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Original Research

Caregiver Burden Among Informal Caregivers of Persons Living with HIV/AIDS in Liangshan Prefecture, China

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Pages 1027-1035 | Published online: 13 Apr 2022

References

  • Global Burden of Disease Health Financing Collaborator Network. Spending on health and HIV/AIDS: domestic health spending and development assistance in 188 countries, 1995–2015. Lancet. 2018;391(10132):1799–1829. doi:10.1016/S0140-6736(18)30698-6
  • World Health Organization. HIV/AIDS. Available from: https://www.who.int/en/news-room/fact-sheets/detail/hiv-aids. Accessed August 11, 2021.
  • Chinese Centers for Disease Control and Prevention. Update on the AIDS/STD epidemic in China the third of 2018. Chin J AIDS STD. 2018;24(11):1075.
  • Chinese Center for Disease Control and Prevention. The data-center of China Public Health Science. Available from: https://www.phsciencedata.cn/Share/ky_sjml.jsp?id=c2ca694e-3995-4c7f-9078-3ed0aaf14556. Accessed August 12, 2021.
  • Simon V, Ho DD, Abdool Karim Q. HIV/AIDS epidemiology, pathogenesis, prevention, and treatment. Lancet. 2006;368(9534):489–504. doi:10.1016/S0140-6736(06)69157-5
  • Nakagawa F, May M, Phillips A. Life expectancy living with HIV: recent estimates and future implications. Curr Opin Infect Dis. 2013;26(1):17–25. doi:10.1097/QCO.0b013e32835ba6b1
  • Ntuli M, Madiba S. The Burden of Caring: an Exploratory Study of the Older Persons Caring for Adult Children with AIDS-Related Illnesses in Rural Communities in South Africa. Int J Environ Res Public Health. 2019;16(17):3162. doi:10.3390/ijerph16173162
  • Springer Netherlands. Informal Care. In: Kirch W, editor. Encyclopedia of Public Health. Dordrecht: Springer Netherlands; 2008: 787
  • Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA. 2014;311(10):1052–1060. doi:10.1001/jama.2014.304
  • Hsiao CY, Tsai YF. Factors of caregiver burden and family functioning among Taiwanese family caregivers living with schizophrenia. J Clin Nurs. 2015;24(11–12):1546–1556. doi:10.1111/jocn.12745
  • Hsieh J, Li L, Lin C, Luo S, Ji G. Spousal role and caregiver burden in HIV affected families in Anhui Province, China. AIDS Care. 2017;29(10):1270–1274. doi:10.1080/09540121.2017.1300631
  • Kyomuhendo C, Boateng A, Agyemang FA. Experiences of elderly women caring for people living with HIV and AIDS in Masindi District, Uganda. AIDS Care. 2021;33(8):993–996. doi:10.1080/09540121.2020.1832191
  • Lundberg PC, Doan TT, Dinh TT, Oach NK, Le PH. Caregiving to persons living with HIV/AIDS: experiences of Vietnamese family members. J Clin Nurs. 2016;25(5–6):788–798. doi:10.1111/jocn.13099
  • Kalomo EN, Liao M. Burden of Care among Caregivers of Persons Living with HIV/AIDS in Rural Namibia: correlates and Outcomes. Soc Work Public Health. 2018;33(1):70–84. doi:10.1080/19371918.2017.1415180
  • Greene MC, Zhang J, Li J, Desai M, Kershaw T. Mental health and social support among HIV-positive injection drug users and their caregivers in China. AIDS Behav. 2013;17(5):1775–1784. doi:10.1007/s10461-012-0396-6
  • Lachman JM, Cluver LD, Boyes ME, Kuo C, Casale M. Positive parenting for positive parents: HIV/AIDS, poverty, caregiver depression, child behavior, and parenting in South Africa. AIDS Care. 2014;26(3):304–313. doi:10.1080/09540121.2013.825368
  • Paintsil E, Renner L, Antwi S, et al. HIV knowledge, stigma, and illness beliefs among pediatric caregivers in Ghana who have not disclosed their child’s HIV status. AIDS Care. 2015;27(Suppl 1):18–27. doi:10.1080/09540121.2015.1007116
  • Tshililo AR, Davhana-Maselesele M. Family experiences of home caring for patients with HIV/AIDs in rural Limpopo Province, South Africa. Nurs Health Sci. 2009;11(2):135–143. doi:10.1111/j.1442-2018.2009.00437.x
  • Fiore T, Flanigan T, Hogan J, et al. HIV infection in families of HIV-positive and ‘at-risk’ HIV-negative women. AIDS Care. 2001;13(2):209–214. doi:10.1080/09540120020027378
  • Grant M, Sun V, Fujinami R, et al. Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncol Nurs Forum. 2013;40(4):337–346. doi:10.1188/13.ONF.337-346
