“You Leave There Feeling Part of Something”: A Qualitative Study of Hospitalized COPD Patients’ Perceptions of Pulmonary Rehabilitation

References

• FordES, CroftJB, ManninoDM, WheatonAG, ZhangX, GilesWH. COPD surveillance—United States, 1999–2011. Chest. 2013;144(1):284–305. doi:10.1378/chest.13-080923619732
   PubMed Web of Science ®Google Scholar
• LindenauerPK, DharmarajanK, QinL, LinZ, GershonAS, KrumholzHM. Risk trajectories of readmission and death in the first year after hospitalization for chronic obstructive pulmonary disease. Am J Respir Crit Care Med. 2018;197(8):1009–1017. doi:10.1164/rccm.201709-1852OC29206052
   PubMed Web of Science ®Google Scholar
• PuhanMA, Gimeno-SantosE, CatesCJ, TroostersT. Pulmonary rehabilitation following exacerbations of chronic obstructive pulmonary disease In: The Cochrane Collaboration, editor. Cochrane Database of Systematic Reviews. Chichester, UK: John Wiley & Sons, Ltd; 2016. doi:10.1002/14651858.CD005305.pub4.
   Google Scholar
• MooreE, PalmerT, NewsonR, MajeedA, QuintJK, SoljakMA. Pulmonary rehabilitation as a mechanism to reduce hospitalizations for acute exacerbations of COPD. Chest. 2016;150(4):837–859. doi:10.1016/j.chest.2016.05.03827497743
   PubMed Web of Science ®Google Scholar
• WedzichaJA, MiravitllesM, HurstJR, et al. Management of COPD exacerbations: a European respiratory society/American thoracic society guideline. Eur Respir J. 2017;49:3. doi:10.1183/13993003.00791-2016
   Web of Science ®Google Scholar
• NishiSPE, ZhangW, KuoY-F, SharmaG. Pulmonary rehabilitation utilization in older adults with chronic obstructive pulmonary disease, 2003 to 2012. J Cardiopulm Rehabil Prev. 2016;36(5):375–382. doi:10.1097/HCR.000000000000019427428819
   PubMed Web of Science ®Google Scholar
• Vercammen-GrandjeanC, SchopferDW, ZhangN, WhooleyMA. Participation in pulmonary rehabilitation by veterans health administration and medicare beneficiaries after hospitalization for chronic obstructive pulmonary disease. J Cardiopulm Rehabil Prev. 2018. doi:10.1097/HCR.0000000000000357
   PubMed Web of Science ®Google Scholar
• SpitzerKA, StefanMS, PriyaA, et al. Participation in pulmonary rehabilitation following hospitalization for COPD among medicare beneficiaries. Ann Am Thorac Soc. 2018. doi:10.1513/AnnalsATS.201805-332OC
   Web of Science ®Google Scholar
• DislerRT, GreenA, LuckettT, et al. Experience of advanced chronic obstructive pulmonary disease: metasynthesis of qualitative research. J Pain Symptom Manag. 2014;48(6):1182–1199. doi:10.1016/j.jpainsymman.2014.03.009
   PubMed Web of Science ®Google Scholar
• GyselsM, HigginsonIJ. Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. J Pain Symptom Manag. 2008;36(5):451–460. doi:10.1016/j.jpainsymman.2007.11.008
   PubMed Web of Science ®Google Scholar
• HarrisonSL, RobertsonN, AppsL, SteinerMC, MorganMDL, SinghSJ. “We are not worthy” – understanding why patients decline pulmonary rehabilitation following an acute exacerbation of COPD. Disabil Rehabil. 2015;37(9):750–756. doi:10.3109/09638288.2014.93977025009949
   PubMed Web of Science ®Google Scholar
• ClariM, IvzikuD, CasciaroR, MatareseM. The unmet needs of people with chronic obstructive pulmonary disease: a systematic review of qualitative findings. COPD. 2018;15(1):79–88. doi:10.1080/15412555.2017.141737329308932
   PubMedGoogle Scholar
• KeatingA, LeeA, HollandAE. What prevents people with chronic obstructive pulmonary disease from attending pulmonary rehabilitation? A systematic review. Chron Respir Dis. 2011;8(2):89–99. doi:10.1177/1479972310393756.21596892
   PubMed Web of Science ®Google Scholar
• MahlerDA, WellsCK. Evaluation of clinical methods for rating dyspnea. Chest. 1988;93(3):580–586. doi:10.1378/chest.93.3.5803342669
   PubMed Web of Science ®Google Scholar
• HenochI, StrangS, LöfdahlC-G, Ekberg-JanssonA. Health-related quality of life in a nationwide cohort of patients with COPD related to other characteristics. Eur Clin Respir J. 2016;3. doi:10.3402/ecrj.v3.31459.
