References
- Soden R, Walsh J, Middleton J, Craven M, Rutkowski S, Yeo J. Causes of death after spinal cord injury. Spinal Cord. 2000;38(10):604–610. doi:10.1038/sj.sc.3101080
- Middleton JW, Dayton A, Walsh J, Rutkowski SB, Leong G, Duong S. Life expectancy after spinal cord injury: a 50-year study. Spinal Cord. 2012;50(11):803–811. doi:10.1038/sc.2012.55
- Peterson MD, Kamdar N, Chiodo A, Tate DG. Psychological morbidity and chronic disease among adults with traumatic spinal cord injuries: a longitudinal cohort study of privately insured beneficiaries. Mayo Clin Proc. 2020;95(5):920–928. doi:10.1016/j.mayocp.2019.11.029
- Medicine CfSC. Depression Following Spinal Cord Injury: A Clinical Practice Guideline for Primary Care Physicians. Washington, DC: Paralyzed Veterans of America; 1998.
- Bombardier CH, Azuero CB, Fann JR, Kautz DD, Richards JS, Sabharwal S. Management of mental health disorders, substance use disorders, and suicide in adults with spinal cord injury: clinical practice guideline for healthcare providers. Top Spinal Cord Injury Rehabil. 2021;27(2):152–224.
- Clifton S. Grieving my broken body: an autoethnographic account of spinal cord injury as an experience of grief. Dis Rehabil. 2014;36(21):1823–1829. doi:10.3109/09638288.2013.872202
- Kornhaber R, McLean L, Betihavas V, Cleary M. Resilience and the rehabilitation of adult spinal cord injury survivors: a qualitative systematic review. J Adv Nurs. 2018;74(1):23–33. doi:10.1111/jan.13396
- Craig A, Tran Y, Middleton J. Psychological morbidity and spinal cord injury: a systematic review. Spinal Cord. 2009;47(2):108–114. doi:10.1038/sc.2008.115
- Sachdeva R, Gao F, Chan CCH, Krassioukov AV. Cognitive function after spinal cord injury: a systematic review. Neurology. 2018;91(13):611–621. doi:10.1212/WNL.0000000000006244
- McDonald SD, Pugh M, Mickens MN. Resilience after spinal cord injury: a scoping review. Am J Phys Med Rehabil. 2020;99(8):752–763. doi:10.1097/PHM.0000000000001371
- Sharpe L, Curran L. Understanding the process of adjustment to illness. Soc Sci Med. 2006;62(5):1153–1166. doi:10.1016/j.socscimed.2005.07.010
- Chevalier Z, Kennedy P, Sherlock O. Spinal cord injury, coping and psychological adjustment: a literature review. Spinal Cord. 2009;47(11):778–782. doi:10.1038/sc.2009.60
- Peter C, Müller R, Cieza A, Geyh S. Psychological resources in spinal cord injury: a systematic literature review. Spinal Cord. 2012;50(3):188–201. doi:10.1038/sc.2011.125
- Buckelew SP, Frank RG, Elliott TR, Chaney J, Hewett J. Adjustment to spinal cord injury: stage theory revisited. Spinal Cord. 1991;29(2):125–130. doi:10.1038/sc.1991.17
- Woodbury B. Psychological adjustment to spinal cord injury: a literature review, 1950–1977. Rehabil Psychol. 1978;25(3):119–163. doi:10.1037/h0090916
- Craig A, Tran Y, Middleton J. Theory of adjustment following severe neurological injury: evidence supporting the spinal cord injury adjustment model. In: Costa A, Villalba E, editors. Horizons in Neuroscience Research. Vol. 29. New York: Nova Science Publishers; 2017:117–139.
- Christensen AJ, Smith TW, Turner CW, Cundick KE. Patient adherence and adjustment in renal dialysis: a person x treatment interactive approach. J Behav Med. 1994;17(6):549–566.
- Park CL, Folkman S, Bostrom A. Appraisals of controllability and coping in caregivers and HIV+ men: testing the goodness-of-fit hypothesis. J Consult Clin Psychol. 2001;69(3):481–488. doi:10.1037/0022-006X.69.3.481
- Duff J, Angell B. Regaining a sense of me: a single case study of SCI adjustment, applying the appraisal model and coping effectiveness training. Spinal Cord Ser Cases. 2021;7(1):11. doi:10.1038/s41394-020-00349-3
- APA PsycNet. Adaptation during spinal cord injury rehabilitation: the role of appraisal and coping [press release]. US: American Psychological Association; 2021.
- Kennedy P, Nolan M, Smithson E. Psychological adjustment to spinal cord injury in Ireland: quality of life, appraisals and coping. Irish J Psychol. 2011;32:116129.
