1,254
Views
3
CrossRef citations to date
0
Altmetric
Research Article

Urban vs. rural differences in insurance coverage and impact on employment among families caring for a child with cerebral palsy

ORCID Icon, , , & | (Reviewing Editor)
Article: 1321159 | Received 15 Nov 2016, Accepted 17 Apr 2017, Published online: 05 May 2017

References

  • Alfonso, M. L., Walker, A., Gupta, A., Telfair, J., & Colquitt, G. (2015). “It all goes back to the services”: A rural/urban comparison of service providers’ perceptions of challenges and facilitators to disability services. Open Journal of Preventive Medicine, 5, 434–440. doi:10.4236/ojpm.2015.510048
  • Benfer, K. A., Jordan, R., Bandaranayake, S., Finn, C., Ware, R. S., & Boyd, R. N. (2014). Motor severity in children with cerebral palsy studied in a high-resource and low-resource country. Pediatrics, 134, e1594–e1602. doi:10.1542/peds.2014-1926
  • Bethell, C. D., Read, D., Stein, R. E., Blumberg, S. J., Wells, N., & Newacheck, P. W. (2002). Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambulatory Pediatrics, 2, 38–48.10.1367/1539-4409(2002)002<0038:ICWSHC>2.0.CO;2
  • Bramlett, M. D., Blumberg, S. J., Ormson, A. E., George, J. M., Williams, K. L., Frasier, A. M., & Wang, F. (2014). Design and operation of the National Survey of Children with Special Health Care Needs, 2009–2010. Vital Health Statistics, 1(57), 1–271.
  • Brehaut, J. C., Kohen, D. E., Raina, P., Walter, S. D., Russell, D. J., Swinton, M., & Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers? Pediatrics, 114, e182–e191.10.1542/peds.114.2.e182
  • Centers for Disease Control and Prevention, National Center for Health Statistics, State and Local Area Integrated Telephone Survey. (2011, December). 2009–2010 National survey of children with special health care needs frequently asked questions. Retrieved from http://www.cdc.gov/nchs/slaits/cshcn.htm
  • Child and Adolescent Health Measurement Initiative. (2012). 2009–2010 NS-CSHCN indicator and outcome variables SAS Codebook, Version 1. Data Resource Center for Child and Adolescent Health. Retrieved from www.childhealthdata.org.
  • Davis, E., Shelly, A., Waters, E., Boyd, R., Cook, K., Davern, M., & Reddihough, D. (2010). The impact of caring for a child with cerebral palsy: Quality of life for mothers and fathers. Child, 36, 63–73. doi:10.1111/j.1365-2214.2009.00989.x
  • Dew, A., Bulkeley, K., Veitch, C., Bundy, A., Lincoln, M., Brentnall, J., & Gallego, G. (2013). Carer and service providers’ experiences of individual funding models for children with a disability in rural and remote areas. Health & Social Care in the Community, 21, 432–441. doi:10.1111/hsc.12032
  • Donald, K. A., Samia, P., Kakooza-Mwesige, A., & Bearden, D. (2014). Pediatric cerebral palsy in Africa: A systematic review. Seminars in Pediatric Neurology, 21, 30–35. doi:10.1016/j.spen.2014.01.001
  • Friedman, C., & Rizzolo, M. C. (2016). The state of transportation for people with intellectual and developmental disabilities in Medicaid Home and Community-Based Services 1915 (c) waivers. Journal of Disability Policy Studies, 27, 168–177.10.1177/1044207316644413
  • Hammal, D., Jarvis, S. N., & Colver, A. F. (2004). Participation of children with cerebral palsy is influenced by where they live. Developmental Medicine and Childhood Neurology, 46, 292–298.
  • Hayles, E., Harvey, D., Plummer, D., & Jones, A. (2015). Parents’ experiences of health care for their children with cerebral palsy. Qualitative Health Research, 25, 1139–1154. doi:10.1177/1049732315570122
  • Health, N. I. O. (2013). Cerebral Palsy: Hope through research (pp. 13–159). Bethseda, MD: NIH.
  • Heck, K. E., & Makuc, D. M. (2000). Parental employment and health insurance coverage among school-aged children with special health care needs. American Journal of Public Health, 90, 1856–1860.
