A Theoretical Qualitative Investigation Exploring Illness Perceptions and Decision-Making About COVID-19 in an Ethnically Diverse UK-Based Sample

References

• World Health Organisation. Coronavirus disease (COVID-19). Available from: https://www.who.int/health-topics/coronavirus#tab=tab_1. Accessed February 7, 2023.
   Google Scholar
• Institure for Government. Timeline of UK government coronavirus lockdowns and restrictions; 2022. Available from: https://www.instituteforgovernment.org.uk/charts/uk-government-coronavirus-lockdowns. Accessed February 7, 2023.
   Google Scholar
• Dias Neto D, Nunes da Silva A, Roberto MS, et al. Illness perceptions of COVID-19 in Europe: predictors, impacts and temporal evolution. Front Psychol. 2021;12:1–11. doi:10.3389/fpsyg.2021.640955
   Web of Science ®Google Scholar
• Dixon D, Den Daas C, Hubbard G, Johnston M. Using behavioural theory to understand adherence to behaviours that reduce transmission of COVID-19; evidence from the CHARIS representative national study. Br J Health Psychol. 2022;27(1):116–135. doi:10.1111/bjhp.12533
   PubMed Web of Science ®Google Scholar
• Skapinakis P, Bellos S, Oikonomou A, et al. Depression and its relationship with coping strategies and illness perceptions during the COVID-19 lockdown in Greece: a cross-sectional survey of the population. Depress Res Treat. 2020. doi:10.1155/2020/3158954
   PubMedGoogle Scholar
• Chong YY, Chien WT, Cheng HY, et al. The role of illness perceptions, coping, and self-efficacy on adherence to precautionary measures for COVID-19. Int J Environ Res Public Health. 2020;17(18):6540. doi:10.3390/IJERPH17186540
   PubMed Web of Science ®Google Scholar
• Shiloh S, Peleg S, Nudelman G. Making sense of COVID-19: a longitudinal investigation of the initial stages of developing illness representations. Psychol Health. 2021. doi:10.1080/08870446.2021.1925670
   PubMed Web of Science ®Google Scholar
• Figueiras MJ, Dias Neto D, Maroco J, Kern de Castro E. Is my risk lower than yours? The role of compared risk, illness perceptions, and self-efficacy as determinants of perceived risk for COVID-19. Heal Risk Soc. 2022;24(1–2):54–66. doi:10.1080/13698575.2022.2031911
   Web of Science ®Google Scholar
• Leventhal H, Phillips LA, Burns E. The Common-Sense Model of Self-Regulation (CSM): a dynamic framework for understanding illness self-management. J Behav Med. 2016;39(6):935–946. doi:10.1007/s10865-016-9782-2
   PubMed Web of Science ®Google Scholar
• Dempster M, Howell D, McCorry NK. Illness perceptions and coping in physical health conditions: a meta-analysis. J Psychosom Res. 2015;79(6):506–513. doi:10.1016/J.JPSYCHORES.2015.10.006
   PubMed Web of Science ®Google Scholar
• Figueiras MJ, Alves NC. Psychology and Health Lay perceptions of serious illnesses: an adapted version of the Revised Illness Perception Questionnaire (IPQ-R) for healthy people. Psychol Health. 2007. doi:10.1080/14768320600774462
   Web of Science ®Google Scholar
• Vollmann M, Salewski C. To get vaccinated, or not to get vaccinated, that is the question: illness representations about covid-19 and perceptions about covid-19 vaccination as predictors of covid-19 vaccination willingness among young adults in the Netherlands. Vaccines. 2021;9(9). doi:10.3390/vaccines9090941
   Web of Science ®Google Scholar
• Chan VWY, Kong APS, Lau JTF, Mak WWS, Cameron LD, Mo PKH. An intervention to change illness representations and self-care of individuals with type 2 diabetes: a randomized controlled trial. Psychosom Med. 2021;83(1):71–84. doi:10.1097/PSY.0000000000000883
   PubMed Web of Science ®Google Scholar
• Figueiras MJ, Maroco J, Monteiro R, Caeiro R, Dias Neto D. Randomized controlled trial of an intervention to change cardiac misconceptions in myocardial infarction patients. Psychol Health Med. 2017;22(3):255–265. doi:10.1080/13548506.2016.1153677
   PubMed Web of Science ®Google Scholar
• Petrie KJ, Cameron LD, Ellis CJ, Buick D, Weinman J. Changing illness perceptions after myocardial infarction: an early intervention randomized controlled trial. Psychosom Med. 2002;64(4):580–586. doi:10.1097/00006842-200207000-00007
   PubMed Web of Science ®Google Scholar
• World Health Organization. Coronavirus disease (COVID-19): vaccines; 2020. Available from: https://www.who.int/news-room/questions-and-answers/item/coronavirus-disease-(covid-19)-vaccines. Accessed September 8, 2022.
