References
- Spinelli E. Experiencing change: An existential perspective. In: Schulenberg SE, ed. Clarifying and Furthering Existential Psychotherapy. New York, NY: Springer International Publishing; 2016:131–143.
- Kissane DW. The relief of existential suffering. Arch Intern Med. 2012;172(19):1501. doi: 10.1001/archinternmed.2012.3633.
- Balducci L. Beyond quality of life: the meaning of death and suffering in palliative care. Asian Pac J Cancer Prev. 2010;11(Suppl 1):41–44.
- Lo C, Panday T, Zeppieri J. Preliminary psychometrics of the Existential Distress Scale in patients with advanced cancer. Eur J Cancer Care. 2017;26(6):e12597. doi: 10.1111/ecc.12597.
- Robinson S, Kissane DW, Brooker J, Burney S. A review of the construct of demoralization: history, definitions. Am J Hosp Palliat Care. 2016;33(1):93–101. doi: 10.1177/1049909114553461.
- Grech A, Marks A. Existential suffering part 1: definition and diagnosis #319. J Palliat Med. 2017;20(1):93–94. doi: 10.1089/jpm.2016.0422.
- Iverach L, Menzies RG, Menzies RE. Death anxiety and its role in psychopathology: reviewing the status of a transdiagnostic construct. Clin Psychol Rev. 2014;34(7):580–593. doi: 10.1016/j.cpr.2014.09.002
- Grossman C, Brooker J, Michael N, Kissane D. Death anxiety interventions in patients with advanced cancer: a systematic review. Palliat Med. 2018;32(1):172–184. doi: 10.1177/0269216317722123.
- Guerrero-Torrelles M, Monforte-Royo C, Rodríguez-Prat A, Porta-Sales J, Balaguer A. Understanding meaning in life interventions in patients with advanced disease: a systematic review and realist synthesis. Palliat Med. 2017;31(9):798–813. doi: 10.1177/0269216316685235.
- LeMay K, Wilson KG. Treatment of existential distress in life threatening illness: a review of manualized interventions. Clin Psychol Rev. 2008;28(3):472–493. doi: 10.1016/j.cpr.2007.07.013.
- Ross S, Bossis A, Guss J, et al. Rapid and sustained symptom reduction following psilocybin treatment for anxiety and depression in patients with life-threatening cancer: a randomized controlled trial. J Psychopharmacol. 2016;30(12):1165–1180. doi: 10.1177/0269881116675512.
- Best M, Aldridge L, Butow P, Olver I, Webster F. Conceptual analysis of suffering in cancer: a systematic review. Psychooncology 2015;24(9):977–986. doi: 10.1002/pon.3795.
- Boston P, Bruce A, Schreiber R. Existential suffering in the palliative care setting: an integrated literature review. J Pain Symptom Manage. 2011;41(3):604–618. doi: 10.1016/j.jpainsymman.2010.05.010.
- Humbert M, Sitbon O, Chaouat A, et al. Survival in patients with idiopathic, familial, and anorexigen-associated pulmonary arterial hypertension in the modern management era. Circulation 2010;122(2):156–163. doi: 10.1161/circulationaha.109.911818
- Larisch A, Neeb C, de Zwaan M, et al. [Mental distress and wish for psychosomatic treatment of patients with pulmonary hypertension]. Psychother Psych Med. 2014;64(09/10):384–389. in German. doi: 10.1055/s-0034-1377013.
- Vanhoof J, Delcroix M, Vandevelde E, et al. Emotional symptoms and quality of life in patients with pulmonary arterial hypertension. J Heart Lung Transplant. 2014;33(8):800–808. doi: 10.1016/j.healun.2014.04.003.
- Verma S, Cardenas-Garcia J, Mohapatra PR, Talwar A. Depression in pulmonary arterial hypertension and interstitial lung diseases. North Am J Med Sci. 2014;6(6):1–249. doi: 10.4103/1947-2714.134368.
- White J, Hopkins RO, Glissmeyer EW, Kitterman N, Elliott CG. Cognitive, emotional, and quality of life outcomes in patients with pulmonary arterial hypertension. Respir Res. 2006;7(1):55. doi: 10.1186/1465-9921-7-55.
- Galiè N, Humbert M, Vachiery JL, et al. 2015 ESC/ERS guidelines for the diagnosis and treatment of pulmonary hypertension: the joint task force for the diagnosis and treatment of pulmonary hypertension of the European Society of Cardiology (ESC) and the European Respiratory Society (ERS): endorsed by: Association for European Paediatric and Congenital Cardiology (AEPC), International Society for Heart and Lung Transplantation (ISHLT). Eur Heart J. 2016;37(1):67–119. doi: 10.1093/eurheartj/ehv317.
- Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Res Psychol. 2006;3(2):77–101. doi: 10.1191/1478088706qp063oa.
- Grossman MR, Gruenewald TL. Caregiving and perceived generativity: a positive and protective aspect of providing care? Clin Gerontol. 2017;40(5):435–447. doi: 10.1080/07317115.2017.1317686.
- Keall RM, Butow PN, Steinhauser KE, Clayton JM. Discussing life story, forgiveness, heritage, and legacy with patients with life-limiting illnesses. Int J Palliat Nurs. 2011;17(9):454–460. doi: 10.12968/ijpn.2011.17.9.454.
- Lo C, Zimmermann C, Gagliese L, Li M, Rodin G. Sources of spiritual well-being in advanced cancer. BMJ Support Palliat Care. 2011;1(2):149–153. doi: 10.1136/bmjspcare-2011-000005.
- Lo C, Hales S, Braun M, Rydall AC, Zimmermann C, Rodin G. Couples facing advanced cancer: examination of an interdependent relational system. Psychooncology. 2013;22(10):2283–2290. doi: 10.1002/pon.3289.
- Vehling S, Malfitano C, Shnall J, et al. A concept map of death-related anxieties in patients with advanced cancer. BMJ Support Palliat Care. 2017;7(4):427–434. doi: 10.1136/bmjspcare-2016-001287.
- May CR, Cummings A, Myall M, et al. Experiences of long-term life-limiting conditions among patients and carers: what can we learn from a meta-review of systematic reviews of qualitative studies of chronic heart failure, chronic obstructive pulmonary disease and chronic kidney disease? BMJ Open. 2016;6(10):e011694. doi: 10.1136/bmjopen-2016-011694.
- Knox MK, Hales S, Nissim R, et al. Lost and stranded: the experience of younger adults with advanced cancer. Support Care Cancer. 2017;25(2):399–407. doi: 10.1007/s00520-016-3415-8.
- Grünke B, Philipp R, Vehling S, et al. Measuring the psychosocial dimensions of quality of life in advanced cancer patients: psychometrics of the German Quality of Life at the End of Life–Cancer–Psychosocial (QUAL-EC-P) Questionnaire. J Pain Symptom Manage. 2018;55(3):985–991.e1. doi: 10.1016/j.jpainsymman.2017.11.006.