375
Views
20
CrossRef citations to date
0
Altmetric
Review

Self-care in patients with chronic heart failure

, &
Pages 351-359 | Published online: 09 Jan 2014

References

  • Stewart S, MacIntyre K, Capewell S, McMurray JJ. Heart failure and the aging population: an increasing burden in the 21st century? Heart 89(1), 49–53 (2003).
  • Roger VL, Go AS, Lloyd-Jones DM et al. Executive summary: heart disease and stroke statistics – 2011 update. Circulation 123(4), 459–463 (2011).
  • Ahern RM, Lozano R, Naghavi M, Foreman K, Gakidou E, Murray CJ. Improving the public health utility of global cardiovascular mortality data: the rise of ischemic heart disease. Popul. Health Metr. 9, 8 (2011).
  • McEntee ML, Cuomo LR, Dennison CR. Patient-, provider-, and system-level barriers to heart failure care. J. Cardiovasc. Nurs. 24(4), 290–298 (2009).
  • Dennison CR, McEntee ML, Samuel L et al. Adequate health literacy is associated with higher heart failure knowledge and self-care confidence in hospitalized patients. J. Cardiovasc. Nurs. 26(5), 359–367 (2011).
  • Lindenfeld J, Albert N, Boehmer J et al. HFSA 2010 comprehensive heart failure practice guideline. J. Card. Fail. 16(6), e1 (2010).
  • Riegel B, Lee CS, Dickson VV; Medscape. Self care in patients with chronic heart failure. Nat. Rev. Cardiol. 8(11), 644–654 (2011).
  • Molloy GJ, O’Carroll RE, Witham MD, McMurdo ME. Interventions to enhance adherence to medications in patients with heart failure: a systematic review. Circ. Heart Fail. 5(1), 126–133 (2012).
  • Fonarow GC, Abraham WT, Albert NM et al.; OPTIMIZE-HF Investigators and Hospitals. Association between performance measures and clinical outcomes for patients hospitalized with heart failure. JAMA 297(1), 61–70 (2007).
  • Shahian DM, Nordberg P, Meyer GS et al. Predictors of nonadherence to national hospital quality measures for heart failure and pneumonia. Am. J. Med. 124(7), 636–646 (2011).
  • Berry C, Murdoch DR, McMurray JJ. Economics of chronic heart failure. Eur. J. Heart Fail. 3(3), 283–291 (2001).
  • Marti CN, Georgiopoulou VV, Giamouzis G et al. Patient-reported selective adherence to heart failure self-care recommendations: a prospective cohort study: the Atlanta Cardiomyopathy Consortium. Congest. Heart Fail. 19(1), 16–24 (2013).
  • Krum H, Jelinek MV, Stewart S, Sindone A, Atherton JJ; National Heart Foundation of Australia; Cardiac Society of Australia and New Zealand. 2011 update to National Heart Foundation of Australia and Cardiac Society of Australia and New Zealand Guidelines for the prevention, detection and management of chronic heart failure in Australia, 2006. Med. J. Aust. 194(8), 405–409 (2011).
  • Dickstein K, Vardas PE, Auricchio A et al. 2010 focused update of ESC Guidelines on device therapy in heart failure. Europace 12(11), 1526 (2010).
  • Sochalski J, Jaarsma T, Krumholz HM et al. What works in chronic care management: the case of heart failure. Health Aff. (Millwood) 28(1), 179–189 (2009).
  • Driscoll A, Davidson P, Clark R, Huang N, Aho Z. Tailoring consumer resources to enhance self-care in chronic heart failure. Aust. Crit. Care 22(3), 133–140 (2009).
  • Fitzgerald AA, Powers JD, Ho PM et al. Impact of medication nonadherence on hospitalizations and mortality in heart failure. J. Card. Fail. 17(8), 664–669 (2011).
  • Horowitz CR, Rein SB, Leventhal H. A story of maladies, misconceptions and mishaps: effective management of heart failure. Soc. Sci. Med. 58(3), 631–643 (2004).
  • Wong CY, Chaudhry SI, Desai MM, Krumholz HM. Trends in comorbidity, disability, and polypharmacy in heart failure. Am. J. Med. 124(2), 136–143 (2011).
  • Heidenreich PA, Hernandez AF, Yancy CW, Liang L, Peterson ED, Fonarow GC. Get With The Guidelines program participation, process of care, and outcome for Medicare patients hospitalized with heart failure. Circ. Cardiovasc. Qual. Outcomes 5(1), 37–43 (2012).
