The suitability and acceptability of a co-designed prototype psychoeducational activity book for seven- to eleven-year-olds with ADHD

References

• Anastopoulos, Arthur D., Taylor F. Smith, Melanie E. Garrett, Erin Morrissey-Kane, Nicole K. Schatz, Jennifer L. Sommer, Scott H. Kollins, and Allison Ashley-Koch. 2011. “Self-Regulation of Emotion, Functional Impairment, and Comorbidity among Childrenwith AD/HD.” Journal of Attention Disorders 15 (7): 583–592. doi:10.1177/1087054710370567.
   PubMed Web of Science ®Google Scholar
• Bai, Guan-nan, Yu-Feng Wang, Li Yang, and Wen-Yi Niu. 2015. “Effectiveness of a Focused, Brief Psychoeducation Program for Parents of ADHD Children: Improvement of Medication Adherence and Symptoms.” Neuropsychiatric Disease and Treatment 11: 2721. doi:10.2147/NDT.S88625.
   PubMed Web of Science ®Google Scholar
• Bandura, Albert. 2000. “Cultivate Self-Efficacy for Personal and Organizational Effectiveness.” Handbook of Principles of Organization Behavior 2:0011–0021.
   Google Scholar
• Bäuml, Josef, Teresa Froböse, Sibylle Kraemer, Michael Rentrop, and Gabriele Pitschel-Walz. 2006. “Psychoeducation: A Basic Psychotherapeutic Intervention for Patients with Schizophrenia and Their Families.” Schizophrenia Bulletin 32 (suppl_1): S1–S9.
   PubMedGoogle Scholar
• Bignell, Simon, and Kate Cain. 2007. “Pragmatic Aspects of Communication and Language Comprehension in Groups of Children Differentiated by Teacher Ratings of Inattention and Hyperactivity.” British Journal of Developmental Psychology 25 (4): 499–512. doi:10.1348/026151006X171343.
   Google Scholar
• Castellanos, F. Xavier, and Rosemary Tannock. 2002. “Neuroscience of Attention-Deficit/Hyperactivity Disorder: The Search for Endophenotypes.” Nature Reviews. Neuroscience 3 (8): 617–628. doi:10.1038/nrn896.
   PubMed Web of Science ®Google Scholar
• Davis, Aaron, Nichola Wallace, Joe Langley, and Ian Gwilt. 2021. “Low-Contact Do-Design: Considering More Flexible Spatiotemporal Models for the co-Design Workshop.” Strategic Design Research Journal 13 (4). http://shura.shu.ac.uk/28142/
   Google Scholar
• Dewey, John. 1997. Experience and Education. 1st Edn. The Kappa Delta Pi Lecture Series. New York, NY: Simon & Schuster.
   Google Scholar
• DuPaul, George J., Lisa L. Weyandt, and Grace M. Janusis. 2011. “ADHD in the Classroom: Effective Intervention Strategies.” Theory into Practice 50 (1): 35–42. doi:10.1080/00405841.2011.534935.
   Web of Science ®Google Scholar
• Eaton, Simon, Sue Roberts, and Bridget Turner. 2015. “Delivering Person Centred Care in Long Term Conditions.” BMJ 350: h181. doi:10.1136/bmj.h181.
   PubMedGoogle Scholar
• Emerson, Eric. 2012. “Deprivation, Ethnicity and the Prevalence of Intellectual and Developmental Disabilities.” Journal of Epidemiology and Community Health 66 (3): 218–224. doi:10.1136/jech.2010.111773.
   PubMed Web of Science ®Google Scholar
• Fabiano, Gregory A., William E. Pelham, Jr, Erika K. Coles, Elizabeth M. Gnagy, Andrea Chronis-Tuscano, and Briannon C. O’Connor. 2009. “A Meta-Analysis of Behavioral Treatments for Attention-Deficit/Hyperactivity Disorder.” Clinical Psychology Review 29 (2): 129–140. doi:10.1016/j.cpr.2008.11.001.
   PubMed Web of Science ®Google Scholar
• Fekete, Gyöngyi, and Andrés Lucero. 2019. “P(L)AY ATTENTION! Co-Designing for and with Children with Attention Deficit Hyperactivity Disorder (ADHD).” Paper presented at the IFIP Conference on Human-Computer Interaction.
