Adapted Approach to Strengthening Connections for Youth with Intellectual and or Developmental Disabilities: Addressing Barriers to Implementation

References

• Aarons, G. A., Hurlburt, M., & Horwitz, S. M. (2011). Advancing a conceptual model of evidence-based practice implementation in public service sectors. Administration and Policy in Mental Health and Mental Health Services Research, 38(1), 4–23. doi:10.1007/s10488-010-0327-7
   PubMed Web of Science ®Google Scholar
• Amado, A., Ortenblad, K., & O’Donnell, K. (2018). The effectiveness of engaging parents and family members to expand the social inclusion of adults with intellectual and/or developmental disabilities living with families. Minneapolis, MN: University of Minnesota Research and Training Center for Community Living.
   Google Scholar
• Becker, M. A., Jordan, N., & Larsen, R. (2007). Predictors of successful permanency planning and length of stay in foster care: The role of race, diagnosis and place of residence. Children and Youth Services Review, 29(8), 1102–1113. doi:10.1016/j.childyouth.2007.04.009
   Web of Science ®Google Scholar
• Bishop-Fitzpatrick, L., Mazefsky, C. A., & Eack, S. M. (2018). The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability. Autism, 22(6), 703–711. doi:10.1177/1362361317703090
   PubMed Web of Science ®Google Scholar
• Blakeslee, J. E., & Best, J. I. (2019). Understanding support network capacity during the transition from foster care: Youth-identified barriers, facilitators, and enhancement strategies. Children and Youth Services Review, 96, 220–230. doi:10.1016/j.childyouth.2018.11.049
   PubMed Web of Science ®Google Scholar
• Brown, J. D., & Rodger, S. (2009). Children with disabilities: Problems faced by foster parents. Children and Youth Services Review, 31(1), 40–46. doi:10.1016/j.childyouth.2008.05.007
   Web of Science ®Google Scholar
• Cidav, Z., Xie, M., & Mandell, D. S. (2018). Foster care involvement among medicaid-enrolled children with autism. Journal of Autism and Developmental Disorders, 48(1), 176–183. doi:10.1007/s10803-017-3311-1
   PubMed Web of Science ®Google Scholar
• Croke, E. E., & Thompson, A. B. (2011). Person centered planning in a transition program for Bronx youth with disabilities. Children and Youth Services Review, 33(6), 810–819. doi:10.1016/j.childyouth.2010.11.025
   Web of Science ®Google Scholar
• Cunningham, M. J., & Diversi, M. (2012). Aging out: Youths’ perspectives on foster care and the transition to independence. Qualitative Social Work: Research and Practice, 12(5), 587–602. doi:10.1177/1473325012445833
   Web of Science ®Google Scholar
• Escoffery, C., Lebow-Skelley, E., Udelson, H., Böing, E. A., Wood, R., Fernandez, M. E., & Mullen, P. D. (2019). A scoping study of frameworks for adapting public health evidence-based interventions. Translational Behavioral Medicine, 9(1), 1–10. doi:10.1093/tbm/ibx067
   PubMed Web of Science ®Google Scholar
• Friedman, S. L., & Norwood, K. W.; Council on Children with Disabilities. (2016). Out-of-home placement for children and adolescents with disabilities–Addendum: Care options for children and adolescents with disabilities and medical complexity. Pediatrics, 138(6), e20163216.
   PubMed Web of Science ®Google Scholar
• Geenen, S. J., Powers, L. E., Hogansen, J. M., & Pittman, J. O. E. (2007). Youth with disabilities in foster care: Developing self-determination within a context of struggle and disempowerment. Exceptionality, 15(1), 17–30. doi:10.1080/09362830709336923
   Google Scholar
• Glesne, C. (2011). Becoming qualitative researchers: An introduction (4th ed.). Boston, MA: Pearson Education, Inc.