  • Iezzoni, L. I., Killeen, M. B., & O’Day, B. L. (2006). Rural residents with disabilities confront substantial barriers to obtaining primary care. Health Services Research, 41, 1258–1275. doi:10.1111/j.1475-6773.2006.00534.x
  • Ingram, D. D., & Franco, S. J. (2012). NCHS urban-rural classification scheme for counties. Vital Health Statistics, 2(154), 1–65.
  • Jackson, K. E., Krishnaswami, S., & McPheeters, M. (2011). Unmet health care needs in children with cerebral palsy: A cross-sectional study. Research in Developmental Disabilities, 32, 2714–2723. doi:10.1016/j.ridd.2011.05.040
  • McManus, B. M., Lindrooth, R., Richardson, Z., & Rapport, M. J. (2015). Urban/rural differences in therapy service use among Medicaid children aged 0–3 With developmental conditions in Colorado. Academic Pediatrics. doi:10.1016/j.acap.2015.10.010
  • McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., & Perrin, J. M. (1998). A new definition of children with special health care needs. Pediatrics, 102, 137–139.10.1542/peds.102.1.137
  • Neely-Barnes, S., Carolyn Graff, J. C., Marcenko, M., & Weber, L. (2008). Family decision making: Benefits to persons with developmental disabilities and their family members. Intellectual and Developmental Disabilities, 46, 93–105. doi:10.1352/0047-6765(2008)46[93:FDMBTP]2.0.CO;2
  • Oskoui, M., Coutinho, F., Dykeman, J., Jetté, N., & Pringsheim, T. (2013). An update on the prevalence of cerebral palsy: A systematic review and meta-analysis. Developmental Medicine & Child Neurology, 55, 509–519.10.1111/dmcn.12080
  • Peng, C.-Y. J., & Zhu, J. (2007). Comparison of two approaches for handling missing covariates in logistic regression. Educational and Psychological Measurement, 68, 58–77.
  • Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., … Jacobsson, B. (2007). A report: The definition and classification of cerebral palsy April 2006. Developmental Medicine and Childhood Neurology, 109, 8–14.
  • Shriver, L. H., Harrist, A. W., Hubbs-Tait, L., Topham, G., Page, M., & Barrett, A. (2011). Weight status, physical activity, and fitness among third-grade rural children. Journal of School Health, 81, 536–544. doi:10.1111/j.1746-1561.2011.00624.x
  • Skinner, A. C., Slifkin, R. T., & Mayer, M. L. (2006). The effect of rural residence on dental unmet need for children with special health care needs. The Journal of Rural Health, 22, 36–42. doi:10.1111/j.1748-0361.2006.00008.x
  • Skinner, M. W., & Rosenberg, M. W. (2006). Managing competition in the countryside: Non-profit and for-profit perceptions of long-term care in rural Ontario. Social Science & Medicine, 63, 2864–2876. doi:10.1016/j.socscimed.2006.07.028
  • Stabile, M., & Allin, S. (2012). The economic costs of childhood disability. The Future of Children, 22, 65–96.10.1353/foc.2012.0008
  • Strickland, B., McPherson, M., Weissman, G., van Dyck, P., Huang, Z. J., & Newacheck, P. (2004). Access to the medical home: Results of the National Survey of Children with Special Health Care Needs. Pediatrics, 113, 1485–1492.
  • Van Buuren, S., Brand, J. P., Groothuis-Oudshoorn, C. G. M., & Rubin, D. B. (2006). Fully conditional specification in multivariate imputation. Journal of Statistical Computation and Simulation, 76, 1049–1064. doi:10.1080/10629360600810434
  • Van Cleave, J., & Davis, M. M. (2008). Preventive care utilization among children with and without special health care needs: Associations with unmet need. Ambulatory Pediatrics, 8, 305–311. doi:10.1016/j.ambp.2008.04.003
  • Walker, A., Alfonso, M. L., Colquitt, G., Weeks, K., & Telfair, J. (2016). “When everything changes:” Parent perspectives on the challenges of accessing care for a child with a disability. Disability Health Journal, 9, 157–161. doi:10.1016/j.dhjo.2015.06.002
  • Wang, B., Chen, Y., Zhang, J., Li, J., Guo, Y., & Hailey, D. (2008). A preliminary study into the economic burden of cerebral palsy in China. Health Policy, 87, 223–234. doi:10.1016/j.healthpol.2008.01.001