  • Wu JR, Moser DK, Chung ML, Lennie TA. Predictors of medication adherence using a multidimensional adherence model in patients with heart failure. J. Card. Fail. 14(7), 603–614 (2008).
  • WHO. Adherence to Long Term Therapies: Evidence for Action. WHO, Geneva, Switzerland (2003).
  • Clark AM, Davidson P, Currie K, Karimi M, Duncan AS, Thompson DR. Understanding and promoting effective self-care during heart failure. Curr. Treat. Options Cardiovasc. Med. 12(1), 1–9 (2010).
  • Lorig KR, Sobel DS, Ritter PL, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff. Clin. Pract. 4(6), 256–262 (2001).
  • Riegel B, Dickson VV. A situation-specific theory of heart failure self-care. J. Cardiovasc. Nurs. 23(3), 190–196 (2008).
  • Riegel B, Lee CS, Dickson VV, Carlson B. An update on the self-care of heart failure index. J. Cardiovasc. Nurs. 24(6), 485–497 (2009).
  • Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ 335(7609), 24–27 (2007).
  • Leykum LK, Parchman M, Pugh J, Lawrence V, Noël PH, McDaniel RR Jr. The importance of organizational characteristics for improving outcomes in patients with chronic disease: a systematic review of congestive heart failure. Implement. Sci. 5, 66 (2010).
  • Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. J. Am. Med. Assoc. 288(15), 1909 (2002).
  • Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff. (Millwood) 20(6), 64–78 (2001).
  • Coleman K, Austin BT, Brach C, Wagner EH. Evidence on the Chronic Care Model in the new millennium. Health Aff. (Millwood) 28(1), 75–85 (2009).
  • Moser DK, Dickson V, Jaarsma T, Lee C, Stromberg A, Riegel B. Role of self-care in the patient with heart failure. Curr. Cardiol. Rep. 14(3), 265–275 (2012).
  • Jaarsmaa T, Strömbergb A, Mårtensson J, Dracup K. Development and testing of the European Heart Failure Self-Care Behaviour Scale. Eur. J. Heart. Fail. 5, 363–370 (2003).
  • Lainscak M, Blue L, Clark AL et al. Self-care management of heart failure: practical recommendations from the Patient Care Committee of the Heart Failure Association of the European Society of Cardiology. Eur. J. Heart Fail. 13(2), 115–126 (2011).
  • Lee CS, Moser DK, Lennie TA, Riegel B. Event-free survival in adults with heart failure who engage in self-care management. Heart Lung 40(1), 12–20 (2011).
  • Cameron J, Worrall-Carter L, Page K, Riegel B, Lo SK, Stewart S. Does cognitive impairment predict poor self-care in patients with heart failure? Eur. J. Heart Fail. 12(5), 508–515 (2010).
  • Peterson PN, Shetterly SM, Clarke CL et al. Health literacy and outcomes among patients with heart failure. JAMA 305(16), 1695–1701 (2011).
  • Evangelista LS, Rasmusson KD, Laramee AS et al. Health literacy and the patient with heart failure – implications for patient care and research: a consensus statement of the Heart Failure Society of America. J. Card. Fail. 16(1), 9–16 (2010).
  • Riegel B, Carlson B. Facilitators and barriers to heart failure self-care. Patient Educ. Couns. 46(4), 287–295 (2002).
  • Rozzini R, Sabatini T, Trabucchi M. Cognitive impairment and mortality in elderly patients with heart failure. Am. J. Med. 116(2), 137–138; author reply 138 (2004).
  • Boyde M, Turner C, Thompson DR, Stewart S. Educational interventions for patients with heart failure: a systematic review of randomized controlled trials. J. Cardiovasc. Nurs. 26(4), E27–E35 (2011).
  • Evangelista L, Doering LV, Dracup K, Westlake C, Hamilton M, Fonarow GC. Compliance behaviors of elderly patients with advanced heart failure. J. Cardiovasc. Nurs. 18(3), 197–206; quiz 207 (2003).
  • Molloy GJ, Johnston DW, Gao C et al. Effects of an exercise intervention for older heart failure patients on caregiver burden and emotional distress. Eur. J. Cardiovasc. Prev. Rehabil. 13(3), 381–387 (2006).
  • Clark AM, Savard LA, Thompson DR. What is the strength of evidence for heart failure disease-management programs? J. Am. Coll. Cardiol. 54(5), 397–401 (2009).
  • Clark AM, Thompson DR. What heart failure programme works best? Wrong question, wrong assumptions. Eur. J. Heart Fail. 12(12), 1271–1273 (2010).
