Advanced search
Publication Cover
Patient Preference and Adherence Volume 13, 2019 - Issue
Submit an article Journal homepage
140
Views
8
CrossRef citations to date
0
Altmetric
Original Research

Patient satisfaction and acceptability of an on-demand and on-prophylaxis device for factor VIII delivery in patients with hemophilia A

Giovanni Di Minno1 Department of Clinical Medicine and Surgery, Azienda Universitaria Policlinico Federico II, Naples, Italy, [email protected]Correspondence[email protected]
,
Elena Santagostino2 Hemophilia and Thrombosis Center, IRCCS Fondazione Ca’ Granda, Ospedale Maggiore Policlinico, Milan, Italy
,
Massimo Morfini3 Scientific Committee, Italian Association of Haemophilia Centres (AICE), Florence, Italy
,
Cosimo Ettorre4 Haemophilia and Thrombosis Center, Policlinico Giovanni XXIII, Bari, Italy
,
Dorina Cultrera5 Hematology Unit, Regional Center for Hemophilia, Italy Ospedaliera-Universitaria “Policlinico – Vittorio Emanuele”, Catania, Italy
,
Erminia Baldacci6 Hemophilia, Thrombosis, and Hematology Center, Dipartimento Biotecnologie cellulari ed Ematologia, Università la Sapienza, Rome, Italy
,
Eleonora Russo7 Medical Department, Pfizer srl Rome, Italy
&
Cristiano Gallucci7 Medical Department, Pfizer srl Rome, Italy
 show all
Pages 233-240 | Published online: 31 Jan 2019

References

  • HenrardSDevleesschauwerBBeutelsPThe health and economic burden of haemophilia in Belgium: a rare, expensive and challenging diseaseOrphanet J Rare Dis201493924655371
  • ThornburgCDProphylactic factor infusions for patients with hemophilia: challenges with treatment adherenceJ Coag Disord20102914
  • KodraYCavazzaMSchieppatiAThe social burden and quality of life of patients with haemophilia in ItalyBlood Transfus201412Suppl 3s567s57524922297
  • ShresthaAEldar-LissaiAHouNLakdawallaDNBattKReal-world resource use and costs of haemophilia A-related bleedingHaemophilia2017234e267e27528574162
  • ZhouZYKoerperMAJohnsonKABurden of illness: direct and indirect costs among persons with hemophilia A in the United StatesJ Med Econ201518645746525660324
  • World Federation of HemophiliaGuidelines for the management of haemophiliaWorld Federation of Hemophilia2012 Available from: www1.wfh.org/publications/files/pdf-1472.pdfAccessed December 6, 2018
  • KhairKGibsonFMeerabeauLThe benefits of prophylaxis: views of adolescents with severe haemophiliaHaemophilia2012183e286e28921910789
  • LlewellynCDMinersAHLeeCAHarringtonCWeinmanJThe illness perceptions and treatment beliefs of individuals with severe haemophilia and their role in adherence to home treatmentPsychol Health2003182185200
  • SchrijversLHBeijlevelt-van der ZandeMPetersMAdherence to prophylaxis and bleeding outcome in haemophilia: a multicentre studyBr J Haematol2016174345446027098446
  • SchrijversLHKarsMCBeijlevelt-van der ZandeMPetersMSchuurmansMJFischerKUnravelling adherence to prophylaxis in haemophilia: a patients’ perspectiveHaemophilia201521561262125858411
  • ThornburgCDCarpenterSZappaSMunnJLeissingerCCurrent prescription of prophylactic factor infusions and perceived adherence for children and adolescents with haemophilia: a survey of haemophilia healthcare professionals in the United StatesHaemophilia201218456857422335526
  • WitkopMLMclaughlinJMAndersonTLMunnJELambingATortellaBPredictors of non-adherence to prescribed prophylactic clotting-factor treatment regimens among adolescent and young adults with a bleeding disorderHaemophilia2016224e245e25027216992
  • TiedeAHalf-life extended factor VIII for the treatment of hemophilia AJ Thromb Haemost201513Suppl 1S176S17926149020
  • CiminoELinariSMalerbaMHalimehSBiondoFWestfeldMPatient preference and ease of use for different coagulation factor VIII reconstitution device scenarios: a cross-sectional survey in five European countriesPatient Prefer Adherence201481713172025525348
  • RemorEPredictors of treatment difficulties and satisfaction with haemophilia therapy in adult patientsHaemophilia2011175e90190521649798
  • SaxenaKBarriers and perceived limitations to early treatment of hemophiliaJ Blood Med20134495623700376
  • SantagostinoELentzSRBuskAKRegnaultAIorioAAssessment of the impact of treatment on quality of life of patients with haemophilia A at different ages: insights from two clinical trials on turoctocog alfaHaemophilia201420452753424471912
  • ValentinoLAMamonovVHellmannAA randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A managementJ Thromb Haemost201210335936722212248
  • BonanadSSchulzMGordoAHaemoPREF: Further evaluation of patient perception and preference for treatment in a real world settingHaemophilia201723688489328925586
  • AtkinsonMJSinhaAHassSLValidation of a general measure of treatment satisfaction, the Treatment Satisfaction Questionnaire for Medication (TSQM), using a national panel study of chronic diseaseHealth Qual Life Outcomes200421214987333
  • DuncanNKronenbergerWRobersonCShapiroAVERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophiliaHaemophilia201016224725519925631
  • RemorEDevelopment and psychometric testing of the Hemophilia Well-being IndexInt J Behav Med201320460961722948483
  • Reilly Associates [webpage on the Internet]Health Outcomes Research2002 Available from: http://www.reillyassociates.net/WPAI_Scoring.htmlAccessed December 6, 2018
  • Fernández-AriasIKimHKFactor VIII delivery devices in haemophilia A. Barriers and drivers for treatment adherenceFarm Hosp201640n0657960327894230
  • HackerMRGeraghtySManco-JohnsonMBarriers to compliance with prophylaxis therapy in haemophiliaHaemophilia20017439239611442644

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.