References
- HenrardSDevleesschauwerBBeutelsPThe health and economic burden of haemophilia in Belgium: a rare, expensive and challenging diseaseOrphanet J Rare Dis201493924655371
- ThornburgCDProphylactic factor infusions for patients with hemophilia: challenges with treatment adherenceJ Coag Disord20102914
- KodraYCavazzaMSchieppatiAThe social burden and quality of life of patients with haemophilia in ItalyBlood Transfus201412Suppl 3s567s57524922297
- ShresthaAEldar-LissaiAHouNLakdawallaDNBattKReal-world resource use and costs of haemophilia A-related bleedingHaemophilia2017234e267e27528574162
- ZhouZYKoerperMAJohnsonKABurden of illness: direct and indirect costs among persons with hemophilia A in the United StatesJ Med Econ201518645746525660324
- World Federation of HemophiliaGuidelines for the management of haemophiliaWorld Federation of Hemophilia2012 Available from: www1.wfh.org/publications/files/pdf-1472.pdfAccessed December 6, 2018
- KhairKGibsonFMeerabeauLThe benefits of prophylaxis: views of adolescents with severe haemophiliaHaemophilia2012183e286e28921910789
- LlewellynCDMinersAHLeeCAHarringtonCWeinmanJThe illness perceptions and treatment beliefs of individuals with severe haemophilia and their role in adherence to home treatmentPsychol Health2003182185200
- SchrijversLHBeijlevelt-van der ZandeMPetersMAdherence to prophylaxis and bleeding outcome in haemophilia: a multicentre studyBr J Haematol2016174345446027098446
- SchrijversLHKarsMCBeijlevelt-van der ZandeMPetersMSchuurmansMJFischerKUnravelling adherence to prophylaxis in haemophilia: a patients’ perspectiveHaemophilia201521561262125858411
- ThornburgCDCarpenterSZappaSMunnJLeissingerCCurrent prescription of prophylactic factor infusions and perceived adherence for children and adolescents with haemophilia: a survey of haemophilia healthcare professionals in the United StatesHaemophilia201218456857422335526
- WitkopMLMclaughlinJMAndersonTLMunnJELambingATortellaBPredictors of non-adherence to prescribed prophylactic clotting-factor treatment regimens among adolescent and young adults with a bleeding disorderHaemophilia2016224e245e25027216992
- TiedeAHalf-life extended factor VIII for the treatment of hemophilia AJ Thromb Haemost201513Suppl 1S176S17926149020
- CiminoELinariSMalerbaMHalimehSBiondoFWestfeldMPatient preference and ease of use for different coagulation factor VIII reconstitution device scenarios: a cross-sectional survey in five European countriesPatient Prefer Adherence201481713172025525348
- RemorEPredictors of treatment difficulties and satisfaction with haemophilia therapy in adult patientsHaemophilia2011175e90190521649798
- SaxenaKBarriers and perceived limitations to early treatment of hemophiliaJ Blood Med20134495623700376
- SantagostinoELentzSRBuskAKRegnaultAIorioAAssessment of the impact of treatment on quality of life of patients with haemophilia A at different ages: insights from two clinical trials on turoctocog alfaHaemophilia201420452753424471912
- ValentinoLAMamonovVHellmannAA randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A managementJ Thromb Haemost201210335936722212248
- BonanadSSchulzMGordoAHaemoPREF: Further evaluation of patient perception and preference for treatment in a real world settingHaemophilia201723688489328925586
- AtkinsonMJSinhaAHassSLValidation of a general measure of treatment satisfaction, the Treatment Satisfaction Questionnaire for Medication (TSQM), using a national panel study of chronic diseaseHealth Qual Life Outcomes200421214987333
- DuncanNKronenbergerWRobersonCShapiroAVERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophiliaHaemophilia201016224725519925631
- RemorEDevelopment and psychometric testing of the Hemophilia Well-being IndexInt J Behav Med201320460961722948483
- Reilly Associates [webpage on the Internet]Health Outcomes Research2002 Available from: http://www.reillyassociates.net/WPAI_Scoring.htmlAccessed December 6, 2018
- Fernández-AriasIKimHKFactor VIII delivery devices in haemophilia A. Barriers and drivers for treatment adherenceFarm Hosp201640n0657960327894230
- HackerMRGeraghtySManco-JohnsonMBarriers to compliance with prophylaxis therapy in haemophiliaHaemophilia20017439239611442644