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Articles

Experienced barriers of care within European treatment seeking transgender individuals: A multicenter ENIGI follow-up study

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References

  • Bauer, G. R., Hammond, R., Travers, R., Kaay, M., Hohenadel, K. M., & Boyce, M. (2009). "I don’t think this is theoretical; this is our lives": How erasure impacts health care for transgender people. The Journal of the Association of Nurses in AIDS Care: JANAC, 20(5), 348–361. https://doi.org/10.1016/j.jana.2009.07.004
  • Bränström, R., & Pachankis, J. E. (2020). Reduction in mental health treatment utilization among transgender individuals after gender-affirming surgeries: A total population study. The American Journal of Psychiatry, 177(8), 727–734. https://doi.org/10.1176/appi.ajp.2019.19010080
  • Budge, S. L., Adelson, J. L., & Howard, K. A. S. (2013). Anxiety and depression in transgender individuals: The roles of transition status, loss, social support, and coping. Journal of Consulting and Clinical Psychology, 81(3), 545–557. https://doi.org/10.1037/a0031774
  • Budge, S. L., Katz-Wise, S. L., Tebbe, E. N., Howard, K. A. S., Schneider, C. L., & Rodriguez, A. (2013). transgender emotional and coping processes: Facilitative and avoidant coping throughout gender transitioning. The Counseling Psychologist, 41(4), 601–647. https://doi.org/10.1177/0011000011432753
  • Burgwal, A., Gvianishvili, N., Hård, V., Kata, J., García Nieto, I., Orre, C., Smiley, A., Vidić, J., & Motmans, J. (2019). Health disparities between binary and non binary trans people: A community-driven survey. The International Journal of Transgenderism, 20(2–3), 218–229. https://doi.org/10.1080/15532739.2019.1629370
  • Burgwal, A., & Motmans, J. (2021). Trans and gender diverse people’s experiences and evaluations with general and trans-specific healthcare services: A cross-sectional survey. International Journal of Impotence Research, https://doi.org/10.1038/s41443-021-00432-9
  • Cicero, E. C., Reisner, S. L., Silva, S. G., Merwin, E. I., & Humphreys, J. C. (2019). Health care experiences of transgender adults: An integrated mixed research literature review. ANS. Advances in Nursing Science, 42(2), 123–138. https://doi.org/10.1097/ANS.0000000000000256
  • Clements, K., Wilkinson, W., Kitano, K., & Marx, R. (1999). HIV prevention and health service needs of the transgender community in San Francisco. International Journal of Transgenderism, 3(1–2), 918–919.
  • Cobos, D. G., & Jones, J. (2009). Moving forward: Transgender persons as change agents in health care access and human rights. The Journal of the Association of Nurses in AIDS Care: JANAC, 20(5), 341–347. https://doi.org/10.1016/j.jana.2009.06.004
  • Coleman, E., Bockting, W., Botzer, M., Cohen-Kettenis, P., DeCuypere, G., Feldman, J., Fraser, L., Green, J., Knudson, G., Meyer, W. J., Monstrey, S., Adler, R. K., Brown, G. R., Devor, A. H., Ehrbar, R., Ettner, R., Eyler, E., Garofalo, R., Karasic, D. H., … Zucker, K. (2012). Standards of care for the health of transsexual, transgender, and gender-nonconforming people, version 7. International Journal of Transgenderism, 13(4), 165–232. https://doi.org/10.1080/15532739.2011.700873
  • Connell, C. (2010). Doing, undoing, or redoing gender? Learning from the workplace experiences of transpeople. Gender & Society, 24(1), 31–55. https://doi.org/10.1177/0891243209356429
  • Derogatis, L. R. (1983). SCL-90-R: Administration, scoring and procedures. Manual II for the R (evised) version and other instruments of the psychopathology rating scale series. Towson, MD: Clinic Psychometric Research.
  • Dhejne, C., Van Vlerken, R., Heylens, G., & Arcelus, J. (2016). Mental health and gender dysphoria: A review of the literature. International Review of Psychiatry (Abingdon, England), 28(1), 44–57. https://doi.org/10.3109/09540261.2015.1115753
  • Edmiston, E. K., Donald, C. A., Sattler, A. R., Peebles, J. K., Ehrenfeld, J. M., & Eckstrand, K. L. (2016). Opportunities and gaps in primary care preventative health services for transgender patients: a systematic review. Transgender Health, 1(1), 216–230. https://doi.org/10.1089/trgh.2016.0019
  • European Union Agency for Fundamental Rights. (2014). EU LGBT survey European Union lesbian, gay, bisexual and transgender survey. European Union: European Agency for Fundamental Rights.
  • European Union Agency for Fundamental Rights. (2020). EU-LGBTI II: A long way to go for LGBTI equality.
