A qualitative study of children’s quality of life in the context of living with cleft lip and palate

References

• GradFPThe Preamble of the Constitution of the World Health OrganizationBull World Health Organ2002801298112571728
   PubMed Web of Science ®Google Scholar
• PetersenPEBourgeoisDOgawaHEstupinan-DaySNdiayeCThe global burden of oral diseases and risks to oral healthBull World Health Organ200583966166916211157
   PubMed Web of Science ®Google Scholar
• DyleskiRACrockettDMSeibertRWCleft lip and palate: evaluation and treatment of the primary deformityBaileyBJJohnsonJTHead and Neck Surgery—Otolaryngology4th edPhiladelphia, PALippincott Williams & Wilkins200613171335
   Google Scholar
• IPDTOC working groupPrevalence at birth of cleft lip with or without cleft palate: data from the International Perinatal Database of Typical Oral Clefts (IPDTOC)2011481668120507242
   PubMedGoogle Scholar
• KhazaeiSShiraniAMKhazaeiMNajafiFIncidence of cleft lip and palate in Iran. A meta-analysisSaudi Med J201132439039321483999
   PubMed Web of Science ®Google Scholar
• MitchellJCWoodRJManagement of cleft lip and palate in primary careJ Pediatr Health Care2000141131911141821
   PubMedGoogle Scholar
• HomerCJKleinmanLCGoldmanDAImproving the quality of care for children in health systemsHealth Serv Res1998334 Pt 210919776950
   PubMed Web of Science ®Google Scholar
• DamianoPCTylerMCRomittiPAHealth-related quality of life among preadolescent children with oral clefts: the mother’s perspectivePediatrics20071202e283e29017671039
   PubMed Web of Science ®Google Scholar
• GarrattAMRutaDAAbdallaMIBuckinghamJKRussellITThe SF36 health survey questionnaire: an outcome measure suitable for routine use within the NHS?BMJ19933066890144014448518640
   PubMed Web of Science ®Google Scholar
• AllenPFMcmillanASLockerDAn assessment of sensitivity to change of the Oral Health Impact Profile in a clinical trialCommunity Dent Oral Epidemiol200129317518211409676
   PubMed Web of Science ®Google Scholar
• Hocevar-BoltezarIJarcAKozeljVEar, nose and voice problems in children with orofacial cleftsJ Laryngol Otol2006120427628116623971
   PubMed Web of Science ®Google Scholar
• MarcussonAAkerlindIPaulinGQuality of life in adults with repaired complete cleft lip and palateCleft Palate Craniofac J200138437938511420018
   PubMed Web of Science ®Google Scholar
• TopolskiTDEdwardsTCPatrickDLQuality of life: how do adolescents with facial differences compare with other adolescents?Cleft Palate Craniofac J2005421253215643924
   PubMed Web of Science ®Google Scholar
• StraussRPFensonCExperiencing the “good life”: literary views of craniofacial conditions and quality of lifeCleft Palate Craniofac J2005421141815643912
   PubMed Web of Science ®Google Scholar
• LockerDJokovicATompsonBHealth-related quality of life of children aged 11 to 14 years with orofacial conditionsCleft Palate Craniofac J200542326026615865459
   PubMed Web of Science ®Google Scholar
• GraneheimUHLundmanBQualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthinessNurse Educ Today200424210511214769454
   PubMed Web of Science ®Google Scholar
• BeckCTQualitative research: the evaluation of its credibility, fittingness, and auditabilityWest J Nurs Res19931522632668470379
   PubMedGoogle Scholar
• LincolnYSEmerging criteria for quality in qualitative and interpretive researchQualitative Inquiry199513275289
   Google Scholar
• GubaEGCriteria for assessing the trustworthiness of naturalistic inquiriesEducational Technology Research and Development19812927591
   Google Scholar
• AizenbudDCamasuviSPeledMBrinICongenitally missing teeth in the Israeli cleft populationCleft Palate Craniofac J200542331431715865468
   PubMed Web of Science ®Google Scholar
• MillerCFeeding issues and interventions in infants and children with clefts and craniofacial syndromesSeminars in speech and language32© Thieme Medical Publishers201111512621948638
   PubMedGoogle Scholar
• Raposo-do-AmaralCEKuczynskiEAlonsoNQuality of life among children with cleft lips and palates: a critical review of measurement instrumentsRevista Brasileira de Cirurgia Plástica2011264639644
