Colostomy Patient Lived Experience at Public Hospitals of Addis Ababa, Ethiopia: Phenomenology

References

• Souwer ETD, Oerlemans S, van de Poll-Franse LV, et al. The impact of colorectal surgery on health-related quality of life in older functionally dependent patients with cancer – a longitudinal follow-up study. J Geriatr Oncol. 2019;10(5):724–732. doi:10.1016/j.jgo.2019.04.013
   PubMed Web of Science ®Google Scholar
• Nugent KP, Daniels P, Stewart B, Patankar R, Johnson CD. Quality of life in stoma patients. Dis Colon Rectum. 1999;42(12):1569–1574. doi:10.1007/BF02236209
   PubMed Web of Science ®Google Scholar
• Slankamenac K, Slankamenac M, Schlegel A, et al. Impact of postoperative complications on readmission and long-term survival in patients following surgery for colorectal cancer. Int J Colorectal Dis. 2017;32(6):805–811. doi:10.1007/s00384-017-2811-y
   PubMed Web of Science ®Google Scholar
• Arndt V, Merx H, Stegmaier C, Ziegler H, Brenner H. Quality of life in patients with colorectal cancer 1 year after diagnosis compared with the general population: a population-based study. J Clin Oncol. 2004;22(23):4777–4784. doi:10.1200/JCO.2004.02.018
   Web of Science ®Google Scholar
• Dabirian A, Yaghmaei F, Rassouli M, Tafreshi MZ. Quality of life in ostomy patients: a qualitative study. Patient Prefer Adherence. 2010;5:1–5. doi:10.2147/PPA.S14508
   PubMed Web of Science ®Google Scholar
• Vilz TO, Websky M, Kalff JC, Stoffels B. Intestinal stomata. Coloproctology. 2020;42(6):509–519. doi:10.1007/s00053-020-00503-3
   Web of Science ®Google Scholar
• Matsunaga T, Miyake T, Ueki T, et al. 「緩和的造設による造設による人工肛門造設がQOLに及ぼす短期および長期的影響」松永知之、三宅貴生、植木達也 ほか。がんと化学療法 [Short- and long-term effects of palliative stoma creation on quality of life]. Gan To Kagaku Ryoho. 2022;49(13):1396–1398. Japanese.
   PubMedGoogle Scholar
• Mensah ABB, Yeboah V, Amaniampong E-M, et al. Experiences and coping strategies of colostomy patients in Ghana: a Phenomenological study. 2022:1–18.
   Google Scholar
• Pittman J, Rawl SM, Schmidt CM, et al. Demographic and clinical factors related to ostomy complications and quality of life in veterans with an ostomy. J Wound Ostomy Cont Nurs. 2008;35(5):493–503. doi:10.1097/01.WON.0000335961.68113.cb
   PubMed Web of Science ®Google Scholar
• Silva NM, Dos Santos MA, Rosado SR, Galvão CM, Sonobe HM. Psychological aspects of patients with intestinal stoma: integrative review. Rev Lat Am Enfermagem. 2017;25:54.
   Web of Science ®Google Scholar
• Kimura CA, Guilhem DB, Kamada I, Abreu BS, Modesto KR, Gonçalves JR. Life quality for ostomized patients: a perspective in the health and nursing care process. J Nurs Educ Pract. 2016;7(4):18.
   Google Scholar
• Dindo D, Demartines N, Clavien PA. Classification of surgical complications: a new proposal with evaluation in a cohort of 6336 patients and results of a survey. Ann Surg. 2004;240(2):205–213. doi:10.1097/01.sla.0000133083.54934.ae
   PubMed Web of Science ®Google Scholar
• Mahjoubi B, Mirzaei R, Azizi R, Jafarinia M, Zahedi-Shoolami L, Montazeri A. A cross-sectional survey of quality of life in colostomates: a report from Iran. Health Qual Life Outcomes. 2012;10:1–6. doi:10.1186/1477-7525-10-1
   PubMed Web of Science ®Google Scholar
• Ernst J, Mehnert A, Dietz A, Hornemann B, Esser P. Perceived stigmatization and its impact on quality of life - results from a large register-based study including breast, colon, prostate and lung cancer patients. BMC Cancer. 2017;17(1):1–8. doi:10.1186/s12885-017-3742-2
   PubMedGoogle Scholar
• Mota MS, Gomes GC, Petuco VM. Repercussions in the living process of people with stomas. Texto e Context Enferm. 2016;25(1):1–8.
   Google Scholar
• Nakagawa H, Sasai H, Tanaka K. Physical fitness levels among colon cancer survivors with a stoma: a preliminary study. Medicine. 2020;56(11):1–9.
   Google Scholar
• Pittman J, Colwell J, Mulekar MS. Ostomy complications and quality of life of ostomy support belt/garment wearers: a web-based survey. J Wound Ostomy Cont Nurs. 2022;49(1):60–68. doi:10.1097/WON.0000000000000843
   PubMed Web of Science ®Google Scholar
• Azzani M, Roslani AC, Su TT. Financial burden of colorectal cancer treatment among patients and their families in a middle-income country. Support Care Cancer. 2016;24(10):4423–4432. doi:10.1007/s00520-016-3283-2
   PubMed Web of Science ®Google Scholar
• Jafari MD, Jafari F, Halabi WJ, et al. Colorectal cancer resections in the aging US population: a trend toward decreasing rates and improved outcomes. JAMA Surg. 2014;149(6):557–564. doi:10.1001/jamasurg.2013.4930
   PubMed Web of Science ®Google Scholar
• Persson E. Experiences of Swedish men and women 6 to 12 weeks after ostomy surgery. J WOCN. 2002;29(2):103–108.
