Quality of life information and trust in physicians among families of children with life-limiting conditions

References

• HamiltonBEMininoAMMartinJAKochanekKDStrobinoDMGuyerBAnnual summary of vital statistics: 2005Pediatrics2007119234536017272625
   PubMed Web of Science ®Google Scholar
• HimelsteinBPHildenJMBoldtAMWeissmanDPediatric palliative careN Engl J Med2004350171752176215103002
   PubMed Web of Science ®Google Scholar
• DegnerLFDavisonBJSloanJAMuellerBDevelopment of a scale to measure information needs in cancer careJ Nurs Meas19986213715310028780
   PubMedGoogle Scholar
• VogelBAHelmesAWHasenburgAConcordance between patients’ desired and actual decision-making roles in breast cancer carePsychooncology200817218218917534866
   PubMed Web of Science ®Google Scholar
• DetmarSBMullerMJWeverLDSchornagelJHAaronsonNKThe patient-physician relationship. Patient-physician communication during outpatient palliative treatment visits: An observational studyJAMA2001285101351135711255393
   PubMed Web of Science ®Google Scholar
• KaplanRMQuality of life measurementKarolyPMeasurement Strategies in Health PsychologyNew York, NYJohn Wiley1985
   Google Scholar
• MallingerJBGriggsJJShieldsCGPatient-centered care and breast cancer survivors’ satisfaction with informationPatient Educ Couns200557334234915893218
   PubMed Web of Science ®Google Scholar
• van der MolenBRelating information needs to the cancer experience: 1. Information as a key coping strategyEur J Cancer Care199984238244
   PubMed Web of Science ®Google Scholar
• McCaughanEMcKennaHNever-ending making sense: Towards a substantive theory of the information-seeking behaviour of newly diagnosed cancer patientsJ Clin Nurs20071611209610417331090
   PubMed Web of Science ®Google Scholar
• MeyerECBurnsJPGriffithJLTruogRDParental perspectives on end-of-life care in the pediatric intensive care unitCrit Care Med200230122623111902266
   PubMed Web of Science ®Google Scholar
• KaasaSLogeJHQuality-of-life assessment in palliative careLancet Oncol20023317518211902505
   PubMed Web of Science ®Google Scholar
• HindsPSOakesLQuargnentiAAn international feasibility study of parental decision making in pediatric oncologyOncol Nurs Forum20002781233124311013904
   PubMedGoogle Scholar
• FiscellaKMeldrumSFranksPPatient trust: Is it related to patient-centered behavior of primary care physicians?Med Care200442111049105515586831
   PubMed Web of Science ®Google Scholar
• HallMADuganEZhengBMishraAKTrust in physicians and medical institutions: What is it, can it be measured, and does it matter?Milbank Q200179461363911789119
   PubMed Web of Science ®Google Scholar
• BlanchardCGLabrecqueMSRuckdeschelJCBlanchardEBInformation and decision-making preferences of hospitalized adult cancer patientsSoc Sci Med19882711113911453206248
   PubMed Web of Science ®Google Scholar
• CassilethBRZupkisRVSutton-SmithKMarchVInformation and participation preferences among cancer patientsAnn Intern Med19809268328367387025
   PubMed Web of Science ®Google Scholar
• DegnerLFSloanJADecision making during serious illness: What role do patients really want to play?J Clin Epidemiol19924599419501432023
   PubMed Web of Science ®Google Scholar
• HackTFDegnerLFDyckDGRelationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysisSoc Sci Med19943922792898066506
   PubMed Web of Science ®Google Scholar
• HalbertCHArmstrongKGandyOHJrShakerLRacial differences in trust in health care providersArch Intern Med2006166889690116636216
   PubMed Web of Science ®Google Scholar
• SahaSFreemanMToureJTippensKMWeeksCIbrahimSRacial and ethnic disparities in the VA health care system: A systematic reviewJ Gen Intern Med200823565467118301951
   PubMed Web of Science ®Google Scholar
• RajakumarKThomasSBMusaDAlmarioDGarzaMARacial differences in parents’ distrust of medicine and researchArch Pediatr Adolesc Med2009163210811419188641
   PubMed Web of Science ®Google Scholar
• LaVeistTANickersonKJBowieJVAttitudes about racism, medical mistrust, and satisfaction with care among African American and white cardiac patientsMed Care Res Rev200057Suppl 114616111092161
   PubMed Web of Science ®Google Scholar
• KnappCAMaddenVLCurtisCMPartners in care: Together for kids: Florida’s model of pediatric palliative careJ Palliat Med20081191212122019021484
   PubMed Web of Science ®Google Scholar
• AnarellaJRoohanPBalistreriEGestenFA survey of Medicaid recipients with asthma: Perceptions of self-management, access and careChest200412541359136715078746
   PubMed Web of Science ®Google Scholar