   Google Scholar
• MacDonald NE, Eskola J, Liang X, et al. Vaccine hesitancy: definition, scope and determinants. Vaccine. 2015;33(34):4161–4164. doi:10.1016/J.VACCINE.2015.04.036
   PubMed Web of Science ®Google Scholar
• Scientific Advisory Group for Emergencies. Factors influencing COVID-19 vaccine uptake among minority ethnic groups, 17 December 2020 - GOV.UK; 2020. Available from: https://www.gov.uk/government/publications/factors-influencing-covid-19-vaccine-uptake-among-minority-ethnic-groups-17-december-2020. Accessed September 8, 2022.
   Google Scholar
• Iyengar KP, Vaishya R, Jain VK, Ish P. BAME community hesitancy in the UK for COVID-19 vaccine: suggested solutions. Postgrad Med J. 2022;98(e2):e134–e135. doi:10.1136/POSTGRADMEDJ-2021-139957
   PubMed Web of Science ®Google Scholar
• Ekezie W, Czyznikowska BM, Rohit S, et al. The views of ethnic minority and vulnerable communities towards participation in COVID-19 vaccine trials. J Public Health. 2021;43(2):e258–e260. doi:10.1093/PUBMED/FDAA196
   Google Scholar
• Robertson E, Reeve KS, Niedzwiedz CL, et al. Predictors of COVID-19 vaccine hesitancy in the UK Household Longitudinal Study. Brain Beh Immun. 2021;94:41–50. doi:10.1101/2020.12.27.20248899
   PubMed Web of Science ®Google Scholar
• UK Government. COVID-19: review of disparities in risks and outcomes - GOV.UK. Available from: https://www.gov.uk/government/publications/covid-19-review-of-disparities-in-risks-and-outcomes.; 2020. Accessed September 8, 2022.
   Google Scholar
• Quinn SC, Jamison A, Freimuth VS, An J, Hancock GR, Musa D. Exploring racial influences on flu vaccine attitudes and behavior: results of a national survey of White and African American adults. Vaccine. 2017;35(8):1167–1174. doi:10.1016/J.VACCINE.2016.12.046
   PubMed Web of Science ®Google Scholar
• Musa D, Schulz R, Harris R, Silverman M, Thomas SB. Trust in the health care system and the use of preventive health services by older black and white adults. Am J Public Health. 2009;99(7):1293–1299. doi:10.2105/AJPH.2007.123927
   PubMed Web of Science ®Google Scholar
• Birkhäuer J, Gaab J, Kossowsky J, et al. Trust in the health care professional and health outcome: a meta-analysis. PLoS One. 2017;12(2). doi:10.1371/JOURNAL.PONE.0170988
   Web of Science ®Google Scholar
• Gille F, Smith S, Mays N. Why public trust in health care systems matters and deserves greater research attention. J Health Serv Res Policy. 2015;20(1):62–64. doi:10.1177/1355819614543161
   PubMed Web of Science ®Google Scholar
• Sullivan LS. Trust, risk, and race in American medicine. Hastings Cent Rep. 2020;50(1):18–26. doi:10.1002/HAST.1080
   PubMed Web of Science ®Google Scholar
• Schwei RJ, Kadunc K, Nguyen AL, Jacobs EA. Impact of sociodemographic factors and previous interactions with the health care system on institutional trust in three racial/ethnic groups. Patient Educ Couns. 2014;96(3):333–338. doi:10.1016/J.PEC.2014.06.003
   PubMed Web of Science ®Google Scholar
• Willis DE, Andersen JA, Montgomery BEE, et al. COVID-19 vaccine hesitancy and experiences of discrimination among black adults. J Racial Ethn Heal Disparities. 2022;1–10. doi:10.1007/S40615-022-01290-X/TABLES/3
   Web of Science ®Google Scholar
• Park J. Historical origins of the Tuskegee experiment: the dilemma of public health in the United States. Uisahak. 2017;26(3):545–578. doi:10.13081/KJMH.2017.26.545
   PubMedGoogle Scholar
• Williams W. Windrush lessons learned review: independent review by Wendy Williams. Available from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/876336/6.5577_HO_Windrush_Lessons_Learned_Review_LoResFinal.pdf. Accessed February 7, 2023.