- Dorsett P, Geraghty T, Sinnott A, Acland R. Hope, coping and psychosocial adjustment after spinal cord injury. Spinal Cord Ser Cases. 2017;3(1):17046. doi:10.1038/scsandc.2017.46
- Crewe NM, Krause JS. An eleven-year follow-up of adjustment to spinal cord injury. Rehabil Psychol. 1990;35(4):205–210. doi:10.1037/h0079064
- Stensman R. Adjustment to traumatic spinal cord injury. A longitudinal study of self-reported quality of life. Spinal Cord. 1994;32(6):416–422. doi:10.1038/sc.1994.68
- Hitzig SL, Eng JJ, Miller WC, Sakakibara BM. An evidence-based review of aging of the body systems following spinal cord injury. Spinal Cord. 2011;49(6):684–701. doi:10.1038/sc.2010.178
- Larsen PD, Lubkin IM. Chronic Illness: Impact and Intervention. 7th ed. ed, Sudbury MA. Jones and Bartlett Publishers; 2009.
- Dyck DG, Weeks DL, Smith CL, Shaw M. Multiple family group intervention for spinal cord injury: quantitative and qualitative comparison with standard education. J Spinal Cord Med. 2021;44(4):572–582. doi:10.1080/10790268.2019.1710946
- van Diemen T, van Nes IJW, van Laake-Geelen CCM, et al. Learning self-care skills after spinal cord injury: a qualitative study. BMC Psychol. 2021;9(1):155. doi:10.1186/s40359-021-00659-7
- Conti A, Dimonte V, Rizzi A, et al. Barriers and facilitators of education provided during rehabilitation of people with spinal cord injuries: a qualitative description. PLoS One. 2020;15(10):e0240600. doi:10.1371/journal.pone.0240600
- May L, Day R, Warren S. Perceptions of patient education in spinal cord injury rehabilitation. Dis Rehabil. 2006;28(17):1041–1049. doi:10.1080/09638280500494744
- May L, Day R, Warren S. Evaluation of patient education in spinal cord injury rehabilitation: knowledge, problem-solving and perceived importance. Dis Rehabil. 2006;28(7):405–413. doi:10.1080/09638280500192439
- Kennedy P, Hamilton LR. The needs assessment checklist: a clinical approach to measuring outcome. Spinal Cord. 1999;37(2):136–139. doi:10.1038/sj.sc.3100745
- Scherer KR. Appraisal theory. In: Handbook of Cognition and Emotion. New York, NY, US: John Wiley & Sons Ltd; 1999:637–663.
- Kennedy P, Lude P, Elfström ML, Smithson E. Appraisals, coping and adjustment pre and post SCI rehabilitation: a 2-year follow-up study. Spinal Cord. 2012;50(2):112–118. doi:10.1038/sc.2011.127
- Galvin LR, Godfrey HPD. The impact of coping on emotional adjustment to spinal cord injury (SCI): review of the literature and application of a stress appraisal and coping formulation. Spinal Cord. 2001;39(12):615–627. doi:10.1038/sj.sc.3101221
- Chandler M, Kennedy P, Sandhu N. The association between threat appraisals and psychological adjustment in partners of people with spinal cord injuries. Rehabil Psychol. 2007;52(4):470–477. doi:10.1037/0090-5550.52.4.470
- Craig A, Tran Y, Siddall P, et al. Developing a model of associations between chronic pain, depressive mood, chronic fatigue, and self-efficacy in people with spinal cord injury. J Pain. 2013;14(9):911–920. doi:10.1016/j.jpain.2013.03.002
- Livneh H. Psychosocial adaptation to spinal cord injury: the role of coping strategies. J Appl Rehabil Counsel. 2000;31(2):3–10. doi:10.1891/0047-2220.31.2.3
- Kennedy P, Duff J, Evans M, Beedie A. Coping effectiveness training reduces depression and anxiety following traumatic spinal cord injuries. Br J Clin Psychol. 2003;42(1):41–52. doi:10.1348/014466503762842002
- APA PsycNet. Coping effectiveness training during acute rehabilitation of spinal cord injury/dysfunction: a randomized clinical trial [press release]. US: American Psychological Association; 2009.
- Wadsworth BJ. Piaget’s Theory of Cognitive and Affective Development: Foundations of Constructivism. 5th ed. White Plains, NY, England: Longman Publishing; 1996.