• DickAWBrachCAllisonRASCHIP’s impact in three states: How do the most vulnerable children fare?Health Aff (Millwood)2004235637515371371
   PubMed Web of Science ®Google Scholar
• Pyke-GrimmKADegnerLSmallAMuellerBPreferences for participation in treatment decision making and information needs of parents of children with cancer: A pilot studyJ Pediatr Oncol Nurs199916113249989013
   PubMedGoogle Scholar
• HallMACamachoFDuganEBalkrishnanRTrust in the medical profession: Conceptual and measurement issuesHealth Serv Res20023751419143912479504
   PubMed Web of Science ®Google Scholar
• CohenJStatistical Power Analysis for the Behavioral Sciences2nd edHillsdale, NJLawrence Erlbaum Associates1988
   Google Scholar
• ChaitchikSKreitlerSShakedSSchwartzIRosinRDoctor-patient communication in a cancer wardJ Cancer Educ19927141541571245
   PubMedGoogle Scholar
• GattellariMButowPNTattersallMHDunnSMMacLeodCAMisunderstanding in cancer patients: Why shoot the messenger?Ann Oncol1999101394610076720
   PubMed Web of Science ®Google Scholar
• PassikSDDuganWMcDonaldMVRosenfeldBTheobaldDEEdgertonSOncologists’ recognition of depression in their patients with cancerJ Clin Oncol1998164159416009552071
   PubMed Web of Science ®Google Scholar
• FallowfieldLRatcliffeDJenkinsVSaulJPsychiatric morbidity and its recognition by doctors in patients with cancerBr J Cancer20018481011101511308246
   PubMed Web of Science ®Google Scholar
• GarrettJMHarrisRPNorburnJKPatrickDLDanisMLife-sustaining treatments during terminal illness: Who wants what?J Gen Intern Med1993873613688410396
   PubMed Web of Science ®Google Scholar
• McKinleyEDGarrettJMEvansATDanisMDifferences in end-of-life decision making among black and white ambulatory cancer patientsJ Gen Intern Med199611116516569120650
   PubMed Web of Science ®Google Scholar
• GoodlinSJZhongZLynnJFactors associated with use of cardiopulmonary resuscitation in seriously ill hospitalized adultsJAMA1999282242333233910612321
   PubMed Web of Science ®Google Scholar
• TrueGPhippsEJBraitmanLEHarralsonTHarrisDTesterWTreatment preferences and advance care planning at end of life: The role of ethnicity and spiritual coping in cancer patientsAnn Behav Med200530217417916173914
   PubMed Web of Science ®Google Scholar
• ShrankWHKutnerJSRichardsonTMularskiRAFischerSKagawa-SingerMFocus group findings about the influence of culture on communication preferences in end-of-life careJ Gen Intern Med200520870370916050878
   PubMed Web of Science ®Google Scholar
• United States Department of Health and Human ServicesHealthy People 2010Washington, DCUS Dept. of Health and Human Services2000 Available at: http://www.healthypeople.gov/. Accessed on Jul 10, 2010.
   Google Scholar
• JohnsonRLRoterDPoweNRCooperLAPatient race/ethnicity and quality of patient-physician communication during medical visitsAm J Public Health200494122084209015569958
   PubMed Web of Science ®Google Scholar
• KaplanSHGandekBGreenfieldSRogersWWareJEPatient and visit characteristics related to physicians’ participatory decision-making style. Results from the Medical Outcomes StudyMed Care19953312117611877500658
   PubMed Web of Science ®Google Scholar
• Cooper-PatrickLGalloJJGonzalesJJRace, gender, and partnership in the patient-physician relationshipJAMA1999282658358910450723
   PubMed Web of Science ®Google Scholar
• Institute of Medicine Committee on Health LiteracyNielsen-BohlmanLPanzerAMKindigDAHealth Literacy: A Prescription to End ConfusionWashington, DCNational Academies Press2004
   Google Scholar
• ThomDHKravitzRLBellRAKrupatEAzariRPatient trust in the physician: Relationship to patient requestsFam Pract200219547648312356698
   PubMed Web of Science ®Google Scholar
• IresonCLSlavovaSSteltenkampCLScutchfieldFDBridging the care continuum: Patient information needs for specialist referralsBMC Health Serv Res2009916319754957
   PubMed Web of Science ®Google Scholar
• TremoladaMBonichiniSAltoeGPillonMCarliMWeisnerTSParental perceptions of health-related quality of life in children with leukemia in the second week after the diagnosis: A quantitative modelSupport Care Cancer2010313 [Epub ahead of print]
   Web of Science ®Google Scholar
• HummelinckAPollockKParents’ information needs about the treatment of their chronically ill child: A qualitative studyPatient Educ Couns200662222823416139981
   PubMed Web of Science ®Google Scholar
• RyanMFarrarSUsing conjoint analysis to elicit preferences for health careBMJ200032072481530153310834905
   PubMed Web of Science ®Google Scholar