   Google Scholar
• Ferrin, Maite, Viviana Perez-Ayala, Samaa El-Abd, Teresa Lax-Pericall, Brian Jacobs, Andrea Bilbow, and Eric Taylor. 2020. “A Randomized Controlled Trial Evaluating the Efficacy of a Psychoeducation Program for Families of Children and Adolescents with ADHD in the United Kingdom: Results after a 6-Month Follow-up.” Journal of Attention Disorders 24 (5): 768–779. doi:10.1177/1087054715626509.
   PubMed Web of Science ®Google Scholar
• Greenhalgh, Trisha, Claire Jackson, Sara Shaw, and Tina Janamian. 2016. “Achieving Research Impact through co‐Creation in Community‐Based Health Services: Literature Review and Case Study.” The Milbank Quarterly 94 (2): 392–429. doi:10.1111/1468-0009.12197.
   PubMed Web of Science ®Google Scholar
• Hoza, Betsy, Alyson C. Gerdes, Sylvie Mrug, Stephen P. Hinshaw, William M. Bukowski, Joel A. Gold, L. Eugene Arnold, et al. 2005. “Peer-Assessed Outcomes in the Multimodal Treatment Study of Children with Attention Deficit Hyperactivity Disorder.” Journal of Clinical Child & Adolescent Psychology 34 (1): 74–86. doi:10.1207/s15374424jccp3401_7.
   PubMed Web of Science ®Google Scholar
• Junod, Rosemary E. Vile, George J. DuPaul, Asha K. Jitendra, Robert J. Volpe, and Kristi S. Cleary. 2006. “Classroom Observations of Students with and without ADHD: Differences across Types of Engagement.” Journal of School Psychology 44 (2): 87–104. doi:10.1016/j.jsp.2005.12.004.
   Web of Science ®Google Scholar
• Kita, Yosuke, and Yuki Inoue. 2017. “The Direct/Indirect Association of ADHD/ODD Symptoms with Self-Esteem, Self-Perception, and Depression in Early Adolescents.” Frontiers in Psychiatry 8: 137. doi:10.3389/fpsyt.2017.00137.
   PubMed Web of Science ®Google Scholar
• Langley, Joe, Dan Wolstenholme, and Jo Cooke. 2018. “‘Collective Making’ as Knowledge Mobilisation: The Contribution of Participatory Design in The Co-Creation of Knowledge in Healthcare.” BMC Health Services Research 18 (1): 585. doi:10.1186/s12913-018-3397-y.
   PubMedGoogle Scholar
• Langley, Joe, Gemma Wheeler, Rebecca Partridge, Remi Bec, Dan Wolstenholme, and Lise Sproson. 2020. “Designing with and for Older People.” In Design of Assistive Technology for Ageing Populations, 3–19. Berlin: Springer.
   Google Scholar
• Lifford, Kate J., Gordon T. Harold, and Anita Thapar. 2008. “Parent–Child Relationships and ADHD Symptoms: A Longitudinal Analysis.” Journal of Abnormal Child Psychology 36 (2): 285–296. doi:10.1007/s10802-007-9177-5.
   PubMed Web of Science ®Google Scholar
• Mandell, David S. 2009. “NIH-PA Author Manuscript.” Lancet 374 (9701): 1627–1638.
   PubMedGoogle Scholar
• Martin, Caroline P., Erin K. Shoulberg, Betsy Hoza, Aaron Vaughn, and Daniel A. Waschbusch. 2020. “Factors Relating to the Presence and Modifiability of Self-Perceptual Bias among Children with ADHD.” Child Psychiatry and Human Development 51 (2): 281–213. doi:10.1007/s10578-019-00929-x.
   PubMed Web of Science ®Google Scholar
• Michie, Susan, Maartje M. Van Stralen, and Robert West. 2011. “The Behaviour Change Wheel: A New Method for Characterising and Designing Behaviour Change Interventions.” Implementation Science 6 (1): 42. doi:10.1186/1748-5908-6-42.
   PubMed Web of Science ®Google Scholar
• Moen, Øyfrid Larsen, Birgitta Hedelin, and Marie Louise Hall-Lord. 2016. “Family Functioning, Psychological Distress, and Well-Being in Parents with a Child Having ADHD.” SAGE Open 6 (1): 215824401562676–2158244015626767. doi:10.1177/2158244015626767.
