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Review Article

Supporting the health and wellbeing of trans autistic school-aged youth: a systematic literature review

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References

  • American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders. (5th ed.). American Psyciatric Association Publishing. https://doi.org/10.1176/appi.books.9780890425596
  • Bartholomaeus, C., & Riggs, D. W. (2017a). Transgender People and Education. Palgrave Macmillan. https://doi.org/10.1057/978-1-349-95309-7
  • Bartholomaeus, C., & Riggs, D. W. (2017b). Whole-of-school approaches to supporting transgender students, staff, and parents. International Journal of Transgenderism, 18(4), 361–366. https://doi.org/10.1080/15532739.2017.1355648
  • Booth, A., Noyes, J., Flemming, K., Moore, G., Tunçalp, Ö., & Shakibazadeh, E. (2019). Formulating questions to explore complex interventions within qualitative evidence synthesis. BMJ Global Health, 4(Suppl 1), e001107. https://doi.org/10.1136/bmjgh-2018-001107
  • Braun, V., & Clarke, V. (2019). Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health, 11(4), 589–597. https://doi.org/10.1080/2159676X.2019.1628806
  • Chiam, Z., Duffy, S., González Gil, M., Goodwin, L., & Mpemba Patel, N. T, ILGA World (2019). Trans legal mapping report: Recognition before the law. https://ilga.org/downloads/ILGA_World_Trans_Legal_Mapping_Report_2019_EN.pdf.
  • Collin, L., Reisner, S. L., Tangpricha, V., & Goodman, M. (2016). Prevalence of transgender depends on the “case” definition: A systematic review. The Journal of Sexual Medicine, 13(4), 613–626. https://doi.org/10.1016/j.jsxm.2016.02.001
  • Coogle, C. G., Walker, V. L., Ottley, J., Allan, D., & Irwin, D. (2022). Paraprofessionals’ perceived skills and needs in supporting students with autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 37(4), 227–238. https://doi.org/10.1177/10883576211073699
  • Cooper, K., Butler, C., Russell, A., & Mandy, W. (2023). The lived experience of gender dysphoria in autistic young people: A phenomenological study with young people and their parents. European Child & Adolescent Psychiatry, 32(9), 1655–1666. https://doi.org/10.1007/s00787-022-01979-8
  • Cooper, K., Mandy, W., Butler, C., & Russell, A. (2022). The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis. Autism: The International Journal of Research and Practice, 26(4), 963–974. https://doi.org/10.1177/13623613211039113
  • Cooper, K., Mandy, W., Russell, A., & Butler, C. (2023). Healthcare clinician perspectives on the intersection of autism and gender dysphoria. Autism: The International Journal of Research and Practice, 27(1), 31–42. https://doi.org/10.1177/13623613221080315
  • Corbett, B. A., Muscatello, R. A., Klemencic, M. E., West, M., Kim, A., & Strang, J. F. (2023). Greater gender diversity among autistic children by self-report and parent-report. Autism: The International Journal of Research and Practice, 27(1), 158–172. https://doi.org/10.1177/13623613221085337
  • de Vries, A. L. C., Noens, I. L. J., Cohen-Kettenis, P. T., van Berckelaer-Onnes, I. A., & Doreleijers, T. A. (2010). Autism spectrum disorders in gender dysphoric children and adolescents. Journal of Autism and Developmental Disorders, 40(8), 930–936. https://doi.org/10.1007/s10803-010-0935-9
  • Duncan, A., Risley, S., Combs, A., Lacey, H. M., Hamik, E., Fershtman, C., Kneeskern, E., Patel, M., Crosby, L., Hood, A. M., Zoromski, A. K., & Tamm, L. (2023). School challenges and services related to executive functioning for fully included middle schoolers with autism. Focus on Autism and Other Developmental Disabilities, 38(2), 90–100. https://doi.org/10.1177/10883576221110167
  • Greenspan, S. B., Carr, S., Woodman, A. C., Cannava, A., & Li, Y. (2023). Identified protective factors to support psychological well-being among gender diverse autistic youth. Journal of LGBT Youth, 20(2), 407–440. https://doi.org/10.1080/19361653.2022.2119188
  • Hill, A. O., Lyons, A., Jones, J., McGowan, I., Carman, M., Parsons, M., Power, J., & Bourne, A. (2021). Writing themesleves in 4: The health and wellbeing of LGBTQA + young people in Australia. National report, monograph series number 124. Australian Research Centre in Sex, Health and Society, La Trobe University. Retrieved 30 August 2023 from https://www.latrobe.edu.au/arcshs/work/writing-themselves-in-4.
