2,165
Views
0
CrossRef citations to date
0
Altmetric
Health Services

The most severely ill patients with ME/CFS in Denmark

Article: 2359958 | Received 29 Nov 2023, Accepted 22 May 2024, Published online: 05 Jun 2024

References

  • Blease, C., Carel, H., & Geraghty, K. (2017). Epistemic injustice in healthcare encounters: evidence from chronic fatigue syndrome. Journal of Medical Ethics, 43(8), 1–11. https://doi.org/10.1136/MEDETHICS-2016-103691
  • Brittain, E., Muirhead, N., Finlay, A. Y., & Vyas, J. (2021). Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): Major impact on lives of both patients and family members. Medicina (Kaunas, Lithuania), 57(1), 43. https://doi.org/10.3390/MEDICINA57010043
  • Carruthers, B. M., van de Sande, M. I., De Meirleir, K. L., Klimas, N. G., Broderick, G., Mitchell, T., Staines, D., Powles, A. C. P., Speight, N., Vallings, R., Bateman, L., Baumgarten-Austrheim, B., Bell, D. S., Carlo-Stella, N., Chia, J., Darragh, A., Jo, D., Lewis, D., Light, A. R., … Stevens, S. (2011). Myalgic encephalomyelitis: International Consensus Criteria. Journal of Internal Medicine, 270(4), 327–338. https://doi.org/10.1111/j.1365-2796.2011.02428.x
  • Crowhurst, G. (2005). Supporting people with severe myalgic encephalomyelitis. Nursing Standard (Royal College of Nursing (Great Britain): 1987), 19(21), 38–43. https://doi.org/10.7748/NS2005.02.19.21.38.C3796
  • Hvidberg, M. F., Brinth, L. S., Olesen, A. V., Petersen, K. D., & Ehlers, L. (2015). The health-related quality of life for patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). PloS One, 10(7), e0132421. https://doi.org/10.1371/journal.pone.0132421
  • Jadalla, A., Page, M., Ginex, P. A., Coleman, M., Vrabel, M., & Bevans, M. (2020). Family caregiver strain and burden: A systematic review of evidence-based interventions when caring for patients with cancer. Clinical Journal of Oncology Nursing, 24(1), 31–50. https://doi.org/10.1188/20.CJON.31-50
  • Johnson, M. L., Cotler, J., Terman, J. M., & Jason, L. A. (2022). Risk factors for suicide in chronic fatigue syndrome. Death Studies, 46(3), 738–744. https://doi.org/10.1080/07481187.2020.1776789
  • Kedor, C., Freitag, H., Meyer-Arndt, L., Wittke, K., Hanitsch, L. G., Zoller, T., Steinbeis, F., Haffke, M., Rudolf, G., Heidecker, B., Bobbert, T., Spranger, J., Volk, H. D., Skurk, C., Konietschke, F., Paul, F., Behrends, U., Bellmann-Strobl, J., & Scheibenbogen, C. (2022). A prospective observational study of post-COVID-19 chronic fatigue syndrome following the first pandemic wave in Germany and biomarkers associated with symptom severity. Nature Communications, 13(1), 1–13. https://doi.org/10.1038/s41467-022-32507-6
  • Lipowski, Z. J. (1988). Somatization: The concept and its clinical application. The American Journal of Psychiatry, 145(11), 1358–1368. https://doi.org/10.1176/ajp.145.11.1358
  • McManimen, S. L., McClellan, D., Stoothoff, J., & Jason, L. A. (2018). Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and chronic fatigue syndrome. Journal of Community Psychology, 46(8), 959–971. https://doi.org/10.1002/JCOP.21984
  • Nacul, L. C., Lacerda, E. M., Campion, P., Pheby, D., Drachler, M. D. L., Leite, J. C., Poland, F., Howe, A., Fayyaz, S., & Molokhia, M. (2011). The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. BMC Public Health, 11(1), 402. https://doi.org/10.1186/1471-2458-11-402/TABLES/8
  • NICE Guideline. (2021). Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management www.nice.org.uk/guidance/ng206
  • Schei, T., Angelsen, A., & Myklebust, E. (2019). De sykeste ME-pasientene - Norges ME-forening. Når Nøden Er Størst Er Hjælpen Nærmest Borte. De Alvorligste ME-Syge: Sygdoimsbyrde Og Hjelpetilbud. https://www.me-foreningen.no/wp-content/uploads/2019/06/De-alvorligste-ME-syke-rapport-og-vedlegg.pdf
  • Schultz, R., la Cour, P., Kousgaard, M. B., & Davidsen, A. S. (2021). “My private theory is that it’s all in the head”: Understandings of chronic widespread pain among social workers from municipality job centers in Denmark. Health Psychology Open, 8(1), 2055102921995367. https://doi.org/10.1177/2055102921995367
  • Scoles, B., & Nicodemo, C. (2022). Doctors’ attitudes toward specific medical conditions. Journal of Economic Behavior & Organization, 204, 182–199. https://doi.org/10.1016/j.jebo.2022.09.023
  • Sommerfelt, K., Schei, T., & Angelsen, A. (2023). Severe and very severe myalgic encephalopathy/chronic fatigue syndrome ME/CFS in Norway: Symptom burden and access to care. Journal of Clinical Medicine, 12(4), 1487. https://doi.org/10.3390/JCM12041487
  • Sundhedsstyrelsen. (2020). Kodning af funktionelle lidelser. Vejledning til sundhedspersonale. Sundhedsstyrelsen. https://www.sst.dk/-/media/Udgivelser/2020/Vejledning-til-anvendelse-af-koder-for-funktionelle-lidelser/Kodning-af-funktionelle-ledelser.ashx?la=da&hash=1F41910DCD675D3CF75D2E208823313F3149589C
  • Thornton, M., & Travis, S. S. (2003). Analysis of the Reliability of the Modified Caregiver Strain Index. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58(2), S127–S132. https://doi.org/10.1093/geronb/58.2.S127
  • Vyas, J., Muirhead, N., Singh, R., Ephgrave, R., & Finlay, A. Y. (2022). Impact of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on the quality of life of people with ME/CFS and their partners and family members: an online cross-sectional survey. BMJ Open, 12(5), e058128. https://doi.org/10.1136/bmjopen-2021-058128
  • Wang, C. L., Shyu, Y. I. L., Wang, J. Y., & Lu, C. H. (2017). Progressive compensatory symbiosis: spouse caregiver experiences of caring for persons with dementia in Taiwan. Aging & Mental Health, 21(3), 241–252. https://doi.org/10.1080/13607863.2015.1081148