Experience of Disease Acceptance in Chinese Patients with Newly Diagnosed Crohn’s Disease: A Descriptive Qualitative Study

References

• Dembo T, Leviton GL, Wright BA. Adjustment to misfortune: a problem of social-psychological rehabilitation. Rehabil Psychol. 1975;22(1):i–iv, 1–100. doi:10.1037/h0090832
   Google Scholar
• McCracken LM, Eccleston C. Coping or acceptance: what to do about chronic pain? Pain. 2003;105(1–2):197–204. doi:10.1016/s0304-3959(03)00202-1
   PubMed Web of Science ®Google Scholar
• Zauszniewski JA, McDonald PE, Krafcik K, Chung C, Dobratz MC, Downe-Wamboldt B. Acceptance, cognitions, and resourcefulness in women with diabetes. West J Nurs Res. 2002;24(7):728–43; discussion 744–50. doi:10.1177/019394502762476951
   Web of Science ®Google Scholar
• Kołtuniuk A, Rosińczuk J. The levels of depression, anxiety, acceptance of illness, and medication adherence in patients with multiple sclerosis - descriptive and correlational study. Int J Med Sci. 2021;18(1):216–225. doi:10.7150/ijms.51172
   PubMed Web of Science ®Google Scholar
• Qiu C, Zhang X, Zang X, Zhao Y. Acceptance of illness mediate the effects of health literacy on self-management behaviour. Eur J Cardiovasc Nurs. 2020;19(5):411–420. doi:10.1177/1474515119885240
   PubMed Web of Science ®Google Scholar
• Sadeghiazar S, Mobasseri K, Gholizadeh L, et al. Illness acceptance, medication adherence and the quality of life in patients with heart failure: a path analysis of a conceptual model. Appl Nurs Res. 2022;65:151583. doi:10.1016/j.apnr.2022.151583
   PubMed Web of Science ®Google Scholar
• Fourie S, Jackson D, Aveyard H. Living with inflammatory bowel disease: a review of qualitative research studies. Int J Nurs Stud. 2018;87:149–156. doi:10.1016/j.ijnurstu.2018.07.017
   PubMed Web of Science ®Google Scholar
• Ruan J, Wu L, Zhou Y. Experiences of body image changes in Chinese patients living with inflammatory bowel disease: a descriptive qualitative study. Asian Nurs Res. 2020;14(4):196–205. doi:10.1016/j.anr.2020.07.006
   PubMed Web of Science ®Google Scholar
• Luo XP, Mao R, Chen BL, et al. Over-reaching beyond disease activity: the influence of anxiety and medical economic burden on health-related quality of life in patients with inflammatory bowel disease. Patient Prefer Adherence. 2016;11:23–31. doi:10.2147/PPA.S118589
   PubMed Web of Science ®Google Scholar
• Kaplan GG, Windsor JW. The four epidemiological stages in the global evolution of inflammatory bowel disease. Nat Rev Gastroenterol Hepatol. 2021;18(1):56–66. doi:10.1038/s41575-020-00360-x
   PubMed Web of Science ®Google Scholar
• Ng SC, Kaplan GG, Tang W, et al. Population density and risk of inflammatory bowel disease: a prospective population-based study in 13 countries or regions in Asia-Pacific. Am J Gastroenterol. 2019;114(1):107–115. doi:10.1038/s41395-018-0233-2
   PubMed Web of Science ®Google Scholar
• Kaplan GG. The global burden of IBD: from 2015 to 2025. Nat Rev Gastroenterol Hepatol. 2015;12(12):720–727. doi:10.1038/nrgastro.2015.150
   PubMed Web of Science ®Google Scholar
• Chrobak-Bień J, Gawor A, Paplaczyk M, et al. The influence of socio-demographic and clinical factors on the process of acceptance of the disease among patients with ulcerative colitis. Pol Przegl Chir. 2018;90(6):1–5. doi:10.5604/01.3001.0012.1753
   PubMedGoogle Scholar
• Sirois FM, Hirsch JK. A longitudinal study of the profiles of psychological thriving, resilience, and loss in people with inflammatory bowel disease. British J Health Psychol. 2017; 22(4):920–939. doi:10.1111/bjhp.12262
   PubMed Web of Science ®Google Scholar
• Evers AW, Kraaimaat FW, van Lankveld W, et al. Beyond unfavorable thinking: the illness cognition questionnaire for chronic diseases. J Consult Clin Psychol. 2001;69(6):1026–1036. doi:10.1037/0022-006X.69.6.1026
   PubMed Web of Science ®Google Scholar
• Ruan J, Zhou Y. Regaining normality: a grounded theory study of the illness experiences of Chinese patients living with Crohn’s disease. Int J Nurs Stud. 2019;93:87–96. doi:10.1016/j.ijnurstu.2019.02.015
   PubMed Web of Science ®Google Scholar
• Chen L, Zhou Y. The symptom experience of newly diagnosed Chinese patients with Crohn’s disease: a longitudinal qualitative study. J Adv Nurs. 2023;79(10):3824–3836. doi:10.1111/jan.15721