- Gendreau A, de la Sablonnière R. The cognitive process of identity reconstruction after the onset of a neurological disability. Dis Rehabil. 2014;36(19):1608–1617. doi:10.3109/09638288.2013.859749
- Forber-Pratt AJ, Lyew DA, Mueller C, Samples LB. Disability identity development: a systematic review of the literature. Rehabil Psychol. 2017;62(2):198–207. doi:10.1037/rep0000134
- Saia TA. Identity reconstruction following neurological disability onset. Rehabil Professional. 2021;29:2.
- Yoshida KK. Reshaping of self: a pendular reconstruction of self and identity among adults with traumatic spinal cord injury. Sociol Health Illn. 1993;15(2):217–245. doi:10.1111/1467-9566.ep11346888
- Litman JA. The COPE inventory: dimensionality and relationships with approach- and avoidance-motives and positive and negative traits. Person Ind Diff. 2006;41(2):273–284. doi:10.1016/j.paid.2005.11.032
- Finset A, Steine S, Haugli L, Steen E, Laerum E. The brief approach/avoidance coping questionnaire: development and validation. Psychol Health Med. 2002;7(1):75–85. doi:10.1080/13548500120101577
- Carroll L. Problem-Focused Coping. In: Gellman MD, editor. Encyclopedia of Behavioral Medicine. Cham: Springer International Publishing; 2020:1747–1748.
- Ghaderi A. Coping: escape avoidance. In: Wade T, editor. Encyclopedia of Feeding and Eating Disorders. Singapore: Springer Singapore; 2017:172–175.
- Anderson CJ, Vogel LC, Chlan KM, Betz RR. Coping with spinal cord injury: strategies used by adults who sustained their injuries as children or adolescents. J Spinal Cord Med. 2008;31(3):290–296. doi:10.1080/10790268.2008.11760725
- Shamshiri M, Eskandar Oghli B, Vafaee M, Molaei B. Adaptive coping strategies in patients with spinal cord injury: a phenomenological study. IJPCP. 2021;26(4):478–489. doi:10.32598/ijpcp.26.3.2975.1
- APA PsycNet. Coping effectiveness training [press release]. Cham, Switzerland: Springer International Publishing 2017.
- Kennedy P, Taylor NM, Duff J. Characteristics predicting effective outcomes after coping effectiveness training for patients with spinal cord injuries. J Clin Psychol Medl Settings. 2005;12(1):93–98. doi:10.1007/s10880-005-0917-9
- Heppner PP. Expanding the conceptualization and measurement of applied problem solving and coping: from stages to dimensions to the almost forgotten cultural context. Am Psychol. 2008;63(8):805–816. doi:10.1037/0003-066X.63.8.805
- Eckenrode J. The Social Context of Coping. Springer Science & Business Media; 2013.
- Weisman A. On Dying and Denying: A Psychiatric Study of Terminality. New York: Behavioral Publications; 1972.
- Klyce DW, Bombardier CH, Davis TJ, et al. Distinguishing grief from depression during acute recovery from spinal cord injury. Arch Phys Med Rehabil. 2015;96(8):1419–1425. doi:10.1016/j.apmr.2015.02.018
- Prigerson HG, Horowitz MJ, Jacobs SC, et al. Prolonged grief disorder: psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Med. 2009;6(8):e1000121. doi:10.1371/journal.pmed.1000121
- Jacobsen JC, Zhang B, Block SD, Maciejewski PK, Prigerson HG. Distinguishing symptoms of grief and depression in a cohort of advanced cancer patients. Death Stud. 2010;34(3):257–273. doi:10.1080/07481180903559303
- Bombardier CH, Hurt SM, Peters N. A primary care provider’s guide to depression after spinal cord injury: is it normal? Do we treat it? Top Spinal Cord Injury Rehabil. 2020;26(3):152–156. doi:10.46292/sci2603-152
- Wittouck C, Van Autreve S, De Jaegere E, Portzky G, van Heeringen K. The prevention and treatment of complicated grief: a meta-analysis. Clin Psychol Rev. 2011;31(1):69–78. doi:10.1016/j.cpr.2010.09.005
- Dimidjian S, Hollon SD. How would we know if psychotherapy were harmful? Am Psychol. 2010;65(1):21–33. doi:10.1037/a0017299
- Schut H, Stroebe MS, van den Bout J, Terheggen M. The efficacy of bereavement interventions: determining who benefits. In: Handbook of Bereavement Research: Consequences, Coping, and Care. Washington, DC, US: American Psychological Association; 2001:705–737.
