Identification and Prognostication of End-of-Life State Using a Japanese Guideline-Based Diagnostic Method: A Diagnostic Accuracy Study

References

• Gill TM, Gahbauer EA, Han L, et al. Trajectories of disability in the last year of life. N Engl J Med. 2010;362(13):1173–1180. doi:10.1056/NEJMoa0909087
   PubMed Web of Science ®Google Scholar
• Brown MA, Sampson EL, Jones L, et al. Prognostic indicators of 6-month mortality in elderly people with advanced dementia, a systematic review. Palliat Med. 2013;27(5):389–400. doi:10.1177/0269216312465649
   PubMed Web of Science ®Google Scholar
• Ten Koppel M, Onwuteaka-Philipsen BD, Pasman HR, et al. Are older long term care residents accurately prognosticated and consequently informed about their prognosis? Results from SHELTER study data in 5 European countries. PLoS One. 2018;13(7):e0200590. doi:10.1371/journal.pone.0200590
   PubMed Web of Science ®Google Scholar
• Erel M, Marcus EL, Dekeyser-Ganz F. Barriers to palliative care for advanced dementia, a scoping review. Ann Palliat Med. 2017;6(4):365–379. doi:10.21037/apm.2017.06.13
   PubMed Web of Science ®Google Scholar
• Makino J, Fujitani S, Twohig B, Krasnica S, Oropello J. End-of-life considerations in the ICU in Japan, ethical and legal perspectives. J Intensive Care. 2014;2(1):9. doi:10.1186/2052-0492-2-9
   PubMedGoogle Scholar
• Ministry of Health Labour and Welfare of Japan. Guidelines for the decision-making process of end-of-life care. Available from: https://www.mhlw.go.jp/shingi/2007/05/s0521-11.html. Accessed October 8, 2022.
   Google Scholar
• Ministry of Health Labour and Welfare of Japan. Guidelines on the decision-making process of medical care in the final stage of life. Available from: https://www.mhlw.go.jp/stf/houdou/0000197665.html. Accessed October 8, 2022.
   Google Scholar
• Ouchi Y, Toba K, Ohta K, et al. Guidelines from the Japan geriatrics society for the decision-making processes in medical and long-term care for the elderly, focusing on the use of artificial hydration and nutrition. Geriatr Gerontol Int. 2018;18(6):823–827. doi:10.1111/ggi.13441
   PubMed Web of Science ®Google Scholar
• Japan Medical Association. Guidelines on End-of-Life Care. Japan Med Assoc J. 2008;51(3):143–148.
   Google Scholar
• The National Hospice Organization. Medical guidelines for determining prognosis in selected non-cancer diseases. Hosp J. 1996;11(2):47–63. doi:10.1080/0742-969X.1996.11882820
   PubMedGoogle Scholar
• Monacelli F, Tafuro M, Molfetta L, et al. Evaluation of prognostic indices in elderly hospitalized patients. Geriatr Gerontol Int. 2017;17(6):1015–1021. doi:10.1111/ggi.12801
   PubMed Web of Science ®Google Scholar
• Sugiyama M, Takada K, Shinde M, et al. National survey of the prevalence of swallowing difficulty and tube feeding use as well as implementation of swallowing evaluation in long-term care settings in Japan. Geriatr Gerontol Int. 2014;14(3):577–581. doi:10.1111/ggi.12137
   PubMed Web of Science ®Google Scholar
• The Ministry of Education, Culture, Sports, Science and Technology. Ethical guidelines for medical and biological research involving human subjects. Available from: https://www.lifescience.mext.go.jp/bioethics/seimeikagaku_igaku.html. Accessed October 8, 2022.
