Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives

References

• Global Strategy for the Diagnosis, Management and Prevention of COPDGlobal Initiative for Chronic Obstructive Lung Disease (GOLD)2017 Available from: https://goldcopd.org/gold-reports-2017/Accessed September 01, 2018
   Google Scholar
• BettoncelliGBlasiFBrusascoVThe clinical and integrated management of COPD. An official document of AIMAR (Interdisciplinary Association for Research in Lung Disease), AIPO (Italian Association of Hospital Pulmonologists), SIMER (Italian Society of Respiratory Medicine), SIMG (Italian Society of General Medicine)Multidiscip Respir Med2014912525057359
   PubMedGoogle Scholar
• SinDDAnthonisenNRSorianoJBAgustiAGMortality in COPD: role of comorbiditiesEur Respir J20062861245125717138679
   PubMed Web of Science ®Google Scholar
• CazzolaMPuxedduEBettoncelliGThe prevalence of asthma and COPD in Italy: a practice-based studyRespir Med2011105338639120951017
   PubMed Web of Science ®Google Scholar
• RocheaNPerezTNeukirchFHigh prevalence of COPD symptoms in the general population contrasting with low awareness of the diseaseRevue des Maladies Respiratoires2008287e58e65
   Google Scholar
• PauwelsRARabeKFBurden and clinical features of chronic obstructive pulmonary disease (COPD)Lancet2004364943461362015313363
   PubMed Web of Science ®Google Scholar
• SanduzziABalboPCandoliPCOPD: adherence to therapyMultidiscip Respir Med2014916025485108
   PubMedGoogle Scholar
• LynaPMcBrideCSamsaGPollakKIExploring the association between perceived risks of smoking and benefits to quitting: who does not see the link?Addict Behav200227229330711817769
   PubMed Web of Science ®Google Scholar
• EisnerMDAnthonisenNCoultasDCommittee on Nonsmoking COPD, Environmental and Occupational Health AssemblyAn official American Thoracic Society public policy statement: novel risk factors and the global burden of chronic obstructive pulmonary diseaseAm J Respir Crit Care Med2010182569371820802169
   PubMed Web of Science ®Google Scholar
• ZhongNWangCYaoWPrevalence of chronic obstructive pulmonary disease in China: a large, population-based surveyAm J Respir Crit Care Med2007176875376017575095
   PubMed Web of Science ®Google Scholar
• StollerJKAboussouanLSAlpha1-antitrypsin deficiencyLancet200536594782225223615978931
   PubMed Web of Science ®Google Scholar
• ManninoDMBuistASGlobal burden of COPD: risk factors, prevalence, and future trendsLancet2007370958976577317765526
   PubMed Web of Science ®Google Scholar
• BourbeauJBartlettSJPatient adherence in COPDThorax200863983183818728206
   PubMed Web of Science ®Google Scholar
• ÁghTInotaiAMészárosÁFactors associated with medication adherence in patients with chronic obstructive pulmonary diseaseRespiration201182432833421454953
   PubMed Web of Science ®Google Scholar
• BlasiFRaddiFMiravitllesMInteractive monitoring service and COPD: is it possible to reduce nonadherence?J Chron Obstruct Pulmon Dis2015123227233
   Web of Science ®Google Scholar
• López-CamposJLTanWSorianoJBGlobal burden of COPDRespirology2016211142326494423
   PubMed Web of Science ®Google Scholar
• HarbNFosterJMDoblerCCPatient-perceived treatment burden of chronic obstructive pulmonary diseaseInt J Chron Obstruct Pulmon Dis2017121641165228615937
   PubMed Web of Science ®Google Scholar
• MiravitllesMPeña-LongobardoLMOliva-MorenoJHidalgo-VegaÁCaregivers’ burden in patients with COPDInt J Chron Obstruct Pulmon Dis20151034735625709429
   PubMed Web of Science ®Google Scholar
• GreenhalghTCultural contexts of health: the use of narrative research in the health sectorCopenhagenWHO Regional Office for Europe; 2016Health Evidence Network Synthesis Report49 Available from: https://www.ncbi.nlm.nih.gov/books/NBK391066/Accessed September 01, 2018
   Google Scholar
• CharonRAt the membranes of care: stories in narrative medicineAcad Med201287334234722373630
   PubMed Web of Science ®Google Scholar
• GreenhalghTHurwitzBWhy study narrative?GreenhalghTHurwitzBNarrative Based Medicine: Dialogue and Discourse in Clinical PracticeLondon, UKBMJ Books1998316
   Google Scholar
• LeesCMeasuring the patient experienceNurse Res2011191252822128584
   PubMedGoogle Scholar
• MariniMGRealeLCappuccioANarrative medicine to highlight values of Italian pain therapists in a changing healthcare systemPain Manag20144535136225350075
   PubMedGoogle Scholar
• MariniMGNarrative MedicineMilano, ItalySpringer2016
   Google Scholar
• Personal data code protection Law 196Ital J2003174 Section 123
   Google Scholar
• MariniMGRealeLCappuccioANarrative medicine to highlight values of Italian pain therapists in a changing healthcare systemPain Manag20144535136225350075
   PubMedGoogle Scholar
