1,554
Views
1
CrossRef citations to date
0
Altmetric
Research Article

Tailoring Trauma-Focused Cognitive Behavioral Therapy (TF-CBT) for Youth with Intellectual and Developmental Disabilities: A Survey of Nationally Certified TF- CBT Therapists

ORCID Icon, , , , , , , & show all

References

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Association.
  • Bear, G. G., Mantz, L. S., Glutting, J. J., Yang, C., & Boyer, D. E. (2015). Differences in bullying victimization between students with and without disabilities. School Psychology Review, 44(1), 98–116. 10.17105/SPR44-1.98-116
  • Beasley, J. B. (2004). Importance of training and expertise to assess “what works” for individuals with intellectual disabilities. Mental Retardation, 4(5), 405–406. 10.1352/0047-6765(2004)42<405:IOTAET>2.0.CO;2
  • Beaudoin, W., & Moore, A. (2018). Living without restraint: One parent’s reflections and recommendations for treating at-risk individuals with developmental disabilities. Intellectual & Developmental Disabilities, 56(3), 155–164. https://doi.org/10.1352/1934-9556-56.3.155
  • Brendli, K. R., Broda, M. D., & Brown, R. (2021). Children with intellectual disability and victimization: A logistic regression analysis. Child Maltreatment. Advance online publication. https://doi.org/10.1177/2F1077559521994177
  • Cantor, J., McBain, R. K., Kofner, A., Stein, B. D., & Yu, H. (2020). Fewer than half of US mental health treatment facilities provide services for children with autism spectrum disorder. Health Affairs, 39(6), 968–974. https://doi.org/10.1377/hlthaff.2019.01557
  • Charlot, L., & Beasley, J. B. (2013). Intellectual disabilities and mental health: United States-based research. Journal of Mental Health Research in Intellectual Disabilities, 6(2), 74–105. https://doi.org/10.1080/19315864.2012.715724
  • Charlton, M., & Tallant, B. (2003). Trauma treatment with clients who have dual diagnoses: Developmental disabilities with mental illness [ Paper Presentation]. National Child Traumatic Stress Network All Network Meeting, Falls Church, VA.
  • Chatzitheochari, S., Parsons, S., & Platt, L. (2016). Doubly disadvantaged? Bullying experiences among disabled children and young people in England. Sociology, 50(4), 695–713. https://doi.org/10.1177/0038038515574813
  • Chorpita, B. F., & Daleiden, E. L. (2009). Mapping evidence-based treatments for children and adolescents: Application of the distillation and matching model to 615 treatments from 322 randomized trials. Journal of Consulting and Clinical Psychology, 77(3), 566–579. https://doi.org/10.1037/a0014565
  • Chorpita, B. F., Daleiden, E. L., & Weisz, J. R. (2005). Identifying and selecting the common elements of evidence based interventions: A distillation and matching model. Mental Health Services Research, 7(1), 5–20. https://doi.org/10.1007/s11020-005-1962-6
  • Cohen, J. A., Mannarino, A. P., & Deblinger, E. (2006). Treating trauma and traumatic grief in children and adolescents. Guilford.
  • Cohen, J. A., Mannarino, A. P., & Deblinger, E. (Eds). (2012). Trauma-Focused CBT for children and adolescents: Treatment applications. Guilford.
  • Cohen, J. A., Mannarino, A. P., & Deblinger, E. (2017). Treating trauma and traumatic grief in children and adolescents (2nd ed.). Guilford.
  • Daveney, J., Hassiotis, A., Katona, C., Matcham, F., & Piyal, S. (2019). Ascertainment and prevalence of Post-traumatic Stress Disorder (PTSD) in individuals with Intellectual Disabilities. Journal of Mental Health Research in Intellectual Disabilities, 12(3–4), 211–233. https://doi.org/10.1080/19315864.2019.1637979
  • Dykens, E. M. (2016). Psychiatric disorder in people with intellectual disabilities: Steps toward eliminating research and clinical care disparities. International Review of Research in Developmental Disabilities, 50, 277–302. https://doi.org/10.1016/bs.irrdd.2016.06.002tw
  • Garrison-Tate, J. (2016). An unseen population: IDD and trauma. NCTSN Trauma and Intellectual and Developmental Disabilities (IDD) Toolkit expert brief: A dad’s perspective. National Center for Child Traumatic Stress. https://learn.nctsn.org/mod/resource/view.php?id=11673
  • Graesser, E. J. (2014). Serving clients with intellectual disabilities: Clinical psychology training in APA-accredited doctoral programs (Publication no. 3680433) [ Doctoral dissertation Antioch University New England]. ProQuest Dissertations Publishing.