   Google Scholar
• Bossuyt PM, Reitsma JB, Bruns DE, et al. STARD 2015, an updated list of essential items for reporting diagnostic accuracy studies. BMJ. 2015;351:h5527. doi:10.1136/bmj.h5527
   PubMed Web of Science ®Google Scholar
• Lunney JR, Lynn J, Hogan C. Profiles of older medicare decedents. J Am Geriatr Soc. 2002;50(6):1108–1112. doi:10.1046/j.1532-5415.2002.50268.x
   PubMed Web of Science ®Google Scholar
• Charlson ME, Pompei P, Ales KL, et al. A new method of classifying prognostic comorbidity in longitudinal studies, development and validation. J Chronic Dis. 1987;40(5):373–383. doi:10.1016/0021-9681(87)90171-8
   PubMedGoogle Scholar
• Anderson F, Downing GM, Hill J, et al. Palliative performance scale (PPS), a new tool. J Palliat Care. 1996;12(1):5–11. doi:10.1177/082585979601200102
   PubMed Web of Science ®Google Scholar
• Mitchell SL, Miller SC, Teno JM, et al. Prediction of 6-month survival of nursing home residents with advanced dementia using ADEPT vs hospice eligibility guidelines. JAMA. 2010;304(17):1929–1935. doi:10.1001/jama.2010.1572
   PubMed Web of Science ®Google Scholar
• Glas AS, Lijmer JG, Prins MH, et al. The diagnostic odds ratio, a single indicator of test performance. J Clin Epidemiol. 2003;56(11):1129–1135. doi:10.1016/S0895-4356(03)00177-X
   PubMed Web of Science ®Google Scholar
• Trajman A, Luiz RR. McNemar chi2 test revisited, comparing sensitivity and specificity of diagnostic examinations. Scand J Clin Lab Investig. 2008;68(1):77–80. doi:10.1080/00365510701666031
   PubMed Web of Science ®Google Scholar
• Kanda Y. Investigation of the freely-available easy-to-use software ‘EZR’ (easy R) for medical statistics. Bone Marrow Transplant. 2013;48(3):452–458. doi:10.1038/bmt.2012.244
   PubMed Web of Science ®Google Scholar
• Hui D, Nooruddin Z, Didwaniya N, et al. Concepts and definitions for “actively dying,” “end of life,” “terminally ill,” “terminal care,” and “transition of care”, a systematic review. J Pain Symptom Manage. 2014;47(1):77–89. doi:10.1016/j.jpainsymman.2013.02.021
   PubMed Web of Science ®Google Scholar
• Anzai T, Sato T, Fukumoto Y, et al. JCS/JHFS 2021 statement on palliative care in cardiovascular diseases. Circ J. 2021;85(5):695–757. doi:10.1253/circj.CJ-20-1127
   PubMed Web of Science ®Google Scholar
• Mitchell SL, Teno JM, Kiely DK, et al. The clinical course of advanced dementia. N Engl J Med. 2009;361(16):1529–1538. doi:10.1056/NEJMoa0902234
   PubMed Web of Science ®Google Scholar
• Kawakami Y, Hamano J. Changes in body mass index, energy intake, and fluid intake over 60 months premortem as prognostic factors in frail elderly, A post-death longitudinal study. Int J Environ Res Public Health. 2020;17(6):1823. doi:10.3390/ijerph17061823
   PubMed Web of Science ®Google Scholar
• Arahata M, Oura M, Tomiyama Y, et al. A comprehensive intervention following the clinical pathway of eating and swallowing disorder in the elderly with dementia, historically controlled study. BMC Geriatr. 2017;17(1):146. doi:10.1186/s12877-017-0531-3
   PubMedGoogle Scholar
• Parikh RB, Manz C, Chivers C, et al. Machine learning approaches to predict 6-month mortality among patients with cancer. JAMA Netw Open. 2019;2(10):e1915997. doi:10.1001/jamanetworkopen.2019.15997
   PubMed Web of Science ®Google Scholar
• Seow H, Tanuseputro P, Barbera L, et al. Development and validation of a prognostic survival model with patient-reported outcomes for patients with cancer. JAMA Netw Open. 2020;3(4):e201768. doi:10.1001/jamanetworkopen.2020.1768
   PubMed Web of Science ®Google Scholar
• Armstrong MJ, Alliance S, Corsentino P, et al. Cause of death and end-of-life experiences in individuals with dementia with Lewy bodies. J Am Geriatr Soc. 2019;67(1):67–73. doi:10.1111/jgs.15608
   PubMed Web of Science ®Google Scholar
• Browne B, Kupeli N, Moore KJ, et al. Defining end of life in dementia, A systematic review. Palliat Med. 2021;35(10):1733–1746. doi:10.1177/02692163211025457
   PubMed Web of Science ®Google Scholar
• Smith EE, Ismail Z. Mortality risk models for persons with dementia, A systematic review. J Alzheimers Dis. 2021;80(1):103–111. doi:10.3233/JAD-201364
   PubMed Web of Science ®Google Scholar
• Baik D, Russell D, Jordan L, et al. Using the Palliative Performance scale to estimate survival for patients at the end of life, A systematic review of the literature. J Palliat Med. 2018;21(11):1651–1661. doi:10.1089/jpm.2018.0141
   PubMed Web of Science ®Google Scholar
• Highet G, Crawford D, Murray SA, et al. Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT), a mixed-methods study. BMJ Support Palliat Care. 2014;4(3):285–290. doi:10.1136/bmjspcare-2013-000488
   PubMedGoogle Scholar
• Loizeau AJ, Shaffer ML, Habtemarian DA, et al. Association of prognostic estimates with burdensome interventions in nursing home residents with advanced dementia. JAMA Intern Med. 2018;178(7):922–929. doi:10.1001/jamainternmed.2018.1413
   PubMed Web of Science ®Google Scholar
• Jimenez G, Tan WS, Virk AK, et al. Overview of systematic reviews of advance care planning, summary of evidence and global lessons. J Pain Symptom Manage. 2018;56(3):436–59.e25. doi:10.1016/j.jpainsymman.2018.05.016
   PubMed Web of Science ®Google Scholar
• Malhotra C, Sim D, Jaufeerally FR, et al. Impact of a formal advance care planning program on end-of-life care for patients with heart failure, results from a randomized controlled trial. J Card Fail. 2020;26(7):594–598. doi:10.1016/j.cardfail.2020.01.015
   PubMed Web of Science ®Google Scholar