   PubMedGoogle Scholar
• ChhabraSK, GuptaAK, KhumaMZ. Evaluation of three scales of dyspnea in chronic obstructive pulmonary disease. Ann Thorac Med. 2009;4(3):128–132. doi:10.4103/1817-1737.5335119641643
   PubMed Web of Science ®Google Scholar
• JonesPW, HardingG, BerryP, WiklundI, ChenW-H, Kline LeidyN. Development and first validation of the COPD assessment test. Eur Respir J. 2009;34(3):648–654. doi:10.1183/09031936.0010250919720809
   PubMed Web of Science ®Google Scholar
• HsiehH-F, ShannonSE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288. doi:10.1177/104973230527668716204405
   PubMed Web of Science ®Google Scholar
• BenzoR, WetzsteinM, NeuenfeldtP, McEvoyC. Implementation of physical activity programs after COPD hospitalizations: lessons from a randomized study. Chron Respir Dis. 2014. doi:10.1177/1479972314562208
   PubMed Web of Science ®Google Scholar
• MeisJJM, BosmaCB, SpruitMA, et al. A qualitative assessment of COPD patients’ experiences of pulmonary rehabilitation and guidance by healthcare professionals. Respir Med. 2014;108(3):500–510. doi:10.1016/j.rmed.2013.11.00124280544
   PubMed Web of Science ®Google Scholar
• SohanpalR, SealeC, TaylorSJC. Learning to manage COPD: a qualitative study of reasons for attending and not attending a COPD-specific self-management programme. Chron Respir Dis. 2012;9(3):163–174. doi:10.1177/147997231244463022637746
   PubMed Web of Science ®Google Scholar
• CoxNS, CCO, LahhamA, HollandAE. Pulmonary rehabilitation referral and participation are commonly influenced by environment, knowledge, and beliefs about consequences: a systematic review using the theoretical domains framework. J Physiother. 2017;63(2):84–93. doi:10.1016/j.jphys.2017.02.00228433238
   PubMed Web of Science ®Google Scholar
• ThorpeO, KumarS, JohnstonK. Barriers to and enablers of physical activity in patients with COPD following a hospital admission: a qualitative study. Int J Chron Obstruct Pulmon Dis. 2014;9:115–128. doi:10.2147/COPD.S5445724489465
   PubMed Web of Science ®Google Scholar
• HarrisD, HayterM, AllenderS. Improving the uptake of pulmonary rehabilitation in patients with COPD. Br J Gen Pract. 2008;58(555):703–710. doi:10.3399/bjgp08X34236318826782
   PubMed Web of Science ®Google Scholar
• BenzoR, WetzsteinM, NeuenfeldtP, McEvoyC. Implementation of physical activity programs after COPD hospitalizations: lessons from a randomized study. Chron Respir Dis. 2015;12(1):5–10. doi:10.1177/147997231456220825511306
   PubMed Web of Science ®Google Scholar
• Janaudis-FerreiraT, TanseyCM, HarrisonSL, et al. A qualitative study to inform a more acceptable pulmonary rehabilitation program after acute exacerbation of COPD. Ann Am Thorac Soc. 2019. doi:10.1513/AnnalsATS.201812-854OC
   PubMed Web of Science ®Google Scholar
• SahinH, NazI. Why are COPD patients unable to complete the outpatient pulmonary rehabilitation program? Chron Respir Dis. 2018;15(4):411–418. doi:10.1177/147997231876720629673263
   PubMed Web of Science ®Google Scholar
• FischerMJ, ScharlooM, AbbinkJJ, et al. Participation and drop-out in pulmonary rehabilitation: a qualitative analysis of the patient’s perspective. Clin Rehabil. 2007;21(3):212–221. doi:10.1177/026921550607078317329278
   PubMed Web of Science ®Google Scholar