  • Grosso, C. A. (2012). Children with developmental disabilities. In J. A. Cohen, A. P. Mannarino, & E. Deblinger (Eds.), Trauma-Focused CBT for children and adolescents: Treatment applications (pp. 149–174). Guilford.
  • Henderson-Smith, L., & Jacobstein, D. (2015). Serving youth with co-occurring developmental and behavioral disorders. Assessment #8. National Association of State Mental Health Program Directors Publications. TAC Assessment: Serving Youth with Co-Occurring Developmental and Behavioral Disorders | National Association of State Mental Health Program Directors.
  • Hoover, D. (2020). Trauma in children with neurodevelopmental disorders: Autism, intellectual disability, and attention deficit/hyperactivity disorder. In G. Spalletta, D. Janiri, F. Piras, & G. Sani (Eds.), Childhood trauma in mental disorders (pp. 367–383). Springer.
  • Hoover, D., & Gasior, C. (2017). Trauma-Focused CBT adapted for children with autism: A treatment manual [ Unpublished manuscript]. Center for Child and Family Traumatic Stress at Kennedy Krieger Institute, Department of Psychiatry, Johns Hopkins School of Medicine.
  • Hoover, D. W. (2015). The effects of psychological trauma on children with autism spectrum disorders: A research review. Review Journal of Autism and Developmental Disorders, 2(3), 287–299. https://doi.org/10.1007/s40489-015-0052-y
  • Hoover, D. W., & Kaufman, J. (2018). Adverse childhood experiences in children with autism spectrum disorder. Current Opinion in Psychiatry, 31(2), 128–132. https://doi.org/10.1097/YCO.0000000000000390
  • Hoover, D. W., & Romero, E. M. G. (2019). The interactive trauma scale: A web-based measure for children with autism. Journal of Autism and Developmental Disorders, 49(4), 1686–1692. https://doi.org/10.1007/s10803-018-03864-3
  • Horton, C. (2014). Policy recommendations: Addressing the mental health and wellness of individuals with intellectual disabilities (IDD). Hogg Foundation for Mental Health, University of Texas at Austin. http://utw10282.utweb.utexas.edu/wp-content/uploads/2015/09/MH_IDD-Policy-Rec_0801141.pdf
  • Hronis, A., Roberts, L., & Kneebone, I. I. (2017). A review of cognitive impairments in children with intellectual disabilities: Implications for cognitive behaviour therapy. The British Journal of Clinical Psychology, 56(2), 189–207. https://doi.org/10.1111/bjc.12133
  • Hronis, A., Roberts, R., Roberts, L., & Kneebone, I. (2020). Potential for children with intellectual disability to engage in cognitive behaviour therapy: The parent perspective. Journal of Intellectual Disability Research, 64(1), 62–67. https://doi.org/10.1111/jir.12694
  • Jacobstein, D., Manley, E., & Gargan, L. (2016). TA Coalition webinar: Serving youth with co-occurring developmental and behavioral disorders. National Association of State Mental Health Program Directors. https://www.nasmhpd.org/content/ta-coalition-webinar-serving-youth-co-occurring-developmental-and-behavioral-disorders
  • Jones, L., Bellis, M. A., Wood, S., Hughes, K., McCoy, E., Eckley, L., Bates, G., Mikton, C., Shakespeare, T., & Officer, A. (2012). Prevalence and risk of violence against children with disabilities: A systematic review and meta-analysis of observational studies. Lancet, 380(9845), 899–907. https://doi.org/10.1016/S0140-6736(12)60692-8
  • Katsyannis, A., Gage, N. A., Rapa, L. J., & MacSuga-Gage, A. S. (2020). Exploring the disproportionate use of restrain among students with disabilities, boys, and students of color. Advances in Neurodevelopmental Disorders, 4(3), 271–278. https://doi.org/10.1007/s41252-020-00160-z
  • Kendall, P. C., & Frank, H. E. (2018). Implementing evidence‐based treatment protocols: Flexibility within fidelity. Clinical Psychology: Science and Practice, 25(4). https://doi.org/10.1111/cpsp.12271
  • Kendall, P. C., Gosch, C., Furr, J. M., & Sood, M. A. (2008). Flexibility within fidelity. Journal of the American Academy of Child and Adolescent Psychiatry, 47(9), 987–993. https://doi.org/10.1097/CHI.0b013e31817eed2f