- Schut H, Stroebe MS. Interventions to enhance adaptation to bereavement. J Pall Med. 2005;8(supplement 1):s-140-s-147. doi:10.1089/jpm.2005.8.s-140
- Wetherell JL. Complicated grief therapy as a new treatment approach. Dialogues Clin Neurosci. 2012;14(2):159–166. doi:10.31887/DCNS.2012.14.2/jwetherell
- Shear K, Frank E, Houck PR, Reynolds CF 3rd. Treatment of complicated grief: a randomized controlled trial. JAMA. 2005;293(21):2601–2608. doi:10.1001/jama.293.21.2601
- Bonanno GA. The Other Side of Sadness: What the New Science of Bereavement Tells Us About Life After Loss. UK: Hachette; 2019.
- Vella S-L PN. A theoretical review of psychological resilience: defining resilience and resilience research over the decades. Arch Med Health Sci. 2019;7(2):233–239. doi:10.4103/amhs.amhs_119_19
- Miller-Graff LE. The Multidimensional taxonomy of individual resilience. Trauma Violence Abuse. 2020;23(2):660–675. doi:10.1177/1524838020967329
- Bhattarai M, Smedema SM, Maneewat K. An integrative review of factors associated with resilience post-spinal cord injury. Rehabil Counsel Bull. 2020;64(2):118–127. doi:10.1177/0034355220938429
- Martz E, Livneh H. Psychosocial adaptation to disability within the context of positive psychology: findings from the literature. J Occup Rehabil. 2016;26(1):4–12. doi:10.1007/s10926-015-9598-x
- Almedom AM, Glandon D. Resilience is not the absence of PTSD any more than health is the absence of disease. J Loss Trauma. 2007;12(2):127–143. doi:10.1080/15325020600945962
- Pulla V. What are strengths based practices all about? Papers in strengths based practice. Strengths Based Conference. ( 22-Nov-2012–24-Nov-2012). Kathmandu, Nepal: Allied Publishers Pty. Ltd.; 2012:51–68.
- Park N. Adversity, resilience, and thriving: a positive psychology perspective on research and practices. In: Trauma Therapy in Context: The Science and Craft of Evidence-Based Practice. Washington, DC, US: American Psychological Association; 2012:121–140.
- Kent M, Davis MC, Reich JW. The Resilience Handbook: Approaches to Stress and Trauma. Routledge; 2013.
- Fishbach A, Friedman RS, Kruglanski AW. Leading us not into temptation: momentary allurements elicit overriding goal activation. J Person Soc Psychol. 2003;84(2):296–309. doi:10.1037/0022-3514.84.2.296
- Brandtstädter J, Rothermund K. The life-course dynamics of goal pursuit and goal adjustment: a two-process framework. Dev Rev. 2002;22(1):117–150. doi:10.1006/drev.2001.0539
- Reed P, Antonova M. Interference with judgments of control and attentional shift as a result of prior exposure to controllable and uncontrollable feedback. Learn Motiv. 2007;38(3):229–241. doi:10.1016/j.lmot.2006.08.005
- Derryberry D. Attentional consequences of outcome-related motivational states: congruent, incongruent, and focusing effects. Motiv Emot. 1993;17(2):65–89. doi:10.1007/BF00995186
- Simpson G, Anderson M, Gopinath B, Cameron I. Impact of resilience on the longer-term wellbeing of family caregivers, service utilisation and client community participation. Research Online@Avondale; 2020.
- Kreutzer JS, Marwitz JH, Sima AP, et al. Efficacy of the resilience and adjustment intervention after traumatic brain injury: a randomized controlled trial. Brain Inj. 2018;32(8):963–971. doi:10.1080/02699052.2018.1468577
- Craig A, Guest R, Tran Y, Middleton J. Cognitive impairment and mood states after spinal cord injury. J Neurotrauma. 2017;34(6):1156–1163. doi:10.1089/neu.2016.4632
- Sandalic D, Craig A, Arora M, et al. A prospective cohort study investigating contributors to mild cognitive impairment in adults with spinal cord injury: study protocol. BMC Neurol. 2020;20(1):341. doi:10.1186/s12883-020-01899-7
- Wilmot CB, Cope DN, Hall KM, Acker M. Occult head injury: its incidence in spinal cord injury. Arch Phys Med Rehabil. 1985;66(4):227–231. doi:10.1016/0003-9993(85)90148-0
- Richards JS, Brown L, Hagglund K, Bua G, Reeder K. Spinal cord injury and concomitant traumatic brain injury. Results of a longitudinal investigation. Am J Phys Med Rehabil. 1988;67(5):211–216. doi:10.1097/00002060-198810000-00005
- Roth E, Davidoff G, Thomas P, et al. A controlled study of neuropsychological deficits in acute spinal cord injury patients. Paraplegia. 1989;27(6):480–489. doi:10.1038/sc.1989.75
- Chiaravalloti ND, Weber E, Wylie G, et al. Patterns of cognitive deficits in persons with spinal cord injury as compared with both age-matched and older individuals without spinal cord injury. J Spinal Cord Med. 2020;43(1):88–97. doi:10.1080/10790268.2018.1543103
- Molina-Gallego B, Gómez-Cantarino S, Ugarte-Gurrutxaga MI, et al. Neuropsychological study in patients with spinal cord injuries. Healthcare. 2021;9(3):3. doi:10.3390/healthcare9030241
- Molina B, Segura A, Serrano JP, et al. Cognitive performance of people with traumatic spinal cord injury: a cross-sectional study comparing people with subacute and chronic injuries. Spinal Cord. 2018;56(8):796–805. doi:10.1038/s41393-018-0076-0
- Ohry A, Shemesh Y, Rozin R. Are chronic spinal cord injured patients (SCIP) prone to premature aging? Med Hypotheses. 1983;11(4):467–469.