   PubMedGoogle Scholar
• Petersén C, Carlsson E. Life with a stoma—coping with daily life: experiences from focus group interviews. J Clin Nurs. 2021;30(15–16):2309–2319. doi:10.1111/jocn.15769
   PubMed Web of Science ®Google Scholar
• Villa G, Mannarini M, Della Giovanna G, Marzo E, Manara DF, Vellone E. A literature review about self-care on ostomy patients and their caregivers. Int J Urol Nurs. 2019;13(2):75–80. doi:10.1111/ijun.12182
   Google Scholar
• Ayaz-Alkaya S. Overview of psychosocial problems in individuals with stoma: a review of literature. Int Wound J. 2019;16(1):243–249. doi:10.1111/iwj.13018
   PubMed Web of Science ®Google Scholar
• He LJ, Zheng MC, Yuet Wong FK, Ying J, Zhang JE. Immediate postoperative experiences before discharge among patients with rectal cancer and a permanent colostomy: a qualitative study. Eur J Oncol Nurs. 2021;51:101911. doi:10.1016/j.ejon.2021.101911
   PubMed Web of Science ®Google Scholar
• Wennman I, Ringheim A, Wijk H. “We are here for you all the way”-patients’ and relatives’ experiences of receiving advanced home care. Am J Hospice Palliative Med. 2020;37:669–674. doi:10.1177/1049909120905259
   PubMed Web of Science ®Google Scholar
• Lim CYS, Laidsaar-Powell RC, Young JM, Kao SCH, Zhang Y, Butow P. Colorectal cancer survivorship: a systematic review and thematic synthesis of qualitative research. Eur J Cancer Care. 2021;30(4):e13421. doi:10.1111/ecc.13421
   PubMed Web of Science ®Google Scholar
• Choudhary M, Kaur H. Experiences of living with intestinal ostomy: a qualitative meta-synthesis. Indian J Palliat Care. 2020;26(4):421. doi:10.4103/IJPC.IJPC_21_20
   PubMed Web of Science ®Google Scholar
• Yuan JM, Zhang JE, Zheng MC, Bu XQ. Stigma and its influencing factors among Chinese patients with stoma. Psychooncology. 2018;27(6):1565–1571. doi:10.1002/pon.4695
   PubMed Web of Science ®Google Scholar
• Tiainen J, Matikainen M. Health-related quality of life after Ileal J-Pouch?Anal anastomosis for ulcerative colitis: long-term results. Scand J Gastroenterol. 2009;34(6):601–605. doi:10.1080/003655299750026065
   Google Scholar
• Mirelman D, Corman ML, Veidenheimer MC, Coller JA. Colostomies-indications and contraindications: Lahey clinic experience, 1963–1974. Dis Colon Rectum. 1978;21(3):172–176. doi:10.1007/BF02586563
   PubMed Web of Science ®Google Scholar
• Shaffy KS, Das K, Gupta R. Physical, nutritional and sexual problems experienced by the patients with colostomy/ileostomy: a qualitative study. Nurs Midwifery Res. 2012. doi:10.1177/0974150X20120304
   Google Scholar
• Cooper AJ. Couples with sexual problems. Can J Psychiatry. 1985;30(6):461–462. doi:10.1177/070674378503000629
   PubMed Web of Science ®Google Scholar
• Reis H, Sprecher S. Sex in established relationships. Encycl Hum Relationships. 2013;2013:265.
   Google Scholar
• Tustin RD. Psychological treatment of sexual problems. Aust N Z J Criminol. 1976;9(4):221–226. doi:10.1177/000486587600900404
   Web of Science ®Google Scholar
• Stein Backes D, Terezinha M, Backes S, Erdmann AL, Büscher A. Coping strategies of people with pancreatic cancer view project qualidade de vida view project ORIGINAL RESEARCH feelings and expectations of permanent colostomy patients. J Nurs Educ Pract. 2012;2(3). doi:10.5430/jnep.v2n3p9
   Google Scholar
• Bemah Boamah Mensah A, Yeboah V, Amaniampong E-M, et al. Experiences and coping strategies of colostomy patients in Ghana: a Phenomenological study. 2022. doi:10.21203/rs.3.rs-1614762/v1
   Google Scholar
• Simmons KL. A view from here: psychosocial issues in colostomy care. J Wound Ostomy Cont Nurs. 2014;41(1):55–59. doi:10.1097/01.WON.0000438015.98357.53
   PubMedGoogle Scholar
• Britt TW, Greene-Shortridge TM, Brink S, et al. Perceived stigma and barriers to care for psychological treatment: implications for reactions to stressors in different contexts. J Soc Clin Psychol. 2008;27(4):317–335. DOI:10.1521/jscp.2008.27.4.317
   Web of Science ®Google Scholar
• Gritz ER, Fingeret MC, Vidrine DJ, Lazev AB, Mehta NV, Reece GP. Successes and failures of the teachable moment. Cancer. 2006;106(1):17–27. doi:10.1002/cncr.21598
   PubMed Web of Science ®Google Scholar
• Popek S, Grant M, Gemmill R, Wendel CS, Mohler MJ, Rawl SM. Overcoming challenges: life with an ostomy. Am J Surg. 2010;200(5):640–645. doi:10.1016/j.amjsurg.2010.07.009
   PubMed Web of Science ®Google Scholar
• Cengiz B, Bahar Z. Perceived barriers and home care needs when adapting to a fecal ostomy: a phenomenological study. J Wound Ostomy Cont Nurs. 2017;44(1):63–68. doi:10.1097/WON.0000000000000271
   PubMed Web of Science ®Google Scholar