• HurwitzBGreenhalghTSkultansVNarrative Research in Health and IllnessLondon, UKBritish Medical Association2004
   Google Scholar
• GlaserBGStraussALStrutzelEThe Discovery of grounded theory: strategies for qualitative researchNurs Res1968174364
   Web of Science ®Google Scholar
• DuqueRLReview: Catherine Kohler Riessman (2008). Narrative methods for the human sciencesCA,USASAGE publications2010111244
   Google Scholar
• KleinmanAThe Illness Narrative, Suffering, Healing and the Human ConditionNew YorkBasic Book1989
   Google Scholar
• LaunerJNew Stories for Old: narrative-based primary care in Great BritainFamilies, Systems and Health2006243336344
   Google Scholar
• HanneMDiagnosis and metaphorPerspect Biol Med2015581355226657680
   PubMed Web of Science ®Google Scholar
• WillemseBWPostmaDSTimensWten HackenNHThe impact of smoking cessation on respiratory symptoms, lung function, airway hyperresponsiveness and inflammationEur Respir J200423346447615065840
   PubMed Web of Science ®Google Scholar
• UndernerMPerriotJPeifferGSevrage tabagique du fumeur atteint de bronchopneumopathie chronique obstructive. [Smoking cessation in smokers with chronic obstructive pulmonary disease]Rev Mal Respir20143110937960 French25496790
   PubMed Web of Science ®Google Scholar
• SteinerJFEarnestMAThe language of medication-takingAnn Intern Med20001321192693010836931
   PubMed Web of Science ®Google Scholar
• CelliBBlasiFGagaMA Perception of symptoms and quality of life – comparison of patients’ and physicians’ views in the COPD MIRROR studyInt J Chron Obstruct Pulmon Dis2017122189219628794623
   PubMed Web of Science ®Google Scholar
• NakkenNJanssenDJAvan den BogaartEHAInformal caregivers of patients with COPD: home sweet home?Eur Respir Rev20152413749850426324811
   PubMed Web of Science ®Google Scholar
• RzadkiewiczMBråtasOEspnesGAWhat else should we know about experiencing COPD? A narrative review in search of patients’ psychological burden alleviationInt J Chron Obstruct Pulmon Dis2016112295230427695316
   PubMed Web of Science ®Google Scholar
• HynninenKMBreitveMHWiborgABPallesenSNordhusIHPsychological characteristics of patients with chronic obstructive pulmonary disease: a reviewJ Psychosom Res200559642944316310027
   PubMed Web of Science ®Google Scholar
• GüellRResquetiVSangenisMImpact of pulmonary rehabilitation on psychosocial morbidity in patients with severe COPDChest2006129489990416608936
   PubMed Web of Science ®Google Scholar
• CsikeszNGGartmanEJNew developments in the assessment of COPD: early diagnosis is keyInt J Chron Obstruct Pulmon Dis2014927728624600220
   PubMed Web of Science ®Google Scholar
• DrummondMBHanselNNConnettJEScanlonPDTashkinDPWiseRASpirometric predictors of lung function decline and mortality in early chronic obstructive pulmonary diseaseAm J Respir Crit Care Med2012185121301130622561963
   PubMed Web of Science ®Google Scholar
• TantucciCModinaDLung function decline in COPDInt J Chron Obstruct Pulmon Dis20127959922371650
   PubMed Web of Science ®Google Scholar
• BorrillZLHoughtonCMTal-SingerRThe use of plethysmography and oscillometry to compare long-acting bronchodilators in patients with COPDBr J Clin Pharmacol200865224425218251761
   PubMed Web of Science ®Google Scholar
• CappuccioALimontaTParodiALiving with chronic spontaneous urticaria: a project of narrative medicine for improving the pathway of careActa Derm Venereol2017971818527275626
   PubMed Web of Science ®Google Scholar
• PalandriFBenevoloGIurloALife for patients with myelofibrosis: the physical, emotional and financial impact, collected using narrative medicine-Results from the Italian ‘Back to Life’ projectQual Life Res20182761545155429520559
   PubMed Web of Science ®Google Scholar
• Storie luminoseEsperienze di straordinaria quotidianità nei racconti delle persone che vivono con la sclerosi multipla, 24 Ore Cultura. [Bright stories. Experiences of extraordinary daily life in the stories of people living with multiple sclerosis, 24 hours Culture]2015 Italian
   Google Scholar
• BadrHFedermanADWolfMRevensonTAWisniveskyJPDepression in individuals with chronic obstructive pulmonary disease and their informal caregiversAging Ment Health201721997598227212642
   PubMed Web of Science ®Google Scholar
• BryantJMansfieldEBoyesAWWallerASanson-FisherRReganTInvolvement of informal caregivers in supporting patients with COPD: a review of intervention studiesInt J Chron Obstruct Pulmon Dis2016111587159627478372
   PubMed Web of Science ®Google Scholar
• AgustìAFanerRCOPD beyond smoking: new paradigm, novel opportunitiesLancet Respir Med20186532432629496484
   PubMed Web of Science ®Google Scholar
• ThibodeauPHBoroditskyLMetaphors we think with: the role of metaphor in reasoningPLoS One201162e1678221373643
   PubMed Web of Science ®Google Scholar