   Web of Science ®Google Scholar
• National Institute for Health and Care Exellence (NICE). 2018. “Attention Deficit Hyperactivity Disorder: Diagnosis and Management Clinical Guideline [CG72].” Accessed 10 November 2020. https://www.nice.org.uk/guidance/cg72
   Google Scholar
• Nussey, C., N. Pistrang, and T. Murphy. 2013. “How Does Psychoeducation Help? A Review of the Effects of Providing Information about T Ourette Syndrome and Attention‐Deficit/Hyperactivity Disorder.” Child: Care, Health and Development 39 (5): 617–627. doi:10.1111/cch.12039.
   PubMed Web of Science ®Google Scholar
• O’Regan, Fin. 2020. “Characteristics of ADHD.” Special Educational Needs: A Guide for Inclusive Practice: 240.
   Google Scholar
• OpenDataCommunities. 2020. “Indicies of Deprivation.” Accessed 3 November 2020. http://dclgapps.communities.gov.uk/imd/idmap.html.
   Google Scholar
• Peasgood, Tessa, Anupam Bhardwaj, Katie Biggs, John E. Brazier, David Coghill, Cindy L. Cooper, David Daley, et al. 2016. “The Impact of ADHD on the Health and Well-Being of ADHD Children and Their Siblings.” European Child & Adolescent Psychiatry 25 (11): 1217–1231. doi:10.1007/s00787-016-0841-6.
   PubMed Web of Science ®Google Scholar
• Polanczyk, Guilherme V., Giovanni A. Salum, Luisa S. Sugaya, Arthur Caye, and Luis A. Rohde. 2015. “Annual Research Review: A Meta‐Analysis of the Worldwide Prevalence of Mental Disorders in Children and Adolescents.” Journal of Child Psychology and Psychiatry, and Allied Disciplines 56 (3): 345–365. doi:10.1111/jcpp.12381.
   PubMed Web of Science ®Google Scholar
• Pope, C., Mays, N. 2006. Qualitative Research in Healthcare. 3rd ed. Oxford: Wiley Blackwell.
   Google Scholar
• Pope, Catherine, and Nicholas Mays. 2006. “Qualitative Methods in Health Research.” In Pope and Mays. Qualitative Research in Healthcare, 3rd ed, 1–11. Oxford, UK: BMJ Books; Blackwell Publishing Ltd.
   Google Scholar
• Powell, Lauren, Gemma Wheeler, and Jack Parker. 2020. “The Co-Design of a Psychoeducational Tool for Children and Young People with ADHD.” Paper Presented at the Online Proceedings of the 6th European Design4Health Conference.
   Google Scholar
• Powell, Lauren Amy Jack Parker, Anna Weighall, and Valerie Harpin. 2021. “Psychoeducation Intervention Effectiveness to Improve Social Skills in Young People with ADHD: A Meta-Analysis.” Journal of Attention Disorders : 1087054721997553. 1-18. doi:10.1177/1087054721997553. PMC: 33666104
   Web of Science ®Google Scholar
• Powell, Lauren, Jack Parker, Naomi Robertson, and Valerie Harpin. 2017. “Attention Deficit Hyperactivity Disorder: Is There an App for That? suitability Assessment of Apps for Children and Young People with ADHD.” JMIR mHealth and uHealth 5 (10): e145. doi:10.2196/mhealth.7371.
   PubMed Web of Science ®Google Scholar
• Powell, Lauren, Jack Parker, and Valerie Harpin. 2017. “ADHD: Is There an App for That? A Suitability Assessment of Apps for the Parents of Children and Young People with ADHD.” JMIR Health and Health 5 (10): e149. doi:10.2196/mhealth.7941.
   PubMed Web of Science ®Google Scholar
• Powell, Lauren, Jack Parker, and Val Harpin. 2017. University of Sheffield researchers used Lego to involve children with ADHD and their parents in research!. NIHR INVOLVE. Accessed 3 November 2020. https://www.invo.org.uk/posttypenewsletter/nihr-ppi-newsletter-autumn-2017/
   Google Scholar
• Powell, Lauren, Jack Parker, and Val Harpin. 2018. “What is the Level of Evidence for the Use of Currently Available Technologies in Facilitating the Self-Management of Difficulties Associated with ADHD in Children and Young People?” European Child & Adolescent Psychiatry 27 (11): 1391–1412. doi:10.1007/s00787-017-1092-x.
