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Short Communication

Recruitment of Participants for Dementia Research: Interprofessional Perspectives From Primary care-based Memory Clinics

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Pages 117-127 | Received 24 Nov 2021, Accepted 03 Mar 2022, Published online: 04 Apr 2022

References

  • Fargo KN , CarrilloMC, WeinerMW, PotterWZ, KhachaturianZ. The crisis in recruitment for clinical trials in Alzheimer’s and dementia: an action plan for solutions. Alzheimers Dement., 12(11), 1113–1115 (2016).
  • Dube JB , LinT, BestS, TruemnerJ, SargeantP, BorrieMJ. The case-finding study: a novel community-based research recruitment approach for engaging participants with early cognitive decline. Alzheimers Dement. (NY), 5, 501–507 (2019).
  • Watson JL , RyanL, SilverbergN, CahanV, BernardMA. Obstacles and opportunities in Alzheimer’s clinical trial recruitment. Health Aff. (Millwood), 33(4), 574–579 (2014).
  • Carr SA , DavisR, SpencerDet al. Comparison of recruitment efforts targeted at primary care physicians versus the community at large for participation in Alzheimer disease clinical trials. Alzheimer Dis. Assoc. Disord., 24(2), 165–170 (2010).
  • Forsat ND , PalmowskiA, PalmowskiY, BoersM, ButtgereitF. Recruitment and retention of older people in clinical research: a systematic literature review. J. Am. Geriatr. Soc., 68(12), 2955–2963 (2020).
  • Carr H , DeLusignan S, LiyanageH, LiawST, TerryA, RafiI. Defining dimensions of research readiness: a conceptual model for primary care research networks. BMC Fam. Pract., 15, 169 (2014).
  • Pimlott NJG , SiegelK, PersaudMet al. Management of dementia by family physicians in academic settings. Can. Fam. Physician, 52, 1108–1109 (2006).
  • Lee L , HillierLM, StoleePet al. Enhancing dementia care: a primary care-based memory clinic. J. Am. Geriatr. Soc., 58(11), 2197–2204 (2010).
  • Lee L , HillierLM, GreggS. Partnerships for improving dementia care in primary care: extending access to primary care-based memory clinics in Ontario, Canada. Health Soc. Care Community, 27(6), 1574–1585 (2019).
  • Lee L , HillierLM, HeckmanGet al. Primary care-based memory clinics: expanding capacity for dementia care. Can. J. Aging, 33(3), 307–319 (2014).
  • Lee L , HillierLM, MolnarF, BorrieMJ. Primary care collaborative memory clinics: building capacity for optimized dementia care. Healthc Q, 19(4), 55–62 (2017).
  • Lee L , MolnarF, HillierLM, PatelT, SlonimK. Multispecialty interprofessional team memory clinics: enhancing collaborative practice and health care providers’ experience of dementia care. Can. J. Aging doi:10.1017/s07149808210000521–14 (2021).
  • Lee L , HillierLM, HarveyD. Integrating community services into primary care: improving the quality of dementia care. Neurodegener. Dis. Manag., 4(1), 11–21 (2014).
  • Lee L , LuSK, HillierLM, GreggS, KaufmanCarlin G. Improving access to community support and services for persons living with dementia: integration of home care services into primary care-based memory clinics. Geriatr. Gerontol. Int., 19(1), 81–82 (2019).
  • Lee L , HillierLM, PatelT, MolnarF, BorrieM, ClarkeJA. Delaying transition into long-term care for persons living with dementia: multispecialty interprofessional team memory clinics. J. Am. Med. Dir. Assoc., 21(12), 2014–2015.e2011 (2020).
  • Health Innovations Group . Provincial evaluation of primary care collaborative memory clinics (2019). https://mintmemory.ca/uploads/files/Final_PCCMC-Provincial-Evaluation-of-Primary-Care-Collaborative-Memory-Clinics-Feb-20-2019.pdf
  • Borrie M , CooperT, BasuM, KayK, ProrokJC, SeitzD. Ontario geriatric specialist physician resources 2018. Can. Geriatr. J., 23(3), 219–227 (2020).
  • Lee L , HillierLM, MckinnonWilson Jet al. Effect of primary care-based memory clinics on referrals to and wait-time for specialized geriatric services. J. Am. Geriatr. Soc., 66(3), 631–632 (2018).
