Qualitative Validation of COPD Evidenced Care Pathways in Japan, Canada, England, and Germany: Common Barriers to Optimal COPD Care

References

• World Health Oraganization. The top 10 causes of death; 2021. Available from: https://www.who.int/news-room/fact-sheets/detail/the-top-10-causes-of-death. Accessed October 22.
   Google Scholar
• World Health Organization. Chronic obstructive pulmonary disease (COPD) fact sheet; 2021. https://www.who.int/news-room/fact-sheets/detail/chronic-obstructive-pulmonary-disease-copd. Accessed August 18, 2021.
   Google Scholar
• Global Initiative for Chronic Obstructive Lung Disease. Global Strategy for the Diagnosis, Management, and Prevention of Chronic Obstructive Pulmonary Disease: 2020 Report; 2020.
   Google Scholar
• Hurst JR, Skolnik N, Hansen GJ, et al. Understanding the impact of chronic obstructive pulmonary disease exacerbations on patient health and quality of life. Eur J Intern Med. 2020;73:1–6. doi:10.1016/j.ejim.2019.12.014
   PubMed Web of Science ®Google Scholar
• Adeloye D, Chua S, Lee C, et al. Global and regional estimates of COPD prevalence: systematic review and meta–analysis. J Glob Health. 2015;5(2):020415. doi:10.7189/jogh.05-020415
   PubMed Web of Science ®Google Scholar
• Guarascio AJ, Ray SM, Finch CK, Self TH. The clinical and economic burden of chronic obstructive pulmonary disease in the USA. Clinicoecon Outcomes Res. 2013;5:235–245. doi:10.2147/CEOR.S34321
   PubMedGoogle Scholar
• Nishimura S, Zaher C. Cost impact of COPD in Japan: opportunities and challenges? Respirology. 2004;9(4):466–473. doi:10.1111/j.1440-1843.2004.00617.x
   PubMed Web of Science ®Google Scholar
• Boehm A, Pizzini A, Sonnweber T, et al. Assessing global COPD awareness with Google Trends. Eur Respir J. 2019;53(6):6. doi:10.1183/13993003.00351-2019
   Web of Science ®Google Scholar
• Williams S, Sheikh A, Campbell H, et al. Respiratory research funding is inadequate, inequitable, and a missed opportunity. Lancet Respir Med. 2020;8(8):e67–e68. doi:10.1016/S2213-2600(20)30329-5
   PubMed Web of Science ®Google Scholar
• Kayyali R, Odeh B, Frerichs I, et al. COPD care delivery pathways in five European Union countries: mapping and health care professionals’ perceptions. Int J Chron Obstruct Pulmon Dis. 2016;11:2831–2838. doi:10.2147/COPD.S104136
   PubMed Web of Science ®Google Scholar
• Utens C, Maarse J, Schayck O, Van, Maesen B, Mölken MR, Van, Smeenk F. Care delivery pathways for chronic obstructive pulmonary disease in England and the Netherlands: a comparative study. Int J Integr Care. 2012;12(2). doi:10.5334/ijic.811
   PubMedGoogle Scholar
• Quint JK, O’Leary C, Venerus A, et al. Prescribing pathways to triple therapy: a multi-country, retrospective observational study of adult patients with chronic obstructive pulmonary disease. Pulm Ther. 2020;6(2):333–350. doi:10.1007/s41030-020-00132-7
   PubMedGoogle Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357. doi:10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• O’Donnell DE, Aaron S, Bourbeau J, et al. Canadian Thoracic Society recommendations for management of chronic obstructive pulmonary disease – 2007 update. Mech Meas Manage. 2007;14:28.
   Google Scholar
• National Institute for Health and Care Excellence. Chronic obstructive pulmonary disease in over 16s: diagnosis and management; 2018. Available from: https://www.nice.org.uk/guidance/ng115. Accessed June 10, 2022.
   Google Scholar
• Japanese Respiratory Society. Guidelines for the diagnosis and treatment of COPD (Chronic Obstructive Pulmonary Disease); 2010. Available from: https://www.jrs.or.jp/modules/english/index.php?content_id=15. Accessed June 10, 2022.