   PubMed Web of Science ®Google Scholar
• Powell, Lauren, Jack Parker, Val Harpin, and Susan Mawson. 2019. “Guideline Development for Technological Interventions for Children and Young People to Self-Manage Attention Deficit Hyperactivity Disorder: Realist Evaluation.” Journal of Medical Internet Research 21 (4): e12831. doi:10.2196/12831.
   PubMed Web of Science ®Google Scholar
• Rosenqvist, Mina A., Arvid Sjölander, Eivind Ystrom, Henrik Larsson, and Ted Reichborn‐Kjennerud. 2019. “Adverse Family Life Events during Pregnancy and ADHD Symptoms in Five‐Year‐Old Offspring.” Journal of Child Psychology and Psychiatry, and Allied Disciplines 60 (6): 665–675. doi:10.1111/jcpp.12990.
   PubMed Web of Science ®Google Scholar
• Russell, Ginny, Lauren R. Rodgers, Obioha C. Ukoumunne, and Tamsin Ford. 2014. “Prevalence of Parent-Reported ASD and ADHD in the UK: Findings from the Millennium Cohort Study.” Journal of Autism and Developmental Disorders 44 (1): 31–40. doi:10.1007/s10803-013-1849-0.
   PubMed Web of Science ®Google Scholar
• Sagvolden, Terje, Espen Borgå Johansen, Heidi Aase, and Vivienne Ann Russell. 2005. “A Dynamic Developmental Theory of Attention-Deficit/Hyperactivity Disorder (ADHD) Predominantly Hyperactive/Impulsive and Combined Subtypes.” Behavioral and Brain Sciences 28 (3): 397–418. doi:10.1017/S0140525X05000075.
   PubMed Web of Science ®Google Scholar
• Sanders, Elizabeth B. N. 2001. “Virtuosos of the Experience Domain.” Paper Presented at the Proceedings of the 2001 IDSA Education Conference.
   Google Scholar
• Sanders, Elizabeth B.-N., and Pieter Jan Stappers. 2008. “Co-Creation and the New Landscapes of Design.” CoDesign 4 (1): 5–18. doi:10.1080/15710880701875068.
   Google Scholar
• Saunders, Benjamin, Julius Sim, Tom Kingstone, Shula Baker, Jackie Waterfield, Bernadette Bartlam, Heather Burroughs, and Clare Jinks. 2018. “Saturation in Qualitative Research: Exploring Its Conceptualization and Operationalization.” Quality & Quantity 52 (4): 1893–1907. doi:10.1007/s11135-017-0574-8.
   PubMed Web of Science ®Google Scholar
• Skinner, B. 1974. About Behaviourism/BF Skinner. London: Cape.
   Google Scholar
• Tarver, Joanne, David Daley, and Kapil Sayal. 2014. “Attention‐Deficit Hyperactivity Disorder (ADHD): An Updated Review of the Essential Facts.” Child: Care, Health and Development 40 (6): 762–774. doi:10.1111/cch.12139.
   PubMed Web of Science ®Google Scholar
• Theule, Jennifer, Judith Wiener, Rosemary Tannock, and Jennifer M. Jenkins. 2013. “Parenting Stress in Families of Children with ADHD: A Meta-Analysis.” Journal of Emotional and Behavioral Disorders 21 (1): 3–17. doi:10.1177/1063426610387433.
   Web of Science ®Google Scholar
• Wehmeier, Peter M., Alexander Schacht, and Russell A. Barkley. 2010. “Social and Emotional Impairment in Children and Adolescents with ADHD and the Impact on Quality of Life.” Journal of Adolescent Health 46 (3): 209–217. doi:10.1016/j.jadohealth.2009.09.009.
   PubMed Web of Science ®Google Scholar
• Wheeler, Gemma, Nathaniel Mills, and Joe Langley. 2020. “The Starworks Project: Annual Report to National Institute for Health Research 2017–2018.”
   Google Scholar
• Willis, Danielle, E. Rebekah Siceloff, Melanie Morse, Emily Neger, and Kate Flory. 2019. “Stand-Alone Social Skills Training for Youth with ADHD: A Systematic Review.” Clinical Child and Family Psychology Review 22 (3): 348–366. doi:10.1007/s10567-019-00291-3.
   PubMed Web of Science ®Google Scholar
• World Health Organization. 2011. “Children and Neurodevelopmental Behavioural Intellectual Disorders (NDBID).” Children’s Health and the Environment WHO Training Package for the Health Sector. Accessed 4 July 2017. www.who.int/ceh
   Google Scholar