   Google Scholar
• GkantidisNPapamanouDAKaramolegkouMDorotheouDEsthetic, functional, and everyday life assessment of individuals with cleft lip and/or palateBiomed Res Int2015201518
   Web of Science ®Google Scholar
• TurnerSRThomasPWDowellTRumseyNSandyJRPsychological outcomes amongst cleft patients and their familiesBr J Plast Surg1997501199038507
   PubMedGoogle Scholar
• de Buys RoessinghASDolciMZbinden-TrichetCBossouRMeyratBJHohlfeldJSuccess and failure for children born with facial clefts in Africa: a 15-year follow-upWorld J Surg20123681963196922538390
   PubMed Web of Science ®Google Scholar
• NoarJHQuestionnaire survey of attitudes and concerns of patients with cleft lip and palate and their parentsCleft Palate Craniofac J19912832792841911816
   PubMed Web of Science ®Google Scholar
• RosanowskiFEysholdtUPhoniatric aspects in cleft lip patientsFacial Plast Surg200218319720412152138
   PubMedGoogle Scholar
• HuntOBurdenDHepperPStevensonMJohnstonCSelf-reports of psychosocial functioning among children and young adults with cleft lip and palateCleft Palate Craniofac J200643559860516986986
   PubMed Web of Science ®Google Scholar
• BrandSBlechschmidtAMüllerAPsychosocial functioning and sleep patterns in children and adolescents with cleft lip and palate (CLP) compared with healthy controlsCleft Palate Craniofac J200946212413519254057
   PubMed Web of Science ®Google Scholar
• Kapp-SimonKASimonDJKristovichSSelf-perception, social skills, adjustment, and inhibition in young adolescents with craniofacial anomaliesCleft Palate Craniofac J19922943523561643066
   PubMed Web of Science ®Google Scholar
• RamstadTOttemEShawWCPsychosocial adjustment in Norwegian adults who had undergone standardised treatment of complete cleft lip and palate. II. Self-reported problems and concerns with appearanceScand J Plast Reconstr Surg Hand Surg19952943293368771260
   PubMed Web of Science ®Google Scholar
• HuntOBurdenDHepperPJohnstonCThe psychosocial effects of cleft lip and palate: a systematic reviewEur J Orthod200527327428515947228
   PubMed Web of Science ®Google Scholar
• SinkoKJagschRPrechtlVWatzingerFHollmannKBaumannAEvaluation of esthetic, functional, and quality-of-life outcome in adult cleft lip and palate patientsCleft Palate Craniofac J200542435536116001915
   PubMed Web of Science ®Google Scholar
• BerkNWCooperMELiuYEMarazitaMLSocial anxiety in Chinese adults with oral-facial cleftsCleft Palate Craniofac J200138212613311294540
   PubMed Web of Science ®Google Scholar
• MurrayLArtecheAHillJThe effect of cleft lip on socio-emotional functioning in school-aged childrenJ Child Psychol Psychiatry20105119410319968739
   PubMed Web of Science ®Google Scholar
• CollettBRKeich CloonanYSpeltzMLAnderkaMWerlerMMPsychosocial functioning in children with and without orofacial clefts and their parentsCleft Palate Craniofac J201249439740521214307
   PubMed Web of Science ®Google Scholar
• Castelnuovo-TedescoPThe psychological consequences of physical illness or defect and their relationship to the concept of deficitPsychoanal Study Child199752176889489462
   PubMedGoogle Scholar
• NeimanGSSavageHEDevelopment of infants and toddlers with clefts from birth to three years of ageCleft Palate Craniofac J19973432182259167072
   PubMed Web of Science ®Google Scholar
• JacobsonAPsychological aspects of dentofacial esthetics and orthog-nathic surgeryAngle Orthod198454118356584049
   PubMed Web of Science ®Google Scholar
• HarrisDLCarrATPrevalence of concern about physical appearance in the general populationBr J Plast Surg200154322322611254414
   PubMedGoogle Scholar
• KappKSelf concept of the cleft lip and or palate childCleft Palate J1979162171176284866
   PubMedGoogle Scholar
• SarwerDBPruzinskyTCashTFGoldwynRMPersingJAWhitakerLAPsychological Aspects of Reconstructive and Cosmetic Plastic Surgery: Clinical, Empirical, and Ethical PerspectivesPhiladelphia, PALippincott Williams & Wilkins2006
   Google Scholar
• CunninghamSJThe psychology of facial appearanceDent Update1999261043844310765787
   PubMedGoogle Scholar