  • Evangelista LS, Shinnick MA. What do we know about adherence and self-care? J. Cardiovasc. Nurs. 23(3), 250–257 (2008).
  • Riegel B. Foreword: self-care of heart failure: what is the state of the science? J. Cardiovasc. Nurs. 23(3), 187–189 (2008).
  • Forman DE, Rich MW, Alexander KP et al. Cardiac care for older adults. Time for a new paradigm. J. Am. Coll. Cardiol. 57(18), 1801–1810 (2011).
  • Riegel B, Moser DK, Anker SD et al.; American Heart Association Council on Cardiovascular Nursing; American Heart Association Council on Cardiovascular Nursing; American Heart Association Council on Clinical Cardiology; American Heart Association Council on Nutrition, Physical Activity, and Metabolism; American Heart Association Interdisciplinary Council on Quality of Care and Outcomes Research. State of the science: promoting self-care in persons with heart failure: a scientific statement from the American Heart Association. Circulation 120(12), 1141–1163 (2009).
  • Patel H, Shafazand M, Schaufelberger M, Ekman I. Reasons for seeking acute care in chronic heart failure. Eur. J. Heart Fail. 9(6-7), 702–708 (2007).
  • Dickson VA, Tkas N, Riegel B. Cognitive influences on self-care decision making in persons with heart failure. Am. Heart J. 154(3), 424–431 (2008).
  • Dickson VV, Deatrick JA, Riegel B. A typology of heart failure self-care management in non-elders. Eur. J. Cardiovasc. Nurs. 7(3), 171–181 (2008).
  • Molloy GJ, Johnston DW, Witham MD. Family caregiving and congestive heart failure. Review and analysis. Eur. J. Heart Fail. 7(4), 592–603 (2005).
  • Riegel B, Lee CS, Albert N et al. From novice to expert: confidence and activity status determine heart failure self-care performance. Nurs. Res. 60(2), 132–138 (2011).
  • Riegel B, Carlson B, Moser DK, Sebern M, Hicks FD, Roland V. Psychometric testing of the self-care of heart failure index. J. Card. Fail. 10(4), 350–360 (2004).
  • Jaarsma T, Arestedt KF, Mårtensson J, Dracup K, Strömberg A. The European Heart Failure Self-care Behaviour Scale revised into a nine-item scale (EHFScB-9): a reliable and valid international instrument. Eur. J. Heart Fail. 11(1), 99–105 (2009).
  • Yu DS, Lee DT, Thompson DR, Jaarsma T, Woo J, Leung EM. Psychometric properties of the Chinese version of the European Heart Failure Self-care Behaviour Scale. Int. J. Nurs. Stud. 48(4), 458–467 (2011).
  • Tung HH, Chen SC, Yin WH, Cheng CH, Wang TJ, Wu SF. Self care behavior in patients with heart failure in Taiwan. Eur. J. Cardiovasc. Nurs. 11(2), 175–182 (2012).
  • Ni H, Nauman D, Burgess D, Wise K, Crispell K, Hershberger RE. Factors influencing knowledge of and adherence to self-care among patients with heart failure. Arch. Intern. Med. 159(14), 1613–1619 (1999).
  • Macabasco-O’Connell A, DeWalt DA, Broucksou KA et al. Relationship between literacy, knowledge, self-care behaviors, and heart failure-related quality of life among patients with heart failure. J. Gen. Intern. Med. 26(9), 979–986 (2011).
  • Driscoll A, Worrall-Carter L, Stewart S. Rationale and design of the National Benchmarking and Evidence-based National Clinical Guidelines for Chronic Heart Failure Management Programs Study. J. Cardiovasc. Nurs. 21(4), 276–282 (2006).
  • Du HY, Newton PJ, Zecchin R et al. An intervention to promote physical activity and self-management in people with stable chronic heart failure The Home-Heart-Walk study: study protocol for a randomized controlled trial. Trials 12, 63 (2011).
  • Inglis SC, Clark RA, McAlister FA, Stewart S, Cleland JG. Which components of heart failure programmes are effective? A systematic review and meta-analysis of the outcomes of structured telephone support or telemonitoring as the primary component of chronic heart failure management in 8323 patients: Abridged Cochrane Review. Eur. J. Heart Fail. 13(9), 1028–1040 (2011).
  • Driscoll A, Tonkin A, Stewart A et al. Development of an evidence-based scoring system (HF-IS) to assess the quality of heart failure programmes for patients postdischarge from hospital. J. Clin. Nurs. 20(21–22), 3011–3019 (2011).