  • Wu X, Chen J, Huang H, Liu Z, Li X, Wang H. Perceived stigma, medical social support and quality of life among people living with HIV/AIDS in Hunan, China. Appl Nurs Res. 2015;28(2):169–174. doi:10.1016/j.apnr.2014.09.011
  • Logie C, James L, Tharao W, Loutfy M. Associations between HIV-related stigma, racial discrimination, gender discrimination, and depression among HIV-positive African, Caribbean, and Black women in Ontario, Canada. AIDS Patient Care STDS. 2013;27(2):114–122. doi:10.1089/apc.2012.0296
  • Singh D, Chaudoir SR, Escobar MC, Kalichman S. Stigma, burden, social support, and willingness to care among caregivers of PLWHA in home-based care in South Africa. AIDS Care. 2011;23(7):839–845. doi:10.1080/09540121.2010.542122
  • Khan R, Pai K, Kulkarni V, Ramapuram J. Depression, anxiety, stress and stigma in informal caregivers of People Living with HIV (PLHIV). AIDS Care. 2018;30(6):722–726. doi:10.1080/09540121.2017.1418831
  • Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist. 1986;26(3):260–266. doi:10.1093/geront/26.3.260
  • Chandran V, Madi D, Chowta N, et al. Caregiver Burden among Adults Caring for People Living with HIV/AIDS (PLWHA) in Southern India. J Clin Diagn Res. 2016;10(5):OC41–43. doi:10.7860/JCDR/2016/20076.7865
  • Lee SJ, Li L, Jiraphongsa C, Rotheram-Borus MJ. Caregiver burden of family members of persons living with HIV in Thailand. Int J Nurs Pract. 2010;16(1):57–63. doi:10.1111/j.1440-172X.2009.01812.x
  • Cui Y, Gao Y, Zhu Z, et al. Influencing Factors of the Care Burden on the Family Caregivers of HIV/AIDS Patients: a Sys-temic Review. Nurs J Chin PLA. 2021;38(4):56–60. doi:10.3969/j.issn.1008-9993.2021.04.015
  • Wang D, Chen D, Cui H, Zhang Y. Poverty status and influencing factors of AIDS patients, Liangshan Yi nationality area. Modern Preventive Med. 2019;46(3):389–393.
  • Wang L, Yang X, Hou Z. Application and evaluation of Chinese version of zarit caregiver burden interview. Chin J Public Health. 2006;22(8):970–972.
  • Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20(6):649–655. doi:10.1093/geront/20.6.649
  • Zarit S, Zarit J. Instructions for the Burden Interview. Pennsylvania state University; 1987.
  • Arai Y, Kudo K, Hosokawa T, Washio M, Miura H, Hisamichi S. Reliability and validity of the Japanese version of the Zarit Caregiver Burden interview. Psychiatry Clin Neurosci. 1997;51(5):281–287. doi:10.1111/j.1440-1819.1997.tb03199.x
  • Ankri J, Andrieu S, Beaufils B, Grand A, Henrard JC. Beyond the global score of the Zarit Burden Interview: useful dimensions for clinicians. Int J Geriatr Psychiatry. 2005;20(3):254–260. doi:10.1002/gps.1275
  • Lee RL, Mok ES. Evaluation of the psychometric properties of a modified Chinese version of the Caregiver Task Inventory–refinement and psychometric testing of the Chinese Caregiver Task Inventory: a confirmatory factor analysis. J Clin Nurs. 2011;20(23–24):3452–3462. doi:10.1111/j.1365-2702.2011.03729.x
  • Clark N, Rakowski W. Family caregivers of older adults: improving helping skills. Gerontologist. 1983;23(6):637–642. doi:10.1093/geront/23.6.637
  • Petros SG. Use of a Mixed Methods Approach to Investigate the Support Needs of Older Caregivers to Family Members Affected by HIV and AIDS in South Africa. J Mix Methods Res. 2011;6(4):275–293. doi:10.1177/1558689811425915
  • Musangali M, Daire AP, DeLorenzi L. The impact of caregiver coping strategies and patient level of functioning on perception of caregiver burden among caregivers of persons living with HIV/AIDS in Kenya. J HIV AIDS Soc Serv. 2016;15(4):450–463. doi:10.1080/15381501.2014.912176
  • Lee R. Caring for family members with stroke: Chinese family caregivers’ experiences. Asian j Nursing Studies. 2004;7(1):18–27.
  • Denno MS, Gillard PJ, Graham GD, et al. Anxiety and depression associated with caregiver burden in caregivers of stroke survivors with spasticity. Arch Phys Med Rehabil. 2013;94(9):1731–1736. doi:10.1016/j.apmr.2013.03.014
  • Kruithof WJ, Post MW, van Mierlo ML, van den Bos GA, de Man-van Ginkel JM, Visser-Meily JM. Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke: determinants and prediction. Patient Educ Couns. 2016;99(10):1632–1640. doi:10.1016/j.pec.2016.04.007