   Google Scholar
• Havlicek, J., Bilaver, L., & Beldon, M. (2016). Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in illinois. Children and Youth Services Review, 60, 119–128. doi:10.1016/j.childyouth.2015.11.025
   Web of Science ®Google Scholar
• Hollomotz, A. (2013). Disability, oppression and violence: Towards a sociological explanation. Sociology, 47(3), 477–493. doi:10.1177/0038038512448561
   Google Scholar
• Hong, H., Kim, J. G., Abowd, G. D., & Arriaga, R. I. (2012). Designing a social network to support the independence of young adults with autism. Proceedings of the ACM 2012 Conference on Computer Supported Cooperative Work Seattle, WA, 627–636. 10.1145/2145204.2145300
   Google Scholar
• Hurd, N. M., Albright, J., Wittrup, A., Negrete, A., & Billingsley, J. (2018). Appraisal support from natural mentors, self-worth, and psychological distress: Examining the experiences of underrepresented students transitioning through college. Journal of Youth and Adolescence, 47(5), 1100–1112. doi:10.1007/s10964-017-0798-x
   PubMed Web of Science ®Google Scholar
• Johnson, C. J., Beitchman, J. H., & Brownlie, E. B. (2010). Twenty-year follow-up of children with and without speech-language impairments: Family, educational, occupational, and quality of life outcomes. American Journal of Speech-Language Pathology, 19(1), 51–65. doi:10.1044/1058-0360(2009/08-0083)
   PubMed Web of Science ®Google Scholar
• Krauss, S. E., Kornbluh, M., & Zeldin, S. (2017). Community predictors of school engagement: The role of families and youth-adult partnership in Malaysia. Children and Youth Services Review, 73, 328–337. doi:10.1016/j.childyouth.2017.01.009
   Web of Science ®Google Scholar
• Krieger, B., Piškur, B., Schulze, C., Jakobs, U., Beurskens, A., & Moser, A. (2018). Supporting and hindering environments for participation of adolescents diagnosed with autism spectrum disorder: A scoping review. PLOS ONE, 13(8), e0202071. doi:10.1371/journal.pone.0202071
   PubMed Web of Science ®Google Scholar
• Landsman, M. J., Boel-Studt, S., & Malone, K. (2014). Results from a family finding experiment. Children and Youth Services Review, 36, 62–69. doi:10.1016/j.childyouth.2013.10.025
   Web of Science ®Google Scholar
• Li, S.-A., Jeffs, L., Barwick, M., & Stevens, B. (2018). Organizational contextual features that influence the implementation of evidence-based practices across healthcare settings: A systematic integrative review. Systematic Reviews, 7(1), 72. doi:10.1186/s13643-018-0734-5
   PubMed Web of Science ®Google Scholar
• Lightfoot, E., Hill, K., & LaLiberte, T. (2011). Prevalence of children with disabilities in the child welfare system and out of home placement: An examination of administrative records. Children and Youth Services Review, 33(11), 2069–2075. doi:10.1016/j.childyouth.2011.02.019
   Web of Science ®Google Scholar
• Malm, K., & Allen, T. (2011). Family finding: Does implementation differ when serving different child welfare populations? Washington, DC: Child Trends. Research Brief Publication No. 2011-27. https://www.childtrends.org/wp-content/uploads/2011/10/Child_Trends-2011_10_17_RB_FamilyFinding.pdf
   Google Scholar
• Moore, J. E., Mascarenhas, A., Bain, J., & Straus, S. E. (2017). Developing a comprehensive definition of sustainability. Implementation Science, 12(1), 110. doi:10.1186/s13012-017-0637-1
   PubMedGoogle Scholar
• Murphy, A. A., Mullen, M. G., & Spagnolo, A. B. (2005). Enhancing individual placement and support: Promoting job tenure by integrating natural supports and supported education. American Journal of Psychiatric Rehabilitation, 8(1), 37–61. doi:10.1080/15487760590953948
   Google Scholar
• Nilsen, P., & Bernhardsson, S. (2019). Context matters in implementation science: A scoping review of determinant frameworks that describe contextual determinants for implementation outcomes. BMC Health Services Research, 19(1), 189. doi:10.1186/s12913-019-4015-3
   PubMed Web of Science ®Google Scholar
• Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 160940691773384. doi:10.1177/1609406917733847
   Web of Science ®Google Scholar
• Palinkas, L. A., Fuentes, D., Finno, M., Garcia, A. R., Holloway, I. W., & Chamberlain, P. (2014). Inter-organizational collaboration in the implementation of evidence-based practices among public agencies serving abused and neglected youth. Administration and Policy in Mental Health and Mental Health Services Research, 41(1), 74–85. doi:10.1007/s10488-012-0437-5
   PubMed Web of Science ®Google Scholar
• Pfadenhauer, L. M., Gerhardus, A., Mozygemba, K., Lysdahl, K. B., Booth, A., Hofmann, B., … Rehfuess, E. (2017). Making sense of complexity in context and implementation: The Context and Implementation of Complex Interventions (CICI) framework. Implementation Science, 12(1), 1–17. doi:10.1186/s13012-017-0552-5
   PubMedGoogle Scholar
• Renty, J. O., & Roeyers, H. (2006). Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism, 10(5), 511–524. doi:10.1177/1362361306066604
   PubMed Web of Science ®Google Scholar
• Rich, A. J., DiGregorio, N., & Strassle, C. (2020). Trauma-informed care in the context of intellectual and developmental disability services: Perceptions of service providers. Journal of Intellectual Disabilities. Advance online publication. doi: 10.1177/1744629520918086.