  • Hilton, M. N., Boulton, K. A., Kozlowska, K., McClure, G., & Guastella, A. J. (2022). The co-occurrence of neurodevelopmental disorders in gender dysphoria: Characteristics within a paediatric treatment-seeking cohort and factors that predict distress pertaining to gender. Journal of Psychiatric Research, 149, 281–286. https://doi.org/10.1016/j.jpsychires.2022.02.018
  • Humphrey, N., & Hebron, J. (2015). Bullying of children and adolescents with autism spectrum conditions: A ‘state of the field’ review. International Journal of Inclusive Education, 19(8), 845–862. https://doi.org/10.1080/13603116.2014.981602
  • Jacobs, L. A., Rachlin, K., Erickson-Schroth, L., & Janssen, A. (2014). Gender dysphoria and co-occurring autism spectrum disorders: review, case examples, and treatment considerations. LGBT Health, 1(4), 277–282. https://doi.org/10.1089/lgbt.2013.0045
  • Janssen, A., Huang, H., & Duncan, C. (2016). Gender variance among youth with autism spectrum disorders: A retrospective chart review. Transgender Health, 1(1), 63–68. https://doi.org/10.1089/trgh.2015.0007
  • Joanna Briggs Institute (2020). Critical Appraisal Tools. https://jbi.global/critical-appraisal-tools.
  • Kahraman, K. B., Topcu, Z., Yavuz, D., Direnc, E., & Erdogdu, A. B. (2021). Autistic traits, emotional recognition and empathy in adolescents with gender dysphoria. Dusunen Adam:The Journal of Psychiatry and Neurological Sciences, 34(4), 329–336. https://doi.org/10.14744/DAJPNS.2021.00155
  • Kallitsounaki, A., & Williams, D. M. (2023). Autism spectrum disorder and gender dysphoria/incongruence. A systematic literature review and meta-analysis. Journal of Autism and Developmental Disorders, 53(8), 3103–3117. https://doi.org/10.1007/s10803-022-05517-y
  • Knopf, A. (2020). Autism prevalence increases from 1 in 60 to 1 in 54: CDC. The Brown University Child and Adolescent Behavior Letter, 36(6), 4–4. https://doi.org/10.1002/cbl.30470
  • Kuvalanka, K. A., Mahan, D. J., McGuire, J. K., & Hoffman, T. K. (2018). Perspectives of mothers of transgender and gender-nonconforming children with autism spectrum disorder. Journal of Homosexuality, 65(9), 1167–1189. https://doi.org/10.1080/00918369.2017.1406221
  • Lehmann, K., Rosato, M., McKenna, H., & Leavey, G. (2020). Autism trait prevalence in treatment seeking adolescents and adults attending specialist gender services. European Psychiatry: The Journal of the Association of European Psychiatrists, 63(1), e23. Article e23. https://doi.org/10.1192/j.eurpsy.2020.23
  • Loomes, R. D., Hull, L. M., & Mandy, W. P. L. D. P. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child and Adolescent Psychiatry, 56(6), 466–474. https://doi.org/10.1016/j.jaac.2017.03.013
  • Lyttle, M. C., & Sprott, R. A. (Eds.). (2020). Supporting Gender Identity and Sexual Orientation Diversity in K-12 Schools. American Psychological Association.
  • Mahfouda, S., Panos, C., Whitehouse, A. J. O., Thomas, C. S., Maybery, M., Strauss, P., Zepf, F. D., O’Donovan, A., van Hall, H.-W., Saunders, L. A., Moore, J. K., & Lin, A. (2019). Mental health correlates of autism spectrum disorder in gender diverse young people: Evidence from a specialised child and adolescent gender clinic in Australia. Journal of Clinical Medicine, 8(10), 1503. https://doi.org/10.3390/jcm8101503
  • Meerwijk, E. L., & Sevelius, J. M. (2017). Transgender population size in the United States: A meta-regression of population-based probability samples. American Journal of Public Health, 107(2), e1–e8. https://doi.org/10.2105/AJPH.2016.303578
  • O’Connor, A. M., Seunik, M., Radi, B., Matthyse, L., Gable, L., Huffstetler, H. E., & Meier, B. M. (2022). Transcending the gender binary under international law: Advancing health-related human rights for trans* populations. The Journal of Law, Medicine & Ethics: A Journal of the American Society of Law, Medicine & Ethics, 50(3), 409–424. https://doi.org/10.1017/jme.2022.84
  • Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., … P., Moher, D. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ (Clinical Research ed.), 372, n71. https://doi.org/10.1136/bmj.n71
  • Russell, I., Pearson, B., & Masic, U. (2021). A Longitudinal Study of Features Associated with Autism Spectrum in Clinic Referred, Gender Diverse Adolescents Accessing Puberty Suppression Treatment. Journal of Autism and Developmental Disorders, 51(6), 2068–2076. https://doi.org/10.1007/s10803-020-04698-8