  • Kerns, C. M., Kendall, P. C., Zickgraf, H., Franklin, M. E., Miller, J., & Herrington, J. (2015). Not to be overshadowed or overlooked: Functional impairments associated with comorbid anxiety disorders in youth with ASD. Behavior Therapy, 46(1), 29–39. https://doi.org/10.1016/j.beth.2014.03.005
  • Kildahl, A. N., Bakken, T. L., Iversen, T. E., & Helverschou, S. B. (2019). Identification of post-traumatic stress disorder in individuals with autism spectrum disorder and intellectual disability: A systematic review. Journal of Mental Health Research in Intellectual Disabilities, 12(1–2), 1–25. https://doi.org/10.1080/19315864.2019.1595233
  • Leeb, R. T., Bitsko, R. H., Merrick, M. T., & Armour, B. S. (2012). Does childhood disability increase risk for child abuse and neglect? Journal of Mental Health Research in Intellectual Disabilities, 5(1), 4–31. https://doi.org/10.1080/19315864.2011.608154
  • Levitan, G. W., & Reiss, S. (1983). Generality of diagnostic overshadowing across disciplines. Applied Research in Mental Retardation, 4(1), 59–64. https://doi.org/10.1016/S0270-3092(83)80018-6
  • Maclean, M. J., Sims, S., Bowers, C., Leonard, H., Stanley, F. J., & O’Donnell, M. (2017). Maltreatment risk among children with disabilities. Pediatrics, 139(4), e2016817. https://doi.org/10.1542/peds.2016-1817
  • Mavranezouli, I., Megnin-Viggars, O., Daly, C., Dias, S., Stockton, S., Meiser-Stedman, R., Trickey, D., & Pilling, S. (2020). Research review: Psychological and psychosocial treatments for children and young people with post-traumatic stress disorder: A network meta-analysis. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 61(1), 18–29. https://doi.org/10.1111/jcpp.13094
  • McDonnell, C. G., Boan, A. D., Bradley, C. C., Seay, K. D., Charles, J. M., & Carpenter, L. A. (2019). Child maltreatment in autism spectrum disorder and intellectual disability: Results from a population-based sample. Journal of Child Psychology and Psychiatry and Allied Disciplines, 60(5), 576–584. https://doi.org/10.1111/jcpp.12993
  • Mehtar, M., & Mukaddes, N. M. (2011). Posttraumatic stress disorder in individuals with diagnosis of autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 539–546. https://doi.org/10.1016/j.rasd.2010.06.020
  • Mevissen, L., Barnhoorn, E., Didden, R., Korzillus, H., & de Jongh, A. (2014). Clinical assessment of PTSD in children with mild to borderline intellectual disabilities: A pilot study. Developmental Neurorehabilitation, 17(1), 16–23. https://doi.org/10.3109/17518423.2013.834998
  • Mevissen, L., & de Johgh, A. (2010). PTSD and its treatment in people with intellectual disabilities: A review of the literature. Clinical Psychology Review, 30(3), 308–316. https://doi.org/10.1016/j.cpr.2009.12.005
  • Mevissen, L., Didden, R., & de Jongh, A. (2016). Assessment and treatment of PTSD in people with intellectual disability. In C. Martin, V. Preedy, & V. B. Patel (Eds.), Comprehensive guide to post-traumatic stress disorder (pp. 281–299). Springer.
  • Mevissen, L., Didden, R., Korzilius, H., & de Jongh, A. (2016). Assessing posttraumatic stress disorder in children with mild to borderline intellectual disabilities. European Journal of Psychotraumatology, 7(1), 1. https://doi.org/10.3402/ejpt.v7.29786
  • Mevissen, L., Lievegoed, R., Seubert, A., & de Jongh, A. (2012). Treatment of PTSD in people with severe intellectual disabilities: A case series. Developmental Neurorehabilitation, 15(3), 223–232. https://doi.org/10.3109/17518423.2011.654283
  • Moskowitz, L. J., Walsh, C. E., Mulder, E., McLaughlin, D. M., Hajcak, G., Carr, E. G., & Zarcone, J. R. (2017). Intervention for anxiety and problem behavior in children with autism spectrum disorder and intellectual disability. Journal of Autism and Developmental Disorders, 47(12), 3930–3948. https://doi.org/10.1007/s10803-017-3070-z
  • Peterson, J. L., Earl, R. K., Fox, E. A., Ruqian, M., Hidar, G., Pepper, M., Berliner, L., Wallace, A. S., & Bernier, A. (2019). Trauma and autism spectrum disorder: Review, proposed treatment adaptations and future directions. Journal of Child & Adolescent Trauma, 12(4), 529–547. https://doi.org/10.1007/s40653-019-00253-5
  • Public Law 106-402—106th Congress. Developmental Disabilities Assistance and Bill of Rights Act of 2000.