   PubMedGoogle Scholar
• Rogers, L., De Brún, A., & McAuliffe, E. (2020). Defining and assessing context in healthcare implementation studies: A systematic review. BMC Health Services Research, 20(1), 591. doi:10.1186/s12913-020-05212-7
   PubMed Web of Science ®Google Scholar
• Saldaña, J. (2015). The coding manual for qualitative researchers (3rd ed.). SAGE Publications Ltd. https://www.sagepub.com/sites/default/files/upm-binaries/24614_01_Saldana_Ch_01.pdf
   Google Scholar
• Scheirer, M. A. (2005). Is sustainability possible? A review and commentary on empirical studies of program sustainability. American Journal of Evaluation, 26(3), 320–347. doi:10.1177/1098214005278752
   Web of Science ®Google Scholar
• Shelton, R. C., Cooper, B. R., & Wiltsey Stirman, S. (2018). The sustainability of evidence-based interventions and practices in public health and health care. Annual Review of Public Health, 39(1), 55–76. doi:10.1146/annurev-publhealth-040617-014731
   PubMed Web of Science ®Google Scholar
• Slayter, E. (2016a). Youth with disabilities in the United States child welfare system. Children and Youth Services Review, 64, 155–165. doi:10.1016/j.childyouth.2016.03.012
   Web of Science ®Google Scholar
• Slayter, E. M. (2016b). Foster care outcomes for children with intellectual disability. Intellectual and Developmental Disabilities, 54(5), 299–315. doi:10.1352/1934-9556-54.5.299
   PubMed Web of Science ®Google Scholar
• Slayter, E., & Springer, C. (2011). Child welfare-involved youth with intellectual disabilities: Pathways into and placements in foster care. Intellectual and Developmental Disabilities, 49(1), 1–13. doi:10.1352/1934-9556-49.1.1
   PubMed Web of Science ®Google Scholar
• Smokowski, P. R., Bacallao, M. L., Cotter, K. L., & Evans, C. B. R. (2015). The effects of positive and negative parenting practices on adolescent mental health outcomes in a multicultural sample of rural youth. Child Psychiatry & Human Development, 46(3), 333–345. doi:10.1007/s10578-014-0474-2
   PubMed Web of Science ®Google Scholar
• Stice, L. V., & Lavner, J. A. (2019). Social connectedness and loneliness mediate the association between autistic traits and internalizing symptoms among young adults. Journal of Autism and Developmental Disorders, 49(3), 1096–1110. doi:10.1007/s10803-018-3812-6
   PubMed Web of Science ®Google Scholar
• Weiss, J. A., & Burnham Riosa, P. (2015). Thriving in youth with autism spectrum disorder and intellectual disability. Journal of Autism and Developmental Disorders, 45(8), 2474–2486. doi:10.1007/s10803-015-2412-y
   PubMed Web of Science ®Google Scholar
• Willis, C., Girdler, S., Thompson, M., Rosenberg, M., Reid, S., & Elliott, C. (2017). Elements contributing to meaningful participation for children and youth with disabilities: A scoping review. Disability and Rehabilitation, 39(17), 1771–1784. doi:10.1080/09638288.2016.1207716
   PubMed Web of Science ®Google Scholar
• Wiltsey Stirman, S., Baumann, A. A., & Miller, C. J. (2019). The FRAME: An expanded framework for reporting adaptations and modifications to evidence-based interventions. Implementation Science, 14(1), 58. doi:10.1186/s13012-019-0898-y
   PubMedGoogle Scholar
• Yin, R. K. (2000). Case study evaluations: A decade of progress? In D. L. Sluffkbean, G. E. Madaus, & T. Kellaghan (Eds.), Evaluation models (pp. 185–193 doi:10.1007/0-306-47559-6). Kluwer Academic Publishers.
   Google Scholar
• Zinn, A., Palmer, A. N., & Nam, E. (2017). The predictors of perceived social support among former foster youth. Child Abuse & Neglect, 72, 172–183. doi:10.1016/j.chiabu.2017.07.015
   PubMed Web of Science ®Google Scholar