   Google Scholar
• Vogelmeier C, Buhl R, Burghuber O, et al. Leitlinie zur Diagnostik und Therapie von Patienten mit chronisch obstruktiver Bronchitis und Lungenemphysem (COPD): herausgegeben von der Deutschen Gesellschaft für Pneumologie und Beatmungsmedizin e. V. und der Deutschen Atemwegsliga e. V., unter Beteiligung der Österreichischen Gesellschaft für Pneumologie. Pneumologie. 2018;72(4):253–308. doi:10.1055/s-0043-125031
   PubMed Web of Science ®Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Null. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• Jones PW, Harding G, Berry P, Wiklund I, Chen WH, Leidy NK. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009;34(3):648–654. doi:10.1183/09031936.00102509
   PubMed Web of Science ®Google Scholar
• Achelrod D, Welte T, Schreyögg J, Stargardt T. Costs and outcomes of the German disease management programme (DMP) for chronic obstructive pulmonary disease (COPD)—A large population-based cohort study. Health Policy. 2016;120(9):1029–1039. doi:10.1016/j.healthpol.2016.08.002
   PubMed Web of Science ®Google Scholar
• Gershon AS, Thiruchelvam D, Chapman KR, et al. Health services burden of undiagnosed and overdiagnosed COPD. CHEST. 2018;153(6):1336–1346. doi:10.1016/j.chest.2018.01.038
   PubMed Web of Science ®Google Scholar
• Johnson KM, Khakban A, Bryan S, Sin DD, Sadatsafavi M. Healthcare system encounters before COPD diagnosis: a registry-based longitudinal cohort study. Thorax. 2020;75(2):108–115. doi:10.1136/thoraxjnl-2019-213554
   PubMed Web of Science ®Google Scholar
• Bourbeau J, Sebaldt RJ, Day A, et al. Practice patterns in the management of chronic obstructive pulmonary disease in primary practice: the CAGE study. Can Respir J. 2008;15(1):13–19. doi:10.1155/2008/173904
   PubMed Web of Science ®Google Scholar
• Ryujin Y, Ogawa E, Nagao T, et al. Behavioral changes in general practitioners towards chronic obstructive pulmonary disease over five years: an observational study. Inter Med. 2015;54(14):1705–1710. doi:10.2169/internalmedicine.54.4170
   PubMed Web of Science ®Google Scholar
• Lutter JI, Lukas M, Schwarzkopf L, et al. Utilization and determinants of use of non-pharmacological interventions in COPD: results of the COSYCONET cohort. Respir Med. 2020;171:106087. doi:10.1016/j.rmed.2020.106087
   PubMed Web of Science ®Google Scholar
• Motegi T, Yamada K, Ishii T, Gemma A, Kida K. Long-term management of chronic obstructive pulmonary disease: a survey of collaboration among physicians involved in pulmonary rehabilitation in Japan. Respir Investig. 2012;50(3):98–103. doi:10.1016/j.resinv.2012.06.004
   PubMedGoogle Scholar
• Hernandez P, Balter MS, Bourbeau J, Chan CK, Marciniuk DD, Walker SL. Canadian practice assessment in chronic obstructive pulmonary disease: respiratory specialist physician perception versus patient reality. Can Respir J. 2013;20(2):97–105. doi:10.1155/2013/369019
   PubMed Web of Science ®Google Scholar
• Hämmerlein A, Müller U, Schulz M. Pharmacist-led intervention study to improve inhalation technique in asthma and COPD patients: improvement of inhalation technique. J Eval Clin Pract. 2011;17(1):61–70. doi:10.1111/j.1365-2753.2010.01369.x
   PubMed Web of Science ®Google Scholar
• Resource impact report: Chronic obstructive pulmonary disease in over 16s: diagnosis and management (update) (NG115). Tools and resources chronic obstructive pulmonary disease in over 16s: diagnosis and management guidance NICE. Available from: https://www.nice.org.uk/guidance/ng115/resources/resource-impact-report-pdf-6602803741. Accessed August 28, 2020.
   Google Scholar
• Canadian Institute for Health Information. Hospital stays in Canada. Available from: https://www.cihi.ca/en/hospital-stays-in-canada. Accessed July 29, 2020.