   Google Scholar
• Ferguson E, Dawe-Lane E, Khan Z, et al. Trust and distrust: identifying recruitment targets for ethnic minority blood donors. Transfus Med. 2022;32(4):276–287. doi:10.1111/TME.12867
   PubMed Web of Science ®Google Scholar
• McDonald S, Ferguson E, Hagger M, Je Foss A, King AJ. Patient Preference and Adherence Dovepress A theory-driven qualitative study exploring issues relating to adherence to topical glaucoma medications. Patient Prefer Adhere. 2019. doi:10.2147/PPA.S174922
   PubMed Web of Science ®Google Scholar
• National Health Service. Who is at high risk from coronavirus (COVID-19) - NHS. Available from: https://www.nhs.uk/conditions/coronavirus-covid-19/people-at-higher-risk/who-is-at-high-risk-from-coronavirus/. Accessed September 8, 2022.
   Google Scholar
• World Medical Association. Declaration of Helsinki: ethical principles for medical research involving human subjects. J Am Coll Dent. 2013;81(3):14–18. doi:10.1093/acprof:
   Google Scholar
• Broadbent E, Petrie KJ, Main J, Weinman J. The brief illness perception questionnaire. J Psychosom Res. 2006;60(6):631–637. doi:10.1016/J.JPSYCHORES.2005.10.020
   PubMed Web of Science ®Google Scholar
• McDonald S, Ferguson E, Hagger MS, Foss AJE, King AJ. A theory-driven qualitative study exploring issues relating to adherence to topical glaucoma medications. Patient Prefer Adherence. 2019;13:819–828. doi:10.2147/PPA.S174922
   PubMed Web of Science ®Google Scholar
• Antonelli M, Penfold RS, Merino J, et al. Risk factors and disease profile of post-vaccination SARS-CoV-2 infection in UK users of the COVID Symptom Study app: a prospective, community-based, nested, case-control study. Lancet Infect Dis. 2022;22(1):43–55. doi:10.1016/S1473-3099(21)00460-6
   PubMed Web of Science ®Google Scholar
• Al-Aly Z, Bowe B, Xie Y. Long COVID after breakthrough SARS-CoV-2 infection. Nat Med. 2022;28(7):1461–1467. doi:10.1038/s41591-022-01840-0
   PubMed Web of Science ®Google Scholar
• Cialdini RB, Goldstein NJ. SOCIAL INFLUENCE: compliance and conformity. Annu Rev Psychol. 2004;55:591–621. doi:10.1146/annurev.psych.55.090902.142015
   PubMed Web of Science ®Google Scholar
• Woodcock A, Wesley Schultz P. The role of conformity in mask-wearing during COVID-19. PLoS One. 2021;16(12):e0261321. doi:10.1371/JOURNAL.PONE.0261321
   PubMed Web of Science ®Google Scholar
• Rossi R, Socci V, Talevi D, et al. COVID-19 pandemic and lockdown measures impact on mental health among the general population in Italy. Front Psychiatry. 2020;11:7–12. doi:10.3389/fpsyt.2020.00790
   PubMed Web of Science ®Google Scholar