   PubMed Web of Science ®Google Scholar
• Horgan L, Richards H, Joy A. The young adult male’s perception of life with inflammatory bowel disease and a stoma: a qualitative examination. J Clin Psychol Med Settings. 2020;27(3):560–571. doi:10.1007/s10880-019-09695-3
   PubMed Web of Science ®Google Scholar
• Sullivan-Bolyai S, Bova C, Harper D. Developing and refining interventions in persons with health disparities: the use of qualitative description. Nurs Outlook. 2005;53(3):127–133. doi:10.1016/j.outlook.2005.03.005
   PubMed Web of Science ®Google Scholar
• Neergaard MA, Olesen F, Andersen RS, et al. Qualitative description - The poor cousin of health research? BMC Med Res Methodol. 2009;9(1):52. doi:10.1186/1471-2288-9-52
   PubMed Web of Science ®Google Scholar
• Inflammatory Bowel Disease Group, Chinese Society of Gastroenterology, Chinese Medical Association. Chinese consensus on diagnosis and treatment in inflammatory bowel disease (2018, Beijing). J Dig Dis. 2021;22(6):298–317. doi:10.1111/1751-2980.12994
   PubMed Web of Science ®Google Scholar
• Harvey RF, Bradshaw JM. A simple index of Crohn’s-disease activity. Lancet. 1980;1(8167):514. doi:10.1016/s0140-6736(80)92767-1
   PubMed Web of Science ®Google Scholar
• Best WR. Predicting the Crohn’s disease activity index from the Harvey-Bradshaw Index. Inflamm Bowel Dis. 2006;12(4):304–310. doi:10.1097/01.MIB.0000215091.77492.2a
   PubMed Web of Science ®Google Scholar
• Mirza RM, MacKean G, Shaffer SR, et al. Patient experiences in the management of inflammatory Bowel disease: a qualitative study. J Can Assoc Gastroenterol. 2022;5(6):261–270. doi:10.1093/jcag/gwac014
   PubMedGoogle Scholar
• Kurowski JA, Bewtra M, Kodish E, Lashner B. Reducing the spread of internet misinformation in IBD: ethics and responsibility. Inflamm Bowel Dis. 2021;27(6):960–962. doi:10.1093/ibd/izaa335
   PubMed Web of Science ®Google Scholar
• Zhang X, Ghorbani AA. An overview of online fake news: characterization, detection, and discussion. Inf Process Manag. 2020;57(2):102025. doi:10.1016/j.ipm.2019.03.004
   Web of Science ®Google Scholar
• Peeters Y, Vliet Vlieland TP, Stiggelbout AM. Focusing illusion, adaptation and EQ-5D health state descriptions: the difference between patients and public. Health Expect. 2012;15(4):367–378. doi:10.1111/j.1369-7625.2011.00667.x
   PubMed Web of Science ®Google Scholar
• Guo F, Hanley T. Adapting cognitive behavioral therapy to meet the needs of Chinese clients: opportunities and challenges. Psy Ch J. 2015;4(2):55–65. doi:10.1002/pchj.75
   PubMed Web of Science ®Google Scholar
• Norton BA, Thomas R, Lomax KG, Dudley-Brown S. Patient perspectives on the impact of Crohn’s disease: results from group interviews. Patient Prefer Adherence. 2012;6:509–520. doi:10.2147/PPA.S32690
   PubMed Web of Science ®Google Scholar
• Ma S. Nurses should recognise that focusing only on the resolution of physical symptoms may not be enough to overcome the psychosocial implications of living with a chronic disease. Evid Based Nurs. 2021;24(1):6. doi:10.1136/ebnurs-2019-103245
   PubMedGoogle Scholar
• Watts A. The Way of Zen. New York: Pantheon; 1957.
   Google Scholar
• Banner M. Wu-Wei: concept analysis of a conceptual paradox. Issues Ment Health Nurs. 2018;39(4):304–310. doi:10.1080/01612840.2017.1398792
   PubMed Web of Science ®Google Scholar
• Barrett NF. Wuwei and Flow: comparative Reflections on Spirituality, Transcendence, and Skill in the Zhuangzi. Philos East West. 2011;61(4):679–706. doi:10.1353/pew.2011.0051
   Web of Science ®Google Scholar
• Park M, Chesla C. Revisiting Confucianism as a conceptual framework for Asian family study. J Fam Nurs. 2007;13(3):293–311. doi:10.1177/1074840707304400
   PubMed Web of Science ®Google Scholar
• Byron C, Cornally N, Burton A, Savage E. Challenges of living with and managing inflammatory bowel disease: a meta-synthesis of patients’ experiences. J Clin Nurs. 2020;29(3–4):305–319. doi:10.1111/jocn.15080
   PubMed Web of Science ®Google Scholar
• Muse K, Johnson E, David AL. A feeling of otherness: a qualitative research synthesis exploring the lived experiences of stigma in individuals with inflammatory bowel disease. Int J Environ Res Public Health. 2021;18(15):8038. doi:10.3390/ijerph18158038
   PubMed Web of Science ®Google Scholar