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Original Research Papers

Analysing mosaic data by a ‘Wheel of Participation’ to explore physical activities and cycling with children and youth with cerebral palsy

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References

  • Bania T, Dodd KJ and Taylor N. 2011. Habitual physical activity can be increased in people with cerebral palsy: a systematic review. Clinical Rehabilitation, 25, 303–315.
  • Beresford B. 2012. Working on well-being: researchers’ experiences of a participative approach to understanding the subjective well-being of disabled young people. Children and Society, 26, 234–240.
  • Booth T and Booth W. 1996. Sounds of silence: narrative research with inarticulate subjects. Disability and Society, 11, 55–70.
  • Bult MK, Verschuren O, Jongmans MJ, Lindeman E and Ketelaar M. 2011. What influences participation in leisure activities of children and youth with physical disabilities? A systematic review. Research in Developmental Disabilities , 32, 1521–1529.
  • Carpenter J and McConkey R. 2012. Disabled children’s voices: the nature and role of future empirical enquiry. Children and Society, 26, 251–261.
  • Clark A and Moss P. 2001. Listening to young children: the Mosaic approach. London: National Children’s Bureau.
  • Clark A and Moss P. 2011. Listening to young children: the Mosaic approach. 2nd ed. London: National Children’s Bureau.
  • Coffey A and Atkinson P. 1996. Making sense of qualitative data. London: Sage Publications.
  • Colver A. 2006. SPARCLE Group. Study protocol: SPARCLE–a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy. BMC Public Health, 6, 105.
  • Connors C and Stalker K. 2003. The views and experiences of disabled children and their siblings: a positive outlook. London: Jessica Kingsley Publishers.
  • Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI and Parkes J., 2009. Participation in life situations of 8–12 year old children with cerebral palsy: cross sectional European study. BMJ338:b1458.
  • Fowler EG, Kolobe THA, Damiano DL, Thorpe DE, Morgan DW, Brunstrom JE, Coster WJ, Henderson RC, Pitetti KH, Rimmer JH and Stevenson RD. 2007. Promotion of physical fitness and prevention of secondary conditions for children with cerebral palsy: section on pediatrics research summit proceedings; section on pediatrics research summit participants, section on pediatrics research committee task force. Physical Therapy, 87, 1495–1510.
  • Gibson BE, Teachman G, Wright V, Fehlings D, Young NL and McKeever P. 2012. Children’s and parents’ beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy. Child Care Health and Development, 38, 61–69.
  • Levitt S. 2010. Treatment of cerebral palsy and motor delay. 5th ed. Chichester: Wiley Blackwell.
  • McConachie H, Colver AF, Forsyth RJ, Jarvis SN and Parkinson KN. 2006. Participation of disabled children: how should it be characterised and measured? Disability and Rehabilitation, 28, 1157–1164.
  • Miles MB and Huberman MA. 1994. Qualitative data analysis: an expanded sourcebook. 2nd ed. Thousand Oaks, CA: Sage Publications.
  • Minkes J, Robinson C and Weston C. 1994. Consulting the children: interviews with children using residential respite care services. Disability and Society, 9, 47–57.
  • Morris J. 1998. Don’t leave us out: involving disabled children and young people with communication impairments. Joseph Rowntree Foundation.
  • NICE. 2012. NICE Guidelines 2012 Walking and cycling: local measures to promote walking and cycling as forms of travel or recreation. Available at: <www.guidance.nice.org.uk/ph41> [Accessed February 2012]
  • Palisano R, Rosenbaum P, Walter S, Russell D, Wood E and Galuppi B. 1997. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine and Child Neurology, 39, 214–223.
  • Pennington L. 2011. Speech and communication in cerebral palsy. Eastern Journal of Medicine, 17, 171–177.
  • Phelan SK and Kinsella EA. 2014. Occupation and identity: perspectives of children with disabilities and their parents. Journal of Occupational Science, 21, 334–356.
  • Pickering DM, Visser KS, Horrocks LM and Todd GL. 2012. Adapted Bikes- what children and young people with cerebral palsy told us about their participation in adapted dynamic cycling. In: Disability and rehabilitation: assistive technology. Early Online 1–8 © Informa UK, Ltd (26 April 2012).
  • Pickering DM, Horrocks LM, Visser KS and Todd GL. 2013. Every picture tells a story’ interviews and diaries with children with cerebral palsy about adapted cycling. Journal of Paediatrics and Child Health, 49, 1040–1044.
  • Pountney T. 2007. Physiotherapy for children. Philadelphia: Elsevier, Butterworth Heinemann.
  • Reid SM, Carlin JB and Reddihough DS. 2011. Using the gross motor function classification system to describe patterns of motor severity in cerebral palsy. Developmental Medicine and Child Neurology, 53, 1007–1012.
  • Renold E, Holland S, Ross NJ and Hillman A. 2008. Becoming participant: problematising ‘informed consent’ in participatory research with young people in care. Qualitative Social Work, 7, 427–477.
  • Rosenbaum P and Gorter W. 2011. The F-words in childhood disability: I swear this is how we should think! Child Care Health and Development, 38, 457–463.
  • Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, Dan B and Jacobsson B. 2007. A report: the definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology, 109, 8–14.
  • Silverman D. 2006. Interpreting qualitative data. 3rd edn. London: Sage Publications.
  • Stiles WB. 1999. Evaluating qualitative research. Evidence-Based Mental Health, 2, 99–101.
  • Taylor NF, Dodd KJ and Larkin H. 2004. Adults with cerebral palsy benefit from participating in a strength training programme at a community gymnasium. Disability and Rehabiltation, 26, 1128–1134.
  • United Nations Children’s Fund. 2013. The state of the world’s children: children with disabilities. New York: United Nations.
  • UNICEF. 1989. United Nations Convention on the Rights of the Child. New York: United Nations.
  • Varni JW, Burwinkle TM and Sherman SA, Hanna K, Berrin SJ, Malcarne JL and Chambers HG. 2005. Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of children. Developmental Medicine and Child Neurology, 47, 592–597.
  • Visser KS, Horrocks LM, Todd GL and Pickering DM. 2012. Pedal power pilot study: adapted dynamic cycling for children with cerebral palsy. Clinical Rehabilitation, 26, 280.
  • World Health Organisation. 2007. A guide for population-based approaches to increasing levels of physical activity. Available at: <http://www.who.int/dietphysicalactivity/PA-promotionguide-2007>
  • World Health Organisation (ed.). 2001. International classification of functioning, disability and health. Geneva: ICF.
  • World Health Organisation (ICF-CY). 2007. International classification of functioning, disability and health for children and youth. Geneva: World Health Organisation.
  • Young B, Rice H, Dixon-Woods M, Colver AF and Parkinson KN. 2007. Assessing HRQoL in disabled children. Developmental Medicine and Child Neurology, 49, 660–665.
  • Young NL, Williams JI, Yoshida KK and Wright JG. 2000. Measurement properties of the activities scale for kids. Journal of Clinical Epidemiology, 53, 125–137.

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