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Review

Type 1 diabetes: addressing the transition from pediatric to adult-oriented health care

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Pages 31-40 | Published online: 13 Apr 2016

References

  • Pettitt D, Talton J, Dabelea D, et al; SEARCH for Diabetes in Youth Study Group. Prevalence of diabetes in U.S. youth in 2009: the SEARCH for Diabetes in Youth Study. Diabetes Care. 2014;37(2):402–408.
  • Patterson CC, Dahlquist GG, Gyurus E, et al; EURODIAB Study Group. Incidence trends for childhood type 1 diabetes in Europe during 1989-2003 and predicted new cases 2005-20: a multicentre prospective registration study. Lancet. 2009;373(9680):2027–2033.
  • Arnett J. Emerging adulthood: a theory of development from late teens through the twenties. Am Psychol. 2000;55(5):469–480.
  • Peters A, Laffel L; American Diabetes Association Transitions Working Group. Diabetes care for emerging adults: recommendations for transition from pediatric to adult diabetes care systems. Diabetes Care. 2011;34(11):2477–2485.
  • American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians Transitions Clinical Report Authoring Group. Clinical report – supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128(1):182–200.
  • Hynes L, Byrne M, Dinneen SF, McGuire BE, O’Donnell M, Mc Sharry J. Barriers and facilitators associated with attendance at hospital diabetes clinics among young adults (15-30 years) with type 1 diabetes mellitus: a systematic review. Pediatr Diabetes. Epub 2014 Aug 1.
  • Garvey KC, Wolpert HA, Laffel LM, Rhodes ET, Wolfsdorf JI, Finkelstein JA. Health care transition in young adults with type 1 diabetes: barriers to timely establishment of adult diabetes care. Endocr Pract. 2013;19(6):946–952.
  • Garvey KC, Finkelstein JA, Laffel LM, Ochoa V, Wolfsdorf JI, Rhodes ET. Transition experiences and health care utilization among young adults with type 1 diabetes. Patient Prefer Adherence. 2013;7:761–769.
  • Helgeson VS, Reynolds KA, Snyder PR, et al. Characterizing the transition from paediatric to adult care among emerging adults with type 1 diabetes. Diabet Med. 2013;30(5):610–615.
  • Miller K, Foster N, Beck R, et al; T1D Exchange Clinic Network. Current state of type 1 diabetes treatment in the U.S.: updated data from the T1D exchange clinic registry. Diabetes Care. 2015;38(6):971–978.
  • Petitti DB, Klingensmith GJ, Bell RA, et al; SEARCH for Diabetes in Youth Study Group. Glycemic control in youth with diabetes: the SEARCH for diabetes in Youth Study. J Pediatr. 2009;155(5):668–672.
  • Bryden K, Dunger D, Mayou R, Peveler RC, Neil HA. Poor prognosis of young adults with type 1 diabetes: a longitudinal study. Diabetes Care. 2003;26(4):1052–1057.
  • Rewers A, Chase H, Mackenzie T, et al. Predictors of acute complications in children with type 1 diabetes. JAMA. 2002;287(19):2511–2518.
  • Cengiz E, Xing D, Wong J, et al; T1D Exchange Clinic Network. Severe hypoglycemia and diabetic ketoacidosis among youth with type 1 diabetes in the T1D exchange clinic registry. Pediatr Diabetes. 2013;14(6):447–454.
  • Ly T, Anderson M, McNamara K, Davis EA, Jones TW. Neurocognitive outcomes in young adults with early-onset type 1 diabetes: a prospective follow-up study. Diabetes Care. 2011;34(10):2192–2197.
  • Rollo A, Salardi S, Ciavarella A, et al. Transition from pediatric to adult care. Eight years after the transition from pediatric to adult diabetes care: metabolic control, complications and associated diseases. J Endocrinol Invest. 2014;37(7):653–659.
  • Silverstein J, Klingensmith G, Copeland K, American Diabetes Association. Care of children and adolescents with type 1 diabetes: a statement of the American Diabetes Association. Diabetes Care. 2005;28(1):186–212.
  • Rohan J, Rausch J, Pendley J, et al. Identification and prediction of group-based glycemic control trajectories during the transition to adolescence. Health Psychol. 2014;33(10):1143–1152.
  • Clements M, Foster N, Maahs D, et al; T1D Exchange Clinic Network. Hemoglobin A1c (HbA1c) changes over time among adolescent and young adult participants in the T1D exchange clinic registry. Pediatr Diabetes. Epub 2015 Jul 8.
  • Chiang JL, Kirkman MS, Laffel LM, Peters AL; Type 1 Diabetes Sourcebook Authors. Type 1 diabetes through the life span: a position statement of the American Diabetes Association. Diabetes Care. 2014;37(7):2034–2054.
  • Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM; Society for Adolescent Medicine. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the society for adolescent medicine. J Adolesc Health. 2003;33(4):309–311.
  • Dovey-Pearce G, Hurrell R, May C, Walker C, Doherty Y. Young adults’ (16-25 years) suggestions for providing developmentally appropriate diabetes services: a qualitative study. Health Soc Care Community. 2005;13(5):409–419.
  • Pacaud D, Yale J, Stephure D, Trussell R, Davies H. Problems in transition from pediatric care to adult diabetes care for individuals with diabetes. Can J Diabetes. 2005;29(1):13–18.
  • Garvey K, Telo G, Needleman J, Forbes P, Finkelstein J, Laffel L. Health care transition in young adults with type 1 diabetes: perspectives of adult endocrinologists in the U.S. Diabetes Care. 2016;39(2):190–197.
  • Geddes J, McGeough E, Frier B. Young adults with type 1 diabetes in tertiary education: do students receive adequate specialist care? Diabet Med. 2005;23:1155–1157.
  • Findley MK, Cha E, Wong E, Faulkner MS. A systematic review of transitional care for emerging adult with diabetes. J Pediatr Nurs. 2015;30(5):e47–e62.
  • Visentin K, Koch T, Kralik D. Adolescents with type 1 diabetes: transition between diabetes services. J Clin Nurs. 2006;15(6):761–769.
  • Schwartz LA, Tuchman LK, Hobbie WL, Ginsberg JP. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child Care Health Dev. 2011;37(6):883–895.
  • Sawicki GS, Lukens-Bull K, Yin X, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ – Transition Readiness Assessment Questionnaire. J Pediatr Psychol. 2011;36(2):160–171.
  • Ferris M, Cohen S, Haberman C, et al. Self-management and transition readiness assessment: development, reliability, and factor structure of the STARx questionnaire. J Pediatr Nurs. 2015;30(5):691–699.
  • Schwartz LA, Daniel LC, Brumley LD, Barakat LP, Wesley KM, Tuchman LK. Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development. J Pediatr Psychol. 2014;39(6):588–601.
  • van Staa A, Sattoe J, Strating M. Experiences with and outcomes of two interventions to maximize engagement of chronically ill adolescents during hospital consultations: a mixed methods study. J Pediatr Nurs. 2015;30(5):757–775.
  • McManus M, White P, Pirtle R, Hancock C, Ablan M, Corona-Parra R. Incorporating the six core elements of health care transition into a medicaid managed care plan: lessons learned from a pilot project. J Pediatr Nurs. 2015;30(5):700–713.
  • Lotstein DS, Seid M, Klingensmith G, et al; SEARCH for Diabetes in Youth Study. Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence. Pediatrics. 2013;131(4):e1062–e1070.
  • Van Walleghem N, MacDonald CA, Dean HJ. Evaluation of a systems navigator model for transition from pediatric to adult care for young adults with type 1 diabetes. Diabetes Care. 2008;31(8):1529–1530.
  • Holmes-Walker DJ, Llewellyn AC, Farrell K. A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25 years. Diabet Med. 2007;24(7):764–769.
  • de Beaufort C, Jarosz-Chobot P, Frank M, de Bart J, Deja G. Transition from pediatric to adult diabetes care: smooth or slippery? Pediatr Diabetes. 2010;11(1):24–27.
  • Lyons SK, Becker DJ, Helgeson VS. Transfer from pediatric to adult health care: effects on diabetes outcomes. Pediatr Diabetes. 2014;15(1):10–17.
  • Sharma N, O’Hare K, Antonelli RC, Sawicki GS. Transition care: future directions in education, health policy, and outcomes rsearch. Acad Pediatr. 2014;14(2):120–127.
  • Lyons S, Helgeson V, Witchel S, Becker DJ, Korytkowski MT. Physicians’ self-perceptions of care for emerging adults with type 1 diabetes. Endocr Pract. 2015;21(8):903–909.
  • Hilliard ME, Perlus JG, Clark LM, et al. Perspectives from before and after the pediatric to adult care transition: a mixed-methods study in type 1 diabetes. Diabetes Care. 2014;37(2):346–354.
  • Garvey KC, Wolpert HA, Rhodes ET, et al. Health care transition in patients with type 1 diabetes: young adult experiences and relationship to glycemic control. Diabetes Care. 2012;35(8):1716–1722.
  • Pyatak EA, Sequeira PA, Whittemore R, Vigen CP, Peters AL, Weigensberg MJ. Challenges contributing to disrupted transition from paediatric to adult diabetes care in young adults with type 1 diabetes. Diabet Med. 2014;31(12):1615–1624.
  • Balfe M, Doyle F, Smith D, et al. What’s distressing about having type 1 diabetes? A qualitative study of young adults’ perspectives. BMC Endocr Disord. 2013;13(1):25.