  • Taft T , WeirC, KramerH, FacelliJC. Primary care perspectives on implementation of clinical trial recruitment. J. Clin. Transl. Sci., 4(1), 61–68 (2020).
  • Al-Rossais AA , SayeedS, KhanMS, JaberAaB, Al-QahtaniMA, FardanAB. Previous involvement in research and knowledge regarding basic research methods among doctors working at primary care in central region, Saudi Arabia. Mater. Sociomed., 32(4), 263–266 (2020).
  • Ulrich CM , ZhouQ, RatcliffeSJ, YeL, GradyC, Watkins-BrunerD. Nurse practitioners’ attitudes about cancer clinical trials and willingness to recommend research participation. Contemp. Clin. Trials, 33(1), 76–84 (2012).
  • Awaisu U , AlsalimyN. Pharmacists’ involvement in and attitudes toward pharmacy practice research: a systematic review of the literature. Res. Social Adm. Pharm., 11(6), 725–748 (2015).
  • Shepard A , SteelE, TaylorA, MackayWG, HagenS. Patient and community nurse perspectives on recruitment to a randomized controlled trial of urinary catheter washout solutions. Nurs. Open, 6(3), 907–914 (2019).
  • Barclay S , MoranE, BoaseSet al. Primary palliative care research: opportunities and challenges. BMJ Support Palliat. Care, 9(4), 468–472 (2019).
  • Lee L , HillierLM, WestonWWet al. “Booster Days”: A neducational initiative to develop a community of practice of primary care collaborative memory clinics. Gerontol. Geriatr., 41(1), 4–19 (2020).
  • Ho GW . Examining perceptions and attitudes. West. J. Nurs. Res., 39(5), 674–689 (2017).
  • Sandelowski M . What’s in a name? Qualitative description revisited. Res. Nurs. Health, 31(1), 77–84 (2010).
  • Hsieh HF , ShannonSE. ‘Three approaches to qualitative content analysis. Qual. Health Res., 15(9), 1277-1288(2005).
  • Chen SY , FengZ, YiX. A general introduction to adjustment for multiple comparisons. J. Thorac. Dis., 9(6), 1725–1729 (2017).
  • Benson C , FrizA, MullenS, BlockL, Gilmore-BykovskyiA. Ethical and methodological considerations for evaluating participant views on Alzheimer’s and dementia research. J. Empir. Res. Hum. Res. Ethics. 16(1-2), 88–104 (2021).
  • Flythe JE , NarendraJH, DoroughAet al. Perspectives on research participation and facilitation among dialysis patients, clinic personnel, and medical providers: a focus group study. Am. J. Kidney Dis., 72(1), 93–103 (2018).
  • Galvin JE , MeuserTM, BoiseL, ConnellCM. Predictors of physician referral for patient recruitment to Alzheimer disease clinical trials.. Alzheimer Dis. Assoc. Disord., 23(4), 352–356 (2009).
  • Mason V , ShawA, NilesNet al. GPs’ experiences of primary care mental health research: a qualitative study of the barriers to recruitment. Fam. Practice, 24(5), 518–525 (2007).
  • Farnbach S , GeeG, EadesAMet al. ‘We’re here to listen and help them as well’: a qualitative study of staff and Indigenous patient perceptions about participating in social and emotional wellbeing research at primary healthcare services. BMC Psychiatry, 19(1), 294 (2019).
  • Friz AM , BensonC, MullenS, BlockL, Gilmore-BykovskyiA. Tailoring research recruitment for acute care settings: recommendations from people with dementia and their caregivers. Alzheimer Dis. Assoc. Disord., 35(3), 191–199 (2021).
  • Lloyd T , PhillipsBR, AberRC. Factors that influence doctors’ participation in clinical research. Med. Educ., 38(8), 848–851 (2004).
  • Jamieson LM , ParadiesYC, EadesSet al. Ten principles relevant to health research among Indigenous Australian populations. Med. J. Aust., 197(1), 16–18 (2012).
  • Park L , KouhanimC, LeeSet al. Implementing a memory clinic model to facilitate recruitment into early phase clinical trials for mild cognitive impairment and Alzheimer’s disease. J. Prev. Alzheimers Dis., 6(2), 135–138 (2019).
  • Guillemin M , McdougallR, MartinD, HallowellN, BrookesA, GillamL. Primary care physicians’ views about gatekeeping in clinical research recruitment: a qualitative study. AJOB Empir. Bioeth., 8(2), 99–105 (2017).

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