- Frontera JE, Mollett P. Aging with Spinal Cord Injury: an Update. Phys Med Rehabil Clin North Am. 2017;28(4):821–828. doi:10.1016/j.pmr.2017.06.013
- Wylie GR, Chiaravalloti ND, Weber E, et al. The neural mechanisms underlying processing speed deficits in individuals who have sustained a spinal cord injury: a pilot study. Brain Topogr. 2020;33(6):776–784. doi:10.1007/s10548-020-00798-x
- Cohen ML, Tulsky DS, Holdnack JA, et al. Cognition among community-dwelling individuals with spinal cord injury. Rehabil Psychol. 2017;62(4):425–434. doi:10.1037/rep0000140
- Lazzaro I, Tran Y, Wijesuriya N, Craig A. Central correlates of impaired information processing in people with spinal cord injury. J Clin Neurophysiol. 2013;30(1):1. doi:10.1097/WNP.0b013e31827edb0c
- Bugg JM, Zook NA, DeLosh EL, et al. Age differences in fluid intelligence: contributions of general slowing and frontal decline. Brain Cogn. 2006;62(1):9–16. doi:10.1016/j.bandc.2006.02.006
- Isingrini M, Vazou F. Relation between fluid intelligence and frontal lobe functioning in older adults. Int J Aging Hum Dev. 1997;45(2):99–109. doi:10.2190/WHWX-YNVB-079V-2L74
- Bors DA, Forrin B. Age, speed of information processing, recall, and fluid intelligence. Intelligence. 1995;20(3):229–248. doi:10.1016/0160-2896(95)90009-8
- Salthouse TA. The processing-speed theory of adult age differences in cognition. Psychol Rev. 1996;103(3):403–428. doi:10.1037/0033-295X.103.3.403
- Tucker-Drob EM. Neurocognitive functions and everyday functions change together in old age. Neuropsychol. 2011;25(3):368–377. doi:10.1037/a0022348
- Kennedy P, Rogers BA. Anxiety and depression after spinal cord injury: a longitudinal analysis. Arch Phys Med Rehabil. 2000;81(7):932–937. doi:10.1053/apmr.2000.5580
- van Diemen T, Crul T, van Nes I, et al. Associations between self-efficacy and secondary health conditions in people living with spinal cord injury: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2017;98(12):2566–2577. doi:10.1016/j.apmr.2017.03.024
- Craig A, Tran Y, Guest R, Middleton J. Trajectories of self-efficacy and depressed mood and their relationship in the first 12 months following spinal cord injury. Arch Phys Med Rehabil. 2019;100(3):441–447. doi:10.1016/j.apmr.2018.07.442
- Geyh S, Nick E, Stirnimann D, et al. Self-efficacy and self-esteem as predictors of participation in spinal cord injury—an ICF-based study. Spinal Cord. 2012;50(9):699–706. doi:10.1038/sc.2012.18
- Middleton J, Tran Y, Craig A. Relationship between quality of life and self-efficacy in persons with spinal cord injuries. Arch Phys Med Rehabil. 2007;88(12):1643–1648. doi:10.1016/j.apmr.2007.09.001
- van Leeuwen CMC, Kraaijeveld S, Lindeman E, Post MWM. Associations between psychological factors and quality of life ratings in persons with spinal cord injury: a systematic review. Spinal Cord. 2012;50(3):174–187. doi:10.1038/sc.2011.120
- Shin SR, Kim AL. Factors effect on quality of life of spinal cord injury patients. J Korean Acad Nurs. 2017;31(1):126–138. doi:10.4040/jkan.2001.31.1.126