Advanced search
Publication Cover
Patient Preference and Adherence Volume 17, 2023 - Issue
Submit an article Journal homepage
460
Views
1
CrossRef citations to date
0
Altmetric
ORIGINAL RESEARCH

Patient and Caregiver Perspectives on Care-Seeking During a Vaso-Occlusive Crisis in Sickle Cell Disease: Results from Qualitative Interviews in Canada

Neha Durgam1 ICON Plc, Raleigh, NC, USACorrespondence[email protected] [email protected]
ORCID Iconhttps://orcid.org/0000-0002-4371-7525View further author information
ORCID Icon,
Triza Brion1 ICON Plc, Raleigh, NC, USAORCID Iconhttps://orcid.org/0000-0002-5512-5420View further author information
ORCID Icon,
Hannah B Lewis1 ICON Plc, Raleigh, NC, USAORCID Iconhttps://orcid.org/0000-0002-6780-4965View further author information
ORCID Icon,
Biba Tinga2 Sickle Cell Disease Association of Canada (SCDAC), Toronto, ON, CanadaView further author information
,
Wilson Sanon3 Association d'Anémie Falciforme du Québec, Montreal, Quebec, CanadaView further author information
,
Mark Lundie4 Pfizer Canada ULC, Kirkland, Quebec, CanadaView further author information
&
Chantal Cadieux4 Pfizer Canada ULC, Kirkland, Quebec, CanadaView further author information
 show all
Pages 41-49 | Received 14 Jul 2022, Accepted 18 Nov 2022, Published online: 05 Jan 2023

References

  • Conner BJ, Reyes AA, Morin C, Itakura K, Teplitz RL, Wallace RB. Detection of sickle cell beta S-globin allele by hybridization with synthetic oligonucleotides. Proc Natl Acad Sci USA. 1983;80(1):278–282. doi:10.1073/pnas.80.1.278
  • National Heart, Lung, and Blood Institute [homepage on the Internet]. Disease and conditions index. Sickle Cell Anemia; 2010. Available from: http://www.nhlbi.nih.gov/health/dci/Diseases/Sca/SCA_WhatIs.html. Accessed July 21, 2021.
  • The consensus statement on the care of patients with sickle cell disease in Canada. CanHaem; 2015. Available from: http://canhaem.org/the-consensus-statement-on-the-care-of-patients-with-sickle-cell-disease-in-canada/. Accessed 15, March 2022.
  • Hassell K. Population estimates of sickle cell disease in the U.S. Am J Prev Med. 2010;38(4):S512–S521. doi:10.1016/j.amepre.2009.12.022
  • Yale SH, Nagib N, Guthrie T. Approach to the vaso-occlusive crisis in adults with sickle cell disease [published correction appears in Am Fam Physician. 2001;64(2):220]. Am Fam Physician. 2000;61(5):1349–1364.
  • Brandow AM, Zappia KJ, Stucky CL. Sickle cell disease: a natural model of acute and chronic pain. Pain. 2017;158 Suppl 1(Suppl1):S79–S84. doi:10.1097/j.pain.0000000000000824
  • Bender MA. Sickle cell disease. In: Adam MP, Everman DB, Mirzaa GM, editors. GeneReviews [Internet]. Seattle: University of Washington; 2022. Available from: https://www.ncbi.nlm.nih.gov/books/NBK1377/. Accessed 17 August 2021.
  • Adams-Graves PE, Bronte-Jordan L. Recent treatment guidelines for managing adult patients with sickle cell disease: challenges in access to care, social issues, and adherence. Expert Rev Hematol. 2016;9:541–552. doi:10.1080/17474086.2016.1180242
  • Wilson BH, Nelson J. Sickle cell disease pain management in adolescents: a literature review. Pain Manag Nurs. 2015;16(2):146–151. doi:10.1016/j.pmn.2014.05.015
  • Jenerette CM, Brewer CA, Ataga KI. Care seeking for pain in young adults with sickle cell disease. Pain Manag Nurs. 2014;15(1):324–330. doi:10.1016/j.pmn.2012.10.007
  • Okpala I, Tawil A. Management of pain in sickle-cell disease. J R Soc Med. 2002;95(9):456–458. doi:10.1177/014107680209500909
  • Osunkwo I, Andemariam B, Minniti CP, et al. Impact of sickle cell disease on patients’ daily lives, symptoms reported, and disease management strategies: results from the international Sickle Cell World Assessment Survey (SWAY). Am J Hematol. 2021;96(4):404–417. doi:10.1002/ajh.26063
  • Darbari DS, Brandow AM. Pain-measurement tools in sickle cell disease: where are we now? Hematology Am Soc Hematol Educ Program. 2017;2017(1):534–541. doi:10.1182/asheducation-2017.1.534
  • Derek CH, Fiona GK, Andrea JP, et al. Emergency department quality of care for sickle cell disease in Ontario, Canada: a population-based matched cohort study. medRxiv. 2022. doi:10.1101/2022.07.06.22277294
  • Shapiro BS, Benjamin LJ, Payne R, Heidrich G. Sickle cell-related pain: perceptions of medical practitioners. J Pain Symptom Manage. 1997;14(3):168–174. doi:10.1016/S0885-3924(97)00019-5
  • Waldrop RD, Mandry C. Health professional perceptions of opioid dependence among patients with pain. Am J Emerg Med. 1995;13(5):529–531. doi:10.1016/0735-6757(95)90163-9
  • Saulsberry AC, Porter JS, Hankins JS. A program of transition to adult care for sickle cell disease. Hematology Am Soc Hematol Educ Program. 2019;2019(1):496–504. doi:10.1182/hematology.2019000054

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.