  • Shamseer, L., Moher, D., Clarke, M., Ghersi, D., Liberati, A., Petticrew, M., Shekelle, P., & Stewart, L. A, PRISMA-P Group (2015). Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015: Elaboration and explanation. BMJ (Clinical Research ed.), 350(jan02 1), g7647–g7647. https://doi.org/10.1136/bmj.g7647
  • Shumer, D. E., Reisner, S. L., Edwards-Leeper, L., & Tishelman, A. (2016). Evaluation of Asperger syndrome in youth presenting to a gender dysphoria clinic. LGBT Health, 3(5), 387–390. https://doi.org/10.1089/lgbt.2015.0070
  • Strang, J. F., Anthony, L. G., Song, A., Lai, M.-C., Knauss, M., Sadikova, E., Graham, E., Zaks, Z., Wimms, H., Willing, L., Call, D., Mancilla, M., Shakin, S., Vilain, E., Kim, D.-Y., Maisashvili, T., Khawaja, A., & Kenworthy, L. (2023). In addition to stigma: Cognitive and autism-related predictors of mental health in transgender adolescents. Journal of Clinical Child and Adolescent Psychology: The Official Journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53, 52(2), 212–229. https://doi.org/10.1080/15374416.2021.1916940
  • Strang, J. F., Chen, D., Nelson, E., Leibowitz, S. F., Nahata, L., Anthony, L. G., Song, A., Grannis, C., Graham, E., Henise, S., Vilain, E., Sadikova, E., Freeman, A., Pugliese, C., Khawaja, A., Maisashvili, T., Mancilla, M., & Kenworthy, L. (2022). Transgender youth executive functioning: Relationships with anxiety symptoms, autism spectrum disorder, and gender-affirming medical treatment status. Child Psychiatry and Human Development, 53(6), 1252–1265. https://doi.org/10.1007/s10578-021-01195-6
  • Strang, J. F., Klomp, S. E., Caplan, R., Griffin, A. D., Anthony, L. G., Harris, M. C., Graham, E. K., Knauss, M., & van der Miesen, A. I. R. (2019). Community-based participatory design for research that impacts the lives of transgender and/or gender-diverse autistic and/or neurodiverse people. Clinical Practice in Pediatric Psychology, 7(4), 396–404. https://doi.org/10.1037/cpp0000310
  • Strang, J. F., Powers, M. D., Knauss, M., Sibarium, E., Leibowitz, S. F., Kenworthy, L., Sadikova, E., Wyss, S., Willing, L., Caplan, R., Pervez, N., Nowak, J., Gohari, D., Gomez-Lobo, V., Call, D., & Anthony, L. G. (2018). “They thought it was an obsession”: Trajectories and perspectives of autistic transgender and gender-diverse adolescents. Journal of Autism and Developmental Disorders, 48(12), 4039–4055. https://doi.org/10.1007/s10803-018-3723-6
  • Strang, J. F., van der Miesen, A., Fischbach, A. L., Wolff, M., Harris, M. C., & Klomp, S. E. (2023). Common intersection of autism and gender diversity in youth. Child and Adolescent Psychiatric Clinics of North America, 32(4), 747–760. https://doi.org/10.1016/j.chc.2023.06.001
  • Transgender Europa (2023). Trans Rights Map 2023: Continued Progress Amid Anti-Trans Backlash in Europe and Central Asia. https://tgeu.org/trans-rights-map-2023/.
  • van der Miesen, A. I. R., Hurley, H., Bal, A. M., & de Vries, A. L. C. (2018). Prevalence of the wish to be of the opposite gender in adolescents and adults with autism spectrum disorder. Archives of Sexual Behavior, 47(8), 2307–2317. https://doi.org/10.1007/s10508-018-1218-3
  • Warrier, V., Greenberg, D. M., Weir, E., Buckingham, C., Smith, P., Lai, M.-C., Allison, C., & Baron-Cohen, S. (2020). Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nature Communications, 11(1), 3959. https://doi.org/10.1038/s41467-020-17794-1
  • World Health Organization (2019). International statistical classification of diseases and related health problems (11th ed.). https://icd.who.int.
  • World Professional Association for Transgender Health (2011). Standards of care for the health of transsexual, transgender, and gender nonconforming people. https://www.wpath.org/media/cms/Documents/SOC%20v7/SOC%20V7_English.pdf.
  • Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55. https://doi.org/10.1001/jama.289.1.49
  • Zhang, Q., Goodman, M., Adams, N., Corneil, T., Hashemi, L., Kreukels, B., Motmans, J., Snyder, R., & Coleman, E. (2020). Epidemiological considerations in transgender health: A systematic review with focus on higher quality data. International Journal of Transgender Health, 21(2), 125–137. https://doi.org/10.1080/26895269.2020.1753136
  • Zucker, K. J. (2017). Epidemiology of gender dysphoria and transgender identity. Sexual Health, 14(5), 404–411. https://doi.org/10.1071/SH17067
  • Zupanič, S., Kruljac, I., Šoštarič Zvonar, M., & Drobnič Radobuljac, M. (2021). Case report: Adolescent with autism and gender dysphoria [Case Report]. Frontiers in Psychiatry, 12, 671448. https://doi.org/10.3389/fpsyt.2021.671448