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ORIGINAL RESEARCH

The Experience of Relatives of Nursing Home Residents with COVID-19: A Qualitative Study

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Pages 17-27 | Published online: 18 Jan 2022

References

  • The Norwegian government. News from Norwegian Ministries about the Coronavirus disease Covid-19; 2020. Available from: https://www.regjeringen.no/no/tema/Koronasituasjonen/tidslinje-koronaviruset/id2692402/. Accessed April 20, 2021.
  • Hewitt J, Carter B, Vilches-Moraga A, et al. The effect of frailty on survival in patients with COVID-19 (COPE): a multicentre, European, observational cohort study. Lancet Public Health. 2020;5(20):30146–30148. doi:10.1016/S2468-2667(20)30146-8
  • Myrstad M, Randoff AH. Akutt syke eldre i koronaens tid. Tidsskr nor Legeforen. 2020;140. doi:10.4045/tidsskr.20.0227
  • Ho FK, Petermann-Rocha F, Gray SR, et al. Is older age associated with COVID-19 mortality in the absence of other risk factors? General population cohort study of 470,034 participants. PLoS One. 2020;15(11):e0241824. doi:10.1371/journal.pone.0241824
  • Folkehelseinstituttet. Dødsårsaksregisteret (Norwegian Death register). Available from: https://www.fhi.no/hn/helseregistre-og-registre/dodsarsaksregisteret/forelopige-tall-for-covid-19-assosierte-dodsfall-i-dodsarsaksregisteret/. Accessed April 20, 2021.
  • Norwegian institute of Public health. Avstand, karantene og isolering [Distance, quarantine and isolation] Available from: https://www.fhi.no/nettpub/coronavirus/fakta/risikogrupper/. Accessed April 20, 2021.
  • Gaeta L, Brydges CR. Coronavirus-related anxiety, social isolation, and loneliness in older adults in northern california during the stay-at-home order. J Aging Soc Policy. 2020;1:1–12.
  • McArthur C, Saari M, Heckman GA, et al. Evaluating the Effect of COVID-19. Pandemic Lockdown on Long-Term Care Residents’ Mental Health: a Data-Driven Approach in New Brunswick. J Am Med Dir Assoc. 2021;22(1):187–192. doi:10.1016/j.jamda.2020.10.028
  • Jacobsen FF, Devik SA, Førland O, et al. Erfaringer med COVID-19 i norske sykehjem. 2021. Rapport 1/2021.
  • Alvestad PO, Kringstad K Koronautbrudd på sykehjem: Arnold (85) får ikke møte sine kjære i jula. NRK [Norwegian]. Available from: KoronasmittepåCharlottenlundhelse-ogvelferdssenter.Pårørendefårikketreffesinekjæreijula–NRKTrøndelag.
  • Solheim P Datteren får besøke Ella (90) en halvtime i uken: jeg er helt fortvilet. vg.no. Available from: https://www.vg.no/nyheter/innenriks/i/VbWmMJ/datteren-faar-besoeke-ella-90-en-halvtime-i-uken-jeg-er-helt-fortvilet. Accessed April 14, 2020.
  • Myrvang SE, Bugge S, Sfrintzeris T Anbefalinger for sykehjemsbesøk endres - her treffer Liv (95) endelig igjen familien. NRK [Norwegian]. Available from: Anbefalingerforsykehjemsbesøkendres-hertrefferLiv(95)endeligigjenfamilien–VG.
  • Powell C, Blighe A, Froggatt K, et al. Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study. J Clin Nurs. 2018;1–2:317–327. doi:10.1111/jocn.13906
  • Bergland A, Hestetun M. Samarbeid med pårørende i sykehjem. Sykepleien. 2003;91(18):42–45. doi:10.4220/sykepleiens.2003.0054
  • Caspari S, Lohne V, Rehnsfeldt AW, et al. Dignity and existential concerns among nursing home residents from the perspective of their relatives. Clin Nurs Stud. 2014;2(3):22–33. doi:10.5430/cns.v2n3p22
  • Givens J, Lopez RP, Mazor KM, Mitchell SL. Sources of stress for family members of nursing home residents with advanced dementia. Alzheimer Dis Assoc Disord. 2012;26(3):254–259. doi:10.1097/WAD.0b013e31823899e4
  • Nåden D, Rehnsfeldt A, Råholm MB, et al. Aspects of indignity in nursing home residences as experienced by family caregivers. Nurs Ethics. 2013;7:748–761. doi:10.1177/0969733012475253