   Google Scholar
• Lippiett KA, Richardson A, Myall M, Cummings A, May CR. Patients and informal caregivers’ experiences of burden of treatment in lung cancer and chronic obstructive pulmonary disease (COPD): a systematic review and synthesis of qualitative research. BMJ Open. 2019;9(2):e020515. doi:10.1136/bmjopen-2017-020515
   PubMed Web of Science ®Google Scholar
• Camp PG, Hernandez P, Bourbeau J, et al. Pulmonary rehabilitation in Canada: a report from the Canadian thoracic society COPD clinical assembly. Can Respir J. 1900;22:369851. doi:10.1155/2015/369851
   Web of Science ®Google Scholar
• Melani AS, Bonavia M, Cilenti V, et al. Inhaler mishandling remains common in real life and is associated with reduced disease control. Respir Med. 2011;105(6):930–938. doi:10.1016/j.rmed.2011.01.005
   PubMed Web of Science ®Google Scholar
• Bollmeier SG, Hartmann AP. Management of chronic obstructive pulmonary disease: a review focusing on exacerbations. Am J Health Syst Pharm. 2020;77(4):259–268. doi:10.1093/ajhp/zxz306
   PubMed Web of Science ®Google Scholar
• Poot CC, Meijer E, Kruis AL, Smidt N, Chavannes NH, Honkoop PJ. Integrated disease management interventions for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2021;9:CD009437. doi:10.1002/14651858.CD009437.pub3
   PubMed Web of Science ®Google Scholar
• Ferrone M, Masciantonio MG, Malus N, et al. The impact of integrated disease management in high-risk COPD patients in primary care. NPJ Prim Care Respir Med. 2019;29(1):1–9. doi:10.1038/s41533-019-0119-9
   PubMed Web of Science ®Google Scholar
• Sibbald SL, Misra V, daSilva M, Licskai C. A framework to support the progressive implementation of integrated team-based care for the management of COPD: a collective case study. BMC Health Serv Res. 2022;22(1):420. doi:10.1186/s12913-022-07785-x
   PubMed Web of Science ®Google Scholar
• Schmid-Mohler G, Clarenbach C, Brenner G, et al. Advanced nursing practice in COPD exacerbations: the solution for a gap in Switzerland? ERJ Open Res. 2020;6(2):00354–2019. doi:10.1183/23120541.00354-2019
   PubMedGoogle Scholar
• Janjua S, Carter D, Threapleton CJ, Prigmore S, Disler RT. Telehealth interventions: remote monitoring and consultations for people with chronic obstructive pulmonary disease (COPD). Cochrane Database Syst Rev. 2021;(7). doi:10.1002/14651858.CD013196.pub2
   Google Scholar
• Michaelchuk W, Oliveira A, Marzolini S, et al. Design and delivery of home-based telehealth pulmonary rehabilitation programs in COPD: a systematic review and meta-analysis. Int J Med Inform. 2022;162:104754. doi:10.1016/j.ijmedinf.2022.104754
   PubMed Web of Science ®Google Scholar
• Wu F, Burt J, Chowdhury T, et al. Specialty COPD care during COVID-19: patient and clinician perspectives on remote delivery. BMJ Open Respir Res. 2021;8(1):e000817. doi:10.1136/bmjresp-2020-000817
   PubMed Web of Science ®Google Scholar
• Alqahtani JS, Oyelade T, Aldhahir AM, et al. Reduction in hospitalised COPD exacerbations during COVID-19: a systematic review and meta-analysis. PLoS One. 2021;16(8):e0255659. doi:10.1371/journal.pone.0255659
   PubMed Web of Science ®Google Scholar
• Mafham MM, Spata E, Goldacre R, et al. COVID-19 pandemic and admission rates for and management of acute coronary syndromes in England. Lancet. 2020;396(10248):381–389. doi:10.1016/S0140-6736(20)31356-8
   PubMed Web of Science ®Google Scholar
• Kiss P, Carcel C, Hockham C, Peters SAE. The impact of the COVID-19 pandemic on the care and management of patients with acute cardiovascular disease: a systematic review. Eur Heart J Qual Care Clin Outcomes. 2021;7(1):18–27. doi:10.1093/ehjqcco/qcaa084
   PubMed Web of Science ®Google Scholar
• Negewo NA, McDonald VM, Gibson PG. Comorbidity in chronic obstructive pulmonary disease. Respir Investig. 2015;53(6):249–258. doi:10.1016/j.resinv.2015.02.004
   PubMed Web of Science ®Google Scholar
• Westerik JAM, Metting EI, van Boven JFM, Tiersma W, Kocks JWH, Schermer TR. Associations between chronic comorbidity and exacerbation risk in primary care patients with COPD. Respir Res. 2017;18(1):31. doi:10.1186/s12931-017-0512-2
   PubMed Web of Science ®Google Scholar
• Igarashi A, Fukuchi Y, Hirata K, et al. COPD uncovered: a cross-sectional study to assess the socioeconomic burden of COPD in Japan. Int J Chron Obstruct Pulmon Dis. 2018;13:2629–2641. doi:10.2147/COPD.S167476
   PubMed Web of Science ®Google Scholar