  • Balfe M, Brugha R, Smith D, Sreenan S, Doyle F, Conroy R. Considering quality of care for young adults with diabetes in Ireland. BMC Health Serv Res. 2013;13:448.
  • Polfuss M, Babler E, Bush L, Sawin K. Family perspectives of components of a diabetes transition program. J Pediatr Nurs. 2015;30(5):748–756.
  • Garvey K, Beste M, Luff D, Atakov-Castillo A, Wolpert HA, Ritholz MD. Experiences of health care transition voiced by young adults with type 1 diabetes: a qualitative study. Adolesc Health Med Ther. 2014;5:191–198.
  • Ritholz MD, Wolpert H, Beste M, Atakov-Castillo A, Luff D, Garvey KC. Patient-provider relationships across the transition from pediatric to adult diabetes care: a qualitative study. Diabetes Educ. 2014;40(1):40–47.
  • Markowitz JT, Laffel LM. Transitions in care: support group for young adults with type 1 diabetes. Diabet Med. 2012;29(4):522–525.
  • Duke D, Raymond J, Shimomaeda L, Harris MA; on behalf of the Harold Schnitzer Diabetes Health Center Transition Committee. Recommendations for transition from pediatric to adult diabetes care: patients’ perspectives. Diabetes Manage. 2013;3(4):297–304.
  • Sheehan A, While A, Coyne I. The experiences and impact of transition from child to adult healthcare services for young people with type 1 diabetes: a systematic review. Diabet Med. 2015;32(4):440–458.
  • Mistry B, Van Blyderveen S, Punthakee Z, Grant C. Condition-related predictors of successful transition from paediatric to adult care among adolescents with type 1 diabetes. Diabet Med. 2015;32(7):881–885.
  • Nakhla M, Daneman D, To T, Paradis G, Guttmann A. Transition to adult care for youths with diabetes mellitus: findings from a universal health care system. Pediatrics. 2009;124(6):e1134–e1141.
  • Pierce J, Wysocki T. Topical review: advancing research on the transition to adult care for type 1 diabetes. J Pediatr Psychol. 2015;40(10):1041–1047.
  • Monaghan M, Helgeson V, Wiebe D. Type 1 diabetes in young adulthood. Curr Diabetes Rev. 2015;11(4):239–250.
  • Sequeira P, Pyatak E, Weigensberg M, et al. Let’s empower and prepare (LEAP): evaluation of a structured transition program for young adults with type 1 diabetes. Diabetes Care. 2015;38(8):1412–1419.
  • Egan E, Corrigan J, Shurpin K. Building the bridge from pediatric to adult diabetes care: making the connection. Diabetes Educ. 2015;41(4):432–443.
  • Lemly DC, Lawlor K, Scherer EA, Kelemen S, Weitzman ER. College health service capacity to support youth with chronic medical conditions. Pediatrics. 2014;134(5):885–891.
  • Nieboer A, Cramm J, Sonneveld H, Roebroeck ME, van Staa A, Strating MM. Reducing bottlenecks: professionals’ and adolescents’ experiences with transitional care delivery. BMC Health Serv Res. 2014;14:47.
  • Cadario F, Prodam F, Bellone S, et al. Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol. 2009;71(3):346–350.
  • Busse F, Hiermann P, Galler A, et al. Evaluation of patients’ opinion and metabolic control after tranfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care. Horm Res. 2007;67:132–138.
  • Kipps S, Bahu T, Ong K, et al. Current methods of transfer of young people with type 1 diabetes to adult services. Diabet Med. 2002;19:649–654.
  • Levy-Shraga Y, Elisha N, Ben-Ami M, et al. Glycemic control and clinic attendance of emerging adults with type 1 diabetes at a transition care clinic. Acta Diabetol. 2016;53:27–33.
  • Steinbeck K, Shrewsbury V, Harvey V, et al. A pilot randomized controlled trial of a post-discharge program to support emerging adults with type 1 diabetes mellitus transition from pediatric to adult care. Pediatr Diabetes. 2014;16(8):634–639.
  • Huang JS, Terrones L, Tompane T, et al. Preparing adolescents with chronic disease for transition to adult care: a technology program. Pediatrics. 2014;133(6):e1639–e1646.
  • McManus M, White P, Barbour A, et al. Pediatric to adult transition: a quality improvement model for primary care. J Adolesc Health. 2015;56:73–78.
  • Monaghan M. The Affordable Care Act and implications for young adult health. Transl Behav Med. 2014;4(2):170–174.
  • Bridgett M, Abrahamson G, Ho J. Transition, it’s more than just an event: supporting young people with type 1 diabetes. J Pediatr Nurs. 2015;30(5):e11–e14.