  • Hertzberg A, Ekman SL. ‘We, not them and us?’ Views on the relationships and interactions between staff and relatives of older people permanently living in nursing homes. J Adv Nurs. 2000;3(31):614–622. doi:10.1046/j.1365-2648.2000.01317
  • Gonella S, Basso I, De Marinis MG, Campagna S, Di Giulio P. Good end-of-life care in nursing home according to the family carers’ perspective: a systematic review of qualitative findings. Palliat Med. 2019;6:589–606. doi:10.1177/0269216319840275
  • Nguyen M, Pachana NA, Beattie E, Fielding E, Ramis MA. Effectiveness of interventions to improve family-staff relationships in the care of people with dementia in residential aged care: a systematic review protocol. JBI Database System Rev Implement Rep. 2015;13(11):52–63. doi:10.11124/jbisrir-2015-2415
  • Williams SW, Zimmerman S, Williams CS. Family caregiver involvement for long-term care residents at the end of life. J Gerontol B Psychol Sci Soc Sci. 2012;67(5):595–604. doi:10.1093/geronb/gbs065
  • Verloo H, Salina A, Fiorentino A, Cohen C. Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study. Clin Interv Aging. 2018;13:2135–2147. doi:10.2147/CIA.S184329
  • Roberts AR, Isher K. Family Involvement in the Nursing Home and Perceived Resident Quality of Life. Gerontologist. 2018;58(6):1033–1043. doi:10.1093/geront/gnx108
  • Krendl A, Perry BL. The impact of sheltering-in-place during the COVID-19 pandemic on older adults’ social and mental well-being. J Gerontol B Psychol Sci Soc Sci. 2021;76(2):e53–e58. doi:10.1093/geronb/gbaa110
  • Monin JK, Ali T, Syed S, et al. Family Communication in Long-Term Care During a Pandemic: lessons for Enhancing Emotional Experiences. Am J Geriatric Psychiatry. 2020;28(12):1299–1307. doi:10.1016/j.jagp.2020.09.008
  • Ryan RM, Deci EL. Overview of self-determination theory: an organismic dialectial perspective. In: Deci EL, Ryan RM, editors. Handbook of Self- Determination Research. The University of Rochester Press; 2002:3–33.
  • Ryan RM, Kuhl J, Deci EL. Nature and autonomy: an organizational view of social and neurobiological aspects ofself-regulation in behavior and development. Dev Psychopathol. 1997;9(4):701–728.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112. doi:10.1016/j.nedt.2003.10.001
  • Hado E, Friss Feinberg L. Amid the COVID-19 Pandemic, Meaningful Communication between Family Caregivers and Residents of Long-Term Care Facilities is Imperative. J Aging Soc Policy. 2020;32(4–5):410–415. doi:10.1080/08959420.2020.1765684
  • Eghtesadi M. Breaking Social Isolation Amidst COVID-19: a Viewpoint on Improving Access to Technology in Long-Term Care Facilities. J Am Geriatr Soc. 2020;68(5):949–950. doi:10.1111/jgs.16478
  • Helvik A, Engedal K, Benth JŠ, Selbæk G. Prevalence and Severity of Dementia in Nursing Home Residents. Dement Geriatr Cogn Disord. 2015;40(3–4):166–177. doi:10.1159/000433525
  • Livingston G, Huntley J, Sommerlad A, et al. Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet. 2020;396(10248):413–446. doi:10.1016/S0140-6736(20)30367-6
  • Holthe T. Older Adults and Assistive Technology to Facilitate Occupation and Participation: A Complex Intervention Doktorgradsavhandling (Phd). Oslo Met; 2020.
  • Ersek M, Smith D, Griffin H, et al. End-Of-Life Care in the Time of COVID-19: communication Matters More Than Ever. J Pain Symptom Manage. 2021;62(2):213–222.e2. doi:10.1016/j.jpainsymman.2020.12.024
  • Feder S, Smith D, Griffin H, et al. “Why Couldn’t I Go in To See Him?” Bereaved Families’ Perceptions of End‐of‐Life Communication During COVID‐19. J Am Geriatr Soc. 2021;69(3):587–592. doi:10.1111/jgs.16993