins, I. L. Piña, M. Elmer, O. Akinboboye, M. Gorham, B. Jamerson, C. McCullough, C. Pierre, A. B. Polis, et al. 2019. Increasing diversity in clinical trials: Overcoming critical barriers. Current Problems in Cardiology 44 (5):148–72. doi: 10.1016/j.cpcardiol.2018.11.002.
  • Coakley, M., E. Olutayo Fadiran, L. J. Parrish, R. A. Griffith, E. Weiss, and C. Carter. 2012. Dialogues on diversifying clinical trials: Successful strategies for engaging women and minorities in clinical trials. Journal of Women’s Health (2002) 21 (7):713–6. doi: 10.1089/jwh.2012.3733.
  • Corbie-Smith, G., S. B. Thomas, M. V. Williams, and S. Moody-Ayers. 1999. Attitudes and beliefs of African Americans toward participation in medical research. Journal of General Internal Medicine 14 (9):537–46. doi: 10.1046/j.1525-1497.1999.07048.x.
  • Dimick, J., J. Ruhter, M. V. Sarrazin, and J. D. Birkmeyer. 2013. Black patients more likely than Whites to undergo surgery at low-quality hospitals in segregated regions. Health Affairs (Project Hope) 32 (6):1046–53. doi: 10.1377/hlthaff.2011.1365.
  • Epstein, S. 2008. The rise of ‘Recruitmentology’: Clinical research, racial knowledge, and the politics of inclusion and difference. Social Studies of Science 38 (5):801–32. doi: 10.1177/0306312708091930.
  • Feagin, J. R. 2020. The White racial frame: Centuries of racial framing and counter-framing. New York: Routledge.
  • Fisher, J. A., and C. A. Kalbaugh. 2011. Challenging assumptions about minority participation in US clinical research. American Journal of Public Health 101 (12):2217–22. doi: 10.2105/AJPH.2011.300279.
  • Ford, C. L., and C. O. Airhihenbuwa. 2010. The public health critical race methodology: Praxis for antiracism research. Social Science & Medicine (1982) 71 (8):1390–8. doi: 10.1016/j.socscimed.2010.07.030.
  • Galarneau, C. 2021. True colors: Whiteness in bioethics. The American Journal of Bioethics 21 (2):33–5. doi: 10.1080/15265161.2020.1861388.
  • Gilson, L. 2006. “Trust in health care: Theoretical perspectives and research needs.” Journal of Health Organization and Management 20 (5):359–75. (Michael Calnan and Rosemary Rowe, Editors). doi: 10.1108/14777260610701768.
  • Jaiswal, J., and P. N. Halkitis. 2019. Towards a more inclusive and dynamic understanding of medical mistrust informed by science. Behavioral Medicine (Washington, D.C.) 45 (2):79–85. doi: 10.1080/08964289.2019.1619511.
  • Jones, C. P. 2000. Levels of racism: A theoretic framework and a Gardener’s tale. American Journal of Public Health 90 (8):1212–5.
  • Jones, C. P. 2020. Seeing the water: Seven values targets for anti-racism action. Harvard Medical School Center for Primary Care (blog). August 25, 2020. http://info.primarycare.hms.harvard.edu/blog/seven-values-targets-anti-racism-action.
  • LaVeist, T. A., L. A. Isaac, and K. P. Williams. 2009. Mistrust of health care organizations is associated with underutilization of health services. Health Services Research 44 (6):2093–105. doi: 10.1111/j.1475-6773.2009.01017.x.
  • Lett, E., E. Asabor, S. Beltrán, A. M. Cannon, and O. A. Arah. 2022. Conceptualizing, contextualizing, and operationalizing race in quantitative health sciences research. The Annals of Family Medicine 20 (2):157–63. doi: 10.1370/afm.2792.
  • Murthy, V. H., H. M. Krumholz, and C. P. Gross. 2004. Participation in cancer clinical trials: Race-, sex-, and age-based disparities. JAMA 291 (22):2720–6. doi: 10.1001/jama.291.22.2720.
  • Rose, A., N. Peters, J. A. Shea, and K. Armstrong. 2004. Development and testing of the health care system distrust scale. Journal of General Internal Medicine 19 (1):57–63. doi: 10.1111/j.1525-1497.2004.21146.x.
  • Ryn, M. v., D. J. Burgess, J. F. Dovidio, S. M. Phelan, S. Saha, J. Malat, J. M. Griffin, S. S. Fu, and S. Perry. 2011. The impact of racism on clinician cognition, behavior, and clinical decision making. Du Bois Review: Social Science Research on Race 8 (1):199–218. doi: 10.1017/S1742058X11000191.
  • Ryn, M. v, and S. S. Fu. 2003. Paved with good intentions: Do public health and human service providers contribute to racial/ethnic disparities in health? American Journal of Public Health 93 (2):248–55. doi: 10.2105/AJPH.93.2.248.
  • Scharff, D. P., K. J. Mathews, P. Jackson, J. Hoffsuemmer, E. Martin, and D. Edwards. 2010. More than Tuskegee: Understanding mistrust about research participation. Journal of Health Care for the Poor and Underserved 21 (3):879–97. doi: 10.1353/hpu.0.0323.
  • Spencer, K. L., and M. Grace. 2016. Social foundations of health care inequality and treatment bias. Annual Review of Sociology 42 (1):101–20. doi: 10.1146/annurev-soc-081715-074226.
  • Stepanikova, I., S. Mollborn, K. S. Cook, D. H. Thom, and R. M. Kramer. 2006. Patients’ race, ethnicity, language, and trust in a physician. Journal of Health and Social Behavior 47 (4):390–405. doi: 10.1177/002214650604700406.
  • Stepanikova, I., and G. R. Oates. 2017. Perceived discrimination and privilege in health care: The role of socioeconomic status and race. American Journal of Preventive Medicine 52 (1S1):S86–S94. doi: 10.1016/j.amepre.2016.09.024.
  • Washington, H. A. 2006. Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present. New York: Doubleday.