  • Public Law 1110256—111th Congress, Rosa’s Law 2010.
  • Reaven, J. A. (2009). Children with high-functioning autism spectrum disorders and co-occurring anxiety symptoms: Implications for assessment and treatment. Journal for Specialists in Pediatric Nursing, 14(3), 192–199. https://doi.org/10.1111/j.1744-6155.2009.00197.x
  • Rumball, F. (2019). A systematic review of the assessment and treatment of posttraumatic stress disorder in individuals with autism spectrum disorder. Review Journal of Autism and Developmental Disorders, 6(3), 294–324. https://doi.org/10.1007/s40489-018-0133-9
  • Stark, J. A., Menolascino, F. J., Albarelli, M. H., & Gray, V. C. (1988). Mental retardation and mental health: Classification, diagnosis, treatment and services. Springer.
  • Suarez, L. (2017). Restraints, seclusions, and the disabled student: Blurred lines between safety and physical punishment. University of Miami Law Review, 71(3), article 7. https://repository.law.miami.edu/umlr/vol71/iss3/7/
  • Surley, L., & Dagnan, D. (2019). A review of the frequency and nature of adaptations to cognitive behavioural therapy for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(2), 219–237. https://doi.org/10.1111/jar.12534
  • Suveg, C., Comer, J. S., Furr, J. M., & Kendall, P. C. (2006). Adapting manualized CBT for a cognitively delayed child with multiple anxiety disorders. Clinical Case Studies, 5(6), 488–510. https://doi.org/10.1177/1534650106290371
  • Tallant, B. (2010, October 14–15). Adapting Trauma Focused Cognitive Behavior Therapy TF-CBT. Breaking the barriers: Forming cross system partnerships to effectively serve individuals with mental illness and intellectual disabilities. Hyatt Regency.
  • Tallant, B. (2016). An unseen population: IDD and trauma. NCTSN Trauma and Intellectual and Developmental Disabilities (IDD) Toolkit expert brief: Mental health. National Center for Child Traumatic Stress. https://learn.nctsn.org/mod/resource/view.php?id=11680
  • Valenti, M., Cerbo, R., Ciprietti, T., DiEgidio, C., Gabrielli, M., Masedu, M., Tomassini, A. R., & Sorge, G. (2012). Adaptive response of children with autism to the 2009 earthquake in L’Aquila, Italy. Journal of Autism and Developmental Disorders, 42(6), 954–960. https://doi.org/10.1007/s10803-011-1323-9
  • Vogel, J. M., & D’Amico, P. J. (2018, November 9). Trauma and developmental disabilities: A review and reevaluation [ Poster presentation]. 34th Annual Meeting of the International Society for Traumatic Stress Studies, Washington, DC.
  • Vogel, J. M., & D’Amico, P. J. (2019). Individualized therapy applications planning tool: IDD profile [ Unpublished document]. STRYDD Center—Supporting Trauma Recovery for Youth with Developmental Disabilities, Long Island Jewish Medical Center, Northwell Health System.
  • Werner, S., & Stawski, M. (2012). Knowledge, attitudes and training of professionals on dual diagnosis of intellectual disability and psychiatric disorder. Journal of Intellectual Disability Research, 56(3), 291–304. https://doi.org/10.1111/j.1365-2788.2011.01429.x
  • Xu, G., Strathearn, L., Liu, B., O’Brien, M., Kopelman, T. G., Zhu, J., Snetselaar, L. G., & Bao, W. (2019). Prevalence and treatment patterns of autism spectrum disorder in the United States, 2016. JAMA Pediatrics, 173(2), 153–159. https://doi.org/10.1001/jamapediatrics.2018.4208
  • Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A., Danielson, M. L., Bitsko, R. H., Blumberg, S. J., Kogan, M. D., & Boyle, C. A. (2019). Prevalence and trends of developmental disabilities among children in the United States: 2009–2017. Pediatrics, 144(4), e20190811. https://doi.org/10.1542/peds.2019-0811

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.