  • Gruman J, Rovner MH, French ME et al. From patient education to patient engagement: implications for the field of patient education. Patient Educ. Couns. 78(3), 350–356 (2010).
  • Davidson P, Macdonald P, Paull G et al. Diuretic therapy in chronic heart failure: implications for heart failure nurse specialists. Aust. Crit. Care 16(2), 59–69 (2003).
  • Kirwan TC. Patient-centered care means better health care. Arch. Intern. Med. 171(5), 474–475; author reply 476 (2011).
  • Epstein RM, Street RL Jr. The values and value of patient-centered care. Ann. Fam. Med. 9(2), 100–103 (2011).
  • Zoffmann V, Harder I, Kirkevold M. A person-centered communication and reflection model: sharing decision-making in chronic care. Qual. Health Res. 18(5), 670–685 (2008).
  • Clark AM, Reid ME, Morrison CE, Capewell S, Murdoch DL, McMurray JJ. The complex nature of informal care in home-based heart failure management. J. Adv. Nurs. 61(4), 373–383 (2008).
  • Clark AM, Freydberg CN, McAlister FA, Tsuyuki RT, Armstrong PW, Strain LA. Patient and informal caregivers’ knowledge of heart failure: necessary but insufficient for effective self-care. Eur. J. Heart Fail. 11(6), 617–621 (2009).
  • Sanford J, Townsend-Rocchicciolli J, Horigan A, Hall P. A process of decision making by caregivers of family members with heart failure. Res. Theory Nurs. Pract. 25(1), 55–70 (2011).
  • Foraker RE, Rose KM, Suchindran CM, Chang PP, Mcneill AM, Rosamond WD. Socioeconomic status, Medicaid coverage, clinical comorbidity, and rehospitalization or death after an incident heart failure hospitalization. Circ. Heart Fail. 4(3), 308–316 (2011).
  • Baker DW, DeWalt DA, Schillinger D et al. ‘Teach to goal’: theory and design principles of an intervention to improve heart failure self-management skills of patients with low health literacy. J. Health Commun. 16(Suppl. 3), 73–88 (2011).
  • Gharacholou SM, Hellkamp AS, Hernandez AF et al. Use and predictors of heart failure disease management referral in patients hospitalized with heart failure: insights from the Get With the Guidelines Program. J. Card. Fail. 17(5), 431–439 (2011).
  • Ghali JK. Sex, race and ethnicity: providing quality care for elderly patients hospitalized with heart failure. Aging Health 5(2), 171–176 (2009).
  • McNaughton CD, Collins SP, Kripalani S et al. Low numeracy is associated with increased odds of 30-day emergency department or hospital recidivism for patients with acute heart failure. Circ. Heart Fail. 6(1), 40–46 (2013).
  • Alehagen U, Ericsson A, Dahlström U. Are there any significant differences between females and males in the management of heart failure? Gender aspects of an elderly population with symptoms associated with heart failure. J. Card. Fail. 15(6), 501–507 (2009).
  • Heo S, Moser DK, Lennie TA, Riegel B, Chung ML. Gender differences in and factors related to self-care behaviors: a cross-sectional, correlational study of patients with heart failure. Int. J. Nurs. Stud. 45(12), 1807–1815 (2008).
  • Lee CS, Riegel B, Driscoll A et al. Gender differences in heart failure self-care: a multinational cross-sectional study. Int. J. Nurs. Stud. 46(11), 1485–1495 (2009).
  • Ng AC, Wong HS, Yong AS, Sindone AP. Impact of gender on outcomes in chronic systolic heart failure. Int. J. Cardiol. 117(2), 214–221 (2007).
  • Davidson PM, Macdonald P, Moser DK et al. Cultural diversity in heart failure management: findings from the DISCOVER study (part 2). Contemp. Nurse 25(1–2), 50–61 (2007).
  • Tierney S, Mamas M, Woods S et al. What strategies are effective for exercise adherence in heart failure? A systematic review of controlled studies. Heart Fail. Rev. 17(1), 107–115 (2012).
  • Cartwright M, Ciere Y, Newman S. Telehealth for heart failure: exploring the mechanism of effect – a systematic review of self-care behaviour. Presented at: The King’s Fund International Congress on Telehealth and Telecare, London, UK, 1–3 March 2011.
  • Radhakrishnan K, Jacelon C. Impact of telehealth on patient self-management of heart failure: a review of literature. J. Cardiovasc. Nurs. 27(1), 33–43 (2012).

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.