  • Eyssel, J., Koehler, A., Dekker, A., Sehner, S., & Nieder, T. O. (2017). Needs and concerns of transgender individuals regarding interdisciplinary transgender healthcare: A non-clinical online survey. PLOS One, 12(8), e0183014. https://doi.org/10.1371/journal.pone.0183014
  • Fuchs, W., Ghattas, D. C., Reinert, D., & Widmann, C. (2012). Studie zur Lebenssituation von Transsexuellen in Nordrhein[1]Westfalen [Life of transsexuals in North Rhine –Westphalia, Germany]. Cologne: LSVD. Retrieved from http://www.lsvd.de/fi leadmin/pics/Dokumente/TSG/Studie_NRW.pdf
  • Glynn, T. R., Gamarel, K. E., Kahler, C. W., Iwamoto, M., Operario, D., & Nemoto, T. (2016). The role of gender affirmation in psychological well-being among transgender women. Psychology of Sexual Orientation and Gender Diversity, 3(3), 336–344. https://doi.org/10.1037/sgd0000171
  • Gonzales, G., & Henning-Smith, C. (2017). Barriers to care among transgender and gender nonconforming adults. The Milbank Quarterly, 95(4), 726–748. https://doi.org/10.1111/1468-0009.12297
  • Grant, J. M., Mottet, L. A., Tanis, J., Harrison, J., Herman, J. L., & Keisling, M. (2011). Discrimination survey. Injustice at every turn: A report of the national transgender. Washington, DC: National Center for Transgender Equality and National Gay and Lesbian Task Force.
  • Gridley, S. J., Crouch, J. M., Evans, Y., Eng, W., Antoon, E., Lyapustina, M., Schimmel-Bristow, A., Woodward, J., Dundon, K., Schaff, R., McCarty, C., Ahrens, K., & Breland, D. J. (2016). Youth and caregiver perspectives on barriers to gender-affirming health care for transgender youth. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine, 59(3), 254–261. https://doi.org/10.1016/j.jadohealth.2016.03.017
  • James, S. E., Herman, J. L., Rankin, S., Keisling, M., Mottet, L., & Anafi, M. (2016). The report of the 2015 U.S. transgender survey. Washington, DC: National Center for Transgender Equality.
  • Johnson, A. H. (2019). Rejecting, reframing, and reintroducing: Trans people’s strategic engagement with the medicalisation of gender dysphoria. Sociology of Health & Illness, 41(3), 517–532. https://doi.org/10.1111/1467-9566.12829
  • Kenagy, G. P. (2005). Transgender health: Findings from two needs assessment studies in Philadelphia. Health & Social Work, 30(1), 19–26. https://doi.org/10.1093/hsw/30.1.19
  • Kerckhof, M., Kreukels, B., & Nieder, T. (2019). The interrelations between sexual dysfunction, sexual (dis) satisfaction and sexual pleasure in transgender individuals: Results of the ENIGI follow-up study. Psychol. Health, 34(4), 438–455.
  • Keuzekamp, S. (2012). Worden wie je bent. Het leven van transgenders in Nederland. [Be who you are. The lives of transgender individuals in the Netherlands]. The Hague: Sociaal en Cultureel Planbureau.
  • Köhler, A., Becker, I., Richter-Appelt, H., Cerwenka, S., Kreukels, B., van de Grift, T., Elaut, E., Heylens, G., & Nieder, T. O. (2019). [Treatment experiences and social support in individuals with gender incongruence/gender dysphoria - A ENIGI 5 year follow-up study in three European countries]. Psychotherapie, Psychosomatik, Medizinische Psychologie, 69(8), 339–347. https://doi.org/10.1055/a-0806-6892
  • Kreukels, B. P. C., Haraldsen, I. R., De Cuypere, G., Richter-Appelt, H., Gijs, L., & Cohen-Kettenis, P. T. (2012). A European network for the investigation of gender incongruence: The ENIGI initiative. European Psychiatry: The Journal of the Association of European Psychiatrists, 27(6), 445–450. https://doi.org/10.1016/j.eurpsy.2010.04.009
  • LesMigraS. (2012). “…Nicht so greifbar und doch real”. Eine quantitative und qualitative Studie zu Gewalt- und (Mehrfach-)Diskriminierungserfahrungen von lesbischen, bisexuellen Frauen und Trans* in Deutschland. Berlin: LesMigraS Antigewalt- und Antidiskriminierungsbereich der Lesbenberatung Berlin e.V.
  • Levesque, J. F., Harris, M. F., & Russell, G. (2013). Patient-centred access to health care: Conceptualising access at the interface of health systems and populations. International Journal for Equity in Health, 12, 18. https://doi.org/10.1186/1475-9276-12-18
  • Lindqvist, E. K., Sigurjonsson, H., Möllermark, C., Rinder, J., Farnebo, F., & Lundgren, T. K. (2017). Quality of life improves early after gender reassignment surgery in transgender women. European Journal of Plastic Surgery, 40(3), 223–226. https://doi.org/10.1007/s00238-016-1252-0
  • Loos, F. K., Köhler, A., Eyssel, J., & Nieder, T. O. (2016). Subjektive Indikatoren des Behandlungserfolges und Diskriminierungserfahrungen in der trans* Gesundheitsversorgung. Qualitative Ergebnisse einer Online-Befragung. [Subjective indicators of treatment success and experiences of discrimination in interdisciplinary trans* healthcare. Qualitative results from an online survey]. Zeitschrift Für Sexualforschung, 29(03), 205–223. https://doi.org/10.1055/s-0042-114866
  • Miller, L. R., & Grollman, E. A. (2015). The social costs of gender nonconformity for transgender adults: Implications for discrimination and health. Sociological Forum (Randolph, N.J.), 30(3), 809–831. https://doi.org/10.1111/socf.12193
  • Motmans, J., T’Sjoen, G., & Meier, P. (2015). Geweldervaringen Van Transgender Personen in België. Antwerpen: Steunpunt Gelijkekansenbeleid.
  • Motmans, J., Wyverkens, E., & Defreyne, J. (2018). Being transgender in Belgium ten years later.
  • Newfield, E., Hart, S., Dibble, S., & Kohler, L. (2006). Female-to-male transgender quality of life. Quality of Life Research, 15(9), 1447–1457. https://doi.org/10.1007/s11136-006-0002-3
  • Nieder, T., Güldenring, A., Köhler, A., & Briken, P. (2017). Trans*-Gesundheitsversorgung. Der Nervenarzt, 88(5), 466–471. https://doi.org/10.1007/s00115-017-0308-0
  • Nolan, I. T., Kuhner, C. J., & Dy, G. W. (2019). Demographic and temporal trends in transgender identities and gender confirming surgery. Translational Andrology and Urology, 8(3), 184–190. https://doi.org/10.21037/tau.2019.04.09
  • Pang, K. C., de Graaf, N. M., Chew, D., Hoq, M., Keith, D. R., Carmichael, P., & Steensma, T. D. (2020). Association of media coverage of transgender and gender diverse issues with rates of referral of transgender children and adolescents to specialist gender clinics in the UK and Australia. JAMA Network Open, 3(7), e2011161. https://doi.org/10.1001/jamanetworkopen.2020.11161
  • Puckett, J. A., Cleary, P., Rossman, K., Newcomb, M. E., & Mustanski, B. (2018). Barriers to gender-affirming care for transgender and gender nonconforming individuals. Sexuality Research and Social Policy, 15(1), 48–59. https://doi.org/10.1007/s13178-017-0295-8
  • Riggs, D. W., Coleman, K., & Due, C. (2014). Healthcare experiences of gender diverse Australians: A mixed-methods, self-report survey. BMC Public Health, 14, 230. https://doi.org/10.1186/1471-2458-14-230
  • Roberts, T. K., & Fantz, C. R. (2014). Barriers to quality health care for the transgender population. Clinical Biochemistry, 47(10–11), 983–987. https://doi.org/10.1016/j.clinbiochem.2014.02.009
  • Roncarolo, F., Boivin, A., Denis, J.-L., Hébert, R., & Lehoux, P. (2017). What do we know about the needs and challenges of health systems? A scoping review of the international literature. BMC Health Services Research, 17(1), 636–636. https://doi.org/10.1186/s12913-017-2585-5
  • Safer, J. D., Coleman, E., Feldman, J., Garofalo, R., Hembree, W., Radix, A., & Sevelius, J. (2016). Barriers to healthcare for transgender individuals. Current Opinion in Endocrinology, Diabetes, and Obesity, 23(2), 168–171. https://doi.org/10.1097/med.0000000000000227
  • Seelman, K. L., Colón-Diaz, M. J. P., LeCroix, R. H., Xavier-Brier, M., & Kattari, L. (2017). Transgender noninclusive healthcare and delaying care because of fear: Connections to general health and mental health among transgender adults. Transgender Health, 2(1), 17–28. https://doi.org/10.1089/trgh.2016.0024
  • Streed, C. G., Jr., McCarthy, E. P., & Haas, J. S. (2017). Association between gender minority status and self-reported physical and mental health in the United States. JAMA Internal Medicine, 177(8), 1210–1212. https://doi.org/10.1001/jamainternmed.2017.1460
  • Tabaac, A. R., Jolly, D., Boskey, E. R., & Ganor, O. (2020). Barriers to gender-affirming surgery consultations in a sample of transmasculine patients in Boston, Mass. Plastic and Reconstructive Surgery. Global Open, 8(8), e3008. https://doi.org/10.1097/GOX.0000000000003008
  • van de Grift, T. C., Elaut, E., Cerwenka, S. C., Cohen-Kettenis, P. T., De Cuypere, G., Richter-Appelt, H., & Kreukels, B. P. C. (2017). Effects of medical interventions on gender dysphoria and body image: A follow-up study. Psychosomatic Medicine, 79(7), 815–823. https://doi.org/10.1097/psy.0000000000000465
  • Verbeek, M. J. A., Hommes, M. A., Stutterheim, S. E., van Lankveld, J., & Bos, A. E. R. (2020). Experiences with stigmatization among transgender individuals after transition: A qualitative study in the Netherlands. International Journal of Transgender Health, 21(2), 220–233. https://doi.org/10.1080/26895269.2020.1750529